A Christian-based newsletter about Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.) - sharing thoughts, research and experiences.

"From one ‘Miss Former Goodie Two Shoes’ to another: Love your salvation story www.fms-help.com/salvation.htm! I was rescued from alternative medical practices / New Age techniques."

"I have found more information on your site in one hour than I have in three years of doctor after doctor....and a lot of other stuff!!"

"My battle with breast cancer seems like a walk in the park compared to this nightmare of an endless roller coaster ride that fibromyalgia is taking me on."

"Most of us can't go without a bra. The Genie Bras http://www.geniebra.com/ are GREAT!!!! No nipple shows and sooo comfy. "

http://www.youtube.com/user/GetWellFromME?email=comment_reply_received - Great video from an M.E./CFS sufferer - nice guy - says you need a sympathetic doctor who can help you cope with your symptoms, and that there are big adjustments when you are diagnosed with M.E. (myalgic encephalomyelitis). BTW, if you've had a bad doctors' experience, go to my site at www.fms-help.com/doctors.htm for some emotional support. Many doctors don't believe you have FMS/CFS.

"I really need some advice I am so tired and fatigue I feel like a zombie and I can barely stay awake, I have no personality - I don't smile or laugh I am numb. What can I do to wake up my brain, this is debilitating. Please help. I can't stop crying, it's weird because last week I felt great, but it like my brain does not wake up and I am walking in a trance, can't connect. I need help, I don't know what to do and will I ever be myself again? I don't have the pain others describe but I have severe muscle weakness, stiffness, muscles spasm, my vision is weird and my fatigue is exhausting, I feel so tired at night that I think I can sleep on my own, but I just lay there, so I take a xanax to go to sleep. I used to have severe knee pain but that has went away, I really just need my mind to wake up, is the oxygen drops the trick? I feel so alone, I have no one, and I don't understand what is happening and if I will ever be back. I am scared."

FROM DOM: I wonder what her doctor says about her symptoms? They do sound like FMS/CFIDS, but could also be from hormonal imbalances, yeast overgrowth, mold, fungus, dental mercury, depression, etc. or any number of other conditions. I really feel for this reader, because I've experienced these symptoms for years and now use both meds and alternatives to keep myself functional - my personal list of helps is at http://www.fms-help.com/what.htm. I was a guinea pig since my diagnosis in 1982 www.fms-help.com/fibro.htm trying countless things before finding what worked for me. I don't think I will ever be "normal" again, but this is my "new normal." About the malfunctioning brain, see http://www.fms-help.com/brainbased.htm and http://www.fms-help.com/brain.htm on my site.

FROM DOM: I sure hope not, because I had to start taking Synthroid a few months ago due to low thyroid. A follow up blood test recently showed that it did bring up my thyroid level into the very low normal range and I do feel better - more energy and stamina.

"I worked for decades to balance my ph without success until I had mercury fillings replaced at two a year. It took about 10 years. I had 1 tiny mercury filling that I decided to leave, but as the migraines continued, I gave in and had it replaced. Almost instantly my ph level became normal and the only thing I do to maintain it now is fresh lemon in my water from time to time. As the heavy metals were leaving my body, I’d have a terrible condition of hives. This particular blend of tea was my saving grace as it cleans the body deeply, doing a wonderful job of ridding the body of heavy metal toxins. http://www.floressencetea.com/#tab=Home I have used it for several years and wouldn’t be without it now, using it as I feel the need. [Caution about replacing mercury fillings – do not do it at a fast pace, it will over-load the system and one can experience a healing crisis. Also, it would be best to find a dentist who knows how to protect the patient as much as possible from even more exposure to the toxins as the fillings are removed – a dentist I didn’t know to find.)"

FROM DOM: I'm facing a HUGE dental project before the end of the year. My 40-year-old mercury fillings have all cracked and there is decay under them. The dentist estimates over $6,000 out of pocket (hello, credit cards). I dread all this dental work, but hope to tackle it little by little, as soon as I can get things quieted down in my personal life and work.

