Dom's FMS/CFIDS Newsletter

www.fms-help.com

 

Dominie and Donnie Bush

July 18, 2011

A Christian-based newsletter about Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.) - sharing thoughts, research and experiences.

FIBRO STORY       CFIDS STORY       INSOMNIA STORY        HELPFUL THINGS I USE      PREVIOUS NEWSLETTER      ARCHIVES   

TOPICS IN THIS ISSUE:

1.  DOES STRESS CAUSE FIBRO?

2.  THE SORDID HISTORY OF VACCINES

3.  CHEMOTHERAPY

4.  WHAT PEOPLE WITH M.E. WANT FROM THE UK'S HEALTH CARE SYSTEM

5.  SYMPTOMS OF CFIDS

6.  CHICK-FIL-A

7.  READER'S EBV NOT DIAGNOSED FOR 3 YEARS

8.  MAMMOGRAMS

9.  DRAINING POISONS FROM THE BRAIN & SPINE

10.  OUTSMART YOUR CANCER

11.  DISABILITY DIGEST

12.  FIBRO DRUG COMMERCIALS

  13.  ETHICS

 14.  ADVICE FOR NEWLY DIAGNOSED CFIDS PATIENTS

15.  JONI EARECKSON'S DAILY DEVOTIONALS

16.  SYNAPTOL

 17.  THE ENCOURAGING WORD

 18.  FIBROMYALGIA & INTESTINAL HEALTH

 

19.  THE WALLS OF LIFE

20.  METHADONE FOR FIBROMYALGIA

21.  VITAMIN K2, CALCIUM & VITAMIN D

22.  COLD SORES, HERPES SIMPLEX, FLOSSING & ALZHEIMER'S

23.  NO TEAR WASTED

24.  CONCUSSIONS & FIBROMYALGIA

25.  HELP FOR MOLD VICTIMS

26.  PIANIST WITH FINGER OSTEOARTHRITIS

 

=======================

1.  DOES STRESS CAUSE FIBRO?

Reader 1--

"I too believe my fibro was triggered by severe stress.  I had a stressful job with long hours, a large house to take care of  and helped my mother through cancer and had several personal dramas too.  Mine started practically over night.   I agree though, its about time real answers were found."

Reader 2--

"You mentioned people in war zones and them not getting Fibro. There is a special on HBO this month about men in war zones and a good percentage of those men do have a change in brain chemistry to end up with Post Traumatic Stress Disorder (PTSD).  So I do believe this is the answer a lot of us Fibromites have been looking to find.   These were military men, but in my opinion it could happen to anyone with a prolonged sense of being on alert, and this in turn changed the brain chemistry. But they couldn't differentiate why some ended up with PTSD and others didn't."

FROM DOM:  Precisely!   Why do some people develop fibromyalgia, PTSD, etc. from stress while others don't?  Fibromyalgia is caused by a change in brain chemistry from distress in the central nervous system www.fms-help.com/fms.htm.  True in my case  www.fms-help.com/fibro.htm.  Fibro has something to do with the hypothalamus www.fms-help.com/hypothalamus.htm and also the amygdala (both are glands in the brain).  Use the Google search box at the end of this page to find references to this fascinating topic in past newsletters.  "Inquiring minds want to know!"

 

2.  THE SORDID HISTORY OF VACCINES

http://us.mg204.mail.yahoo.com/dc/launch?.partner=sbc&.gx=1&.rand=0cs5gli1g2phl - Snippet: "Former drug company scientist Helen Ratajczak recently created a firestorm of debate from all sides of the vaccine-autism issue when she published her comprehensive review of autism research. This is a massively important study, for more than one reason. One element brought to light that has managed to stay well below the radar is the use of aborted embryonic cells in vaccine production."

