DOM'S NEWSLETTER
www.fms-help.com
 
 
My little dog, Cheeto, says hello to everyone!

March 18, 2010
 
A Christian-based, compassionate newsletter for people with fibromyalgia (FMS), chronic fatigue & immune dysfunction syndrome (CFIDS) and myalgic encephalomyelitis (M.E.)
 
33 TOPICS BELOW - DON'T MISS THE RED ONES.  Readers' comments in BLACK.  My comments in TEAL.
 
Dom's Quick links: 
Fibro www.fms- help.com/fibro.htm,
CFIDS www.fms-help.com/fatigue.htm
Insomnia www.fms-help.com/insomnia.htm
100 Tips for Coping with Fibromyalgia & Insomnia www.fms-help.com/tips.htm
What I Use Currently to Manage My Symptoms www.fms- help.com/what.htm
 
 
1.  READERS WRITE

"I enjoyed reading your website www.fms-help.com."

"A friend who has recently been diagnosed with fibro told me about your web page. I have been sick for around 20 years and your site is so informative.

"Thank you for your amazing newsletter and for your dedication."

"Reading your website I agree with a lot that you wrote, and was enlightened on several things I didn’t know."

"Love your newsletter!!!!!!!!"
 
 
2.  INFRARED SAUNAS FOR PAIN & SLEEP
 
From a male reader--
 
"The “Infrared Sauna”  I purchased for myself has made noticeable difference in pain and amazing difference in sleep.  Incidentally, you may reason “Florida is hot enough, I don’t need a sauna, more heat” .  you will be surprised how comforting that heat is even in hot climate.

I did a two month study  on saunas , comparing them to old finish steam saunas, comparing almost two dozen brands, comparing technology and infrared producing media and price.  I would highly recommend one to Fibromites.  Amazingly all you need is a regular wall outlet. The walls and pieces come already  semi assembled , and walls latch together in no time.  I was able to put mine together and make it operational  in one hour, by myself, even though I would recommend two persons.
 
So that your readers don’t end up reinventing the wheel, take advantage of my research and my engineering background, and keep in mind the following important criteria  when shopping for a infrared sauna:
 
* Don’t fall for ultra modern appearance and a lot of glass in walls and door. All that means is less room to install heaters ( Emitters) in strategically located places, and also more cost for luxury look.
 
*  Don’t fall for “Made in USA”. Almost ALL  saunas are made in china.  The difference is some are made under good supervision and some are not. Some even have Americans supervisors on site.  Good ones inspect all deliveries to their distribution center here in US, before sold.
 
* For sure don’t fall for amazingly slick home pages, videos, gobblygook names they invent and claim patent for it. Anyone can apply for a patent for anything.
 
* Don’t even consider  saunas in $900 to $1200  range. They do not have enough heaters, or are installed in wrong places, wired  dangerously, knocked out  of china by trainloads, not inspected and worse; you will have ton of trouble finding someone if you need service.
 
* Type of wood is somewhat important. Buy sauna that does not have glues inside, or finished inside with varnishes, or use woods that give off toxic fumes under high temperature.  Most commonly  accepted woods are:  Cedar, Spruce, Hemlock, Fir, Poplar.
 
After 2 months of research I  narrowed it down to 3 names I would consider and finally ended up buying  “Clearlight Sauna” brand.  It is recommended by doctors and others in health field and the design made more sense than any of them. I was able to make contact with the owners anytime I had question.  Their sauna may look somewhat simple, but that is what you want. They don’t waste wall space with glass, but all walls have emitters (heaters).  I could not afford their Cedar so settled for their Spruce, which has the same important components as their cedar. They are truly a integrity company owned by a doctor of chiropractic and others.  The assume full responsibility for shipment, or damage in shipment (Very rare ) (NOTE:  I have not told them I am writing this, I don’t get a penny for this recommendation, and have no ties with them other than having their sauna.  I am only sharing my experience).
 
A WORD ABOUT HEATERS (EMITTERS):   Finnish type sauna heats the air, the hot air in turn heats your skin and you start sweating. It is ok,  but  consider these: The purpose of “taking a sauna” in addition to relaxing is to rid the body of heavy metals , toxins and such.  Finish sauna does that only at the very thin layer , the outer part of the skin.  (By the way one can stand only 10-15 minutes of that high temp.  Also the  very high temps of Finnish steam sauna can be harmful to some people with heart problem, asthma and a few other things.  Infrared sauna on the other hand is not made to heat the air first, even though the air in cabin can get very soothingly warm/hot,  but not too hot.  It’s Emitters create invisible light in the range of Infrared (hence the name).  By trying variety of materials, they have found  ceramic and carbon when heated generate those infrareds. These in turn can penetrate the body as much as 1 ˝ inches (some claim 2”). Most of the nasty   and tenacious toxins accumulate in fatty cells of the body.  Finnish steam Sauna doesn’t even touch them, as they are too deep in the body for that type of heat from exterior.
 
