"I always look forward to your newsletter and
read this one with great interest. I always find a tidbit or
two worth exploring."
5. FIBROMYALGIA
& FATIGUE CENTER
Reader 1--
"I feel that the Fibromyalgia & Fatigue Center is
definitely worth it. I had gone to many doctors over a 9 year
period & none of them was able to give me as thorough an examination as FFC.
It wasn't so much the exam but all the tests I had done & the relationship
of the tests with my specific symptoms. Not all centers may be the same but
Dr. Campo in CT was great! He really has an extensive knowledge
of the physics of the body in relationship with the specific symptoms of
Fibromyalgia. He also spent alot of time with me & answered all of my
questions. They treat all the areas Fibromyalgia affects such as hormones &
bio-identical hormone replacement therapy, thyroid problems, viruses,
mycoplasmas, Lyme Disease, heavy metal toxicity, pain issues, immunity boosting,
blood chemistry, etc. The IV drips, vitamins, & shots were expensive but if
you can afford it, I believe, they are worth it. Some of the vitamins &
supplements you can buy elsewhere but their protocol will point you in the right
direction if you would like to research buying the vitamins on the internet or
at a store. They do not push their vitamins. It just may be easier to get the
protocol from them in the beginning so you don't have to run around researching
everything. Once you get a bit more into the protocol, you can probably find
some of the formulas cheaper on the internet. They use alternative medicine when
they can to help eleviate symptoms & enhance your body to heal itself but
they will also suggest drugs if necessary. Fibromyalgia is sort of like an onion
- you just have to keep peeling back the layers to find the true cause of why
you may feel ill. I have come to the conclusion that everyone with Fibro has an
actual cause of their symptoms. It's just that 90% of doctors do not know the
most up to date treatments or do not have the time to devote to researching this
disease & explaining it to you. Insurance companies do not want doctors to
do the indepth research to treat this illness properly. It's not cost effective.
You really have to do alot of research on your own & pay for treatment out
of your own pocket if your insurance will not cover tests & treatments. It's
worth it to get back your life again. I absolutely recommend the Fibromyalgia
& Fatigue Center!"
Reader
2--
"I had a horrible experience at the center in Cleveland. Now I
am in Norwalk, CT. Has anyone been to the center there?"
[See Reader 1's comments
above.]
6. SKIN CRAWLING
SENSATION
Response from a
reader--
"I was having a lot of problems with the feeling of bugs
crawling on my legs and leg cramps after I had my heart surgery. I would
wake up at night and have my husband check the bedding. I was convenience we had
bed bugs, but we both knew that was impossible because we don't go anyplace
where we could have gotten them. The only place we sleep is our own bed. When I
told the doctor about it he looked at my medication list and said here is the
problem "Cozaar", we are going to take you off your blood
pressure medicine and give you another one. After I went on another
medication the problems went away. He said he had the same
symptoms with that medication. Could that be a problem other folks are
having?"
From the reader who originally
wrote with this problem--
"Thank you Dominie and all your readers who
replied to my email for help with 'crawling ' sensations under the
skin. Well it started with itching and then crawling and then
numbness. That was real scary. I think we
have discovered the cause. About 3 weeks ago I bought some
hairspray and the spray was faulty and
went into my eye and on my eyelid. My lid has been swollen and
red and as I thought back I suddenly realised that was about the time I started
to have trouble with my face. Anyway my Doctors
nurse advised me to take antihistamine which I am doing and my eyelid has nearly
healed and the numbness isn't so bad. I will let you know when it is completely
gone. I must warn everyone, especially
Fibro sufferers to be very careful with chemicals such as are in makeup,
hairspray, nail polish remover etc. Our immune systems cannot cope with the chemical
overload. Thankyou again to all you kind,
caring people and of course thankyou Lord for answering prayer."
7.
PARASITES
From a
reader--
"I am glad you are documenting about the people's
stories
with the parasitic thread worm nematode that infects
many
Lyme sufferers and PWC's, because I believe I suffer
from them, as well, but
not as horrifically as some do.
