DOM'S
NEWSLETTER
Jan. 10, 2007
I received lots of positive feedback
about the new color scheme. Glad you like it!! Check out the
PURPLE topics.
I bolded key words for "speed
reading" so you can skim through the newsletter to find things you
are interested in. I like to print things out to read away from my
computer, especially if they are long or something I want to ponder. My
favorite comfortable reading places are my bed or recliner......ahh!!!
There are two questions from readers in this issue -- Debbie Topic #15 (Reader #4) and Cheryl Topic #23. Please reply directly
to their respective email addresses. I have put my comments
below in TEAL. -
Dominie dombush@bellsouth.net
1. SPELLING
From a
reader--
"It is amazing the FMS did not alter your
spelling . Everyone I speak with can't spell any more. It is like a
brain damage thing."
[Cognitive
problems affect many people with FMS. When my FMS was at its
worst, my speech was slurred and I had racing thoughts. For those of
you who remember vinyl, I felt like a 75 rpm record being played at 33! My
fibro story is at www.fms-help.com/fibro.htm.]
2.
DOPAMINE
From a
reader--
3. MARLY
SILVERMAN
"Before I was diagnosed with CFS/FM I was an Assistant Vice-President for
one of the largest U.S. Banks. I represented this bank in Brazil and Portugal as
an International Financial Advisor- Relationship Manager. I held licenses as a
stock broker, life and health insurance and annuities, as well as was trained to
sell trust and banking services and financial products. One of my tasks was to
facilitate cross-selling by offering my clients all of the bank’s financial
products that would match or enhance their financial and life style needs. It
was a very demanding job that entailed extensive travels to Brazil during the
year. In 1997, I was first bitten by (what I was told was) an
African Bee in Brazil, resulting in a severe allergy
reaction that could have been fatal. A month later or so I had an
infection that turned into bronchitis and
lingered for months. At the end of that year I was involved in a hit and
run while leaving a client’s office and the "flu-like symptoms"
came and they have never left me. In December 1998, I was so ill, after
losing so much weight… down to 99 lbs, that I was eventually forced to stop
working all together. It was a very sad day for me when I realized that I had to
go on disability. I needed to get better."
4. WELL STATED
From a reader with
FMS--
"My brain says Go-Go-Go. Body shuts down,
literally."
5. ANTIVIRALS
"Anyone have
experience with antivirals like Amantadine - especially for
CFS?"
6.
INTIMACY
"Basically,
most people with fibro experience a loss of interest in sex.
This really isn´t surprising – very few people have a lot of libido when they
ache and hurt and are exhausted, and when the problem is a chronic one, for
which there is little relief. To make things worse – sex can hurt because it
does involve stress on our connective tissues. You must make
sure that your partner understands this, and doesn´t blame himself or
herself."
7. GENE MUTATION
(revisited)
From a
reader--
"Referring to Item #15 in your
newsletter www.fms-help.com/010607.htm about
the C677T gene mutation. That gene
mutation interferes with the conversion of folic acid into
5-methyltetrahydrofolate (5-MTHF). You can purchase 5-MTHF
without a prescription from Metagenics. The product is called Folapro.
www.metagenics.com Folapro
completely bypasses the MTHFr gene mutation problem, whereas that expensive
prescription the doctor gave her does not. She should do much better with
the Folapro product. People with mercury poisoning should pay attention. They
will also have trouble converting folic acid into
5-methyltetrahydrofolate. A lack of 5-MTHF will cause
blood vessels to constrict when they are exposed to estrogen. This might be the
reason for her increasing cognitive
impairment."
[See my page "GENETICS" at www.fms-help.com/genetic.htm - chronic fatigue syndrome is caused by mutated genes in the brain,
according to the CDC study, reported by the L.A.
Times.]
