Dominie's Fibromyalgia and Chronic Fatigue Syndrome Update 6-1-06

Dear Fibro Friends - Below are 5 items that may be of interest. The first one is really startling! - Dominie www.fms-help.com

1. POTENTIAL ANIMAL (ZOONOTIC) VIRUS IDENTIFIED IN PATIENTS WITH CFS, MS AND EPILEPSY

I received a fascinating article from Steve, who wrote: "This is from research funded by the National CFIDS Foundation, a much worthier group to support than the CFIDS Association of America which is now under the thumb of the CDC and their stress theories about CFS." Another reader, Alice, sent me this same article with the comment: "Cryptovirus, like Parainfluenza virus type 5, is now thought to be the pathogen which affects some of the weak genes those with CFS and MS have. Genetically vulnerable, it seems." The complete article is located at http://www.ncf-net.org/PressReleases.htm and is now on my site at www.fms-help.com/animal.htm.

2. ONTARIO (CANADA) NEW BILLING ANNOUNCEMENT FOR ME/CFS/FIBROMYALGIA

Hello Dominie: I was sent this information today from a action group here in Canada and I wanted to share the good news with you and thought that perhaps you knew of other in Canada more specifically Ontario Canada.

THE PROVINCIAL MINISTRY OF HEALTH PRESENTLY PAYS FAMILY DOCTORS BY A FLAT FEE FOR ME/CFS AND FM PATIENTS OR ONE HOUR. THERE IS NO MECHANISM TO BE REASONABLY PAID FOR SPENDING QUALITY TIME WITH THEIR COMPLEX CASES. THIS HAS RESULTED IN PHYSICIANS EITHER HAVING PATIENTS RETURN FOR MULTIPLE VISITS TO ADDRESS INDIVIDUAL PROBLEMS, OR MORE LIKELY NOT ACCEPTING THESE MEDICALLY DIFFICULT AND COMPLEX CASES.

AS OF APRIL 1, 2006, THE ONTARIO MINISTRY OF HEALTH HAS RECOGNIZED THE PLIGHT THESE PATIENTS ARE IN. THEY HAVE RECOGNIZED THAT ME/CFS AND FM PATIENTS REQUIRE EXTENDED AMOUNTS OF TIME IN THE DOCTORS OFFICE IN BOTH MEDICAL MANAGEMENT AND COUNSELING. AS A RESULT, THE MINISTRY HAS ADOPTED A NEW "BILLING CODE" K037 FOR ‘FIBROMYALGIA/CHRONIC FATIGUE SYNDROME CARE’ PHYSICIANS CAN NOW BE REASONABLY COMPENSATED FOR THE EXTRA TIME NEEDED TO TREAT THESE COMPLEX ILLNESSES.

In addition, the new Ontario OHIP Diagnostic Code for ME/CFS, number 795, picked up the newly diagnosed patient, but with the new K037 Code, patients who were previously diagnosed will be able to be recorded by OHIP thus allowing future statistics to be collected on these illnesses in the Province of Ontario.

Many thanks to all who have helped this come about:
Dr. Alison Bested for her excellent presentation to the Ontario Medical Association; the National ME/FM Action Network for initiating the Canadian M.E./CFS and Fibromyalgia Definition, Diagnostic and Treatment Protocols; the Board of Directors of The Myalgic Encephalomyelitis Association of Ontario for their meetings and advocacy with the Ontario Ministry of Health and our Members who have written, called their MPPs and written to the Ministry of Health; the Ontario Support Group Leaders and their Members and individuals throughout the province who have advocated on behalf of FM/CFS.

If I may borrow a phrase “it takes a village”.

Thanks everyone for all your hard work and efforts in having ME/CFS and FM accepted by the Ontario Medical Association!!

Audrey MacKenzie RN.
The Myalgic Encephalomyelitis Association of Ontario
BRAVO TO THE ONTARIO MINISTRY OF HEALTH FOR THE LONG OVERDUE RECOGNTION.

[Editor’s note: Now that we have a billing code for ME/CFS/FM in Ontario, it sets an example for other Provinces to follow.]

I got this letter from Dave. It may be of interest to some readers. He offers a free booklet plus some work from home opportunities. - Dominie

As a person with fibromyalgia, I have enjoyed your website.
It is informative and has helped me cope.

I have something that your readers may benefit from.

It’s a FREE report I wrote called: Fibromyalgia & Chronic
Fatigue Syndrome: 7 Steps To Get Your Life Back.

This report is based on my research and personal
experiences. Much of this was learned from the information
gleaned from your website, personal research and from my
attendance at the Fibromyalgia Clinic in London, Ontario,
Canada. They promote a self-help regimen, based on positive
thinking, relaxation therapy, pacing, moderate exercise,
and stretching. The primary concept is to take the focus
off of pain, looking for cures, and reliance on medication,
and learning to cope with positive strategies.

Here is what your readers will learn:

1. The steps you must take to get your life back

2. Learn the top coping strategies that will help you
manage your symptoms

3. Why your doctor doesn't seem to "get it"

4. How some stress is actually good for you, and how to
tell the difference

5. Why depression is so common with these conditions

6. How sleeping "like a baby" is not good for you

7. A simple method to increase your metabolism

8. Learn why you should avoid some support groups like the
plague!

9. How to overcome your financial situation

10. The easiest way to explain things to your spouse,
children & family

This report is not full of ads for miracle cures or other
products. I would never subject people to false hope. It is
a simple course of action that people with Fibro and CFS
can take to help minimize the effects of their symptoms. As
well, there is a brief chapter on how they can begin to
work from home and relieve some of their financial stress.

Naturally, I don’t expect you to send anything to your list
you wouldn’t endorse yourself. So, please check it out
first at http://www.FibroBuddy.com/7steps.htm. You’ll get
immediate access to the report.

After you have reviewed it, and you deem it worthy, you can
distribute it freely to your list, or simply redirect them
to the sign up page so they can get their own copy. I
believe my report will offer your readers some sound,
medically accepted information, and an opportunity to start
gaining some control back into their lives.

Also, I offer a free gift of a terrific piece of software
just for downloading the report! It’s a WYSIWIG Web Site
creator program worth $47. The link to download this
software can be found in the report and it is Absolutely
Free!

Again, the report can be found at
http://www.FibroBuddy.com/7steps.htm

If you have any questions, please feel free to contact me.

Phone: 519-962-3217

Email: dave@fibrobuddy.com

I look forward to hearing from you soon.

Warmest Regards,

Dave Leach

Your FibroBuddy

dave@fibrobuddy.com

www.FibroBuddy.com

www.FaithfulHosting.ca

www.EzbizAutomator.com

P.S. No matter what you decide, please feel free to
download the report and the free Software. It’s yours to
keep with no obligation whatsoever. My goal here is to help
people.