Dom's FMS/CFIDS Newsletter
Dominie in 1952
April 23, 2011 - Happy Easter!
A Christian-based newsletter about Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.) - sharing thoughts, research and experiences.
FIBRO STORY CFIDS STORY INSOMNIA STORY HELPFUL THINGS I USE PREVIOUS NEWSLETTER ARCHIVES
TOPICS IN THIS ISSUE: 1. READERS WRITE 2. AUTOIMMUNE PROBLEMS 3. MITOCHONDRIAL DAMAGE IN CFS 4. "THE EMOTIONALLY ABSENT MOTHER" 5. CANCER THERAPY & FMS/CFIDS 6. MAGNESIUM SULFATE (EPSOM SALTS) 7. "BATTERIES ARE CHEAPER THAN FUNERALS" 8. VOCAL CORD DYSFUNCTION (VCD) 9. SUGGESTIONS FOR DOM'S DENTAL PROBLEMS 10. TRIGGER POINTS CAN CAUSE PAIN IN UNRELATED AREAS 11. THE ENCOURAGING WORD 12. THE STIGMA OF HAVING FIBROMYALGIA 13. MANIPULATIVE PEOPLE 14. HOW DO YOU DIFFERENTIATE BETWEEN FIBROMYALGIA & CFS? 15. "DISARMING THE NARCISSIST" 16. SLEEP MED COMBINATIONS 17. THREE WAYS GOD ANSWERS PRAYERS 18. LIDOCAINE 19. PANDORA 20. MAY 12 AWARENESS DAY 21. URINARY TRACT INFECTIONS (UTI'S) 22. PALPITATIONS & RACING HEART 23. ANXIETY & GABA 24. DOM'S ONLINE STORES 25. UPLIFTING REMINDERS 26. HOW READER'S FIBRO BEGAN 27. RESPONSE FOR HUSBAND OF FIBRO WIFE 28. GOOD SAYING 29. EXERCISE & FMS/CFIDS 30. VIBRATION MAY BLOCK PAIN 31. MEAT GLUE 32. MILLIONAIRE'S DISEASE 33. CURE TOOTH DECAY 34. TRAVELING WITH FIBRO & MCS 35. FMS/CFS/ME GOOD DOCTOR LIST 36. SINGER TONY TERRY TACKLES FIBROMYALGIA 37. GETTING THROUGH THE BAD DAYS 38. HAPPY EASTER
1. READERS WRITE
"You are an endless source of stuff I know nothing about."
"Your newsletters are a blessing to me, and I thank you for taking the time and commitment to help all of us."
"My husband is living with Fibro and I find that reading Dom's Newsletters www.fms-help.com/newsletters.htm is very insightful."
"I have been reading your newsletters for about 3 years now. I was lucky to just come across it when looking for some help. Wow! Was I happy to find you. I tell everyone I know who may be interested. I get very excited when a new issue is completed. It is like the candy fix I used to have but now it is the Dom fix."
"Your site www.fms-help.com is very informative and interesting. Thank you for gathering all of your research and knowledge on the matter in one place where newly diagnosed people like me can go to find it."
"Thank you for all your hard work and dedication. I have learned so much from reading your newsletters. I look forward to each one."
2. AUTOIMMUNE PROBLEMS
www.i26forhealth.com/dominie - Virtually everyone can benefit from a balanced immune system but some people have an immediate need to balance. People who can benefit very quickly are those who deal with auto-immune problems associated with an imbalance in their immune response. Auto-immune problems can affect virtually every part of the body including respiratory, digestive, circulatory, joint, and muscular health. An imbalance in these areas can result in either an exaggerated inflammatory response caused by an overactive immune system or not enough inflammation resulting in an immune system that is unable to help the body deal with issues properly. Everyone, healthy or otherwise, benefit when consuming i26. Everyday challenges can send your immune system into an imbalanced state. You may think you are healthy but it does not take much to spin your immune system into an imbalanced state.
Some challenges that can affect your immune system are:
Lack of sleep
Stressful work or home environment
The diet you consume
Poor drinking water or unhealthy foods
Extensive travel
Excessive physical exertion
Exposure to bacteria, viruses, molds, and parasites
When you become run down and or push yourself too hard, too fast, your immune system can get thrown off balance. This is a time when you are especially susceptible to health issues. Our daily lives are filled with new challenges and staying healthy starts with an optimized immune system. If your immune system is working efficiently and producing balanced inflammatory immune responses your body is better equipped to react positively. Learn more about i26 Complete Support, i26 (hyperimmune egg powder), and Flex at www.i26forhealth.com/dominie.