FROM DOM:  Speaking of vaccines, has anyone had the shingles vaccine?  (You have to be 60 to get this.)  Please write dombush@bellsouth.net.  I have considered getting this, but with my immune system weirdness, I'm not sure this is wise.  One doc said yes and one said no, based on my health history.  I had a HORRIBLE outbreak of shingles 2 years ago - something I hope I never have to go through again.  I have to stay on the antiviral acyclovir to prevent shingles and cold sores, but I also have other methods too, such as the oxygen drops for my drinking water and DMSO cream topically (write dombush@bellsouth.net for details).

 

3.  CHEMOTHERAPY

From a reader--

A very challenging paper. No intention to hurt anyone, simply an opinion.  In his paper, Abel came to the conclusion that the overall success rate of chemotherapy was “appalling.” According to this report, there was no scientific evidence available in any existing study to show that chemotherapy can “extend in any appreciable way the lives of patients suffering from the most common organic cancers.” http://justmeint1health.wordpress.com/2011/07/13/most-cancer-patients-die-of-chemotherapy/

 

4.  WHAT PEOPLE WITH M.E. WANT FROM THE UK'S HEALTH CARE SYSTEM

From a reader--

"I stumbled across this survey, taken by over 4000 people! I wonder if a survey like this has been done in the US. It’s interesting to see the responders’ thoughts on how they would prefer their treatment to be run. My impression is that here in the States it’s every fibromite for himself (and herself!)."

‘Managing my ME.’ ME Association publish results of huge survey report

Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for them and what don’t are available for downloading. The link to the PDF is at the bottom of this story [and here: http://www.meassociation.org.uk/wp-content/uploads/2010/09/2010-survey-report-lo-res10.pdf].

The survey also shows what people with the illness want from their health and social care providers. They are contained in a 32-page report called ‘Managing my ME’, which was published by The ME Association on 27 May 2010.

The survey – carried out online and through a paper questionnaire by the ME Association in the summer of 2008 – attracted huge interest when the questionnaire was held open online for over four months. A total of 3,494 people answered the questions online. Another 723 completed the paper questionnaire after it was circulated with our quarterly ME Essential magazine.

The results will form part of our submission to the National Institute for Health and Clinical Excellence (NICE) when they review their current guideline on ME/CFS. NICE are expected to carry out the review later the year.

http://www.meassociation.org.uk/?page_id=1345

 

5.  SYMPTOMS OF CFIDS

http://www.cfids.org/about-cfids/symptoms.asp - Snippet:  "Although its name trivializes the illness as little more than mere tiredness, chronic fatigue syndrome (CFS), also known as chronic fatigue and immune dysfunction syndrome (CFIDS), brings with it a constellation of debilitating symptoms.  CFS is characterized by incapacitating fatigue (experienced as profound exhaustion and extremely poor stamina) and problems with concentration and short-term memory. It is also accompanied by flu-like symptoms such as pain in the joints and muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A distinctive characteristic of the illness is post-exertional malaise, a worsening of symptoms following physical or mental exertion occurring within 12-48 hours of the exertion and requiring an extended recovery period.  The symptoms of CFS are highly variable and fluctuate in severity, complicating treatment and the ill person’s ability to cope with the illness. Most symptoms are invisible, which makes it difficult for others to understand the vast array of debilitating symptoms with which people with the illness must contend.  Additional symptoms are reported by people with CFS (PWCs) such as: word-finding difficulties, inability to comprehend/retain what is read, inability to calculate numbers and impairment of speech and/or reasoning. PWCs may also have visual disturbances (blurring, sensitivity to light, eye pain, need for frequent prescription changes); psychological problems (depression, irritability, anxiety, panic attacks, personality changes, mood swings); chills and night sweats; shortness of breath; dizziness and balance problems; sensitivity to heat and/or cold; alcohol intolerance; irregular heartbeat; irritable bowel (abdominal pain, diarrhea, constipation, intestinal gas); low-grade fever or low body temperature; numbness, tingling and/or burning sensations in the face or extremities; dryness of the mouth and eyes (sicca syndrome); gynecological problems including PMS and endometriosis; chest pains; rashes; ringing in the ears (tinnitus); allergies and sensitivities to noise/sound, odors, chemicals and medications; weight changes without changes in diet; light-headedness; mental fogginess; fainting; muscle twitching; and seizures."