The cause may be a blood chemistry thing
that keeps some
nematodes? nano-bacteria? at bay?
Talk about weird
symptoms.... with these itchy things,
bumps form on skin that have just
white stuff inside
when you pick them open. Other times, tiny, hard,
black pin point cysts seem to be stuck on or in the skin,
and they
create an itch or prick feeling, and have
to be scraped off. And blisters
form spontaneously and
itch like crazy on the tops of hands or feet or
ankles. And, worst of all, if I dare say so, an itchy,
crawly feeling
comes several times a week, maybe,
at the confluence points of hair
follicles and a mucousy
environment, both at eyelashes or private areas.
This
itchy phenomenon seems to be what has been described as
the
Morgellon's Disease, which does describe a surprising
array of seemingly
impossible phenomena. But, happen
they do, and I don't think it is simply
Candida.
It MAY be that because I am borderline Diabetic Type 2
that
my blood chemistry is sugary and may attract these
nematode/nanobacteria
type things.
I just read, that researchers think these may be
engineered
nanobacteria that have gotten loose from the crop soils
where
they are meant to help plants grow.... unclear how
that works.
Anyway, if others have solutions to those wormy nano-sized
creatures, I'd be happy to hear. I have tried soap, Nystatin,
cortisone, salt water, bleach water, and vinegar.
Nothing really does
the job, as it seems they are internally
generated and replenish on the hair
follicles within
hours."
[Anyone read the (controversial)
book "THE CURE FOR ALL DISEASES" by Hulda Clark? She talks about
microscopic worm-looking things called "flukes" that cause nearly all diseases
and how to get rid of them. There are even pictures of these flukes in her
book - eeeeeeyew!]
8. AMBIEN, LUNESTA OR
ROZEREM - FOR SLEEP
Reader 1--
"Ambien is better than Lunesta."
Reader 2--
"I too, was a user of Ambien, as that was the sleep med my
insurance would help pay for. I had weird symptoms with this med.
One of them was about 15 minutes after taking only about 2.5 mgs, I would have
like fireworks burst going off in my brain. It was scary. Then a
short while after starting the med, I woke up one night thinking I heard a
crashing sound in the house, like something falling off a wall or shelf.
It woke me from a dead sleep. Nothing could be found that would have made
the noise I heard. This happened twice. I got off the med and
changed to Lunesta, my good dr. gave me samples as it was the only prescribed
med that worked and my insurance would not approve it. Since then I
have changed insurance and they pay for it, but I have a very steep
co-pay. But, it is worth it. For me it works great and I
feel refreshed in the morning. I did not feel this way with
Ambien. Lunesta is very expensive. At my pharmacy it
was $4.20 a pill. I take 1/2 of a 3 mg and this usually does the job,
unless I have had a very busy day and my mind won't shut down. No
more fireworks burst in the head either with Lunesta."
Reader 3 (male)--
"I have been taking ambien since 1997, and have
been
through the whole amnesia gamut. It's important that you be
SOMEWHAT sleepy
before you take the stuff; otherwise, instead of going to
sleep, you stay up
and party! The food preparation and driving are not as
scary as they sound;
you're not actually "asleep" when you do them. You are
actually functioning
fairly well in the moment; it's just that your memory of
doing them is wiped
out RETROACTIVELY, and it's scary that you don't remember
them. "Sleep
hygiene" remains very important, and anybody taking
Ambien (or Sonata or
Lunesta, which are all in the same category) should do
some Google searches
and educate themselves on this topic. No caffeine or
exercise for about five
hours before you plan to go to sleep! But more to the
point: a new
medication, Rozerem, actually makes you feel SLEEPY
(which Ambien doesn't,
for many people), and doesn't have any
retrograde-amnesia effects. Taken at
the same time every night, it
can help your body reestablish its circadian
rhythms. Since I have
Delayed Sleep Phase Syndrome, I have a LOT of
problems
getting to sleep at a normal hour. I take Rozerem
AND zopiclone (Lunesta),
along with valerian,
5HTP, Melissa (herb), Xanax and
Flexeril! That combo
will usually knock me out pretty well.