3. MITOCHONDRIAL DAMAGE IN CFS
From a reader--
"One of the readers in your last newsletter www.fms-help.com/041611.htm asked the question “WHY do we have such fatigue?” While I do not have the common symptoms of Fibro I am 56 and on the extreme end of Chronic Fatigue Syndrome and have been disabled with it for 8 years. (Also called CFIDS or in Europe; Myalgic Encephalomylitis). Someone forwarded this site to me of a Dr. Myhill in England. [S]he, along with Prof. Norman Booth of Oxford University and Dr. John McLaren of Acumen) wrote an ABSOLUTELY fascinating paper regarding “CFS – The Central Cause: Mitochondrial Failure”. If in fact, they are correct about the ‘end result’ of what happens in CFS patients and their debilitating fatigue, which he characterizes as ‘collapse,’ it explains why CFS patients suffer post exertional malaise, the subsequent ‘crash’ after any activity (mental OR physical) and why it takes days to recover even SOME strength. It also explains the effect on different parts of the body of lack of ATP and of special note, where he talks about the fact that in functional brain scans in many CFS patients it almost looks like they’ve had a ‘stroke’, even though they haven’t. It was though he was writing my own personal case history. While many researchers are looking into XMRV retrovirus and the recent discovery of protein gene markers in the blood of CFS patients, this focuses more on the damage to the body, not necessarily the cause. See http://www.doctormyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure."
FROM DOM: This is an excellent article that explains a lot in simple language. I have mentioned these topics in past newsletters - Dr. Myhill, mitchondrial damage, cardiac involvement, etc. Use the Google search box at the end of this page to find those references. I also have a page on my site about mitochondrial dysfunction at www.fms-help.com/mitrochondria.htm.
5. CANCER THERAPY & FMS/CFIDS
Responses to Peggy--
Reader 1--
"I read your post in Dom's Newsletter www.fms-help.com/041611.htm, and am very sorry to hear about your cancer. I have included some information below that I became aware of last year through watching documentaries on Netflix. I'm not sure if you've heard of or tried different alternative therapies, but there is one that I learned about called The Gerson Therapy. Here is a link to their website http://www.gerson.org/ There are a few documentaries including information about their program (research, success stories, etc.). A few we've watched on Netflix include: Food Matters and The Beautiful Truth. You may also be able to check these out from the library. Another video, Dying To Have Known - free to watch online http://www.youtube.com/watch?v=DoUl7F7dWdE. The Gerson Miracle Video free to watch online. You can also find many instructional videos on YouTube.com by typing in Gerson Therapy in the search field. There are books available too. I checked one out at the library to find out more about Max Gerson's original work. I don't personally know anyone who has tried this therapy except the people in the movies, but I believe it is possible to be cured from cancer. I hate to see you go through chemo, which helps to kill the cancer, but also kills good cells. You may know this already, so sorry for going on about it. If you have time, take a look at the videos and books and the Gerson sight. It can't hurt to try something that's natural and doesn't cost too much and something you probably already buy, like raw vegetables etc."
Reader 2--
"My mother (also named Peggy) was diagnosed w/ Breast Cancer last year; she is 62. She has a CFS and Epstein Barr diagnosis rather Fibromyalgia, but I am of the opinion that they are the same thing, She did chemo once every 3 week for several months, then surgery, then radiation. It has been a year and she is now cancer free! She got nauseous once from chemo, and lost her hair. She had some bone pain and ligament laxity in her hip from the treatment. The radiation treatment turned the target area dark like a tan. Other than that, she did great! They are able to test you to target the responses to chemo and it is not the nightmare it used to be."
6. MAGNESIUM SULFATE (EPSOM SALTS)
From a reader--
"I happened to stumble across this site http://www.enzymestuff.com/epsomsalts.htm, and did not realize that Epsom salts are magnesium sulfate. This page has a fairly long article, and includes (scrolling down) recipes for Epsom salt baths, spray, footbath, homemade lotion, cream, and oil. I would think it would be similar to the more expensive creams and save quite a lot of money. I’ll have to experiment with it and give it a try. Foot cramps are not fun, as you know! I appreciate all the info in your newsletter, as well as the input on magnesium sulfate from the person who shared that info www.fms-help.com/041611.htm."