8. METHADONE FOR FMS
(revisited)
From Reader
#1--
"This reader who talks about 'just wait until she
becomes addicted' [see www.fms-help.com/010607.htm
- topic # 7 about methadone] doesn't know what she's talking
about. Read on the net. Of people truly in pain, only 2% truly become addicted
from pain drugs. What happens is dependence, when someone must have a drug to
keep the pain from eating them alive. Addiction means having to have more and
more to achieve the same affect. I have been taking Vicodin (or a substitute)
for about 10 years and some days I don't take but one or two, due to the
Naproxen I now take for arthritis. I also do regular exercise. Besides,
addiction can be kicked. It involves slowly reducing your daily dose (and the
symptoms come back) but eventually you are off of it completely. I would rather
be dependent and pain-free than not addicted and living in excruciating
pain all my life. So many people with fibro are looking for this
cause and that cause (mold in air ducts, allergies, etc.) and what they really
need to do is just face it and live with it: they have fibro,
they get tired easily and need to rest frequently, find drugs that take care of
most of the symptoms and just live with the rest of it after finding a level
that will allow a reasonably normal life. There is no cure for fibro and isn't
likely in the near future. It's a little like diabetes and some other illnesses:
you do your best and live with the rest. Exercise is essential!!!! I can't say
that too much. I didn't believe it until I tried it and recently I had to give
it up for a while but I quickly found out how much it is necessary. And
yes, methadone is a lifesaver. The first time I took it was
with a lot of other drugs and I slept a lot and gained weight and had
short-term memory loss but I didn't hurt!!! then an occasion came when I had to
go off of it and the pain slowly came back and after a few months I went back on
it, but at a lower dose and without all those other drugs. Now it's a lifesaver.
Now I have methadone, Naproxen, sleep medicine (seroquel, klonipin, baclofen for
muscle relaxation) and Vicodin for when the pain gets really tough. (but I try
not to take much because it dries up my sinuses. Sorry for the rant but
when I see these promotions for useless and expensive drugs and tests, I go
batty. Hope I don't make anybody mad."
From Reader #2--
"I too take methadone for fibromyalgia. It has done
wonders on how it has
made me feel. If you take it the correct way,
you will not get addicted. I
started on a small dose and had to
increase just a few times to find the
correct does. I can't even
believe the difference it has made for me. I am
taking this medication
for pain, not to get high. Because of this. All it
does is take
the pain away. I can't even imagine taking it to get high. It
doesn't have that effect on me. I think that is because I take it for pain
and that is what it works for. When it was first suggested to me that
I
talke methadone, I thought I could get addicted too. My thought was,
if it
takes away my pain that is what matters right now. I can deal
with the
other part later. Then I talked to my dr. and reasearched
on-line and found
out I will not get addicted. Thank you so much for your
informative newsletter. I find it very helpful
and keep lots of them
to look back at."
[My newsletters since 2003 are in the archives
at www.fms-help.com/newsletters.htm - you can use the Google search box on that page to locate
specific topics. Handy to find info!]
From Reader #3--
"I'm glad someone was getting help by trying Methadone. Some of these
things may seem extreme but that's what they are for... to help people. We are
all different & we need different remedies/drugs to help us. It's best not
to rule anything out."
From Reader #4--
"Just wanted to add an interesting note to the reader who said "just
wait until she has to go off of it" & to all that read my information on
methadone for FMS/CFS. UNLIKE OPIATES, methadone does NOT require
increasing dosages for pain & good luck finding a doctor who
would rx it that way! It works differently than opiates. Yes, I am
going to have to taper off vicodin...but have never been able to take that much
anyway due to side effects. I am on 5mg of generic
methadone which is lowest dose manufactured & am glad to find they are
scored as I have cut down to 2.5mg because after 3 days I started feeling
too sleepy. Obviously it would be more convenient to take
5mg as using a pill cutter to halve 5mgs. isn't that easy & can leave you
with crumbs. The point I want to make here is that we shouldn't prejudge
meds that are used for "off-label" medical problems.