"Seven years ago we had a new septic tank installed. The old one was working okay, but we were afraid it wouldn’t hold out until sewers came along (we’re still waiting) so we replaced the system. Migraines began 6 years ago (but I didn’t put the two together until this past year). In the meantime, we decided to remodel the basement and put a stop to those pesky leaks that always seemed to happen with heavy rains (if you suspect my migraines were tied to rains, you’d be on track). So, we began with a new drainage system; the old one was original from about 50 years ago. Beautiful new system, works great! But there’s a peculiar odor … Long story short, the old system was not capped off and septic was seeping back into the house for 7 years! But the old system had masked the odor where the new system ventilated it well enough that we discovered the problem. Toxic molds/poison sewer gasses – yeah – I get it!"

www.joniandfriends.org (used with permission by Joni and Friends International Disability Center)

Tomorrow marks the anniversary of my diving accident - decades have passed since that fateful day I crunched my neck, then floated helplessly paralyzed, face-down in shallow water. Someone once asked, "Didn't you panic when you were in the water? You were running out of breath... weren't you frightened?"

Strange as it may seem, I wasn't frightened. Although I knew that in the next few seconds water would flood my lungs, a deep and powerful peace held fear at bay. Today's verse explains why. Our sovereign Lord is an "escape artist" when it comes to death. "All that pertains to deliverance from death, all that prepares for it, all that makes it easy to be borne, all that constitutes a rescue from its pains and horrors, all that follows death in a higher and more blessed world, all that makes death 'final,' and places us in a condition where death is no more to be dreaded - all this belongs to God. All this is under his control. He only can enable us to bear death; he only can conduct us from a bed of death to a world where we shall never die."

As it turned out, my sister Kathy rescued me seconds before I began to drown. Psalm 18:4-6 says, "The cords of death entangled me; the torrents of destruction overwhelmed me. The cords of the grave coiled around me; the snares of death confronted me. In my distress I called to the Lord; I cried to my God for help."

Only heaven will reveal the countless times we escape death every day. Thank him for his sovereign protection over your life - whether broken necks, broken arms, or broken fingernails, God blankets you with his protection. When your time comes to leave this earth for the next, he will provide the same 'escape!'

Sovereign God, thank you for keeping death at bay until it's your time to call me home. Until then, give me grace to serve you wholeheartedly.

"http://www.vitacost.com/Hylands-Arnica-Montana/?pd_section=pr#ProductReviews this is the kind of arnica I use and I’ve used it for years. Recommended HIGHLY by my massage therapist who is also a nutritionalist and stays away from toxic stuff –she’s studying to become a naturopath. IF you should pursue, get a book from the library on homeopathy because I forget the way I worked up to this dose, but it was gradually. Also – take 4 tablets and since they are not in any vehicle to preserve them, they turn to powder. Poor 4 in cap – don’t touch because of hand oil contaminating them – and put under tongue. Can’t have anything but plain water 20 minutes either side of taking them. Personally, I love using this product whenever I over-exert myself. If I know ahead of time (like prior to playing for church), I’d pop a dose before playing as well as after playing. Might repeat the after playing dose if I needed more to ‘kick start’ my system into working on its own. I bet I know why the toxic claim. You know how allergy shots work in that they have just a tiny bit of the product one is allergic to – it prompts the body into a state where the allergen becomes ineffective. Thus, they are toxic; but not in the tiniest dose."