Infrared on the other hand reaches into these fatty tissues and resonates the toxins out of their comfortable position , forcing them get moved out with sweat.   During my college years in Upper Michigan I have “taken” plenty of times of Finish steam Sauna.  First we had to stoke the fire, wait for the heat to get unbearable hot and so on…  I was amazed that in 15 minutes of infrared I started perspiring far more than I had ever done with steam sauna.  The sweat was literally  running off of me as if I just got out a pool, and more amazing was it really did not matter where the room temperature was,  because again, it is the infrared waves that do the job, not necessarily the heat, even though the heat felt soothing before bed.  They recommend you take a shower right after, so toxins do not get reabsorbed in the body, plus a few minutes of cool down is healthy.
 
A WORD OF CAUTION:  Ceramic heaters are fine, but they fail in 2 points. Their waves does not closely match human body waves as carbon does. Secondly, they have to install at least  8 heaters in a 2 person  Sauna to give it good coverage. Most don’t because of cost. Carbon heaters are the latest,  but sure enough there is always someone trying to use a good thing to rip people off.  Most of the cheap Chinese saunas are liquid carbon sprayed on some sort of backing,  which hardly give any Infrared. These are the cheaper ones.  I found  Clearlight uses a Japanese invention that mixes actual carbon fibers with ceramic fibers to make their heaters.   Though this becomes more expensive compared to just spraying a black ink, these heaters give off plenty of true infrared and their waves very closely match human body.  Their website is:  http://www.infraredsauna.com/knowledge.html."
 
 
 
3.  ABUSE IN CHILDHOOD

FROM DOM:  Many fibromites have had stressful or abusive childhoods.  (Maybe this is how toxins from stress chemicals accumulate in our bodies?!)  A lady who has been through tons of stress and abuse is actress and author, Stormie Omartian.  I read her amazing autobiography several years ago.  At that time, I only knew about her books on prayer being used in our Ladies Bible Study.  I had no idea that Stormie had also written an autobiography until I happened to see it in a bookstore.  I was deeply moved by her story on a number of levels.  Like Stormie, I also lived in the Los Angeles area during the horrifying Manson murders, and visited Jack Hayford's church in Van Nuys with friends. Stormie mentioned her abortion in a Las Vegas hotel room - I lived in Vegas around this time as well. (I began to wonder if our paths had ever crossed at some point?) The familiarity of the geographical setting, as well as my knowledge of Stormie's other books made this a "can't stop reading" experience.  Her story of growing up with a mentally ill and severely abusive mother is so transparent and well-written. I was so very sorry for all the pain she experienced and sure could understand her problems later as a young adult. Friends to whom I gave this book who had been abused as children were just blown away by it!  "Stormie" is one of the best autobiographies I have ever read. A lot of people have had mentally ill parents, and struggle for sanity as adults.  Fortunately in Stormie's case, there was eventually healing. (Several years ago I heard Stormie speak during a telecasted womens' conference and was impressed by her gentle, humble and sweet spirit. Readers who only know Stormie because of her books on prayer should read her autobiography to gain perspective on this author. It's amazing how far the Lord has brought her from her sick and pain-filled past. To God be the glory!)  The book "Stormie"is at http://www.amazon.com/Stormie-Story-Forgiveness-Healing- Omartian/dp/1565078322/ref=sr_1_1.
 
 
4.  RESTLESS LEG SYNDROME (RLS)
 
Reader 1--
 
"I have found help with Restful Legs from Hylands (homeopathic).  Magnesium can also be helpful (especially liquid forms which are absorbed more easily).  I have seen studies on both Vitamin E and iron supplementation.  Acetyl L Carnitine is also effective for some."

Reader 2--

"I found out about a homeopathic for RLS I have n ot tried.  Here's the link:  http://www.magnilife.com/product-restless-legs-relief.asp."

