July 13, 2006,
Dear Fibro Friends,
One of the first things fibromyalgia patients discover is
that almost no one understands their illness--not even their own families
or doctors. Instead of receiving compassion and support, people with
fibromyalgia are often treated with scorn, snide remarks and
ridicule.
Below is a
list of articles on my site that can help "normal" people understand people with
fibromyalgia. I also have LOTS
of medical and research articles at
www.fms-help.com
which prove FMS/CFIDS is a REAL illness. These can
be useful in educating skeptics and "mockers." It's sad that this situation has to be addressed, but unfortunately
misunderstanding is the "norm" with FMS/CFIDS.
Interestingly, the first-ever large population-based
analysis of U.S. Fibromyalgia incidence was released last week and
indicated an occurrence rate of about 4.2 percent
(wow....that's millions of people!), so awareness will be
growing.
I hope the links below are helpful. Don't let the
"turkeys" get you down!
Dominie
AWARENESS - letter I wrote to Congress
about fibromyalgia
MISERY INDEX - "CFS has one of the
highest morbidity rates (degrees of suffering) of any illness, rivaling the
physical misery of advanced cardiac disease and
cancer"
SPOON THEORY - helps explain chronic
illness to healthy people
DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.
Return to Dominie's
FMS/CFIDS Home Page