Pregablin which is Pfizer's new white hope for Parkinsons
Disease has been tested & used for fibromyalgia with relative success.
I doubt, however, that many of us could afford to purchase Pfizer's new
drug Pregablin. The cost would be astronomical as with all of Pfizer's new
drugs. Off-label use of drugs by definition means using a
drug created for one medical problem & discovering that it can be
surprisingly effective for another medical problem....let's not "rush to
judgment" LOL! BTW, if it works why would I ever go off (I'm 67!) and if
it doesn't within a reasonable period of time....you just go off & yes, you
can. We all know whether to stop taking a drug within a few short weeks I
WOULD HOPE!"
9. DOM'S INSOMNIA
STORY
Just got word that my insomnia story called "I
Couldn't Sleep" will be published in Challenger magazine in April.
The article is based on the longer version of my sleep disorder experience at
www.fms-help.com/insomnia.htm.
10. HORSERADISH FOR
MOLD
From a reader--
"I
may have the information that may be useful to you regarding Mold.
I worked 25
years in a profession that had to do with mold. I owned a cleaning and
restoration company that did a lot of water damage cleanup, restoration
and mold remediation and such, in addition to carpet,
drapery, upholstery cleaning, etc. During the years I
did much of the work myself and unbeknownst to me I was getting very much
affected with mold and have even wondering how much that may have to do with my
Fibro and it's amplification of symptoms.
When I was in
Calif. I had a 6 hour thorough exam by Donna Carmony, a alternative
medicine doctor. Among many thing, she identified I had serious mold
in my body affecting my immune system. She prescribed Fresh
ground Horseradish 1/2 teaspoon X 4times a day, for 8 days for
clearing the mold. When I came home, an older
Chiropractor who practiced Bio-Alternative method also tested me for dozens of
things with little vials of allergy testing and found traces of it yet. So he
prescribed a homeopathic drops from Dynamic Nutritional , Inc
called A-21, Mold Mix #1. One starts with 4 drops , and
gradually build to 10 drops two times per day. After that regimen he tested me
again the same way and said that I had built the necessary immunity to all types
of mold that a person should have. So regarding mold, I would suggest
a initial cleanup , (the Horseradish regimen with fresh ground horseradish may
be the thing), and then building the immunity towards them with the homeopathic
drops mentioned."
11.
DR. RITCHIE SHOEMAKER
From a
reader--
"Regarding Dr. Shoemaker
I researched his web site www.chronicneurotoxins.com well and
signed up for his vision test. Then ordered and read the
book [MOLD WARRIORS] he has written. I bought a can
of Cholestyramine and started trying it but did not stick with
it. I read that the same thing can be accomplished with
Sodium alginate a very common food additive also found in
Blaldderwrack which is rich with Sodium Alginate since
alginates bind toxins the same way as Cholestyramine, it is just that the
process is much slower. However, I must say I offered Dr.
Shoemaker's information to a friend who has Lyme and has tried
everything and traveled to Lyme clinics and specialists with no results
and had been bed ridden for last two years and started trying
Cholestyrmine protocol and started receiving considerable
improvement for the first time and has been able to get up and do
work around the house and such. His book is an eye opener in what toxins
and mold do to a person."
12.
DANGERS OF PHARMACEUTICAL DRUGS
From a
reader--
http://www.newswithviews.com/Ciola/greg2.htm -
Short snippet: "Pharmaceutical drugs kill, perhaps not as fast as a bullet in
many cases – but just as effectively. Stay on them long enough and you’re almost
assured of the deadly consequences. Do you really think for one minute that the
pharmaceutical industry cares if their gun goes off? They’re making an absurd
amount of money selling you sickness. The combined profits of pharmaceutical
companies annually are in the hundreds of billions of dollars.......The word
sorcery as it appears in the New Testament version of the King James Bible comes
from the Greek word pharmakeia, which is where the English words
pharmaceutical and pharmacy both come from. With that fact in
mind, the following scripture takes on a whole new meaning: “For by thy
sorceries (pharmaceuticals) were all nations deceived. And in her (Babylon) was
found the blood of prophets, and of saints, and of all that were slain upon the
earth.” (Rev. 18:23-24) Pretty frightening interpretation – wouldn’t
you say?"