 
FROM DOM:  Here's something natural that may help RLS too - take a look at Proanthenols 50 mg at www.lifeplus.com/dominie.   Proanthenols got me pain free in 1996 after 14 years of severe FMS pain - I noticed from the list below that it also can help RLS.  I used 1 mg per pound of body weight per day with a glass of water - divide doses AM and PM to keep the effect going--
 
Benefits of Proanthocyanidins found in Proanthenols
  • Improves skin smoothness and elasticity.
  • Strengthens capillaries, arteries and veins.
  • Improves circulation and enhances cell vitality.
  • Reduces capillary fragility and improves resistance to bruising and strokes.
  • Reduces risk of phlebitis.
  • Reduces varicose veins.
  • Reduces edema and swelling of the legs.
  • Helps restless-leg syndrome.
  • Reduces diabetic retinopathy.
  • Improves visual acuity.
  • Helps improve sluggish memory.
  • Reduces the effects of stress.
  • Improves joint flexibility.
  • Fights inflammation in arthritis and sport injuries.

FROM DOM:  Back in 1996 when I became pain free, my family used to tease me that I would recommend Proanthenols for any kind of ailment, but it's true!  Proanthenols helps red blood cells to unclump so that they can carry oxygen to the brain and body much more effectively, and the results can be astonishing.

 
 
5.  YEAST OVERGROWTH (CANDIDA ALBICANS)
 
Reader 1--
 
"One of your readers was asking about being tested for a systemic candida infection [see www.fms-help.com/030610.htm.  In the excellent book Chronic Fatigue Syndrome A Treatment Guide, by Erica F. Verrillo and Lauren M. Gellman, I found the following answer:  Quantitative stool analysis: Great Smokies Diagnostic Laboratory - Blood tests to detect the presence of Candida antobodies: Immunosciences Lab. http://www.anapsid.org/cnd/resources/testinglabs.html.
 
 
Reader 2--
 
"In my personal experience, as well a s my professional experience with patients, I have found that all probiotics are not equal, and some actually can make the situation worse.   Try mild probiotics first in small amounts and work up.  Sometimes the die off o f the bad stuff can make you feel worse.  In all the ads they make it sound like this is a short process over in a few days. That is NOT my experience, and some probiotics I just can't take.  I actually take the Primal defense from Garden of life ONLY with a mixture of psyllium (metamucil) and bentonite clay and water which helps me tolerate.  I also recommend digestive enzymes, and I recommend immune system support as well. You also need something to help with liver and kidney support so that your major cleansing organs work well. I take liver balance plus and kidney rescue from pure body institute, both of which you can find online."
 
 
6.  NO DEPRESSION OR TRAUMA PRIOR TO FIBRO
 
From a reader (re: article in last newsletter www.fms-help.com/030610.htm)--
 
"I too had no depression or trauma. My fibro/CFS started after I had a bad flu and virus at the same time and was sick in bed on antibiotics and some antiviral for a week.  After the antibiotic I developed SEVERE constipation and could not sleep at night. I believe it was either yeast development or some infectious agent that did not go away.   I did not become depressed until I totally lost my quality of life.  (I am now ok through alternative treatments but did not become ok until I used them).  I hate to imagine where I would be now if not for alternative medicine."
 
FROM DOM:  So maybe FMS/CFS can be purely viral, but I'm sure a lot of us got it from stress running down our immune systems, allowing this virus to do its dirty work.
 
 
 
7.  MIRAPEX, DOPAMINE & DR. DRYLAND'S BOOK
 
Reader 1--
 
"In response to #24 at www.fms- help.com/030610.htm, I tried Mirapex and the side effects were absolutely horrible.  I read the book the 'Fibromyalgia Solution' by Dr. Dryland, and I tried the things it said but I didn't feel any better...I actually felt worse!"
 
Reader 2--
 
"If you run into someone who has actually tried this protocol would you publish it.  The massive doses of Mirapex scare me, although that's the drug of choice for RLS.  For many people it causes insomnia.  I went to order his book, but really can't even afford a $15 book right now.  I just have the RLS and insomnia and tinnitis,  but what I read on the website does make sense.  Plus you can get a free download of the first chapter of his book.  I just wish he would do this online so its not so expensive - I am very cynical - if his cure really worked wouldn't we hear more about it?"