 

6.  CHICK-FIL-A

http://www.nationalreview.com/articles/258646/christian-business-left-s-crosshairs-michelle-malkin

FROM DOM:  Makes me want to patronize this place.  The teens who work at our local store are wonderful.

 

7.  READER'S EBV NOT DIAGNOSED FOR 3 YEARS

From newsletter reader, Dave DABInc1738@aol.com--

"I JUST WANTED TO LET YOU KNOW HOW INCOMPETENT MY PRIMARY CARE PHYSCIAN IS AND ALSO ALL OF THE SPECIALIST I HAVE BEEN TO OVER PAST 3 YEARS INCLUDING NEUROLOGIST,PAIN MANAGEMENT SPECIALIST,PATIENT FIRST DOCTORS APROX 5 VISITS,EAR NOSE AND TROUGT SPECIALIST,EMERGENCY ROOM VISIT,UNIVERSITY OF MARYLAND DOCTORS AND THE LIST GOES ON INCLUDING A VERY QUALIFIED REUMATOLGIST WHO DID DIAGNOSIS ME WITH HAVEING FIBROMYALGIA AND CHRONIC FATIGUE SYNDROM.

WELL AFTER ALL MOST 3 YEARS OF GOING TO ALL OF THESE DOCTORS AND SPECIALIST I HAD NEVER HAD MY BLOOD TESTED FOR VIRAL INFECTIONS AND I DEMANDED MY PRIMARY CARE PHYCISIAN TO TEST IT AND GUESS WHAT THEY FOUND?MY DOCTOR HAD HER OFFICE HELP CALL ME TO TELL ME I TESTED POSITIVE AND CONTAGIOUS FOR EPSTEIN BARR VIRUS.MY DOCTOR COULD NOT CALL ME HER SELF BECAUSE I THINK SHE WAS TO ASHAMED.THIS TO ME WAS SO NEGLEGENT.I HAVE BEEN IN BED AND BEDRIDDEN SINCE OCT 1 ,2008 AND FIGHTING TO GET APPROVAL TO GET SOCIAL SECURITY DISABILITY AND I COULD HAVE BEEN DIAGNOSED IN 2008 WITH THIS ONE TEST FOR VIRAL INFECTION.I BELIEVE WITH ALL MY HEART THAT THIS VIROUS IS WHAT CAUSED THE CHRONIC FATIGUE SYNDROM.IF I WOULD HAVE BEEN TESTED BACK IN 2008 I WOULD NOT HAVE HAD TO SEE ALL THE OTHER DOCTORS AND SPECIALIST AND COULD HAVE SAVED 15,000 OF MY OWN MONEY BECAUSE I LOST MY HEALTH INS.WHEN I CLOSED MY AUTOBODY/COLLISION CENTER DOWN BECAUSE I COULD NOT FUNCTION.IN PAST THREE YEARS I LOST OVER 300,000 IN BUSINESS AND EVERYTHING THAT GOES WITH RUNNING A GROWING COMPANY THAT TOOK ME OVER 25 YEARS TO BUILD. 

IF YOU GET A CHANCE TYPE IN www.cebv.org AND LOOK AT ALL OF THE SYMPTOMS I HAVE BEEN SUFFERING FROM AND STILL AM.I AM STILL IN BED AFTER ALLMOST 3 YEARS SOON.I AM STILL IN BED APROX 75% OF THE TIME.I HAVE BEEN SUICIDAL SERIOUSLLY 4 TIMES.THE PAIN AND SUFFERING GETS ALLMOST UNBEARABLE AND THE THE VERY UNUSUAL TYPE OF OF THE MOST UNBEARABLE MIGRANE AND PAIN TO MY JAW GOING UP TO TEMPLE WITH SEVER COGNETIVE DISFUNCTION SO BAD THAT I FAILED EVERY COGNETIVE TEST I WAS GIVEN.IT STILL GETS THIS BAD FOR ME.IF IT WAS NOT FOR KNOWING JESUS MY LORD I WOULD HAVE PULLED THE TRIGGER.OUR FAITH ON THIS EARTH ARE TRUELY TESTED TO THE EDGE AT TIMES.I JUST WANTED TO WRIGHT YOU AND LET YOU KNOW ABOUT WHAT I JUST FOUND OUT ABOUT WHAT THIS TEST REVIELD ABOUT THE VIRUS AND THE NEGLANGENCE.