7. "BATTERIES ARE CHEAPER THAN FUNERALS"
From a reader--
"Re: tooth infection www.fms-help.com/041611.htm - I am a member of Yahoo group - microelectricitygermkillers - and have made both 3 volt (using two c cell batteries) and 6 volt (using a lantern battery) "zappers". In their files folder are instructions for making home made battery powered "zappers". The theory is that this microelectricity going through body tissues will disrupt the life ability of pathogens while simultaneously carrying a charge very similar to the body's own electrical system charge in good health, which seems to help the body recover more easily when traumatized.. This charge will pass through scar/wound/insect bit swelling/etc to help the body decide to take care of the problem the way our Creator intended the body to work. Reading the numerous posts of problems and the resulting changes after microelectricity stimulation led us to make and use our first unit. Now Hubby has his and I have mine. He uses his with full battery power. I like a resistor inline in mine as I seem to be more sensitive to the sensation of the 6 volts a bit more than he is. I used the 3 volt/two C cell batteries without a problem, but then run down much more quickly than the #3 lantern battery, which I have been using for many months now). I have a sensitive tooth with no overt problem the dentist can discover so I zap that side of my mouth whenever the sensitivity increases. For me, 10 to 15 minutes will usually provide relief for a few weeks. This microelectricity is not to take the place of any medical or dental treatment and is not considered a medical intervention. I love the motto of the group: 'Batteries are cheaper than funerals'."
FROM DOM: I have had a lot of info about zapping in past newsletters, about Hulda Clark, etc.. Search using the Google box at the end of this page. I have not personally zapped yet, although it is intriguing. I bought Hulda Clark's controversial book, "The Cure for All Diseases," many years ago. Now that Mystery Diagnosis ("Monsters Inside Me") is on the Discovery Health Channel, we know that Hulda was on the right track!
8. VOCAL CORD DYSFUNCTION (VCD)
From a reader--
"Just wondering whether anyone one else has VCD? My asthma test was negative but shows evidence of vocal chord dysfunction which is related to tension in the neck and shoulders . . so thought it may be related to the tension that fibromites experience. It is also related to sinus drainage (which I have) and acid reflex."
FROM DOM: I hadn't heard of VCD until now. See http://cantbreathesuspectvcd.com/. Snippet: "Vocal Cord Dysfunction (VCD) is a hidden, yet common, usually unsuspected condition of throat closure &/or choking sensation that can strike any age, can cause sudden, severe episodes (attacks) of breathing difficulty, sometimes with wheezing (whistling or sighing sounds) &/or stridor (harsh, high pitched, ‘windy’ gasping sounds). In the Emergency Room (ER), VCD is usually misdiagnosed as being difficult (refractory, or brittle) asthma, anaphylaxis (severe, life threatening allergic reaction), or hysteria (all in one’s head). VCD can feel like straining to breathe through a straw. Some cannot get any air in (or out) at all. Panic and fear of dying from feeling that one isn’t getting in enough air, often causes repeated ER visits or hospitalizations."Acid reflux, sinus drainage, toxic irritants and certain meds cause it. I don't doubt that tension in the neck/shoulders from fibro could be a cause as well. If you have this condition due to fibro muscle tension, please write dombush@bellsouth.net.
9. SUGGESTIONS FOR DOM'S DENTAL PROBLEMS
Reader 1--
"About your dental problems www.fms-help.com/041811.htm, I had a couple thoughts, that you might want to consider:
1. If your ear pain and swollen gland ARE related to an underlying infection - which sounds like it COULD be . . . brushing your teeth with hydrogen peroxide (H2O2), might help with that infection. I still have some "food grade H202", that I have put in a "safe" plastic bottle, with a dropper top. When I brush my teeth, I put about three drops on my brush, along with my toothpaste, and brush for a minimum of two minutes with my "Sonicare" tooth brush. Since I started doing that, I have not had any problems with my teeth, and have no plaque buildup. I have seen, on the Environmental Illness forums, that some people have basically healed root canal infections, by gargling with baking soda and using food grade H2O2. It might be worth a try.
2. Regarding your mention, that the pain, that you are experiencing is very similar to your previous shingles. It is also possible that this kind of stressor COULD cause a shingles flare. I recently saw something, about treating shingles, which I had learned many years ago, when suffering from canker sores in my mouth, which are closely related to the same virus. Taking fairly high doses of L-Lysine, can help bring the flare under control. I think I read that you can take as much as 1500 mg three times a day. People who take lower doses don't seem to have much, if any, results from taking this.