 
 
8.  TYPHUS FEVER, INTERSTITIAL CYSTITIS, RAYNAUD'S, & HYPERMOBILITY
 
From a reader--
 
"I had endemic typhus fever as a 4th grader and was in the hospital for a week and had very high fevers for 2 weeks.  Typhus is rhicketsial the way that Lyme disease is.  I have no idea if that is a factor to my fibro.  I’ve had some minor car accidents and one more serious one (no injuries though).  I’ve never broken a bone thanks to the protection of the Lord I guess.  I am under very little stress these days, but have certainly had times in my life when the career and family stress was much higher, but I guess most people do.  I never had stress from dealing with abuse.  Both of my retiree parents very healthy and so are my siblings.  Although migraines run in my family.  I guess my main factor is joint hyper mobility.  I had never heard of it until the rheumatologist said I had it.  I 100% thought he was teasing me and making up a name when he was showing me that what my toes do is not normal.  I passed hypermobility and migraines to my son (he’s 25).  I also have Raynauds quite bad, always have.  I was having Raynauds episodes WAY before any joint pain in my life.  Although my dad is healthy he also has Raynauds, so I can only assume there is a genetic component.   I have it worse than he does.  I was also diagnosed with an autoimmune bladder disorder called interstitial cystitis when I was only 18.  That is very early onset.  I’m in my 40s and of course still have it.  There is no cure.  I started having IC symptoms very early, like 12.  That is not usual.  The IC might be due to having typhus for 2 weeks as a child.  When you have a fever that long, that high, tissue just gets damaged.  My eye sight was ruined after typhus and I had to get glasses in 4th grade.  Who knows!  Nobody researches whether those of us with IC, or fibro, or hypermobility all had high fevers as kids do they?"
 
FROM DOM:  I have IC and bladder info at www.fms- help.com/bladder.htm.  Also, I have mentioned hypermobility in past newsletters.  Search using the Google search box at the end of this newsletter.
 
 
 
9.  READERS' PRAYER CORNER
 
David - requests prayer that his new doc can suggest something to help his FMS.  He is blind and also suffers with fibro symptoms of anxiety, sleep disorder, pain, fatigue, depression, etc.
 
Sandie - Sandie and her husband are both recovering from surgery - especially pray for her husband who had extensive back surgery and battles other serious medical conditions, as well.
 
 

10.  OUR STRANGE SLEEP PATTERNS
 
From a reader--
 
"Today I woke up about 7:00 am and felt so calm and relaxed, I read and dozed off to sleep and woke up about 9:55 and felt anxious and horrible again.  Not sure what gave me that little oasis of calm. I liked it." 
 
FROM DOM:  Having a sleep disorder is so baffling!  Our brain waves and brain chemicals are not working correctly.  My insomnia story is at www.fms- help.com/insomnia.htm (had a sleep disorder since age 16.  I am now 58.)  A list of everything I've tried for sleep is at www.fms- help.com/sleep.htm.  I am managed fairly well now after decades of suffering - my current list of things I take is at www.fms- help.com/what.htm.
 
 
11.  SAVELLA ( MILNACIPRAN)
 
From a reader--
 
"I have stopped Savella - side effects were way too debilitating."
 
FROM DOM:  Search my past newsletters for more about Savella (use Google box at the end of this newsletter).
 
 
12.  IS FMS GENETIC?
 
From a reader--
 
"My sister was diagnosed with Fibro  too just recently at 42, but her condition is mild compared to mine.  Hmmm...family connection?"
 
FROM DOM:  Lots more about this subject in past newsletters - use Google search box below.
 
 
 
13.  DISABILITY FOR FIBRO
 
From a reader--
 
"I was diagnosed in my late 20's (now 40) and SS has brought up my age twice when they denied me for SSDI. I'm now waiting for a hearing. I hope I get an understanding judge.  Your prayers would be appreciated."
 
FROM DOM:  Many readers sent in disability tips - see www.fms- help.com/disability.htm.
 
 
 
14.  ACTIVIA YOGURT
 
From a reader--
 
"I just wanted to make a note about the Activia yogurt that a reader suggested.  It claims to have more strains of probiotics but it is full of sugar!  One of the dietary disasters we are trying to avoid.  I use plain yogurt myself and add fruit of veggies to it."
 
FROM DOM:  Good point!  Sugar feeds yeast (candida).  I take an acidophilus (probiotic) capsule daily.  My complete list of things that help me is at www.fms-help.com/what.htm.
 
 

15.  EXERCISE & FIBRO

From a reader--
 
"I have recently found this website www.NaturalFibromyalgiaTreatments.com from a Toronto chiropractor on the web. It has some great tips on FMS and makes a lot of sense."
  
