Dom's FMS/CFIDS Newsletter

www.fms-help.com

Dominie in 1986 - my 35th birthday!

March 25, 2011

A Christian-based newsletter about Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.) - sharing thoughts, research and experiences.

FIBRO STORY       CFIDS STORY       INSOMNIA STORY        HELPFUL THINGS I USE      PREVIOUS NEWSLETTER      ARCHIVES   

Topics in this issue - scroll down to read:  1. READERS WRITE   2. FIBROMYALGIA - INVISIBLE DISEASE EMERGES FROM THE SHADOWS   3. BETTER WOMAN BLADDER CONTROL   4. CURE FOR TINNITUS (RINGING IN THE EARS)    5. DANGERS OF SODAS   6. MASSAGE   7. CURE TOOTH DECAY   8. READERS' PRAYER CORNER   9. BIOMAT & HOMEOPATHY   10. FIBROMYALGIA FLOAT DAY IN NORTH TEXAS   11. BEAUTY PRODUCTS & FIBRO   12. UNLOCKING CHRONIC FATIGUE SYNDROME   13. A DRUG FOR ME/CFS? THE RITUXIMAB STORY   14. IF GOD IS DEAD, WHO IS FLYING THIS PLANE?   15. SOMNAPURE   16. THE LADDER ACCIDENT    17. FIBROMYALGIA AWARENESS - MAY 2011   18. REDISCOVER GOD IN AMERICA    19. NATURAL CLEANER    20. NEGATIVE HPA AXIS FEEDBACK WITH CFS   21. DOM'S DENTAL UPDATE


1.  READERS WRITE

 "I have found your website www.fms-help.com to have so much valuable information."


2.  FIBROMYALGIA - INVISIBLE DISEASE EMERGES FROM THE SHADOWS

http://www.empowher.com/fibromyalgia/content/fibromyalgia-invisible-disease-begins-emerge-shadows

 

3.  BETTER WOMAN BLADDER CONTROL

http://www.betterwomannow.com/content.aspx?CTF=testimonials&a_menu=testimonial&a_image=testimonial#10

FROM DOM:  Has anyone tried this?  Please write dombush@bellsouth.net with comments.  Sounds great.  See my page at www.fms-help.com/bladder.htm for readers' suggestions about dealing with bladder problems.

 

4. CURE FOR TINNITUS (RINGING IN THE EARS)

From a reader--

http://www.neuromonics.com/ - Snippet: "No Medication or Surgery - Only the Neuromonics Tinnitus Treatment is clinically proven to offer long-term significant relief from tinnitus. This patented treatment method is FDA-cleared, non-invasive, and customized for each patient to address the root causes of tinnitus disturbance."

 

5.  DANGERS OF SODAS

http://articles.mercola.com/sites/articles/archive/2011/03/21/watch-how-soda-affects-your-body.aspx

 

6.  MASSAGE

From a reader--

"While I agree with what the reader at www.fms-help.com/032111.htm (Topic #4) is saying, we need to be careful about statements like these:  "I don't think her pain was that severe to begin with" once we start judging each other's pain we start heading down that slippery slope of not supporting each other.  But seriously, massage twice a week?!! I WISH I had that kind of money!"

FROM DOM:  Yes, we need to keep supporting eachother and not judging one another's pain levels.  Otherwise we are doing to fellow fibromites what the skeptics do to us.  (And what fibromite wouldn't love to have 2 massages a week!  Let's try not to be green with envy!)

 

7.  CURE TOOTH DECAY

From a reader--

http://www.curetoothdecay.com/Cure_Tooth_Decay_Preview.pdf

 

8.  READERS' PRAYER CORNER

Pat - Newsletter reader since 2007 passed away suddenly on March 10 at age 63 from a massive heart attack.  She was a very kind and caring person.  Please pray for Pat's family to be comforted in their immense loss.

Pattie - Reader with severe fibro is caretaking her elderly parents who are extremely ill.  Please pray for strength for Pattie and also for help to arrive soon.

 

9.  BIOMAT & HOMEOPATHY

From a reader--

"I just wanted to let you know what has helped me more than anything so far with my Fibromyalgia symptoms.  I declared 2011 my year to figure it all out and I think I'm making some progress.  I went to see a homeopath who asked me a million questions and made me analyze each answer.  He came up with a "remedy" which I will take every day until my symptoms are gone.  I noticed an improvement the next day and it has continued since.   I also bought a Bio Mat.  (www.biomat.com)  The Bio Mat is my constant companion.  The far infrared heat warms my muscles and releases the pain and tension.  I noticed improvement immediately when I started using the mat.  Granted, it is a huge investment, but to me it has been worth it.  I actually ran down the stairs last week to get the front door.  My kids - and my friend at the door - all stood in amazement because they are all used to seeing me walk around like a ninety year old woman.  I didn't even realize I did it!  I am so very thankful!!!"