IT TOOK ME 2 YEARS TO GET APPROVED FOR SSDI AND WAS TURNED DOWN 2 TIMES BEFORE I HIRED A DISABILITY ATTORNEY.THE ATTONREY ONLY HAD TO WRITE ONE LETTER TO SOCIAL SECURITY DISABILITY AND I WAS APPROVED WITH OUT ANY HEARING.ASLONG AS I HAVE TO SUFFER THESE DEBILITATTING SYMPTOMS I DO NOT FOR SEE BEING ABLE TO WORK AGAIN BUT I STILL BELIEVE THAT GOD IS STILL IN THE MIRACULE BUSINESS.IF IT WASNT FOR MY BEST FRIEND LENDING ME MONEY TO PAY MY MORTGAGE PAYMENTS FOR OVER 1 YEAR I WOULD HAVE LOST MY HOME LAST YEAR IN FEBUARY.THANK THE LORD FOR HER.5 MONTHS AFTER BECOMING DISABLE IN OCT1,2008 I HAD TO APPLY FOR FOOD STAMPS AND 185.00 CASH ASSISTANCE THROUGH OUR LOCAL DEPT.OF SOCIAL SERVICES TEMPORY DISABILITY ASSISTANCE PROGRAM AND ENERGY ASSISTANCE PROGRAM AND ALSO HAD TO APPLY FOR HOME PROPERTY TAX CREDIT PROGRAM THROUGH THE STATE OF MARYLAND.THANK GOD FOR THESE PROGRAMS BECAUSE IF IT WASNT FOR THESE PROGRAMS THEIRS NO WAY I COULD HAVE MADE IT THROUGH TO THIS POINT.

PLEASE USE MY STORY SO THAT IT MIGHT HELP OTHERS THROUGH THE MAISE OF BENIFITS TO THOSE PEOPLE WHOSE MOST NEEDY AND AT RISK OF BEING ON THE STREET DUE TO THESE DIBILITATING DISEASES THAT THEIR ARE NO CURE FOR AND NO MEDICATION TO KILL THESE DISEASES AND VIROUSIS.  IF I CAN HELP 1 PERSON OR THOUSANDS OF PEOPLE WITH MY STORY AND ALSO WITH KNOWING WHAT HELP IS AVAILABLE TO PEOPLE FROM THE STATE AND LOCAL GOVERNMENT IT WOULD MEAN THE WORLD TO ME BECAUSE WE ARE TO HELP ONE ANOTHER AND I DO WANT PEOPLE TO KNOW THAT WE ARE NOT ALONE." - Reply directly to Dave at DABInc1738@aol.com

 

8.  MAMMOGRAMS

http://articles.mercola.com/sites/articles/archive/2011/07/12/for-every-woman-who-benefits-from-mammograms-ten-womens-lives-will-be-shortened.aspx - necessary or dangerous?

 

9.  DRAINING POISONS FROM THE BRAIN & SPINE

From a reader--

"What is the Perrin Technique!? I’d never heard of it until now, but 50% of the 115 people who tried it said they were “improved” or “greatly improved.” Surprisingly good odds for a fibro treatment. It sounds somewhat like Manual Lymph Drainage, which I haven’t tried but found on your site."

http://www.theperrinclinic.com/ - Snippet:  "What is the Perrin Technique? - We at the Perrin Clinic believe that Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and Post Viral Fatigue Syndrome is a physical disorder that leads to a build up of toxins within the brain and the spine. The Perrin Technique has been developed to diagnose CFS/ME by identifying definite physical signs and to treat the disorder by improving drainage of these poisons from the central nervous system."