FROM DOM:  If the doc's solution were this easy, all fibromites would be healed.  I even hear from professional athletes who are now debilitated by fibro.  So much for regular exercise being the answer.  I have much to say about exercise, blood flow, etc. in my newsletters and site www.fms- help.com. Try a google search in the box at the end of this newsletter.  I think fibro has more to do with the clumping of red blood cells, which hinders them from transporting oxygen efficiently to the brain and body tissue.  Under a darkfield microscope, the red blood cells should look like Cheerios floating in a bowl of milk, not like a chain or a cluster of grapes.  Powerful OPC's and stabilized liquid oxygen drops in water can help the unclumping and thereby enhance the transportation of oxygen to the brain and the cells.  BTW, OPC's are one of the few substances that can cross the blood/brain barrier.  For brand of OPC & oxygen drops I use, write dombush@bellsouth.net.  Others are not as effective, if at all.
 
 
16.  1,001 USES FOR WHITE VINEGAR
 
From a reader--
 
www.vinegartips.com/Scripts/pageViewSec.asp?id=7
 
 
 
17.  MANAGING FIBRO
 
From a reader--
 
"My Fibro has been ok, not great, but it sure goes down hill when I don't keep up nutrition - food and supplements."
 
FROM DOM:  Isn't that the truth!  My personal list is at www.fms- help.com/what.htm.  I am "managed" but not "cured."  (I am thankful, though, to be managed!  Began my FMS journey in June of 1982 www.fms- help.com/fibro.htm.)
 
 
 
18.  OXYGEN DROPS & HERPES VIRUSES
 
From a reader using the oxygen drops--
 
"I have NOT had the flu or the cold...and I get so sick so fast!  when someone sneezes in public, I just KNOW I will get sick; my grand daughters and my daugter have all been sick and I have not been sick in the least bit and THAT is saying a LOT.  I did not equate it with the oxygen drops, though. wow...might really be something!"
 
FROM DOM:  See the link between herpes viruses and FMS/CFS at www.fms- help.com/virologist.htm.  The oxygen drops help kill the virus.  I have not had any cold or flu since I beganusing the drops in August 2009.  This is a miracle for me.  As a CFIDS patient since 1987 www.fms- help.com/fatigue.htm, I have been a victim of every virus that came along.   I could not continue working as a piano teacher at a school of music www.fms- help.com/students.htm if my health had not improved because of being in such close proximity to sick children nearly every day.
 
 
 
19.  50 HOUSEHOLD USES FOR BAKING SODA
 
From a reader--
 
http://tipnut.com/household-baking-soda
 
FROM DOM:  We all need to have less toxic chemicals polluting our homes.  These are interesting ideas.
 
 
 
20.  DESCRIBING FIBROMYALGIA
 
From a reader (trying to describe FMS to her family and friends)--
 
"I know I don't look sick & you don't understand. It is hard to understand unless you experience it. I feel so exhausted I can't function, even when I've been at rest for hours. My muscles ache & burn like I've been over-exercising, only I haven't been exerting myself at all. It's like having a leg-ache or charley horse all over my entire body. My body is stiff & achy and my skin even hurts to be touched. I feel like I have the flu. I can't remember things, form thoughts, find words or keep my train of thought. I feel completely helpless & disabled by a silent unexplainable illness that makes me want to crawl into bed and never come out. I'm exhausted, in pain, anxious, helpless, isolated, disappointed in my limitations & feel like a complete failure. 99% of the population thinks I'm fine because I look fine.It seems like I can't find enough right words to explain this. It never goes away.  I never get well & even things I enjoy are now intolerable. I miss my life and I miss being a productive, healthy, functioning member of society. I have gone from being the major bread-winner to barely able to work. This illness affects me physically, emotionally, mentally and in even more ways than you can imagine. I want to be well, please be patient and try to understand that what I can do one day I cannot do another day, that I don't like being confined to bed for almost all of my available time, that I hate feeling this way and am glad you don't understand what I am dealing with; if you did understand it, it would me that you are condemned by FMS too, and I don't wish that on anyone!"
 
FROM DOM:  See my page about dealing with fibromyalgia skeptics at http://www.fms-help.com/skeptics.htm.
 
