6-6-06
Below are 8 short, but
interesting topics for my fibro friends. Scroll down and check them
out! - Dominie
1. STAT-1 PROTEIN DEFICIENCY
AND THE CENTRAL NERVOUS SYSTEM
From a reader--
"I read the article, Potential Animal (Zoonotic)
Virus Identified in Patients with Chronic Fatigue Syndrome, Multiple Sclerosis
and Epilepsy), had my husband (an immunotoxicologist) read
it, and had him find information on the STAT-1 protein that people with
cfids, ms, etc may not have. It really affects the immune system.
But one of the articles he found cited an even more interesting article.
STAT-1 is responsible for a lot of immune
functions, one of which is NO production (more important for bacterial
infections). However, lack of it affects the expression of different
immune cells and their function. Someone lacking STAT-1
means that they're far more susceptible to virulent viruses and that the
aftereffects are expressed in the neuro system rather than
physically.
This really presents an interesting theory...one
that certainly should be more thoroughly examined."
2. READER HAS QUESTION ABOUT HIGH
WHITE BLOOD CELL COUNT
"Have ever heard of anyone with FM/CFS have a
problem with a high white blood cell count? I get various newsletters from
various sources and have even done the online analysis program from Dr.
Teitelbaum a few months ago, and I have never (or else do not recall) reading
anything the last 8 yrs. about this problem occurring.
My cell count was high last yr. with my physical,
and then it went down with various times that I had blood work done after that.
Then I had my physical again last month and its even higher than it was last yr.
I saw a hematologist on Fri. and now I have to wait until next Fri. for the
results. The specialist said that even though he doesn' t know much about fibro.
he has seen other women my age with the same problems and said there could be a
slight possibility that my count is high due to the fibro. Yet he didn't sound
certain.
I know you have lots of contacts and thought you
would be the best to contact to find any info. that has been noted with the
white blood cells.
I have felt my health decline so much about 2 yrs
ago when I started menopause. But in the last yr or so I am even worse, not only
the severe pain all over and affecting my brain, allergies, breathing, stomach
probs. etc. but any little strength or energy I had is completely shot and I am
basically housebound except for small chores since then."
3. YEAST
AND FMS/CFIDS
From a
reader--
"I got rid of the fibro with
Diflucan, Paragone by renew Life, Grapefruit Seed extract and anticandida diet.
Massage/ice to clear the muscles. Guafenesin helps some. Its yeast Dominie..my
doctor finally believed me..."
4. LESS SLEEP, MORE
POUNDS
From a reader who
stated--
"Since I got Fibromyalgia
eleven years ago, I have only gotten about five hours of sleep a night, and that
isn't really what I would call "restorative" sleep. Perhaps that's one reason
why I have gained about 30 pounds since 1995!!! It isn't my "diet", that's for
sure.....people who have Fibromyalgia have definite problems with getting enough
sleep; it's one of the major problems of this disorder!!!"
Women's Sleep Habits Predict
Weight Gain, Study Shows
May 23, 2006 -- Skimping on sleep may mean greater weight gain for women.
That's the finding of a study presented in San Diego at the American Thoracic
Society's International Conference.
Data came from 68,183 healthy women who took part in the Nurses' Health
Study. The Nurses' Health study started in 1976, when women were 30-55 years
old.
In 1986, the women reported how much sleep they usually got per night. They
reported their weight every two years for the next 16 years.
Women who reported sleeping five or six hours per night gained more weight
than those who got seven hours of nightly sleep, the study shows. The
researchers included Sanjay Patel, MD, of Cleveland's Case Western Reserve
University.
Read the entire article at http://www.medicinenet.com/script/main/art.asp?articlekey=62152
5. GROWTH HORMONE HELPS
READER
"I just wanted to tell you that I've been taking small amounts of growth
hormone & it's really helping! I am in so much less pain than I was prior to
doing this. I wrote you before about the fact that I figured it out on my
own about how to administer it, etc. I've been taking the growth hormone
for about 2 months & I really feel a difference. If you get a chance
you may want to put Dr. Robert Bennett's info about his study on growth
hormone up on your site - http://www.myalgia.com/growth_hormone_deficiency_in_fib.htm
or http://www.ukfibromyalgia.com/support_pages/advice/growth-hormone-lack.html
ALSO- I found that I really don't need alot & it ends up costing me
about $250 for 1- 1/2 month's worth of growth hormone rather than the
$1000's they say it costs."
6. COWBOY RIDING ACROSS U.S. TO RAISE
MONEY FOR FIBROMYALGIA AWARENESS
From a
reader--
A Pennsylvania man is saddling up to fight cystic
fibrosis and fibromyalgia. Mark Soper and his horse "Luke" are from the
Allentown [PA] area, and plan to ride across the country to raise money for both
organizations [fibromyalgia & cystic fibrosis]. See article at
www.rideforcharity.us.
7. MSG MAKES YOU
FAT
From a
reader--
"Here is an article on MSG. ........I didn't realize that MSG was in so
many of our products as well as all eating establishments. Worth
reading and sharing with all you friends. Is this why our young
people are "obese" at an early age? MSG Makes You Fat and is
Slowly Poisoning America
http://www.relfe.com/MSG_cause_fat_obesity.html."
8. UPDATE FROM
DOMINIE
I continue to feel 500% better since leaving the moldy working
environment 3 weeks ago!
Fungal Defense (mentioned in my
last update) did not work for me at all. I took in upon the
advice of a salesclerk at the health food store, since I told her I had
been exposed to mold for a year. I had a terrible reaction the
second night. I took 2 tablets with water at bedtime, as
directed, and woke up 4 hours later with extreme nausea and dizziness. I
also felt like my body and head were on fire! I have never felt this
way in all of my life, even with my worst flu. I was hugging the
"porcelain steering wheel" (ha) but couldn't throw up. I eventually
collapsed on the bathroom floor in the middle of the night, too weak and
dizzy to get up. It was really scary! (I got a refund from the
health food store.) This just shows that some products work great for some
people but not for everyone.
For a list
of what I currently use, see www.fms-help.com/what.htm.
These work well for me, but they may not work for you. We
are all different. However, with this illness, it's always interesting to
compare notes!
My site www.FMS-HELP.com continues to grow with fascinating new research, information,
support, compassion, and tips for coping with Fibromyalgia, Insomnia, and
Chronic Fatigue Immune Dysfunction Syndrome. These life-wrecking illnesses are greatly
misunderstood by mainstream
society. I work continually for awareness and to help
those who have these situations. I've had a sleep
disorder since I was 16 years old. (I'm 54 now.) I
developed FMS in 1982 while working
as a legal secretary. In 1987 I developed CFIDS after battling a nasty and
resistant virus. Since then I've learned a lot about this
illness and how to cope on a daily basis. I've been online with www.FMS-HELP.com
since 1996....wow, it's been 10 years already!
Although I can't answer all of my email, I do read everything you send and I
care about you!
Dominie Soo
Bush
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