FMS-HELP.com

A Christian-based, compassionate, and informative site for people with Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.)
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CONTENTS (listed alphabetically under category):
AWARENESS
AWARENESS - letter I wrote to Congress for Fibromyalgia Awareness Day -
May 12, 2006
MILLION LETTER CAMPAIGN - THE
PROJECT - thanks to all
who participated on May 1, 2005
MILLION LETTER CAMPAIGN - UPDATE - responses we
received
NEUROENDOCRINEIMMUNE DISORDERS - tremendous description of what it's like to
live with a neuro-endocrine-immune illness
STIGMA OF HAVING FIBROMYALGIA - negative perceptions our society has about
fibromyalgia sufferers and how we can create more awareness
T-SHIRTS THAT EXPLAIN FIBROMYALGIA - Candy's T-shirts inform the public
BRAIN
BRAIN BASED TREATMENT - Dr. Boydston is a chiropractic
neurologist with a unique protocol for helping fibromyalgia
patients
BODY CLOCK - gene mutation speeds up body clock, interfering with sleep
and circadian rhythm
BRAIN FUNCTIONING IN REVERSE - I can relate!
CEREBRAL ATROPHY &
CFIDS - this bad
news could be good news, since it proves we aren't malingerers or
hypochondriacs HIPPOCAMPUS & FMS - Recent Egyptian research study shows
that dysfunction in the hippocampus area of the brain may explain our strange
FMS symptoms!
HYPOTHALAMUS GLAND &
FMS/CFIDS - my very smart sister-in-law with a Ph.D. in virology may have
been right 15 years ago
DISABILITY
DISABILITY
FOR FMS/CFIDS - I have not filed for disability, but many must do so in
order to survive - here are some tips from those who have been
successful
DOCTORS
DOCTOR'S DISBELIEF CAUSES DEATH YOUNG
WOMAN WITH CFS/ME - brace yourself for this disturbing video (news report)
DOCTORS - GOOD AND
BAD - comforting if you've had a bad experience
with a doctor
DRUGS
DRUG INTERACTIONS - CHECK YOUR MEDS
HERE - good idea!
DRUGS BEING TESTED ON HUMANS - What will the consent forms
disclose about the risks involved?
DRUGS THAT ARE
DANGEROUS - beware
MY MEDS - meds that help
me EMOTIONS CHRISTMAS BLUES - depressed during the
holidays?
NOT THE WAY YOU PLANNED IT - FMS/CFIDS has a way of ruining our
lives, or at least how we thought it would turn out
STRESS MANAGEMENT - "Help Me - I'm Stressed!" by Joyce Meyer
is a great book about preventing anxiety and stress - (stress is a
fibromite's worst enemy!)
EXPLAINING
FMS/CFIDS
FIBROWHEEL - a great way to explain fibromyalgia/chronic
fatigue syndrome to people who don't have it
IMAGINE (what it's like having
fibromyalgia) - for
those who don't have FMS
INTERVIEW WITH DOMINIE (BellaOnline, the Voice of
Women) - my early struggles with
FMS and the
misunderstandings and losses I experienced
LOSSES WE EXPERIENCE WITH THIS
ILLNESS - here is one
woman's poignant (yet typical) FMS/CFIDS story called "I Have Been
Robbed"
MY NAME IS FIBROMYALGIA - an easy way to explain FMS to friends and family OPEN LETTER TO NORMALS - explains to healthy people what it's like to
live with FMS/CFIDS on a daily basis
POEMS ABOUT FIBROMYALGIA - contributed by creative readers of my
site
SKEPTICS - dealing with people who are skeptical of
fibromyalgia or say it's "all in your head"
SPOON THEORY - helps explain chronic illness to healthy
people
THIEF OF MANY LIVES - great article by Kathleen
Houghton
TRYING HARDER (and why it doesn't work for CFS) - a compassionate
article
HELPFUL TIPS 100 TIPS FOR COPING WITH FIBROMYALGIA &
INSOMNIA - things I learned from dealing with FMS
since 1982
EXCITOTOXINS &
FIBROMYALGIA - avoid aspartame, Nutrasweet, MSG,
etc.
MORE TIPS FOR COPING WITH FIBROMYALGIA - a most helpful list
REMEDIES FOR FMS/CFIDS (find them or rate
them) - all of us "guinea pigs" need to speak up -
we have a wealth of experience to share
SPLENDA & FIBROMYALGIA - tastes good, but is it good for
you?
WHAT I USE - list of things that help me greatly -
without these, I would not be able to work
IMMUNE
SYSTEM
ENERGY GONE - "chronic fatigue is not a psychiatric
illness, but a nasty mix of immunological, neurological, and hormonal
abnormalities"
IMMUNE SYSTEM - 80% of our immune system is located in the intestines
("gut brain") - people with immune or autoimmune disorders can benefit from an
innovative biotech powder INSOMNIA (SLEEP
DISORDER) INSOMNIA STORY - I have had a sleep disorder
for 40+ years
SLEEP IDEAS - things I've tried for sleep during my decades of
insomnia
SLEEP MEDS THAT HELP ME - my doctor helped me get
on a regimen of meds that helps me get restorative sleep nearly every
night
MEDICAL
INFORMATION
100 SYMPTOMS OF FIBROMYALGIA - do you have these?
ADRENAL
INSUFFICIENCY -
patients are overexcited when they should rest and sleep, but tired and weak
when they need to function.