[I believe that God helps us
find ways to relieve human suffering. Jesus healed those who were
sick -- I think of the woman Jesus healed who had continuous hemorrhaging
for many years and had suffered much at the hands of her physicians...(not much
has changed....) I am not an extremist on the issue of pharmaceutical
drugs. If the body responds to nutritional supplementation, that's
great. But a lot of people's bodies need more than a gentle nudge. A
drug sometimes is used to take over certain functions. Trouble is--many
people are using prescription drugs excessively or even abusively.
However, with all the meds I'm on for my mold sickness right now, I could become
the next poster child for the pharmaceutical industry -- not a title I'm proud
of or want to be known for of course! Many people become addicted to
not only prescription drugs (for necessary medical uses), but also to cigarettes
and alcohol, which are widely accepted in our society, although there's a little
"slap on the hand" for smoking these days. Both cigarettes and alcohol
alter brain function and personality. So where do we draw the line??
For every benefit a drug has, there is also a risk. To my way of thinking,
it's a matter of weighing risks and benefits. During my worst fibro days,
doctors prescribed sleep meds and anti-depressants, some of which made me
feel (for lack of a better word) POSSESSED!! It was
HORRIBLE!! I quit them immediately. But I am thankful for the
meds I use that allow me to sleep and to function. I would probably be in
a mental hospital or dead without them. My current list of stuff I use is
at www.fms-help.com/what.htm, not
counting the meds the docs have me on for mold.]
13.
MSM
From a
reader--
"I have been taking MSM since Dec 16.which is
ABOUT 3 weeks. It has really helped the Fibromalgia. I have tried about
everything on the market. It even gives me a little energy believe it or not.I
take 3,000 mg aday, one after each meal and no side effects to it. If you take a
lot it can thin your blood a little but so does eating fish. This is just a
nutritrion supplement, its what is in food.I am so thrilled and wanted to share
it with you. You can buy it at walmart but I got some from Vitamin World, a
health store.Dr Stanley Jacob has a book out about it. The miracle of
MSM. I have Fibromalgia so bad, any relief is a blessing. I hope you can
pass this on and I hope it helps
you."
[MSM has been Tip #63 in my
100 Tips for Coping with Fibromyalgia www.fms-help.com/tips.htm for many years. It helps some folks with fibro but not
everyone. I tried it on numerous occasions, but to no avail for
myself
personally.]
14. TAMPONS - GARLIC OR ESSENTIAL
OILS
From a
reader--
"I just found this info &
thought you may be interested. I haven't tried it but it included essential oils
& thought of you:
http://tamihealth.tripod.com/essential_oil_tampons.htm. Here's a
snippet from this
article--Nine years
after being diagnosed with Chronic Fatigue, I turned fully to alternative health
for answers. I tried every recommended herb, colloidal minerals, spray mist
vitamins, reiki healing, reconnective healing, iridology, massage, reflexology,
ion-cleanse foot soaks, essential oils, herbal foot soaks and more. Five years
later, I asked a friend with a Rife machine what to do about chronic fatigue.