But I would advise anyone who is
taking Ambien, and has had any similar
problems with unremembered
activities, to consider asking their doctor for
Rozerem, either instead of
or along with their
Ambien."
[Checked with my pharmacist. She said
ambien and lunesta are hypnotics, but Rozerem is based on melatonin and would
take about 5 nights to help the circadian rhythm. I did well on melatonin
until I turned 48 and then it stopped working since hormone changes too place,
so I don't know if Rozerem would be a good choice, at least for
me.]
Reader 4--
"There have been phenomenal amounts of news reports as to Ambien and the
somnombulant effects it has. What amazes me is that it's still approved
for use. I take Lunesta when I need it. It
lulls me to sleep, let's me wake up if I have to go to the
bathroom, go back to sleep and sleep deeply the whole night. It
also stops anxious ruminations right before
bed. It's non-addictive and to date has none of the side
effects of Ambien."
Reader 5--
"When I was on ambien
I would get up and eat and wake up finding mess in my kitchen the next
morning. I have even ordered stuff off of HSN and thought I dreamed
watching it. I have been off Ambien for at least 6 months now. I
have found that the 5-htp that Dr. Murphree has me on, along
with my Zanaflex and Klonopin 0.5 mg has
helped with my sleep. He had me on Melatonin for a while but I did not
like the way I felt the next day so I rarely take that one. Ambien did
scare me because I was forgetting so much even throughout the day. I would
take it and not remember that I took it and get busy doing something and would
end up doing some pretty crazy things. My daughters said I called them
into the bathroom and I was squriting the floor with cleanser telling them I was
squirting the little duckies on the floor. They thought it was funny and
then they said that I was telling them that there were faces on the floor and
that i tried to dance with them when they helped me back to the bed. The
worst experience that I realized I needed off this drug was when we were
camping. I took my Ambien 5 mg, went to the bath house to brush my teeth
and came back to the camper. By the time I got inside I was bent down on
the floor at the air mattress where my children were sleeping and I don't
remember after that much. They said I was laying there with my face to the
mattress and when my husband came to check to see what was going on, I told him
I could not come to bed because I had to finish eating the mattress first.
Really strange. I just could not help thinking, what if I would have been
3 minutes longer in the bath house, where would I have ended up had my daughter
not been with me. I could have wondered into anyone's camper or into the
woods or whereever. Definitely not a med to take if you live
alone."
[Melatonin worked for me until I
turned 48 and my hormone levels began changing. I tried 5-HTP on 3
separate trial runs, but always felt weird when taking it, so I don't use
this. Oh my. We are all so different. Dr. Murphree is a super
person - very caring chiropractor who has developed a line of nutraceuticals for
fibro patients - see my page about Dr. Murphree at www.fms-help.com/murphree.htm. For a list of current things I use, see www.fms-help.com/what.htm.]
9.
DOCTORS
From a
reader--
"I just noticed the "Creepy Crawly" section of the latest
newsletter
www.fms-help.com/041407.htm (topic
2). I'll ask my doc. about sublingual B vitamins. This is what I
don't understand:
Why is it ME that has to ask my doctor about
this stuff???? Isn't she the one that should be trying to figure out
what's wrong with me?? I have all these things wrong with me and
all she does is give me a sleeping pill and a narcotic."
