DOM'S FMS/CFIDS/ME NEWSLETTER
www.fms-help.com
September 13, 2009
 
Dom's Christian-based newsletter for people with Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS), or Myalgic Encephalomyelitis (M.E.) and their families. 
 
 16 SHORT TOPICS.   READERS' COMMENTS IN BLACK.  MY COMMENTS IN TEAL. 
 
Dom's Quick Links:   Fibro Story  CFIDS Story    Insomnia Story    Newsletter Archives   Med List   Homepage  Previous Newsletter
 
The votes are in!  Left-alignment won out over center-alignment by a very small margin, so I will center the beginning and ending of each newsletter but left-align the articles for easier reading. - Dominie

 
1. READERS WRITE
 
"Thanks for all that you do, if I hadn’t found your website www.fms-help.com 3 years ago I would have thought I was the only one having all these issues.  It seems like the minute we find a solution to one problem, the body thinks of another way to sabotage itself."
 
"Thank you for your efforts and time to help all of us fibromites with your very informative information."
 
"Your newsletter has been a bright spot for me. I finally feel that I am not alone.  I have spent years trying to find a reason for all of my symptoms and have listened to every assinine diagnosis!"
 
"You have so much knowledge of how to try and manage your  fibromyalgia, and you are so willing to share it with others that don't have that knowledge.  Thank you!  Another thing, you are always out there searching for new  information that needs to be told."
 
"Thank you, Dominie, for your precious words of encouragement.....I appreciate them more than you could know!  and for the sweet words at the end of your post...you are certainly a true friend to us all."
 

 
2.  HANDS HURTING
 
From a reader--
 
"I have been having lots of problems with  my hands were hurting so bad.  I told my daughter I wished that I had heated gloves to put them into. She told me to heat the wax in my hot wax machine. After the wax was melted I dipped each of my hands into it 3 times; then put plastic wrap around it and a sock over that to hold the heat in. I left that on for 20 minutes and it definitely helped.  Since it worked so good I then did my feet.   I used lavender scented wax. (I was chosen to have fibro because God knows that I have the strength for all the trials and tribulations that are to be conquered.  He also knows that I am compassionate enough to help others with fibro.)"
 

 
3.  BLOOD PRESSURE & LOW BLOOD VOLUME
 
Response from a reader to Topic 11 at www.fms-help.com/090909.htm--
 
"I have found that my blood pressure will not register on the cuff I have or ANY cuff when my blood volume is messing up.  I know it is happening because I get dizzy....and i will get heart palps and breathing problems (almost like a panic attack start-up).  I will take my BP and sure enough...EE will the the final result. 
 
I thought my cuff was broken, so I bought a new one (expensive action!) and it did the same ting!  A doctor that I communicate with on my M.E. forum suggested it is because of the lack of oxygen that we have due to low blood volume....and the reason it DOES that is because our BP is dropping too fast for the machine to pick it up.
 
He suggested I lie down until it subsided each time.  The entire forum (M.E.) agreed they also suffer from this; for most of them, they were diagnosed with POTS and also with I.O. which I do have)..the orthostatic problem comes and goes for me, and I have doctors who don't believe in this, so are not willing to test me.
 
Anyhow..to have you mention this problem simply made it all "REAL".  so how many of us with FMS also actually have M.E.  I have every single symptoms of M.E.  - just different ones at different times. I don't know what to blame for each attack."
 
FROM DOM: To learn more about M.E. (Myalgic Encephalomyelitis) go to www.ahummingbirdsguide.com.


 
4.  SHINGLES PAIN
 
From a reader--
 
"My mom told me that this stuff completely stopped her shingles pain.  She was having shooting nerve pain.   Her shingles were gone in 3 days.  She loves this!  http://www.evitaminstore.com/Shingles-Rescue-Plus-56028.html."
 
FROM DOM:  My doc said to use Lyrica for shingles (nerve) pain, but I prefer to try something natural instead of more drugs, which can mess up your liver, stomach, kidneys, brain, etc.  I also saw that DMSO is a way to get rid of shingles.
 