http://www.theperrinclinic.com/about.htm - Snippet: "About the Technique - The Perrin Technique™ is based on Dr Perrin's theory that different stress factors whether physical, allergies, emotional or infections lead to an overstrain of the sympathetic nervous system.  Further investigation has led to a probable cause of this nervous system overload being a build up of toxins in the fluid around the brain and the spinal cord.  Some of the poisons caused by infection or inflammation in the head or spine flow through perforations in a bony plate (the cribriform plate) just above the nasal sinuses into the lymph ducts of the face and neck.  The toxins are also meant to drain down the spinal cord and out into the lymph ducts lying along the spine. In a CFS/ME sufferer these normal drainage points are congested."

http://www.theperrinclinic.com/testimonials.htm - Testimonials about the Perrin Technique

FROM DOM:  Use the Google box at the end of this page to search for Manual Lymph Drainage reported on in past newsletters.

 

10.  OUTSMART YOUR CANCER

http://www.amazon.com/Outsmart-Your-Cancer-Alternative-Treatments/dp/0972886737 - review of alternative cancer treatments, including Protocel  http://alternativecancer.us/protocel.htm

 

11.  DISABILITY DIGEST

From a reader--

http://www.thedisabilitydigest.com/ - tons of free disability info all in one place!

FROM DOM: Also read the disability tips from readers at www.fms-help.com/disability.htm.   One of my friends who has FMS plus a host of other debilitating health problems (including botched back surgery, for which she is on permanent morphine) was told by disability that as long as she can sit up, she can get a job  - meaning, a job answering the phone, etc.  There was no taking into account that this person might be able to talk on a phone for a few minutes, but not for 8 hours a day, day after day, plus travel.  She eventually won her disability.

 

12.  FIBRO DRUG COMMERCIALS

From a reader--

"You know what really makes me mad about those commercials where a lady pops a Savella or Cymbalta and goes on with her life? That is not the common experience of people who take these medications! On Savella, I popped a pill and spent the day trying not to throw up. On Cymbalta, they took me off my other antidepressant and switched me to Cymbalta. It did not work, and I have a mental health crisis."

 

  13.  ETHICS

From a reader--

"Ethics is knowing the difference between what you have a right to do and what is right to do." - Supreme Court Justice Potter Stewart

 

 14.  ADVICE FOR NEWLY DIAGNOSED CFIDS PATIENTS

http://www.cfids.org/resources/newly-diagnosed.asp - basic facts about CFS.

FROM DOM:  My CFIDS story is at www.fms-help.com/fatigue.htm

 

15.  JONI EARECKSON'S DAILY DEVOTIONALS

FROM DOM:  A reader told me about Joni's daily devotionals.  They are uplifting and always GREAT!   In case you don't know, Joni had a diving accident at 17 that left her a quadraplegic.  She has a wonderful organization for handicapped people called Joni and Friends.  Here's the sign up page for Joni's wonderful devotionals: http://www.joniandfriends.org/daily-devotional/ - click sign up now on the right.  Most recently, Joni has been battling breast cancer.  From the pictures on her site, it appears that she is doing well now, but if anyone has an update, please let me know dombush@bellsouth.net.  I love Joni Eareckson Tada!

 

16.  SYNAPTOL

From a reader--

"I just tried taking Synaptol (MORNING FOG, etc.) which is all over the internet as well as B6 sublingual drops…slowly making a difference."

FROM DOM:  Synaptol is a homeopathic remedy for ADD/ADHD.  Use the Google search box at the end of this page to research for ADD/ADHD references on my site related to fibromyalgia....maybe.  Both conditions are caused by a problem with the brain and nervous system.