10. SLEEPING
SEPARATELY
From a
reader--
"In the April newsletter, there was a piece about
sleeping separately due to FMS insomnia?? I noticed that you had asked if
anyone had a comment. My husband and I sleep separately. This is our
"big secret". We desperately try to keep this fact away from our
families and friends, because it's just embarrassing. It's
a huge issue in our lives. He really wants to sleep together
(and he has said not even for sex, just so we can be close)...and that it's just
what you're "supposed to do".....he's admitted that it's just what he expected
whenever he got married...that he and his wife would sleep in the same
bed. I feel terribly guilty about it. He's even asked (gently and
kindly) - "How long will this last?" I almost laughed. I still don't think
he understands that fms is a lifelong ailment. I try to explain that it
will probably be like this for the rest of our lives, but I don't think he wants
to accept it. He asked what our kids will think (whenever we have them)
that mom and dad sleep in separate rooms. Ugh, I hate this. I tell
him that if I could sleep well, then believe me I would!! But it's so hard
for me... I don't choose to be this way. I have to admit, I don't have
much sympathy for him...he goes right to sleep, no problem. I'm actually
really jealous. I feel guilty about the separate bedrooms sometimes, but
then I get mad at him for sleeping so well. We have completely opposite
sleeping styles (he likes a poofy comfortor, I like a flat one; he likes it
totally dark, I like a small nightlight on; he likes it totally quite, I like
the tv on low, etc, etc and the list goes on). I used to sleep with
him when we first met, but I'd have to get up so many times and go in the
living room to watch tv in the middle of the night that it got to be annoying
and impractical for me to start out the night in there, because I would
always get up. Plus....and this is the craziest part.....when we
have slept in the same bed, even though I'd wear earplugs
(because his nice, deep sleep breathing annoyed me when I was there wide-eyed) I
would know that he was alseep and I wasn't and that would make me
so.....irritated...furious sometimes.... why couldn't I do this
seemingly simple thing??? It was like a race to go to sleep and I would
always, always lose. Then that would further impede me
sleeping. For most of my friends and for my husband, sleeping
is a non-issue, like breathing, but for me it's this whole, big psychological
and physiological issue!! Like I said before, I'm now on
sleep meds (Ambien) and that has helped tremendously. But we
still sleep separately and try to keep it hidden from everyone."
[This reader has spoken
so eloquently about a personal situation common to many people with
insomnia and FMS. I appreciate her sharing this--it could be any one
of our stories. Without restorative sleep, immune function goes down and
the body begins to be destroyed. There is even something called "Fatal
Familial Insomnia." Look it up on the net--these people can't sleep for
months, then they die. Oh, how awful! The social implications of
sleeping separately can create misunderstandings, but consider the
alternative....no sleep, decline in health and possibly early death. Do
what you have to do to get some ZZZZ's. My own insomnia story is at
www.fms-help.com/insomnia.htm.
Thank God for understanding, compassionate spouses!]
11. BED
DREAD
From a
reader--
"I had to laugh when I read about your having
"bed dread"....... I totally have that too!!! I've had sleep problems for
so long that I really hate going to bed!! My husband thinks
I'm insane, but he sleeps just well and good, so I wouldn't expect him
to understand. (He's very supportive though :) I also
hate everything simply associated with bedtime....getting
dark, finishing up dinner, locking the door, turning out the
lights....it's all a prelude to another night of
infomercials........now that I have started taking sleep meds,
it's a lot better, but I totally know the 'bed dread'
feeling!!!!!"
[Sleep anxiety is a terrible
problem. Mine came from years and years of not sleeping, yet having to
function at a job the next day. It's a fear of going to bed, which becomes
a torture rack night after night. See my sleep story at www.fms-help.com/insomnia.htm. Also, my sleep story is in Challenger, an
inspirational magazine. The article is called "I COULDN'T
SLEEP." If you want a copy, please send your name and mailing address to
dombush@bellsouth.net. The magazine is sent free of charge anywhere in the
world. Feedback is starting to come in on this story.....those who have
insomnia are comforted to know they are not alone in their suffering, and those
who don't have it may know someone who does. Hopefully this article will
increase understanding of FMS/CFIDS problems.]
12. RATE YOUR DOCTOR OR
FIND A DOCTOR
From a
reader--
"As far as doctors go....I've found
www.ratemds.com to be VERY
helpful!! I think I'm going to use it in a minute to find new
rheumatologist.... They have a lot of listings. I got so sick of
going to doctors who turn out to be jerks and waste my time and money, so
I like having a way to screen out the "bad apples". I feel bad
for saying that, but l've learned at this point that some doctors just
suck. I wrote up a glowing report on my fabulous oral surgeon
though! (If anybody needs an oral surgeon for TMJ in the Memphis
area, it's Dr. Vincent Coviello is your guy!!) And I
wrote a
not-so-nice report up on a pain doctor that deemed me
depressed after talking to me for literally five minutes....just because I
happened to be crying! ...I was in a lot of pain that day, big surprise......he
told me to go see a psychiatrist and then acted like he had cured me.... what an
idiot. I don't understand why people like that insist on being pain
doctors if they're not willing to thoroughly evaluate you.
rrrrrrr ANYWAY, ratemds.com is awesome and I go to it all the
time!"