ANTIBIOTICS - overuse of antibiotics can cause yeast
overgrowth and FMS/CFIDS symptoms
BLADDER
PROBLEMS -
suggestions I received from readers about irritable bladder and urinary
frequency
CAUSE OF CFS - virologist disovers cause of CFS in the
central nervous system after 20 years of research
CAUSES OF FIBROMYALGIA - there are many theories about what
causes this baffling and debilitating illness
CHRONIC FATIGUE
STORY - my CFIDS began after a virus in
1987
COLDS & SORE THROATS - can dampness cause people
with CFIDS to catch viruses that affect the respiratory
system?
COLDS SORES - some things I've used for
cold sores
DEFINITION OF FIBROMYALGIA - "a change in brain chemistry
from distress in the central nervous system"
FIBROMYALGIA STORY - my FMS experience may be similar to
yours - I think I have a "classic" case!
GENETICS - chronic fatigue syndrome is caused by
mutated genes in the brain, according to the CDC study, reported by the L.A.
Times
GULF WAR SYNDROME - similar to FMS/CFIDS
IRRITABLE BOWEL SYNDROME - many people with FMS have
IBS too
LAB TEST FOR FIBROMYALGIA - finally?
MITOCHONDRIA DYSFUNCTION - FMS & CFIDS are complex diseases
that involve multi-system disturbances and abnormalities
POLIO & CFS - is CFS caused by the polio
vaccine?
QUESTIONNAIRE FOR FMS/CFIDS - risk factors and symptom
checklist
REVIEW OF FMS-HELP.COM (BellaOnline, the Voice of Women)
- "FMS-HELP.com provides inspiration, information,
understanding, support and encouragement"
MEN WITH
FIBRO
MEN WITH FIBROMYALGIA and/or CHRONIC FATIGUE
SYNDROME - an "equal opportunity" illness
MOLD & SICK BUILDINGS
MOBILE HOMES - comments from readers about formaldehyde and mold in
manufactured housing MOLD - I worked in a "sick building" and became desperately
ill
NERVOUS SYSTEM
AUTONOMIC NERVOUS SYSTEM - dopamine, fibromyalgia and the autonomic
nervous system
CENTRAL NERVIOUS SYSTEM ABNORMALITY &
FIBROMYALGIA - this explains the strange symptoms
DYSAUTONOMIA - autonomic nervous system dysfunction and fibromyalgia
- fascinating article
MYALGIC ENCEPHALOMYELITIS (M.E./CFIDS)
-
damage to the central nervous system (brain) which results in dysfunctions and
damage to many of the body’s vital systems and a loss of normal internal
homeostasis SPINAL CORD FLUID - CFS patients have 16 proteins that healthy individuals do not
- the CFS problem lies in the central nervvous system
NEWSLETTER
NEWSLETTERS - how to subscribe to
Dom's weekly newsletters - you will not feel alone with FMS/CFIDS/M.E.
after reading even one of these warm, encouraging and informative
newsletters!
OCCUPATIONS
OCCUPATIONS & FIBRO - here's what my newsletter
readers were doing when they got FMS/CFIDS
PAIN
MISERY INDEX - "CFS has one of the highest morbidity rates (degrees of
suffering) of any illness, rivaling the physical misery of advanced cardiac
disease and cancer"
PAIN RELIEF IDEAS - I endured agonizing pain during the first
14 years of my FMS. Here are some things that helped
me.
PAIN SCALE FOR FIBROMYALGIA - very helpful in
explaining what you
feel
PERSONAL
BIBLE - I
love the King James Version of the Bible - here are some great
resources
BIBLE COLORING METHOD - this is a FUN and COLORFUL way to study the Bible, even when
fibro-fogged!
CHINESE CLUB - a friendship club we started in Clay County - this was a
bright spot in my life!
CHURCH - our
loving church family is a bright spot in my life
COINCIDENCES - some amazing things that happened to me recently
CHRISTMAS CD - Dominie plays 20 Christmas carols using beautiful instrumental
sounds
MUSIC STUDENTS - I
really enjoy teaching piano and guitar to my wonderful students!
SALVATION TESTIMONY - I was "Religious but Lost" for 36 years!
TRIBUTE TO MY LOVING DAD - my father went home to be with the Lord on January 28,
2005 RELATIONSHIPS
MARITAL HARMONY - an emergency marriage manual
for women in difficult marriages
MISUNDERSTANDING CAUSED BY FIBROMYALGIA &
CHRONIC FATIGUE SYNDROME - People can't see our invisible illness, so they find it hard
to believe. We don't LOOK sick!
RELATIONSHIPS & FIBROMYALGIA - chronic illness strains the
best of marriages - here are some suggestions for family llife while suffering
with FMS/CFIDS
SUPPLEMENTS
ANTIOXIDANTS - these help oxygen circulate in the brain
and cells more efficiently
ESSENTIAL OILS - these plant extracts affect
the limbic portion of the brain and help relieve my debilitating fatigue and
fibro fog
LIST OF THINGS THAT HELP ME - so far there is no "cure" - just ways to
"manage" symptoms
SUPPLEMENTS - supplements I have found over the years that help me cope
better
TEENS
CHILDREN & TEENS WITH
FMS/CFIDS - younger people now have FMS/CFIDS
VIRUSES, MYCOPLASMAS &
INFECTIONS
AIDS & CFIDS - is there a link between the CFIDS epidemic
and AIDS??
ANIMAL VIRUS MAY CAUSE CFIDS - 96% of blood samples and 91% of spinal fluid
tested positively for Cryptovirus specific antibodies in these CFS patients
MYCOPLASMAS - are we infected???
STEALTH VIRUSES - CFIDS symptoms are the result of
viral-induced organic brain damage
VIROLOGIST - virologist discovers cause of CFS in the central nervous system
after 20 years of research
YUPPIE FLU? - "Drained by the Brain" - excellent article about CFS from
Australia |
Dominie Soo Bush
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