 

 17.  THE ENCOURAGING WORD

“Spouting off before listening to the facts is both shameful and foolish.” - Proverbs 18:13 NLT

 

 

 

 18.  FIBROMYALGIA & INTESTINAL HEALTH

 

From a reader--

 

"I'm convinced (after much study) that fibromyalgia's origin lies in the health of the gut. Since I've been taking probiotics and eating plenty of raw fruits and vegetables in an effort to restore my gut health, my fibro symptoms have subsided significantly. Since the immune system and much of the body's chemistry has its origin in the gut, this makes sense to me. I would be willing to bet that each and every one of us, prior to our fibromyalgia, had a course of antibiotics which I believe started us down the slippery slope. The typical American diet exacerbated the poor gut health. The physical or mental trauma that we all experienced was just a trigger that activated the inevitable."

 

FROM DOM:  My CFIDS began in 1987 after being on 6 different antibiotics in 6 months time www.fms-help.com/fatigue.htm.  I now use an immune balancer that works in the gut, where 80% of our immune system is located.  I used it for 8-1/2 years, took a break, but I'm back on it again.  Write dombush@bellsouth.net for more info.

 

 

19.  THE WALLS OF LIFE

From Joni Eareckson's Daily Devotionals http://www.joniandfriends.org/daily-devotional/--

"Are you facing an intimidating wall right now... a medical problem, an unexpected bill, a strained relationship, or a wrestling match with temptation?  God has a purpose, and knows all about what you're facing.  Look up, take heart and say, 'I can do everything through him who gives me strength.'  (Philippians 4:13)"

 

20.  METHADONE FOR FIBROMYALGIA

From a reader--

"I and a retired wildlife biologist with FMS/CFS for 4 years now.  I have had great luck with methadone.  I feel so fortunate as my pain is more manageable than I ever dreamed it would be.  I am still on the same dosage today that I leveled off on 3-4 yrs ago -- 5mg 4x/day and most days I can get by on 3 methadone.  I still have vicodin for breakthrough pain; however, it is rare that I need it.  Usually when I forget I have fibro and do way too much (like flying to my best friend's wedding).   Before methadone I couldn't have stood the plane ride.  I did use a wheelchair to spare energy getting on & off plane.  Had a great time.  Went down the aisle without my cane in 1-1/2 inch heels (vanity) praying while I felt myself weaving that I wouldn't fall.  Thank the Lord I didn't, but will never wear heels again!  Kept expecting to build a tolerance but that hasn't happened to me & I understand from the methadone site that is common.  The only downside is the constipation which is a serious side effect that only "dynamite" can remedy. LOL!  Best of all I am clear headed, not more opiate goofiness.  Just wanted to bring you up to date. Found an old e-mail from you after you included my 'methadone news' in your newsletter asking me to let you know how I was doing on it....I forgot!  Still have fog, just not 'drug fog'."

 

21.  VITAMIN K2, CALCIUM & VITAMIN D

http://articles.mercola.com/sites/articles/archive/2011/07/16/fatsoluble-vitamin-shown-to-reduce-coronary-calcification.aspx - Snippet: "Without this, Vitamin D may acctually encourage heart disease."

 

22.  COLD SORES, HERPES SIMPLEX, FLOSSING & ALZHEIMER'S

From a reader--

Snippets from the book 100 Simple Things You Can Do to Prevent Alzheimer's and Age-Related Memory Loss (Little, Brown; $19.99) - 

"AVOID INFECTION.  Astonishing new evidence ties Alzheimer's to cold sores, gastric ulcers, Lyme disease, pneumonia and the flu. Ruth Itzhaki, Ph.D., of the University of Manchester in England estimates the cold-sore herpes simplex virus is incriminated in 60% of Alzheimer's cases. The theory: Infections trigger excessive beta amyloid "gunk" that kills brain cells. Proof is still lacking, but why not avoid common infections and take appropriate vaccines, antibiotics and antiviral agents?"

"FLOSS.  Oddly, the health of your teeth and gums can help predict dementia. University of Southern California research found that having periodontal disease before age 35 quadrupled the odds of dementia years later. Older people with tooth and gum disease score lower on memory and cognition tests, other studies show. Experts speculate that inflammation in diseased mouths migrates to the brain."