She said for women - it's easy! Take a clove of garlic, puncture it with
a fork, and use like a tampon. 4 months later, at the beginning
of 2004, determined this year I was going to get well, I finally "did" the
garlic. 24-hours later I felt stronger. It was like doing a $200 herbal foot
soak for the cost of 1 clove of garlic. Excitedly I called a friend who sells
Essential Oils. She said she'd heard you could put Essential Oils in water, take
a syringe, insert the water instead of the garlic clove, then insert a tampon to
hold it in place. The book "The Oil That Heals" tells how amazing Castor Oil
is. A friend who does Herbal Foot Soaks had told me if you get a strong
Essential Oil in your eye, you flush it with Castor Oil, not water, so I figured
if it protects your eyes, it would be probably be a good safety factor
elsewhere. Taking a tampon, I poured a mild Essential Oil on it,
then covered that with Castor Oil. I was amazed. I was could feel the
energy and healing wellness within minutes - and again 24-hours later I felt
stronger and my brain clearer. I started getting well at an incredible pace -
feeling brain functions returning almost every day. I used probably 3 - 4
tampons per 24 hours - you can use more - I had fatigue - this was all
I could do."
[Seems like garlic would burn....but the oils sound like they
might work. I got interested in
essential oils last year -
it's a fascinating subject. You can order a free report from my site at http://dom.younglivingworld.com.]
15. FIBROMYALGIA & FATIGUE CENTER
From Reader #2--
"The Immune stuff has been helping me. My bowels started working one month after
going on it. [For information about the immune product, please email dombush@bellsouth.net.]
By the way, Dr. Campo at the
Fibromyalgia & Fatigue Center did a Western Bloc test for Lyme and I tested
positive for that and also erlichia, another bacteria. He put me on an
antibiotic which I'm almost done with. So besides mercury poisoning,
fibromyalgia, CFS , I also had 3 viruses (I can't remember all the names) and
lyme & erlichia. Lyme disease competely shuts down the pituitary which
why none of my hormones are working properly. He also did a hormone panel
and found my estrogen and progesterone were excessively low, now I'm on
bioidentical hormone replacement. In terms of how I feel, I started
there in October, but mosly I've been going through healing crises from all my
treatments which have been very aggressive. I have had 6 anti-viral IV's,
6 back & muscle pain IV's, 8 energy injections, 4 immune (IGG injections)
and he put me on many supplements -- antiviral, immune boosting,
etc. Alot of them I was already on. He also put me on a lot
of meds to make me comfortable, but I've had alot of trouble with
dizziness. I have four herniated cervical discs which already causes
dizziness. I had a few hours here and there before I
started the antibiotic that I could actually concentrate and had more energy and
I felt overall better before going on the antibiotic. But the antibiotic
has totally exacerbated all my systems beyond belief. Dr. Campo keeps
telling me when I feel worse from the antibiotic and the antiviral treatments
that I'm gettting better. So I'm just waiting for that light at the end of
the tunnel. I think he's completely
brilliant. He did all the right testing and seems to have
diagnosed everything. That's more than I can say for any other doctor I've
been to. He knows more about how to treat autoimmune diseases than
anybody I've ever met. They have the cutting edge
protocols developed by Jacob Teitelbum. He knows the
endocrine system really well and is very knowledgable about autoimmune
diseases. Everybody I speak to there is getting
better. They're also hiring another doctor there
because he's so busy. He's also very empathetic. You get a lot out
of 1/2 hour appt with him. If anybody goes, I would suggest taping the
first two appointments because he explains a lot of stuff you won't remember and
I wish I could have played it for my husband. In terms of $, there
prices are reasonable although the dr's time is expensive $185/half
hour and you need to see him one hour the first two times. I've
spent a total of about $4000 plus the $440 to IGX Lab in Calif
for the Lyme & other bacteria test ( I will get reimbursed 70% by
insurance). So far [my insurance company] has paid me nothing back.
I will have to battle with them. They should be paying for the IV's,
they are the same codes as my chelation IV's that [the insurance company] did
pay on at my integrative doctor. I think because this center is
called Fibromyalgia & Fatigue the insurance companies are paying very
little. They are paying only 25% on the office visit or $25
( i forgot), which is ridiculous, but I will appeal and win. The amount
I've been paying includes alot of supplements too."