 
 
21.  LYRICA COMMERCIALS
 
From a reader--
 
"My own daughter and sister are [FMS] skeptics and I have let them read everything you have sent me.  It hurts me very deeply that I do not have the energy to do even half of the things I used to do. My daughter has gotten very upset with me for having to cancel something to do with my grandchildren. She and my sister kind of joke that I'm just ALWAYS sick.  I wish the MEDICAL field would come out with more concrete proof so we had a "REAL" disease in other people's minds.  One other thing that really upsets me are the stupid LYRICA commercials! I don't know if others have commented on them but it makes it sound like ALL we fibro people need to do is pop one of their pills and we will be ALL better.   Unfortunately their pills don't give a person the energy to be able to function at full capacity nor do they help with the fibro fog or insomnia of which both I personally suffer greatly.  I can take something for the pain but it is NOT the PAIN that is basically stealing my life.  It is lack of or barely any energy, major insomnia and fibro fog that is so bad it has become very embarrassing to me.   Like you I was a high achiever and straight A student who can't remember half of the time, if not more what I did last week or if I made a phone call or even worse how to get somewhere I have driven for years!  Lyrica advertisements are not only misleading to me but are very offensive to those of us who suffer from way more that aches and pains.  Do you think we could have a letter with signatures sent to them? - Fibro sufferer since 1994"
 
FROM DOM:  I have written a lot about the Lyrica commercials in past newsletters.  Search at www.fms-help.com/newsletters.htm.   I think anyone who is offended by those awful TV commercials might want to email the company.  Here is the contact form for Pfizer, the makers of Lyrica: https://www.pfizer.com/contact/mail_general.jsp.  Let them know what you think.  BTW, my internal medicine doc told me that Lyrica is helpful with shingles pain (which is horrid - having had shingles last year....my other doc prescribed Lortabs, which barely dulled the pain).  I have used a few capsules of Lyrica when my post-herpetic neuralgia was bad, and it was helpful.  I also took 1 capsule when I had ulnar nerve pain from practicing and performing a very difficult piano piece, and it relieved th pain.  However, way back when my doc gave me the Lyrica samples and was urging me to try it, I took it for about 3 days and started to feel really weird in my head (hide the guns and knives) - so I stopped taking it.  If you see their page on fibromyalgia and Lyrica at http://www.lyrica.com/fibro_homepage.aspx, they say it is not for everyone.  Most readers who tried Lyrica strongly disliked the side effects.  If you would like to share your experience with Lyrica (is it helpful for FMS or not?), write dombush@bellsouth.net.
 
 
 
22.  SCHIZOPHRENIA
 
FROM DOM:  A popular and intelligent girl I knew in high school (1968) has recently written an excellent book about schizophrenia (a brain disorder), from which she has suffered since age 18 (after having mono).  It's called "Walking Through Walls" by Two Lenz.   I wrote a review at http://www.amazon.com/Walking-Through-Walls- Overcoming-Barriers/product-reviews/1432718452/ref=dp_top_cm_cr_acr_txt? ie=UTF8&showViewpoints=1.  There's a stigma to having a mental illness just like with FMS/CFIDS.  For some reason it's acceptable if the organ in your body that's malfunctioning is your liver or kidney, but not your brain!  I look forward to much more understanding of these complicated illnesses as researchers continue their work.  (Regarding the stigma of FMS/CFIDS, see my letter to Congress www.fms- help.com/congress.htm.)  See #24 below about Orthomolecular Medicine!
 
Comment from a reader--
 
"Schizophrenia is a metabolic disease, usually caused by low blood sugar-hypoglycemia affects the hypothalamus. One of many possible symptoms, in some people is schizophrenia. If you observe schizophrenics (and I've been closely involved with 2 of them), you will see that they have hypoglycemia and that precipitates the bouts of it. There are other factors such as high needs for niacin ( a symptom of being highly evolved-complex nervous system. Study the life of Van Gogh-look at the pictures). It's not too hard to figure out-you have to read the books by the great medical nutritionists (all banned but you can get them on Amazon) It's all in there."
 
 
23.  CONSUMER LAB TESTS VITAMINS, HERBS, ETC.
 
From a reader--
 
"My Dr. just turned me onto a site called Consumer Labs www.consumerlab.com.  It is just like Consumer Reports but for vitamins and supplements. It is $30 a year to subscribe but these medical guys test a ton of vitamins, herbs and supplements. They do not get paid by anyone so their findings are not biased. It has given me some peace of mind by checking the supplements that I take to see if they are legit and indeed good for me. I actually decided to stop some product use after reviewing them and have the confidence now to choose the healthiest vitamins and supplements for me. They also don't encourage you to buy one brand or another. The simply put the vitamins and supplements to the test and present you with the findings so that as a consumer you can make the best choice for you.  Thought I would pass this along because it has been a helpful tip for me since I am trying to tackle FMS/CFS naturally."
 