FROM DOM:  See my cold sore information page at www.fms-help.com/coldsores.htm.

 

23.  NO TEAR WASTED

Joni Eareckson Daily Devotional http://www.joniandfriends.org/daily-devotional/ (used with permission by Joni and Friends International Disability Center)--

No Tear Wasted

There is a time for everything, and a season for every activity under heaven: ... a time to weep and a time to laugh, a time to mourn and a time to dance. - Ecclesiastes 3:1,4

An old devotional book movingly says, "How can God dry your tears in the next world if you have not wept in this one?"  The image of God tenderly wiping away your tears describes a loving and utterly compassionate moment in heaven between you and your Savior.  Your earthly sorrows have a profound purpose in eternity:  they are setting the stage for God to engage himself wholly and completely in your eternal comfort.  No wonder David prayed in Psalm 56:8 for God to "... put thou my tears into thy bottle: are they not in thy book?" (KJV).  God will atone for every single one of your tears.  First, the reason behind your suffering will be made plain as God reveals something so glorious in his purpose that it will completely suffice for all your hurt.  Next, as God dries your tears, it will showcase the intimate, sweet affection of God toward you personally - much more so than if you never cried!  I'm not glorifying weeping, but I'm glorifying the God whose purpose will be exalted, and whose tender-hearted compassion will be glorified through your weeping.  Soren Kierkegaard said, "In the language of eternity, the suffering that helped you to the highest, is certainly not useless.  It is useless and unused only if you do not allow yourself to be helped by it to the highest."

 

24.  CONCUSSIONS & FIBROMYALGIA

Question from a reader--

"I have been falling and last night gave myself a true concussion. Hard to speak, move, etc. was the after effect.  I am in between eye glasses or surgery for cataracts so that is a factor.   What I was wondering is, if you are aware of any odd thing we Fibros have happen to us when we have a concussion?"

FROM DOM:  Write dombush@bellsouth.net if you have feedback.  Will post replies next newsletter.  I know that we fibromites have a delicate brain and nervous system that responds differently to stress and injury than "normal" people.

 

25.  HELP FOR MOLD VICTIMS

www.survivingmold.com (Dr. Ritchie Shoemaker) - mold causes all kinds of physical problems, including neurological.  Take this online screening test: http://www.survivingmold.com/store1/online-screening-test

FROM DOM:  See my mold page at www.fms-help.com/mold.htm.

 

26.  PIANIST WITH FINGER OSTEOARTHRITIS

FROM DOM:  Help, anybody!!!  I have no cartilage left in the DIP joint of my right pinky from osteoarthritis (wear and tear) from nearly 50 years of piano playing, and very little cartilage left in the middle finger.  Other fingers of that hand are also becoming painful.  I had a cortisone shot in the right pinky 2 months ago, but it didn't help.  The ortho wants to try a Kenalog (similar to cortisone) shot in August.  Pain patches didn't help, nor oral meds.  The ortho won't do a joint replacement on a musician, because he says they never get sufficient mobility back.  So that leaves 2 options: a joint fusion (requiring 6 weeks in a cast to the elbow plus physical therapy - results not guaranteed, plus my husband says danger from infection due to CFIDS); or becoming an organist instead of a pianist, so there is less stress on the fingers.  I can still teach piano and play for church, but when it comes to the fast, complex choir/orchestra accompaniments at church, filled with octaves for the right hand, it is just something I can't do anymore!  I keep my pinky finger tightly wrapped in tape to minimize the pain of beating the unstable joint against the piano keys.  I wonder what other aging pianists do?  I have scoured the internet and can't find much advice.  I am at my peak in sight-reading now....just when my body decides to break down!  Any advice from other performing pianists with arthritic fingers will be most welcome!  Please write dombush@bellsouth.net.  THANK YOU!!

=====================

Well, that's all for now.  May the Lord bless and keep you.

'Til next time,

Dominie Bush

www.fms-help.com

dombush@bellsouth.net



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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.