From
Reader #3--
"I just found the protocol used by the FFC
drs....Check it out:
"Still catching up on your newsletters and I wanted to
comment on an item in the last one from 1/6/07 www.fms-help.com/010607.htm
Topic #21 - Doctor in Marietta, GA I have also been seeing
Dr. Bullington. She is with the Fibromyalgia and Fatigue Center
of Atlanta (located in Marietta). I have been working with her for about a year
and a half now. I have noticed comments in the newsletter in the past
regarding the FFC. I have to say that it's wonderful to be taken seriously by a
doctor and to have that doctor know what they're doing. They are
using cutting edge treatments and their goal is remediation. It is very
expensive. I have been to the Atlanta site several
times. I can't go as often as I would like because of the cost of flying
back and forth from Orlando. I do many appointments by phone. Costs are
not covered by my insurance since it is out of network. I want to briefly
share their treatment protocol. Initially, the plan begins with
stabilizing the patient. This involves remedying sleep disorders, if
present, & addressing effective pain relief (which we all know is
critical). They do a very comprehensive panel of blood tests which
includes testing for infections. I tested positive for 4 different
infections! When the results come back they begin treating you
with anti viral, anti fungal and anti bacterial meds as
warranted. They look at your hormone levels and
supplement to get your levels correct. They also prescribe
nutritional supplements that increase energy and help with the
infections and hormonal imbalances. I believe they are on the right track.
However, it is a long road. I have not seen much improvement.
But I have been told by Dr. Bullington that it is like a war going on in my body
trying to fight off and rid my body of all these infections. You feel
worse before you feel better, basically. It is difficult to keep up with all the
supplements and meds both daily and financially. But I persevere. I
have heard from others that it can take up to 3 years to get well. I feel
I've got nothing to lose but my money. I would recommend to other suffers
of Fibro/CFS going to one of the centers, if you can, because I think it's the
best chance we've got. Feel free to post my comments in you next
newsletter if you feel they are relevant. I would not object to
answering any questions others may have regarding the centers
and their treatments." - Debbie gconroy@cfl.rr.com
16. YOUNGER PEOPLE WITH
FMS
Some
of the most difficult letters I receive are from younger people (in their teens
and 20's) who have FMS/CFIDS. It just doesn't seem fair that this illness
disables a young person when they have an education to complete, friends to have
fun with, a life companion to be found, a career to establish, etc. My
heart goes out to them! I didn't develop full-blown FMS/CFIDS until I was
30 www.fms-help.com/fatigue.htm,
so SOME of my dreams had already been fulfilled. What if this illness had
struck when I was in high school or college? I can't imagine trying to
study with "fibro fog" or keeping up with any kind of social life due to
debilitating fatigue. I'm sure these younger FMS'ers don't get much
understanding from their peers. Just want to say that you have my complete
sympathy. It is letters like yours that keep me researching and
writing! See my page called CHILDREN & TEENS WITH FMS/CFIDS at www.fms-help.com/teens.htm.
17. CLONES
"I have been doing research on the
internet for fibromyalgia, as I am at my wits end with trying to get to the
bottom of my health problems, which I have had for years. I was so glad to
stumble across your web site www.fms-help.com as almost all the
information you provide and things you talk about are
me. It is a very long story. I'm
59 years old and had a hysterectomy when I was 43, (which is
when all my problems began) and like you, have been to so many doctors over the
years who tell me that I am depressed, having panic attacks, have tendonitis etc
and that it is all in my head and even sent me to psychiatrists. Take this
prescription etc etc. You know the story, it is the same as
yours
[www.fms-help.com/fibro.htm]. I finally discovered a great Dr who
treats menopause with natural hormone replacement and he has
helped me tremendously. However, he discovered that I have adrenal
fatigue and I have been going to a homeopathic Dr. who works with him
in his clinic. I am being treated with vitamins and supplements for the
Adrenal Fatigue and slowly this is getting better. I have read over and
over that one of the things that Adrenal Fatigue can cause is
Fibromyalgia. I continually have pain in both elbows, neck, one knee and
tendonitis in my feet and constant pain in my back as well as
other places at different times. The Drs. here have told me that what I
have is bursitis etc and need cortisone shots,
many of which I have had over the years. When I have what I call a
flare up (can be twice a week or no particular pattern) I get
very depressed, feel light headed and out of
it, panicky, sometimes my speech feels
weird, head aches, lethargic, full of pain deep inside
my legs or arms and many other small symptoms which completely drain
me. I want to be isolated and my poor husband
suffers!"
