A compassionate, Christian-based site for people with Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.)
TOPICS (listed alphabetically)
AWARENESS - letter I wrote to Congress for Fibromyalgia Awareness Day
MILLION LETTER CAMPAIGN - THE PROJECT - thanks to all who participated
MILLION LETTER CAMPAIGN - UPDATE - responses we received
NEUROENDOCRINEIMMUNE DISORDERS - tremendous description of what it's like to live with a neuro-endocrine-immune illness
STIGMA OF HAVING FIBROMYALGIA - negative perceptions our society has about fibromyalgia sufferers and how we can create more awareness
T-SHIRTS THAT EXPLAIN FIBROMYALGIA - Candy's T-shirts inform the public
BRAIN BASED TREATMENT - Dr. Boydston is a chiropractic neurologist with a unique protocol for helping fibromyalgia patients
BODY CLOCK - gene mutation speeds up body clock, interfering with sleep and circadian rhythm
BRAIN FUNCTIONING IN REVERSE - I can relate!
CEREBRAL ATROPHY & CFIDS - this bad news could be good news, since it proves we aren't malingerers or hypochondriacs
HIPPOCAMPUS & FMS - Recent Egyptian research study shows that dysfunction in the hippocampus area of the brain may explain our strange FMS symptoms!
HYPOTHALAMUS GLAND & FMS/CFIDS - my very smart sister-in-law with a Ph.D. in virology may have been right 15 years ago
DISABILITY FOR FMS/CFIDS - I have not filed for disability, but many must do so in order to survive - here are some tips from those who have been successful
DOCTOR'S DISBELIEF CAUSES DEATH YOUNG WOMAN WITH CFS/ME - brace yourself for this disturbing video (news report)
DOCTORS - GOOD AND BAD - comforting if you've had a bad experience with a doctor
CHRISTMAS BLUES - depressed during the holidays?
DEBUNKING THE "LAW OF ATTRACTION" - "new age" philosophy is running rampant in the holistic health field
NOT THE WAY YOU PLANNED IT - FMS/CFIDS has a way of changing our lives
STRESS MANAGEMENT - "Help Me - I'm Stressed!" by Joyce Meyer is a great book about preventing anxiety and stress - (stress is a fibromite's worst enemy!)
SUICIDAL FEELINGS - biochemical depression and fibromyalgia
FIBROWHEEL - a great way to explain fibromyalgia/chronic fatigue syndrome to people who don't have it
IMAGINE (what it's like having fibromyalgia) - for those who don't have FMS
INTERVIEW WITH DOMINIE (BellaOnline, the Voice of Women) - my early struggles with FMS and the misunderstandings and losses I experienced
LOSSES WE EXPERIENCE WITH THIS ILLNESS - here is one woman's poignant (yet typical) FMS/CFIDS story called "I Have Been Robbed"
MY NAME IS FIBROMYALGIA - an easy way to explain FMS to friends and family
OPEN LETTER TO NORMALS - explains to healthy people what it's like to live with FMS/CFIDS on a daily basis
POEMS ABOUT FIBROMYALGIA - contributed by creative readers of my site
SKEPTICS - dealing with people who are skeptical of fibromyalgia or say it's "all in your head"
SPOON THEORY - helps explain chronic illness to healthy people
THIEF OF MANY LIVES - great article by Kathleen Houghton
TRYING HARDER (and why it doesn't work for CFS) - a compassionate article
100 TIPS FOR COPING WITH FIBROMYALGIA & INSOMNIA - things I learned from dealing with FMS since 1982
EXCITOTOXINS & FIBROMYALGIA - avoid aspartame, Nutrasweet, MSG, etc.
MORE TIPS FOR COPING WITH FIBROMYALGIA - a most helpful list
REMEDIES FOR FMS/CFIDS (find them or rate them) - all of us "guinea pigs" need to speak up - we have a wealth of experience to share
SPLENDA & FIBROMYALGIA - tastes good, but is it good for you?
WHAT I USE - list of things that help me greatly - without these, I would not be able to work
ENERGY GONE - "chronic fatigue is not a psychiatric illness, but a nasty mix of immunological, neurological, and hormonal abnormalities"
IMMUNE SYSTEM - 80% of our immune system is located in the intestines ("gut brain") - people with immune or autoimmune disorders can benefit from an innovative biotech powder
INSOMNIA (SLEEP DISORDER)
INSOMNIA STORY - I have had a sleep disorder for 40+ years
SLEEP IDEAS - things I've tried for sleep during my decades of insomnia
SLEEP MEDS THAT HELP ME - my doctor helped me get on a regimen of meds that helps me get restorative sleep nearly every night
100 SYMPTOMS OF FIBROMYALGIA - do you have these?
ADRENAL INSUFFICIENCY - patients are overexcited when they should rest and sleep, but tired and weak when they need to function.
ANTIBIOTICS - overuse of antibiotics can cause yeast overgrowth and FMS/CFIDS symptoms
BLADDER PROBLEMS - suggestions I received from readers about irritable bladder and urinary frequency
CAUSE OF CFS - virologist disovers cause of CFS in the central nervous system after 20 years of research
CAUSES OF FIBROMYALGIA - there are many theories about what causes this baffling and debilitating illness
CHRONIC FATIGUE STORY - my CFIDS began after a virus in 1987
COLDS & SORE THROATS - can dampness cause people with CFIDS to catch viruses that affect the respiratory system?