3. Another thought, that I had, is related to alkalizing your body, to make an unfriendly environment for microbes. I know that you take the H202, combination product, but thought I would bring this up, to give you food for thought. I don't think I have ever seen you mention, that you check the pH of your urine. This is a good way to monitor, if you are truly alkalizing your body sufficiently. You may, or may not know, that you can buy test strips, to check your urine, to see how the your program is working. I am currently working to rid myself of chronic bladder infections, which have plagued me for most of my adult life. In the past several years, I have become resistant to the few antibiotics that I am not allergic to. I have been trying to fight this naturally, with only moderate success. This past week another infection flared, and I was in a lot of pain. I was Skyping with a friend, who lives in New Zealand, and she suggested something that is not available in the US. It is called Ural Sachet. I found a recipe online, that someone made up out of frustration, since they couldn't buy it. In researching Ural Sachets, to see if it is something that I can take, I learned that it is used to treat bladder infections, gout and cancer. It is not sold in the US, and I learned that it is sold by prescription, so it is likely the pharmaceutical company, that produces it, has gotten the FDA to ban OTC sales of Ural Sachet. I was amazed to find, that within a couple hours after starting to take this sachet, my bladder spasms stopped and I have not had any pain since. I take it three times a day, check my urine pH at least once or twice a day, and keep it at the ideal "7.0". I plan to continue this for another week (two weeks total), and then stop it, to see if the pain returns. I actually might continue taking it at least once a day, to maintain my urine at a 7.0 pH, which is what we need to keep our body's pH, at 7.4 and what it should be all the time anyway. Since viruses do not survive in an alkaline environment, I am wondering if that might not be something, that you could try to treat a shingles infection, if you ever have a relapse. If you are interested in the recipe, I would be happy to send it to you. It is very simple and very inexpensive to make.
4. Another thought, that I just had, is related to your swollen gland. On occasion, when I have swollen glands, I start at the top, of the gland, and gland and gently apply pressure, while moving my finger down the gland. This pushes any of the backed up lymph, that is building up, out of the gland. You can do this five or ten times, several times a day. Hold your chin up and continue to move your finger (applying gentle pressure), down your neck into your chest area. My Chiropractor did this one time, when I told her I had swollen glands. It did help, so I started doing it to myself, when I had swollen glands. I hope you are feeling better. My prayers are with you."
Reader 2--
"As far as shingles and dental work - I am convinced they are related! it is only when I get dental work that I will get any nerve problems...I can feel the nerve tingle and then my lip is messed with a cold sore. with shingles, it is the same story....it will happen after dental work. I believe all that working on our mouths upsets the nerves and then we suffer from the ordeal itself AND the shingle outbreak, or the cold sore outbreak or the Trigeminal outbreak......electrical shoots all throughout the eyeballs, cheeks, teeth, gums, ears... and dental work will always wake it up."
FROM DOM: I appreciated this feedback! Thanks so much!
10. TRIGGER POINTS CAN CAUSE PAIN IN UNRELATED AREAS
From a reader--
"I just finished reading your newsletter www.fms-help.com/041611.htm, and while I was reading I was reminded of my problems with TMJ because my jaw was popping really bad so I opened another tab and googled "help for TMJ" and I came across this link: http://www.triggerpointbook.com/index.html. The book that is discussed is a book I was planning to buy in the near future to help with my myofascial pain syndrome. At the bottom of the page is a section entitled "Symptom Index" and made the following statement: "You may have the wrong idea about your pain—and so may your doctor! Doctors Travell and Simons believe that pain is widely misunderstood, misinterpreted, and misdiagnosed. Their clinical experience has shown that trigger points can often be the true cause of the pain and other symptoms associated with the following conditions." Then it proceeds to list numerous pain problems. The section prior to the "Symptom Index", entitled "Aches and Pains" had this to say: "Just like in the above example, an amazing number of our common aches and pains—and a variety of other puzzling physical symptoms—have been found to be caused by myofascial trigger points. In fact, trigger points have been proven to be the primary cause of pain roughly 75 percent of the time and to be part of nearly every pain problem." It also says that the book has 376 illustrations and you're shown in detail how to find and self-treat trigger points in 120 pairs of muscles throughout the body. When I was looking at this book on Amazon it was very highly rated by readers. Anyway, when I saw the update about your dental work (or the lack thereof) and ear pain after an exam. I was like "BINGO" maybe that is what's going on! Who knows? It may be related. Just thought I would pass this on because I saw ear pain listed. I know it's not going to help at the moment, but maybe with a little online research you could come across an actual demonstration of a technique that might help."