[I hope we can all take a few
minutes to rate our doctors at this site. We just might help someone else
who is trying to find a good doctor to go to. Also, see my Good
Doctors/Bad Doctors page at www.fms-help.com/doctors.htm.]
13. CORVALEN &
RIBOSE
From a
reader--
"One new and I hope exciting product that I have just ordered
is Corvalen which is a ribose based supplement which has been researched
and endorsed by Dr. Jacob Teitlebaum. Are you familiar with
this? I have read everything I can get my hands on about this and it really
sounds promising. I started taking ribose about 3 months ago and have noticed
some improvement in my energy levels."
14. QUESTION ABOUT
UNBEARABLE PAIN
"THE PAIN IN MY SIDE IS GETTING ALMOST UNBEARABLE AND THE
NUMBNESS IN MY FINGERS IS GETTING MORE FREQUENT. I AM STILL LEARNING THE
DIFFERENT AFFECTS OF FIBRO, I JUST DON'T KNOW WHERE FIBRO LEAVES OFF AND
SOMETHING ELSE MIGHT BE STARTING. QUESTION: DOES IT SEEM TO YOU THAT THE
PAIN ASSOCIATED WITH THE INFLAMMATION MOVES AROUND TO DIFFERENT PARTS OF
THE BODY. EXAMPLE, FROM THE BACK TO THE HIP--FROM THE HIP TO THE RIBS.
JUST CURIOUS IF ANYONE IS EXPERIENCING THESE SYMPTOMS. ONCE AGAIN, DOMINIE, I JUST WANT TO
THANK YOU FOR THE HELP YOU HAVE BEEN TO ME. MY FAMILY DOESN'T REALLY
UNDERSTAND WHAT I AM GOING THRU, I LOOK VERY HEALTHY, BUT SOME PART OF MY BODY
IS IN SEVERE PAIN EVERYDAY. I AM STILL TRYING TO HOLD DOWN MY FULL-TIME
MANAGEMENT JOB, BUT THE DAYS ARE GETTING WORSE. GOD BLESS YOU FOR YOUR EFFORTS,
I FEEL LIKE I HAVE A FRIEND TO SHARE THIS WITH." [email address above used with permission for responses from
readers]
[For a list of some things that have helped me with pain, see
www.fms-help.com/what.htm - scroll toward the end of the page and look for the red
writing.]
14. ESSENTIAL
OILS EFFECT ON BRAIN
From a
reader--
"I was studying how
the olfactory bulb works... quite fascinating. I was
working with a researcher who's goal in life is to make a pain reliever that you
can inhale and works through the olfactory bulb and its connections to
other parts of the brain (limbic, amygdala, and
others)."
[Fascinating! I do know from experience that the oils affect
the limbic portion of the brain using the olfactory (sense of smell)
system. Read how I "discovered" essential oils www.fms-help.com/oils.htm. You can order a free report about essential oils from my
site at http://dom.younglivingworld.com. I enjoy using the oils every day - some have become my
favorites for relaxation, calming, headache, etc.
]
15. LOW URIC ACID IN CFIDS
& SICKLE CELL ANEMIA
From a
reader--
"In the book Osler's Web it is stated
that in both Sickle Cell Anemia and M.E. /CFIDS they were the
lowest uric
acid levels. The blood cells look similar.