"My chiropractor introduced me to Bio-Freeze. I have chronic pain and found this to work on some of my issues. I also was watching Dr. Oz and there is something equal to it and it is called Arnica gel. I bought some online and it s greaseless and seems to work just as well."

http://articles.mercola.com/sites/articles/archive/2011/08/03/just-how-bad-is-aspartame.aspx?e_cid=20110803_DNL_art_1 - Snippet: "Aspartame is the ingredient found in NutraSweet, It is also found in Equal, Spoonful, Equal Measure, AminoSweet, Benevia, NutraTaste, Canderel, and many popular "diet" sodas. This chemical is currently on the ingredient list of nearly 6,000 products worldwide. But since it was approved for use as a food additive in 1981, it has been dogged by complaints about its safety."

http://www.evolutionnews.org/2011/05/post_23046641.html - Snippet: "" The other night, I watched the latest production from Illustra Media, Metamorphosis, with our oldest kid, nine-year-old Ezra. Given that he pretty strictly requires that video entertainment involve robots flying around blowing things up, I expected him to scoff at a movie about caterpillars that crawl around, turn into butterflies then proceed to fly to Mexico. Conspicuously, on its remarkable unguided cross-continental journey, the luminous orange-and-black Monarch butterfly fails to blow up anything at all. Yet Ezra sat entranced throughout, as I did, which leads me to think Metamorphosis is going to be a big, cross-generational hit. Scheduled to be released in DVD form on June 15, Metamorphosis follows on the heels of past Illustra offerings, including Privileged Planet, Unlocking the Mystery of Life, and Darwin's Dilemma. It's probably true that with these films taken altogether, Illustra producer and documentarian Lad Allen has made the most easily accessible, visually stunning case for intelligent design available."

FROM DOM: I've seen Privileged Planet, and it was great! Metamorphosis sounds like another good one!

FROM DOM: This stuff works great for me. Alkalizes drinking water - just add 4 drops to a glass of water. Reduces fatigue, brain crashing, etc. for me.

Also, Dr. Deckoff-Jones is no longer working with the WPI, other than as a volunteer, although she remains on the same page with them, they are just not having a group practice after all:

Barbara Mountain's career experience has allowed her to see thousands of Social Security claims from three different perspectives. In this lesson, Barb draws from her experience to help you learn all about disability representatives.

You will learn: The types of representatives. How representatives answer SSA questions to prove you are disabled. How representatives get you all the back benefits to which you are entitled. How representatives communicate that you are disabled to SSA. The tasks representatives are responsible for and how it makes your life easier. How your chances of getting approved are increased. What you must know but don't know the questions to ask. Do you need a local representative. Common pitfalls and how to avoid them. What you can expect to pay for a representative. The 4 key ingredients to winning your benefits.

Whew! What a wild weekend - my mom's 90th birthday party! Had nearly 70 guests, out of town company, etc. I think I was supported by the prayers of many who know my health challenges. Praise the Lord - my mother had a wonderful party and also gave a 30 minute speech telling about her parents who came from Austria-Hungary to America, and many other important events in her life, growing up poor during the great depression, being "born again" and also how she met my wonderful father from China. Mom entitlted her talk, "The Hallelujahs of My Life." At the very end, she said there is one Hallelujah still waiting, and that is when she is before the throne of God, bowing at the feet of Jesus who gave His life to save her from her sins. It was one grand occasion!!! Many of her friends wanted a transcript of her talk, and one guest has a radio program and wants the recording to air on the radio.

Well, all of the relatives are gone now, but the happy memories linger. One more thing I want to share....with every invitation I sent out, I included a pretty piece of stationery for invitees to write a "Happy Memory" of my mother. It's amazing the responses we got from all over the U.S. in many places where we had lived through the years! I compiled the "Happy Memories" into an album and it was presented to my mother at the party. I hope that reading this album will warm her heart on quiet lonely nights - to know that her life has positively affected so many people.

BTW, I traveled to the party in the car with the seat back, ear plugs in, and black mask over my eyes to cut out any stimulation from light and noise (a result of neurological damage from working in toxic mold in 2004-2005 www.fms-help.com/mold.htm). The party was about an hour from our house. I was able to function normally once there, and also got to go back today to join my mother and the relatives who came to sit with her in church in honor of her 90th birthday. I thank God for good weather and for strength through it all. My mother was also in excellent condition for her age. At the end of the party, we sang a verse of my mother's favorite hymn:

II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God." Visit Dominie's FMS/CFIDS Homepage at www.fms- help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.