 

10.  FIBROMYALGIA FLOAT DAY IN NORTH TEXAS

From a reader--

"As a fellow Fibromite - I have found that floating provides quite the relief from the always present symptoms of FMS. @Peace Floatation is a great place located in North Texas. I highly recommend this to anyone suffering from FMS.  I think a lot of your Texas readers will really benefit from this offer."  See http://atpeacefloatationspa.com/ - Snippet:  Join Us! Fibromyalgia Float Day! - @Peace will be participating in an International Floatation Study during April and May. We have been recruited to volunteer one day of floatation therapy to people suffering from a specific disorder. This Clinical Trial will focus on Fibromyalgia because there is preliminary evidence demonstrating the benefits of floatation with this population. Fibromyalgia symptoms include pervasive muscle pain, the presence of numerous trigger points, failure to achieve restful sleep, depression, and a deficiency of magnesium. Studies have shown that floatation offers relief from muscle pain, as well as improve sleep and mood while increasing magnesium in the body.  We would like to recruit fibromyalgia sufferers to participate with us in this study. If you or someone you know is a fibromyalgia sufferer and has never floated before, we would love to invite you to join us in this study.  Information packages are available via email to explain the process.  Once you have enrolled in the study, your physician will need to provide authorization for you to participate before your sessions can begin. The package also contains a questionnaire to gather information from you regarding your history with fibromyalgia, status of your symptoms, and your individual characteristics.  If you would like to volunteer or know more about this, please contact us at atpeacefloat@mac.com and we will send you the information packet.  The deadline to sign up for participating in this study isApril 4, and all completed paperwork must be submitted back to @Peace by April 18. Between April 18 and the celebration of Fibromyalgia Float Day on Thursday, May 12, the study participants will begin their scheduled float sessions. In addition, a portion of the proceeds from all floatation services during the week of May 12 will go to Fibromyalgia Research.  Thank you so much, and we hope to help make a difference in the lives of people struggling with this painful disorder.

 

11.  BEAUTY PRODUCTS & FIBRO

From a reader--

"http://informedbeauty.com/ discusses natural beauty by a former "beauty business" professional talking about natural ways to make yourself more beautiful. I might also add that my mom's graying hair started turning browner again after she started on armour thyroid. It was pretty amazing, Even her beautician noticed- she never colored her hair.  Even if you remove the symptoms such as scalp itch, you are still being poisoned by the dyes.  Part of fibro, MCS and everything else is a "total load" thing. The less chemicals you use whether they be hair dye, skin cream, make up, nail polish (which can contain formaldeyhyde=embalming fluid) etc, the less your body will have to detox, and the better able you will be a to tolerate the toxins you cannot avoid such as the perfumes of strangers, car exhaust, pesticides at your job etc. This info is from Dr. Rhea, environmental medicine specialist MD whom I used to see when I was sicker."

 

12.  UNLOCKING CHRONIC FATIGUE SYNDROME

Wall Street Journal article from a reader--

http://online.wsj.com/article/SB10001424052748703858404576214443015558976.html?mod=googlenews_wsj - By AMY DOCKSER MARCUS - Snippet: "As scientists race to find a biological cause for chronic fatigue syndrome, long considered by many doctors to exist in patients' heads, the National Institutes of Health could shed new light on the debate at a major scientific workshop on the disorder. Researchers at the University of Utah and elsewhere are working to create diagnostic tests, based partly on proteins or other markers that appear to show up in greater quantities in patients with chronic fatigue syndrome. Diagnosing the disorder is difficult, in part because symptoms vary among patients.  Other scientists are trying to understand why other infections, such as mononucleosis, appear to prompt chronic fatigue syndrome in some patients. And in a program at New York's Columbia University, researchers are seeking to identify pathogens that may appear prominently in patients with the disorder. Researchers will be testing "for all those agents that we know affect vertebrates on this globe," says Mady Hornig, who heads the Columbia program. Chronic fatigue syndrome affects between one million and four million Americans. They suffer from memory and concentration problems, debilitating pain and severe fatigue. Unable to identify a cause, doctors often dismissed these patients as complainers.  Currently, diagnosing chronic fatigue syndrome is largely a process of elimination. Molly J. Billings, 22 years old, first showed symptoms of the disorder in 2004, including headaches, muscle aches, fatigue and weakness. A year later, she could only get around by wheelchair and was bed-bound most of the time. She endured years of tests to rule out other medical explanations for her condition. [Picture of Molly J. Billings, who has chronic fatigue syndrome, left, with her mother, Edwina, in their Kendall, N.Y., kitchen.]"