Dr. Cheney's lecture alludes to this
also: Uric Acid
Uric acid is a powerful scavenger of
peroxynitrite. Uric acid levels in
CFIDS patients are among
the lowest I've ever measured, in all of
medicine. [Keep in mind
that before specializing in CFIDS, Dr. Cheney
served as a Major in the Air
Force Medical Corps and was Chief of
Medicine at Mt. Home Air Force Base
hospital in Idaho for several years
before moving on to a private practice
in Internal Medicine at Incline
Village, Nevada. He was also the Chief of
Medicine at the Lakeside
Community Hospital in Incline Village, Nevada. In
Charlotte, before
opening his own CFS clinic, he was the Senior Staff
Physician in the
Department of Internal Medicine at The Nalle Clinic.] CFIDS
patients are
the only ones you see at 1 or 2. Everybody else is up at 4, 5,
and 6.
Most CFIDS patients are quite low. The lowest I've ever seen as a
group.
[Dr. Cheney currently checks blood levels and 24-hour urine levels of
uric acid.]
What do you make uric acid from? You make it from RNA and
DNA metabolism
and that is produced endogenously [within the body] and
exogenously
[outside the body]. Endogenous production is by apoptosis
[normal,
programmed cell death.] "Or by fasting in which you lose muscle
mass or
even by exercise which can produce muscle mass loss. In any event,
you
can produce your own endogenous RNA and DNA for uric acid production,
which then scavenges peroxynitrite."
Sushi: Exogenously there are
certain foods you can eat that do it. [When
considering the following foods,
take your own food sensitivities and
allergies into account!] The best foods
that produce RNA and DNA are on
the meat and the vegetable side. On the meat
side, the best RNA and DNA
production is in sushi. Sushi is very high in
digestible RNA and DNA."
16. PREMATURE AGING OF THE
BRAIN IN FIBRO PATIENTS
From a
reader--
Accelerated brain gray matter loss
in fibromyalgia patients: premature
aging of the
brain?
April 16th, 2007 by fmsglobalnews
Kuchinad A,
Schweinhardt P, Seminowicz DA, Wood PB, Chizh BA, Bushnell
MC.
McGill
Centre for Research on Pain, McGill University, Montreal,
Quebec, Canada H3A
2B2.
Fibromyalgia is an intractable widespread pain disorder that is
most
frequently diagnosed in women. It has traditionally been classified
as
either a musculoskeletal disease or a psychological
disorder.
Accumulating evidence now suggests that fibromyalgia may be
associated
with
CNS dysfunction. In this study, we
investigate
anatomical changes
in the brain associated with
fibromyalgia. Using voxel-based
morphometric analysis of magnetic resonance
brain images, we examined
the brains of 10 female fibromyalgia patients and
10 healthy controls. We found that
fibromyalgia patients had
significantly less total gray matter volume
and showed a 3.3 times
greater age-associated decrease in gray matter
than healthy controls. The
longer the individuals had had fibromyalgia,
the greater the gray matter
loss, with each year of fibromyalgia being
equivalent to 9.5 times the loss
in normal aging. In addition, fibromyalgia
patients demonstrated
significantly less gray matter density than healthy
controls in several brain
regions, including the cingulate, insular and
medial frontal cortices, and
parahippocampal gyri.
The neuroanatomical
changes that we see in
fibromyalgia patients contribute additional
evidence of CNS involvement in
fibromyalgia. In particular, fibromyalgia
appears to be associated with an
acceleration of age-related changes in the
very substance of the
brain. Moreover, the regions in which we
demonstrate objective
changes may be functionally linked to core
features of the disorder
including affective disturbances and chronic
widespread pain.
For
more of the latest News, of specific interest to you, see our FMS
Global News
Announcement page at:
http://www.fibrohugs.com/staticpages/index.php?page=20060630101303172
17. DR.
TEITELBAUM
From a
reader--
"To find out what his "cure" for Fibromyalgia is, visit his website at
Vitality101. However, I'm not sure I feel that his "way" is any
better than any other doctor. He goes on and on about natural cures then
THIS is what he prescribes for beginning his regimen."
Treatment Order for Neuropathies
Begin with the vitamin
powder and lipoic acid, 300 mg, 3 times a day. For localized areas add the
Lidoderm® patch and pain gels (effects seen in 2 weeks). Begin all these simultaneously as well as:
1A. Neurontin®—may take 2400 to 3600 mg daily for nerve
pain
1B. Gabatril®—average effective dose for nerve
pain is 16 mg a day
2. Tricyclic anti-depressants, 10
to 50 mg at bedtime
2A. Elavil®
2B. Tofranil®
2C.