FROM DOM: Wow! The book is called "The Trigger Point Therapy Workbook" by Clair Davies on amazon at http://www.amazon.com/Trigger-Point-Therapy-Workbook-Self-Treatment/dp/1572243759/ref=cm_cr_pr_product_top. Fascinating! My dad www.fms-help.com/eulogy.htm was born and raised in mainland China. His older brother became an herb doctor. My father was a big believer in massage for pain relief. Perhaps what is now known as trigger points were (sort of) understood a long time ago, for instance with the art of acupuncture.
11. THE ENCOURAGING WORD
From our plumber, Alan--
“For even the Son of Man came not to be served but to serve others and to give his life as a ransom for many.” Matthew 20:28 NLT
FROM DOM: Alan has a wonderful ministry of emailing an encouraging Bible verse every day to people on his list. I have been receiving these verses for about a year now, and many times they were just what I needed to hear or be reminded of. I always click on his email to be uplifted spiritually. If you would like to be on Alan's list, write anndavid45@gmail.com and request The Encouraging Word. (You can unsub at any time.)
12. THE STIGMA OF HAVING FIBROMYALGIA
http://www.fms-help.com/stigma.htm
13. MANIPULATIVE PEOPLE
"In Sheep's Clothing: Understanding and Dealing with Manipulative People" by George K. Simon, Ph.D.
http://www.amazon.com/dp/1935166301/ref=pe_113430_19594720_pd_re_dt_t6
14. HOW DO YOU DIFFERENTIATE BETWEEN FIBROMYALGIA & CFS?
From a reader--
"How do you differentiate between fibromyalgia and CFS? There is so much to read out there and a lot of articles combine them as 1 ailment and others 2 and yet others no ailment at all! Is there a section of article or facts I can take to my doctor on your site? I can seem to find a good doctor who can treat all my stuff! I have Hashimotos, gluten intolerance, adrenal issues, depression, etc. I have gotten some one to say fibromyalgia but it's not set in stone. I think I have a combo of that and cfs. I sleep but it is unrestorative...is there something for that?"
FROM DOM: Excellent questions. I believe (from personal experience...I'm not a doc) that FMS and CFIDS are two different illnesses with overlapping symptoms. For me, fibromyalgia involved widespread body pain, fatigue, unrelenting insomnia, depression, weird neurological symptoms (like fibro fog, shooting pains), muscle stiffness and gelling. However, my CFIDS symptoms were: utter debilitating fatigue, frequent infections, frequent viral illnesses, sleeping for long periods of time with no refreshment, brain fatigue and fog, and neurological symptoms (like brain crashing when riding in a car more than 30 minutes).
Below are some pages on my site that may be helpful in describing these 2 disorders--
16. SLEEP MED COMBINATIONS
From a reader--
"It is interesting about all of us with our sleep formulas. You with generic Ambien--I can't take it--and the herbal formula (Somnapure) as a supplement. I do it with generic Trazadone --Deseril and NightRest by Source Naturals and may add something from www.endfatigue.com and that other person who mentioned Dreamboost www.fms-help.com/041611.htm. We all seem to need to combine a prescription and an herbal. Dr. Teitelbaum suggests several low dose of prescription things and herbal things, as opposed to a huge dose of one thing like a prescription. several things he thinks work better and in different ways."
FROM DOM: Yep! My insomnia story is at www.fms-help.com/insomnia.htm. A list of things I've tried for sleep is at www.fms-help.com/sleep.htm. A list of things I use now is at www.fms-help.com/what.htm. I get restorative sleep most nights with a combo of meds and Somnapure.
17. THREE WAYS GOD ANSWERS PRAYERS
From a reader--
Three Ways God Answers Prayers:
1. Yes
2. Not Yet
3. I Have Something Better In Mind
100 Tips for Coping with Fibromyalgia &
Insomnia
 My Insomnia
Story
 What I Use
II Corinthians 1: 4 - "[God] Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God." Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.
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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.