 
24.  ORTHOMOLECULAR MEDICINE
 
From a reader-- (see #22 above about SCHIZOPHRENIA)
 
"I just ran into an article about Schizophrenia in a health magazine.  It is about a Dr. Abram Hoffer who has written several books on this subject.  Basically his take on it is that people with this disorder has a metabolic disorder---
 
"At the time schizophrenia, a disorder marked by hallucinations and poor social functioning, was seen as a product of bad mothering.  But Hoffer found that people who suffered from this disorder were unable to clear adrenochrome, a toxic metabolism byproduct, from their brains, and thought that large doses of vitamin C and niacin might help.  As a result Hoffer helped establish the idea that mental disease could have biochemical causes, a break through for his time.  He described his work as "orthomolecular medicine." 
 
It goes on to say that just as this was coming to light, so were all those other drugs for the mental illness so it was largely ignored.   He has 30 books to his credit and also founded the "Journal of Orthomolecular Medicine."  He claims that as he practiced for over 40 years, he has seen thousands of mental patients recover using this method, even ones that couldn't be helped by traditional medicine.  I just wanted to let you know because you are awesome at getting the word out.  If there can be something to help these patients--I am all for it.  What a scary way to have to live!!
 
FROM DOM:   Many chronic schizophrenics are homeless:  here's an impressive biography about Dr. Abram Hoffer - he advocated using megavitamins for schizophrenia.  See http://www.doctoryourself.com/life_hoffer.html.  Years ago I read a fascinating book on orthomolecular nutrition.  It had a story about a man seeing a psychiatrist for "separation anxiety" issues.  Every Friday night his wife went to a club meeting and he sat on the porch.  He started having anxiety attacks when she starting going to this club.  But guess what it turned out to be?!   The roses that were growing around their porch were sprayed every Friday, and his brain was allergic to the chemicals!  When they stopped having their roses sprayed on Fridays, he never had the anxiety again.  It had nothing to do with unresolved issues with his mother or his wife!  How many people are seeing psychiatrists and psychologists when in actuality their problems are physical - not emotional or mental??
 
 
 
25.  GENERAL ANESTHETIC & M.E. (MYALGIC ENCEPHALOMYELITIS)
 
From a reader--
 
"Any condition linked with the brain is not accepted in the medical professionals when I was in hospital in November 2009 they all thought I had chronic depression this was their view on M.E., anyway I was just put to onside and ignored and treated like I was a disease they they didn't want to catch and all they did was shout over the top of me and they never listened to me when I told them my legs and brain were in slow mode because of the effects of general anesthesia after major surgery! It was the most horrific experience of my life! But God got me out of there and back home after 3 days for my husband to care for me properly! He intervened and got me home! I hope more can be done for mental health as well as M.E. - we don't get the respect we deserve. Thanks for your email on schizophrenia its also a horrid condition for anyone to live with! (Topic 22 above)."
 
FROM DOM:  Thank God this reader had a caring, empathetic husband who advocated for her.

 
 
26.  PCB'S IN FISH OIL SUPPLEMENTS
 
FROM DOM:  Got this warning from a reader about chemical contaminants in fish oil (Omega 3's): https://org2.democracyinaction.org/o/6491/images/Prop %2065%20fish%20oil%20press%20release.pdf and www.fishoilsafety.com.  I use a safe fish oil - molecularly distilled EPA Plus.  It helps me with depression.
 
Comment from a reader--
 
"Taking good fish oil is actually less toxic to us than eating fish!!  The fish we eat is certainly not clean of contaminants or chemicals.  I feel like I am doing my body a good service by taking fish oil."
 
FROM DOM:  Omega 3's boost brain function in boys: http://articles.mercola.com/sites/articles/archive/2010/03/16/omega3-boosts-brain-function- in-boys.aspx


27.  VITAMIN A BLOCKS VITAMIN D'S EFFECT

http://articles.mercola.com/sites/articles/archive/2010/03/16/warning-new-proof-confirms-if-you-take-this- supplement-vitamin-d-will-not-work-as-well.aspx
 
 
 
28.  BABY CRIB M ATTRESSES
 
From a reader--
 
"This lady does a newsletter q&a, kind of like yours, except she has written a book and I think takes donations so it is more of a career but still I think she has been there and tries to help chemically sensitive folks.  In any case, this link discusses restrictions on local farming (which big agribusiness doesn't want but its better for us), and possible new regulations requiring cribs to use the original mattresses (which often are toxic) that come with the crib as opposed to being able to substitute an organic mattress.  (An alternative is to cover the baby crib with foil to prevent outgassing of the mattress chemicals which I did)  http://www.qna.debralynndadd.com/node/2355."
 