Nortriptyline®
2D. Doxepin®
3A. Effexor®, 75 mg 3 times a day
3B.
Paxil®, 20 to 80 mg per day
4. Ultram®, 50 mg, 1 to 2
tablets up to 4 times a day. Four tablets a day works very well. Above this dose
sometimes causes nausea. It can start to work immediately.
5. Topamax® (Topiramate®), 200 to 300 mg a day. Side effects are less
if you start with a low dose and work up.
6.
Lamictal® (Lamotrigine®), 300 to 400 mg a day. Lower doses are less likely to be
effective.
7. Zanaflex®, although more likely to be
helpful for muscle pain at a dose of 4 to 8 mg daily, it can help nerve pain in
doses of approximately 24 mg a day.
8. Keppra®, 1000
to 1500 mg, 2 times a day
9. Trileptal®
(oxcarbazepine), usually requires approximately 150 to 300 mg twice
daily
10. Dilantin®, 100 mg, 3 to 4 times
day
More from this reader--
for those wanting to use Dr. Teitelbaum's techniques for getting rid
of Fibromyalgia. This doctor appears to be a person who prescribes
processed medicines (requiring a prescription) while also taking natural herbs
at the same time. Would be hard to tell which is working,
eh?"
18. DOM'S "NUMB LIP"
UPDATE
About the numb upper lip I've had
for the past 3 weeks (like it was shot with novacaine)....I tried to figure out
what I had been doing differently lately. There were only two things I
could think of - getting a new mattress and taking glyconutrients
(essential sugars). I also had had a cold sore during this time period.
I stopped the glyco experiment 2 days ago and my lip is getting some
feeling back, but not completely. I had been trying glycos to see
if it would help with sleep (which it didn't in my case). But who
knows what actually caused the numb lip?! Our fibro bodies are a
mystery. Thanks for all the feedback - I was surprised that so many readers have experienced this!
Below is a list of reasons that were sent in from our fibro team, just
in case you ever experience this situation. Here are the
possible causes of numb lips, as
suggested by readers:
1. allergies
3. shingles
4. hives
5. Lyrica
6.
Pufferfish
7. herpes
infection
8.
neuropathy
9. microbes from unclean dental
instruments
10. apples
11. mini
strokes
12. cold sore (herpes 1
oral)
13. peeling caused by oxygen not
getting to blood supply
14. cilantro
15. age (hey, thanks a
lot!)
16. hormones
17. spider
bite
18. red or yellow
peppers
19. a new vitamin or
supplement
21. balsamic
vinegar
22. MCS from EMF's from the
computer
23. cranial nerve
irritated
24. beginnings of rheumatoid
arthritis
25. iron
deficiency
26. Aveda
cosmetics
27.
erysipelas
28. strep
infection
Suggestions offered by the fibro
team--
1. detox
diet
2. 100% aloe stick
(chapstick)
3. olive oil
4. food allergy
elimination
5. anti-viral
med
6.
antihistamine
7. heat compresses to the numb
area
8. think what you have done
differently in the past 3 weeks that may have triggered
this
9. iron
supplements
10. homeopathic
remedies
11. B-12
(sublingual)
19. AUTOPSIES HELP UNLOCK
MYSTERIES OF CFS
From a
reader--
Victims Give Clues to the Answer
"UNDER the microscope, it could not have been clearer. Sophia
Mirza's brain and spinal fluid showed indisputable evidence of
inflammation and cell death. The discovery, by the neurologist
Abhijit Chaudhuri and a neuropathologist colleague, marked the first time a
serious abnormality confined to the central nervous system had been identified
at the post-mortem examination of a patient whose principal diagnosis was
chronic fatigue syndrome." Read article at
http://www.smh.com.au:80/news/science/victims-give-clues-to-the-answers/2007/04/11/1175971183260.html.
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