 

FROM DOM:  See my page about children and teens with FMS/CFIDS www.fms-help.com/teens.htm

 

 

 

13.  A DRUG FOR ME/CFS? THE RITUXIMAB STORY

 

From a reader--

 

"I ran into this story of a Chemo Drug called Rituximab being used and tested on CFS/ME patients that has helped them.  This has led them to think in a different direction as far as helping us.  This drug has helped other illnesses too." - http://forums.aboutmecfs.org/content.php?287-A-Drug-For-ME-CFS-The-Rituximab-Story-possible-chronic-fatigue-syndrome-treatment - Snippet: "Could the first drug for ME/CFS be a chemotherapeutic drug? That would sound like a long shot at best but the fact is a two physicians in Norway are having surprising success with a drug originally developed to treat cancer."

 

 

14.  IF GOD IS DEAD, WHO IS FLYING THIS PLANE?

Article from www.moodynews.com--

"When the highly educated man debating me in London’s Hyde Park said to me, “I don’t believe there is a God,” I said, “You had better tie your leg to a tree tonight before you go to sleep. If gravity quits working during the night you are going to drift out in space.”  Of course, if you have faith that there is a God in heaven who will see to it that gravity will still be working tomorrow morning, you can leave the rope off. 
  
The fact that the universe is so well maintained demands a “Maintainer.” The Bible assures us God not only made this amazing universe, but He keeps it all together—running in good order: “By him all things consist”--(Colossians 1:17).   The existence of anything as big and complicated as this universe is great. But the fact that it keeps working so wonderfully day after day is fantastic. The constancy of natural law is a great evidence there is a God.
  
We are sitting on a spaceship called “earth” in a galaxy that is flying through space at 1.1 million miles an hour! Inside this fast-flying galaxy we are rotating around its nucleus at 500,000 miles an hour. Try not to get dizzy while thinking about the fact that we are also revolving around the sun at 67,000 miles an hour. If we go just one degree off course we drift off into space.   The stars are so dependable we can navigate ships by them. The Bulova watch company even bragged, “We set our watches by the stars.” 
  
We keep turning at the same speed of just over 1,000 miles an hour. This is one of earth’s movements we can understand because the earth is 27,000 miles around and we made a complete turn between noon yesterday and noon today. We make the complete 27,000-mile turn in 24 hours, which is over 1,000 miles an hour. If we were to slow down to rotate at only 100 miles an hour, all plant life would freeze during the 10 days of darkness and be burned up during the 10 days of sunlight. But we keep rotating at the right speed of over 1,000 miles an hour.
  
Scientists teach us there are “laws of nature.” How can you possibly have laws without someone making them? The one who wrote these laws and enforces these laws is God.  When Life magazine printed “God is dead” in blazing headlines across their cover it really got my attention. Then I listened to San Francisco’s hippies shouting, “Man, we can do our own thing. God is dead. We are free.”
  
It made me think of what would happen on an airplane if the little flight attendant ran out of the cockpit shouting, “The pilot is dead. The co-pilot is dead. We can do our own thing. We are free.” I might be able to summon the courage to enjoy crashing toward earth at 500 miles an hour. But do not put me out here on a space ship called “earth” whirling around the sun at 67,000 miles an hour and tell me God is dead. I could not sleep at night if I did not believe God has “the whole world in His hand.” 
  
What keeps it all together. What keeps everything on course? The Bible says, “By Him all things consist”--(Colossians 1:17).   Either there is a God controlling the universe or we are hopelessly lost in space. We are on a planet speeding 93 million miles an hour. We have no control whatsoever over it. We have no idea where we are going. Only those who believe in God’s control of this space ship have any security whatsoever. (This article from Moody's book, "Proof." Available at bookstore on moodynews.com.)" 

 

 

 15.  SOMNAPURE

 

FROM DOM:  For the past few weeks, I've been experimenting with Somnapure http://www.peaklife.com in an attempt to gradually decrease (and hopefully eliminate) some of the sleep drugs I have to use (or I don't sleep at all).  So far I've reacted favorably to Somnapure, which contains melatonin and herbs.  It does help me feel drowsy and sleep.  If you have tried Somnapure, please write dombush@bellsouth.net with comments.  My current list of meds is at www.fms-help.com/what.htm.  A list of EVERYTHING I've tried for sleep in the past is at www.fms-help.com/sleep.htm.  My insomnia story is at www.fms-help.com/insomnia.htm.  Each of us is different as to what helps. After decades of little to poor sleep, I am thankful for anything that helps!  Without sleep, your immune system can't help your body repair itself.

