A compassionate, Christian-based site for people with Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.)
TOPICS (listed alphabetically)
AWARENESS - letter I wrote to Congress for Fibromyalgia Awareness Day
MILLION LETTER CAMPAIGN - THE PROJECT - thanks to all who participated
MILLION LETTER CAMPAIGN - UPDATE - responses we received
NEUROENDOCRINEIMMUNE DISORDERS - tremendous description of what it's like to live with a neuro-endocrine-immune illness
STIGMA OF HAVING FIBROMYALGIA - negative perceptions our society has about fibromyalgia sufferers and how we can create more awareness
T-SHIRTS THAT EXPLAIN FIBROMYALGIA - Candy's T-shirts inform the public
BRAIN BASED TREATMENT - Dr. Boydston is a chiropractic neurologist with a unique protocol for helping fibromyalgia patients
BODY CLOCK - gene mutation speeds up body clock, interfering with sleep and circadian rhythm
BRAIN FUNCTIONING IN REVERSE - I can relate!
CEREBRAL ATROPHY & CFIDS - this bad news could be good news, since it proves we aren't malingerers or hypochondriacs
HIPPOCAMPUS & FMS - Recent Egyptian research study shows that dysfunction in the hippocampus area of the brain may explain our strange FMS symptoms!
HYPOTHALAMUS GLAND & FMS/CFIDS - my very smart sister-in-law with a Ph.D. in virology may have been right 15 years ago
DISABILITY FOR FMS/CFIDS - I have not filed for disability, but many must do so in order to survive - here are some tips from those who have been successful
DOCTOR'S DISBELIEF CAUSES DEATH YOUNG WOMAN WITH CFS/ME - brace yourself for this disturbing video (news report)
DOCTORS - GOOD AND BAD - comforting if you've had a bad experience with a doctor
CHRISTMAS BLUES - depressed during the holidays?
DEBUNKING THE "LAW OF ATTRACTION" - "new age" philosophy is running rampant in the holistic health field
NOT THE WAY YOU PLANNED IT - FMS/CFIDS has a way of changing our lives
STRESS MANAGEMENT - "Help Me - I'm Stressed!" by Joyce Meyer is a great book about preventing anxiety and stress - (stress is a fibromite's worst enemy!)
SUICIDAL FEELINGS - biochemical depression and fibromyalgia
FIBROWHEEL - a great way to explain fibromyalgia/chronic fatigue syndrome to people who don't have it
IMAGINE (what it's like having fibromyalgia) - for those who don't have FMS
INTERVIEW WITH DOMINIE (BellaOnline, the Voice of Women) - my early struggles with FMS and the misunderstandings and losses I experienced
LOSSES WE EXPERIENCE WITH THIS ILLNESS - here is one woman's poignant (yet typical) FMS/CFIDS story called "I Have Been Robbed"
MY NAME IS FIBROMYALGIA - an easy way to explain FMS to friends and family
OPEN LETTER TO NORMALS - explains to healthy people what it's like to live with FMS/CFIDS on a daily basis
POEMS ABOUT FIBROMYALGIA - contributed by creative readers of my site
SKEPTICS - dealing with people who are skeptical of fibromyalgia or say it's "all in your head"
SPOON THEORY - helps explain chronic illness to healthy people
THIEF OF MANY LIVES - great article by Kathleen Houghton
TRYING HARDER (and why it doesn't work for CFS) - a compassionate article
100 TIPS FOR COPING WITH FIBROMYALGIA & INSOMNIA - things I learned from dealing with FMS since 1982
EXCITOTOXINS & FIBROMYALGIA - avoid aspartame, Nutrasweet, MSG, etc.
MORE TIPS FOR COPING WITH FIBROMYALGIA - a most helpful list
REMEDIES FOR FMS/CFIDS (find them or rate them) - all of us "guinea pigs" need to speak up - we have a wealth of experience to share
SPLENDA & FIBROMYALGIA - tastes good, but is it good for you?
WHAT I USE - list of things that help me greatly - without these, I would not be able to work
ENERGY GONE - "chronic fatigue is not a psychiatric illness, but a nasty mix of immunological, neurological, and hormonal abnormalities"
IMMUNE SYSTEM - 80% of our immune system is located in the intestines ("gut brain") - people with immune or autoimmune disorders can benefit from an innovative biotech powder
INSOMNIA (SLEEP DISORDER)
INSOMNIA STORY - I have had a sleep disorder for 40+ years
SLEEP IDEAS - things I've tried for sleep during my decades of insomnia
SLEEP MEDS THAT HELP ME - my doctor helped me get on a regimen of meds that helps me get restorative sleep nearly every night
100 SYMPTOMS OF FIBROMYALGIA - do you have these?
ADRENAL INSUFFICIENCY - patients are overexcited when they should rest and sleep, but tired and weak when they need to function.
ANTIBIOTICS - overuse of antibiotics can cause yeast overgrowth and FMS/CFIDS symptoms
BLADDER PROBLEMS - suggestions I received from readers about irritable bladder and urinary frequency
CAUSE OF CFS - virologist disovers cause of CFS in the central nervous system after 20 years of research
CAUSES OF FIBROMYALGIA - there are many theories about what causes this baffling and debilitating illness
CHRONIC FATIGUE STORY - my CFIDS began after a virus in 1987
COLDS & SORE THROATS - can dampness cause people with CFIDS to catch viruses that affect the respiratory system?