COLDS SORES - some things I've used for cold sores
DEFINITION OF FIBROMYALGIA - "a change in brain chemistry from distress in the central nervous system"
FIBROMYALGIA STORY - my FMS experience may be similar to yours - I think I have a "classic" case!
GENETICS - chronic fatigue syndrome is caused by mutated genes in the brain, according to the CDC study, reported by the L.A. Times
GULF WAR SYNDROME - similar to FMS/CFIDS
IRRITABLE BOWEL SYNDROME - many people with FMS have IBS too
LAB TEST FOR FIBROMYALGIA - finally?
MITOCHONDRIA DYSFUNCTION - FMS & CFIDS are complex diseases that involve multi-system disturbances and abnormalities
POLIO & CFS - is CFS caused by the polio vaccine?
QUESTIONNAIRE FOR FMS/CFIDS - risk factors and symptom checklist
REVIEW OF FMS-HELP.COM (BellaOnline, the Voice of Women) - "FMS-HELP.com provides inspiration, information, understanding, support and encouragement"
MEN WITH FIBRO
MEN WITH FIBROMYALGIA and/or CHRONIC FATIGUE SYNDROME - an "equal opportunity" illness
MOLD & SICK BUILDINGS
MOBILE HOMES - comments from readers about formaldehyde and mold in manufactured housing
MOLD - I worked in a "sick building" and became desperately ill
AUTONOMIC NERVOUS SYSTEM - dopamine, fibromyalgia and the autonomic nervous system
CENTRAL NERVIOUS SYSTEM ABNORMALITY & FIBROMYALGIA - this explains the strange symptoms
DYSAUTONOMIA - autonomic nervous system dysfunction and fibromyalgia - fascinating article
MYALGIC ENCEPHALOMYELITIS (M.E./CFIDS) - damage to the central nervous system (brain) which results in dysfunctions and damage to many of the body’s vital systems and a loss of normal internal homeostasis
SPINAL CORD FLUID - CFS patients have 16 proteins that healthy individuals do not - the CFS problem lies in the central nervous system
NEWSLETTERS - I wrote a health newsletter for FMS/CFIDS sufferers from 1996 to October 2013. You can find the issues from 2003-2013 by typing the word "newsletter" into the search box at the top of this page. Much fascinating, still relevant information!
OCCUPATIONS & FIBRO - here's what my newsletter readers were doing when they got FMS/CFIDS
MISERY INDEX - "CFS has one of the highest morbidity rates (degrees of suffering) of any illness, rivaling the physical misery of advanced cardiac disease and cancer"
PAIN RELIEF IDEAS - I endured agonizing pain during the first 14 years of my FMS. Here are some things that helped me.
PAIN SCALE FOR FIBROMYALGIA - very helpful in explaining what you feel
BIBLE - I love the King James Version of the Bible - here are some great resources
BIBLE COLORING METHOD - this is a FUN and COLORFUL way to study the Bible, even when fibro-fogged!
CHINESE CLUB - a friendship club we started in Clay County - this was a bright spot in my life!
CHURCH - our loving church family is a bright spot in my life
COINCIDENCES - some amazing things that happened to me recently
CHRISTMAS CD - Dominie plays 20 Christmas carols using beautiful instrumental sounds
CREMATION - my thoughts on cremation vs. burial
MUSIC STUDENTS - I really enjoy teaching piano and guitar to my wonderful students!
PETS - here's the darling puppy I was allergic to and had to give away (boo hoo!) We now have 2 sweet chihuahuas that keep us company.
PHOTOS - here's a picture of me at age 10 and at 54
SALVATION TESTIMONY - I was "Religious but Lost" for 36 years
TRIBUTE TO MY LOVING DAD - my father went home to be with the Lord on January 28, 2005
YOU BET YOUR LIFE - by Paul Ernst, former atheist of 50 years. What happens after you die? Is there a credible way to know?
YOUTUBE - my first song on youtube...with pictures of my parents, brother and husband
MARITAL HARMONY - an emergency marriage manual for women in difficult marriages
MISUNDERSTANDING CAUSED BY FIBROMYALGIA & CHRONIC FATIGUE SYNDROME - People can't see our invisible illness, so they find it hard to believe. We don't LOOK sick!
ANTIOXIDANTS - these help oxygen circulate in the brain and cells more efficiently
ESSENTIAL OILS - these plant extracts affect the limbic portion of the brain and help relieve my debilitating fatigue and fibro fog
VIRUSES, MYCOPLASMAS & INFECTIONS
AIDS & CFIDS - is there a link between the CFIDS epidemic and AIDS??
ANIMAL VIRUS MAY CAUSE CFIDS - 96% of blood samples and 91% of spinal fluid tested positively for Cryptovirus specific antibodies in these CFS patients
MYCOPLASMAS - are we infected???
STEALTH VIRUSES - CFIDS symptoms are the result of viral-induced organic brain damage
VIROLOGIST - virologist discovers cause of CFS in the central nervous system after 20 years of research
YUPPIE FLU? - "Drained by the Brain" - excellent article about CFS from Australia