 
 
29.  CELIAC DISEASE & GLUTEN INTOLERANCE
 
From a reader--
 
"The doctor seemed to think I have celiac disease – said the blood tests were pretty conclusive and generally doctors do not test for this.  I have started on a gluten free diet and I believe it is helping me.  He said this might also help the fibro as well because my body could not process food correctly before.  Also, celiac sometimes comes to the forefront after surgery – but a lot of times a person has it but just thinks it is IBS or something you ate on occasion.  It may pay to have this checked.  He said it will not cure fibro nor get me off the diet (if it works) but can sure help.  Will let you know how I am doing but some of the aches are less severe – I am to return to him in 4 weeks.  The diet is not that hard to follow and if this also helps the fibro – hurray!"
 
FROM DOM:  I have discussed gluten intolerance and celiac disease often in past newsletters - try a search at www.fms-help.com/newsletters.htm.
 
 
 
30.  THORACIC OUTLET SYNDROME
 
From a reader--
 
"I was finally diagnosed with fibromyalgia last month and last Thursday with TOS (Thoracic Outlet Syndrome) by a Vascular Surgeon...due to repetitive job related work conditions. Took me off work immediately...6 weeks to start, told me to file for workers comp. and look for a good attorney. He also said, it is going to take at least a year for me to recover from this injury/condition, he doesn't recommend surgery says 30% have recurrence with TOS, especially if they keep doing the same thing, and can occur on the other side. Developed Carpal Tunnel and Tendonitis with it on the right shoulder and arm."
 
FROM DOM:  I too was diagnosed with Thoracic Outlet Syndrome very early in my fibro experience (1982) and also experienced tendinitis in the shoulder and arms.  Thank God I have been pain free for many years now.  A list of things I'm using is at www.fms-help.com/what.htm.
 
 
31.  CYMBALTA
 
From a reader--
 
"The rheumatologist put me on Cymbalta (made me sick as a dog) dizzy, light headedness, nauseated, and diarrhea."
 
 
 
32.  ENDOCRINE SYSTEM, CORTISOL & FMS
 
From a reader--
 
"I went to an acupuncturist she said fibromyalgia is due to failings of the Endocrine Systems...hypothalamus, pituitary gland, thyroid and adrenals. In turn affect the whole body....spine and muscles. (Nerves and Muscles)  Most are not functioning properly either under/over working . Due too extremely high stress levels for too long creates a mass production of Cortisol hormones  in the body by the Adrenal glands...it over floods the brain & body-weight gain and wider waist, brain which effects the Central nervous system of the brain (Hypothalamus) to keep misfiring sending out pain signals. Which causing pain throughout the body. Also when it comes to trigger point and she said it has something to do with Acid build up in the muscles for protection (when there is an imbalance of the body and it tries to compensate itself. (My Chiropractor said it's Imbalance due to vertebrae and muscles, that is when trigger points develop) like tender points they too cause pain.  Now I am only sharing from what I remembered from that one visit. A lot of it makes sense to me however, maybe not to everyone. It is so much to learn about this debilitating condition."
 
 
33.  WHY DOES FMS AFFLICT INTELLIGENT, INDUSTRIOUS PEOPLE?
 
From a reader--
 
"You have mentioned several times  "This illness seems to afflict the hardest working and brightest of our population."   You are correct.  Before the illness I could conquer the world in one day and start on tomorrow.  I was sharp minded.  I am sharp minded now, but it doesn't seem to come out of my mouth the way I want it to or I am so slow people don't pay me any attention.  I am still working and trying to push to keep my job.  I have one in college and one who will be in four years.  These are supposed to be the best times of my and my childrens' lives - I ask God to help me fix things everyday.  I do see progress, but it is very slow.  My house use to never have so much as a piece of dust in it.  Now, I just have to let it go to conserve my energy for work the next day.  I want to know why the  hardest working and brightest appear to be the ones afflicted?  That is worth looking into."
 
FROM DOM:  For a list of o ccupations of my readers, see www.fms-help.com/occupations.htm.  Perhaps we put more stress on ourselves than other personality types, thereby blowing out our nervous systems early in life - or here's a more insidious idea -  FMS/CFS could be caused by an enngineered virus or bacteria in order to debilitate the intelligent, but not kill them.  There was an article in the Florida Times Union newspaper several years ago with declassified information that a bacteria was dropped on cities from Alaska to Florida to see what would happen to population groups as a biowarfare experiment.  Go to www.fms-help.com/mycoplasma.htm and scroll to the very end to read about this shocking article.  


II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God."  Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.