 

 

 

16.  THE LADDER ACCIDENT

 

http://www.youtube.com/watch?v=qBIxC2fGkR4 - need a chuckle?

 

17.  FIBROMYALGIA AWARENESS - MAY 2011

From Annette Peterson at the Whittemore Peterson Institute--

Dear Neuro-Immune Disease Advocate,

WPI invites you to join together in a global awareness month for Neuro-

Immune Disease beginning May 1, 2011. Your participation in a variety of

activities can help bring worldwide awareness of debilitating acquired diseases

that impact the lives of millions around the world. Help us deliver the global

message that it is time to fund the critical search for answers.

Join the movement by visiting us at www.anida.co and sign the official

guestbook starting April 1.

Your support is critical and we thank you for it.

Annette Peterson, President

Whittemore Peterson Institute

Email us for more information at info@anida.co

“Advocates 4 Answers”

Neuro-immune diseases such as M.E., CFS, fibromyalgia, autism, chronic Lyme

disease, and Gulf War illness have no FDA approved bio-markers or treatments

for the underlying causes of disease.

 

18.  REDISCOVER GOD IN AMERICA

Article rom a reader--

"I know you share my concern about the eroding of our great heritage as a nation founded on Biblical truth. God has been systematically expunged from American culture, leading many to ask, "Where is God in America today?" I think you will agree that it's time to reclaim our great heritage and bring God back to the center of American life.  The founders of our country drew their inspiration, wisdom and direction from the Bible. It's time to rediscover what "One Nation Under God" really means.  AFA will webcast this special event, Rediscovering God in America, free to everyone and can be viewed on your computer. View the entire schedule and speaker's list here.  Speakers Mike Huckabee, Newt Gingrich, George Barna, David Barton and others will share their insights on how to interpret current events in the context of God's Word as our founding fathers did, how to respond biblically and take action that aligns with God's truth.  Ways to watch: - Save this email and click here beginning Thursday, March 24, at 10:00 a.m. (EST) - Simply visit our homepage at www.afa.net."

 

19.  NATURAL CLEANER

From a friend--

THIEVES CLEANER FEATURED IN THE HUFFINGTON POST - "BETHANY BUCHANAN owns an eco-conscious nursing home, Grace homes, in Minnetonka , Minnesota . Buchanan, a registered nurse, has been a healthcare professional for 16 years, including eight years in hospitals. "I use Young Living Essential Oils' Thieves Household Cleaner in my care home. I love its warm cinnamon-and-clove scent -- my home never has the bleachy disinfectant smell other facilities have. I also appreciate that it's highly concentrated, so it comes in a smaller bottle that's also recyclable. Some studies I've read show that it kills more than 99% of bacteria and viruses, so I feel confident in it from an infection-control standpoint. It cuts the daily grease and grime effectively and leaves behind a pretty shine on wood surfaces. It contains 100% plant and mineral ingredients, so I don't worry about my staff's lungs being harmed from inhaling fumes." ~ Huffington Post , Feb 28, 2011

FROM DOM:  I have been using Young Living Essential Oils Thieves Cleaner for many years and love it!  See www.fms-help.com/oilsstore.htm for info.

 

20.  NEGATIVE HPA AXIS FEEDBACK WITH CFS

From a reader--

http://www.chronicfatiguetreatments.com/wordpress/category/hpa-axis/ - article is also about HPA axis and sleep schedules for people with CFS

 

 

21.  DOM'S DENTAL UPDATE

 

Well, the $6,000+ dental project never even got off the ground last week!  I developed a throbbing earache just a few minutes after I left the dentist's office from having X-rays, and also my neck went out, which required a trip to St. Augustine to see my chiropractor (hubby drove), and 2 trips to the local medical clinic to try to cure the ear infection (2 antibiotics and antibiotic ear drops).  What a strange week it has been!  The ear infection is still there, so I had to reschedule the dental work for April.  So far I've spent $240 on 3 docs and medicines and still haven't had a bit of dental work done yet!  I hate being a problem patient because of my weird immune function, neck fragility, etc.  My husband thinks I should spread out this extensive dental work over many months so I don't crash my system.  Since I will be having a lot of amalgams removed (cracked, shrunk, or broken from being in my mouth for 25-40 years), I am curious to see if any of my neurological symptoms will improve once the mercury is removed.  The dentist will use a dam and I will be given goggles and a nose mask.  (Thanks very much for those who expressed concern that I find a dentist who knows how to remove mercury safely and also because I am a high-anxiety dental patient.)


100 Tips for Coping with Fibromyalgia & Insomnia

  My Fibromyalgia Story

  My Chronic Fatigue Story

  My Insomnia Story

  What I Use

II Corinthians 1: 4 - "[God] Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God."  Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.