COLDS SORES - some things I've used for cold sores
DEFINITION OF FIBROMYALGIA - "a change in brain chemistry from distress in the central nervous system"
FIBROMYALGIA STORY - my FMS experience may be similar to yours - I think I have a "classic" case!
GENETICS - chronic fatigue syndrome is caused by mutated genes in the brain, according to the CDC study, reported by the L.A. Times
GULF WAR SYNDROME - similar to FMS/CFIDS
IRRITABLE BOWEL SYNDROME - many people with FMS have IBS too
LAB TEST FOR FIBROMYALGIA - finally?
MITOCHONDRIA DYSFUNCTION - FMS & CFIDS are complex diseases that involve multi-system disturbances and abnormalities
POLIO & CFS - is CFS caused by the polio vaccine?
QUESTIONNAIRE FOR FMS/CFIDS - risk factors and symptom checklist
REVIEW OF FMS-HELP.COM (BellaOnline, the Voice of Women) - "FMS-HELP.com provides inspiration, information, understanding, support and encouragement"
MEN WITH FIBRO
MEN WITH FIBROMYALGIA and/or CHRONIC FATIGUE SYNDROME - an "equal opportunity" illness
MOLD & SICK BUILDINGS
MOBILE HOMES - comments from readers about formaldehyde and mold in manufactured housing
MOLD - I worked in a "sick building" and became desperately ill
AUTONOMIC NERVOUS SYSTEM - dopamine, fibromyalgia and the autonomic nervous system
CENTRAL NERVIOUS SYSTEM ABNORMALITY & FIBROMYALGIA - this explains the strange symptoms
DYSAUTONOMIA - autonomic nervous system dysfunction and fibromyalgia - fascinating article
MYALGIC ENCEPHALOMYELITIS (M.E./CFIDS) - damage to the central nervous system (brain) which results in dysfunctions and damage to many of the body’s vital systems and a loss of normal internal homeostasis
SPINAL CORD FLUID - CFS patients have 16 proteins that healthy individuals do not - the CFS problem lies in the central nervous system
NEWSLETTERS - I wrote a health newsletter for FMS/CFIDS sufferers from 1996 to October 2013. You can find the issues from 2003-2013 by typing the word "newsletter" into the search box at the top of this page. Much fascinating, still relevant information!
OCCUPATIONS & FIBRO - here's what my newsletter readers were doing when they got FMS/CFIDS
MISERY INDEX - "CFS has one of the highest morbidity rates (degrees of suffering) of any illness, rivaling the physical misery of advanced cardiac disease and cancer"
PAIN RELIEF IDEAS - I endured agonizing pain during the first 14 years of my FMS. Here are some things that helped me.
PAIN SCALE FOR FIBROMYALGIA - very helpful in explaining what you feel
BIBLE - I love the King James Version of the Bible - here are some great resources
BIBLE COLORING METHOD - this is a FUN and COLORFUL way to study the Bible, even when fibro-fogged!
CHINESE CLUB - a friendship club we started in Clay County - this was a bright spot in my life!
CHURCH - our loving church family is a bright spot in my life
COINCIDENCES - some amazing things that happened to me recently
CHRISTMAS CD - Dominie plays 20 Christmas carols using beautiful instrumental sounds
CREMATION - my thoughts on cremation vs. burial
MUSIC STUDENTS - I really enjoy teaching piano and guitar to my wonderful students!
PETS - here's the darling puppy I was allergic to and had to give away (boo hoo!) We now have 2 sweet chihuahuas that keep us company.
PHOTOS - here's a picture of me at age 10 and at 54
SALVATION TESTIMONY - I was "Religious but Lost" for 36 years
TRIBUTE TO MY LOVING DAD - my father went home to be with the Lord on January 28, 2005
YOU BET YOUR LIFE - by Paul Ernst, former atheist of 50 years. What happens after you die? Is there a credible way to know?
YOUTUBE - my first song on youtube...with pictures of my parents, brother and husband
MARITAL HARMONY - an emergency marriage manual for women in difficult marriages
MISUNDERSTANDING CAUSED BY FIBROMYALGIA & CHRONIC FATIGUE SYNDROME - People can't see our invisible illness, so they find it hard to believe. We don't LOOK sick!
SPOUSES - letter from a man whose wife has fibromyalgia
ANTIOXIDANTS - these help oxygen circulate in the brain and cells more efficiently
ESSENTIAL OILS - these plant extracts affect the limbic portion of the brain and help relieve my debilitating fatigue and fibro fog
VIRUSES, MYCOPLASMAS & INFECTIONS
AIDS & CFIDS - is there a link between the CFIDS epidemic and AIDS??
ANIMAL VIRUS MAY CAUSE CFIDS - 96% of blood samples and 91% of spinal fluid tested positively for Cryptovirus specific antibodies in these CFS patients
MYCOPLASMAS - are we infected???
STEALTH VIRUSES - CFIDS symptoms are the result of viral-induced organic brain damage
VIROLOGIST - virologist discovers cause of CFS in the central nervous system after 20 years of research
YUPPIE FLU? - "Drained by the Brain" - excellent article about CFS from Australia
Dominie Soo Bush
Dominie sings and plays "Lord, You Are So Precious to Me" by Graham Kendrick. The pictures are of Dominie's family. The final picture is the Lord returning in clouds of glory.