[See my
page on ADRENAL INSUFFICIENCY at www.fms-help.com/adrenal.htm
- patients are overexcited when they should rest and sleep,
but tired and weak when they need to function.]
18. AIRWAY
RESTRICTION
From a
reader--
"I also have the same problem and always have
bad incidents from it when I get a cold or virus. Right now I battle Bronchitis
but using the Steroids and junk they prescibe for me only make
me worse I think. The best results I get is from Guaifenisin
can be bought on Pro Health or you can purchase
Mucinex at the pharmacy. It thins mucas so it does not restrict
the airways . I take two 600mg Tabs in the am and two in the PM they do help of
course ""LOTS AND LOTS OF WATER" My step daughter also lives in Florida and has
Respiratory problems,, and yes she also lives in a block building . My husband
who has hauled cement and cement blocks for many years has Emphasema really bad
, of course they will say it didn't come from that but when he gets around that
type material now his symptons worsen. Interesting
to say the least."
[Unfortunately
Guai and Mucinex have not helped my mold problem. However, this is good
info for someone.]
19.
PROTOCEL
From a
reader--
http://alternativecancer.us/protocel.htm
*Other Diseases, AIDS, Herpes...
*
Protocel has been effective against viruses including AIDS, Herpes (see
below), Chronic Fatigue syndrome, lupus, endometriosis,
Crohn's disease,
fibromyalgia, almost all auto-immune
disease, and has some success
treating: ALS (Lou Gehrig's disease), Multiple
Sclerosis, Muscular
Dystrophy, Parkinson's, Alzheimer's, Leukemia,
Rheumatoid Arthritis, and
Scleroderma. Information about these diseases and
Protocel will be added
as I continue my research. I don't have any more
information on the
above diseases that don't have a link, please contact
HOPE for more
information. The mechanism that that
occurs when Protocel is given to an AIDS patient
is that Protocel
breaks down the cell that the virus has invaded. At
that point the virus has
lost its protection again allowing the bodies
immune system to attack the
virus. This results in an initial increase
in viral count when the Protocel
treatments start. There are not
actually more viruses, they are
just more detectable due to the removal
of this protective layer. For more
information or or to take Protocel
for AIDS, go to the Protocel Protocols
for AIDS*.
[Is CFIDS Related to AIDS? See my page at www.fms-help.com/aids.htm.]
20. DR.
CRIST
From a
reader--
"
http://www.drcharlescrist.com/testing.htm -
Dr. Crist gives a well written summary of the
appropriate testing and interpretation of that testing to diagnose and properly
treat borreliosis (Lyme disease) and co
infections. This monograph is worth printing off to have on hand as
documentation for Drs. and medical professionals that are really interested in
helping us. As well as a good explanation for us to understand the process
as well."
21. AMERICAN PAIN
FOUNDATION
From a
reader--
"I am an active member of the American Pain
Foundation. Everyone with FMS/CFS/chronic pain or a loved one with chronic
pain should be a member. You can go to
www.painfoundation.org. The
founders & drs. behind the American Pain Foundation should blow your socks
off! This illustrious bunch are working hard to make sure we don't suffer
unnecessary pain as a result of ignorance! People who tell ME they have
FMS with chronic pain & won't take, don't take & don't believe
in prescription drugs to give them SOME quality of life scare the hell
outta' me. Another thing: I don't believe they have the same disease
I have....I have been in life-halting pain for ten years. I don't find
that an acceptable way to live!!!!"
[See my page called MISERY INDEX
at www.fms-help.com/misery.htm
- "CFS has
one of the highest morbidity rates (degrees of suffering) of any illness,
rivaling the physical misery of advanced cardiac disease and
cancer."]
22. GABA & MALIC
ACID
From a reader who went to
Disneyland--
"I normally couldn't go to Disneyland; even though we get an annual pass
every year, I have only managed to get there twice each year, which actually
pays for the annual pass, so it's okay, but the payback has always been
terrible! This year, I expected to wake up unable to walk or move and
to be in tremendous pain, but I'm just "sore" like a Normal person. Amazing! I
started taking two different supplements; one is called "GABA"
(gamma Aminobutyric Acid), and the other is a combo called "Fibro
Essentials", which has B-1, B-2, Niacin, B-12, Pantothenic Acid,
Magnesium, Malic Acid, DL-Methionine, Trimethylglycine, Inositol, and
Choline. I've taken supplements for years, but read in the Fibro magazine
I get that I should be taking Malic Acid, which I hadn't, so I
started taking that. I don't know if that has made a difference, but I also made
a Resolution that 2007 was going to be the year in which there was going to be
either a Cure for Fibro found, or a way in which to "manage" living with it, so
that I would feel more like a productive human being. Between all that and
prayers, I think something is helping me! I've never walked so
much in twelve years! We did stop quite often for me to rest, but still...this
was just "different" and it was magical to feel "normal" again.
So, thanks for the support; I truly appreciate it! I know I'm not ever
going to give up on getting well!"
23. GUAI
QUESTION
"I have been battling FMS/CFS for almost 6 years and it has
stolen
so much of my life that I have felt like giving up many times. I can't
remember a day where I have been without unrelenting and horrible
pain. I have also had three neurosurgeries in the past year.... one for an
unruptured brain aneursym, a spinal fusion, and months after that, I had to
spend my summer at Johns Hopkins so that a team of top neurosurgeons could
repair the damage to my sciatic nerve caused by the first neurosurgeon who drove
a 4 inch titanium screw into my sciatic nerve root and let me walk around like
that for 6 months before finally ordering a CT scan to see what was causing my
pain.
The whole ordeal began 6 years ago when I was the victim of a hit
and run MVA. That day set off a chain of events that really changed my
life.
I am 42 years old but sometimes I feel like a 90 year
old. My question is probably one that you have heard before. Have
you ever tried Dr. Amand's Guai protocol? I have been attempting to do it for
the past month but find it really, really difficult due to the salicylate
blocking. "Sals" are in everything! I have had to change everything I use and
have even been able to use my supplements due to the fact that they have plant
and root extracts in many of them. I also can't use my progesterone cream for
the same reason. I know that there are thousands of people who insist that Guai
has changed their lives and I really was hopeful but it is just so difficult to
avoid the Sal-full products. I just thought maybe you might know about
this program and could
tell me if it is worth the major
hassle.....I would be very grateful for some
feedback from
other Fibro patients who may know something about the Guai
protocol. Please feel free to put my question and e-mail
address in the newsletter. Dr. Amand says that it is not a cure but rather
treats the symptoms. He maintains that all FMS/CFS/MPS patients suffer from
their body's inability to excrete phosphates like normal people do and that
these excess phosphates have nowhere to go so they are absorbed in the tissue
and muscles where they attract calcium and water. He says that our trigger
points are caused by this overabundance of the phosphates." - Cheryl
GodsGirl7777@aol.com
Well, that's all for this newsletter.
There sure is a lot to talk about! Whew!
Bye for now!
Dominie Soo
Bush
100 Tips for Coping with Fibromyalgia &
Insomnia
DOMINIE'S FIBROMYALGIA & CHRONIC
FATIGUE SYNDROME HOMEPAGE