5.  TROUBLE SLEEPING?

From a reader--
 
"Years ago when my late husband passed away suddenly, I had trouble going to sleep at night. I found a radio program that was like no other.  I would prepare for, and go to bed in time to turn on this wonderful program.  The soft, deep voice of this man would come on, and he would share a word from the Lord, and some songs that were just made to comfort and calm my entire being. I find this program is still on after these many years, although, the man with the wonderful voice is now in the Assisted Living Facility where my husband's mom lives.  (right now she is in another facility for rehab)  My husband and I have had several opportunities to talk to this man as he comes to all the church services we hold there at the Assisted Living Facility.  He is such a blessing, even though his body is being attacked in a vicious way with Parkinson's Disease.  He has such an interesting story about his life, and you can also read it on line.  This program may or may not help you in your sleeping problems, but I find it helps me close the day with a wonderful word from the Lord, given in such a meaningful way.  There is just no way to explain how this affects me -- you would just have to listen to the program for yourself.  I HIGHLY recommend you at least try to find this radio station where you live, and then look for: "Nightsounds with Bill Pearce" www.nightsoundsradio.orgI feel sure you will be blessed in one way or another if you can find and listen to him and the message he gives five nights a week. (I don't think he is on week-ends)   If you are like me, and awake anyway, why not try it. As I said, "It surely has helped me!"  And find and read his bio if possible - what an interesting person he is, and what a servant for our Lord!"
 
FROM DOM:  I have heard the program "Nightsounds" before and it is great!  Thanks for reminding me.  I just found out it is on at 10:30 p.m. weekdays on our local Christian radio station (WAY radio, 550 AM here in Green Cove Springs, Florida - the station is just a mile or two from our house!)  I plan to tune in lots more to this program.  It was soooo soothing.  BTW, I also like the "Pacific Garden Mission" dramatic stories of conversions at 8:00 p.m.
 

 
6.  TEETH WHITENING - DANGEROUS?
 
Reader 1--
 
"I haven't personally tried any home tooth whitening kits, but my son did and due to having to paint his teeth with the whitening solution and place a mouthgard over it before bed each night he became quite ill due to consuming (in his sleep) some of the poisonous hydrogen peroxide in the whitening solution.  To be honest Dom, I really wouldn't recomend using those kits to anyone. My son keeps very good health normally, but that stuff really knocked him around."
 
Reader 2--
 
"I, too, wondered about the OTC teeth whiteners.  My brother and sister and I all have very dark teeth, have had discoloration and yellowness of teeth that usually "comes with age, but started very young in our family.  We resigned ourselves to it, as nothing seemed to work.   Then I decided to try Crest White Strips.  I bought them for about $30 as a birthday gift to myself.  I was feeling old and couldn't afford plastic surgery (as if I would do it anyway), but decided I could do something about my teeth.  After 2 weeks, the effect was startling!  No, it didn't give me perfectly white teeth, but it certainly set my tooth age about 30 years!  To this day, my sister still points out how my teeth are much whiter than hers and my brothers because I "used something" on them.  As with age, the discoloration accumulates again, but my teeth are still not nearly as bad as they were 4 years ago, and I haven't gotten around to using it again.  Now they have new super formulas that only take 7 days, but the 14 day treatment certainly worked wonders for me.  The only drawback to it is sensitive teeth.  I consulted a dentist about the possibility of tooth damage, and he said that the main ingredients are basically hydrogen peroxide, which is used to treat many mouth conditions.  He told me that Sensodyne toothpaste would take care of the sensitivity, which it did.  I didn't have to stay on it because the sensitivity didn't come back once I got rid of it.   Anyway, hope this helps.  I would definitely recommend Crest White Strips.  I plan to use them again.  I was surprised at how long the results have lasted."
 
Reader 3--
 
"As for teeth whitening, I just bought Crest White Strips.  Haven't tried them yet as you can't drink, eat or smoke for the thirty minutes they're on your teeth.  I got the advice to buy Crest by a guy who has used different products.  He practically glows in the dark!  But he said the dentist told him to only use the Crest as the others will take the enamel off your teeth.  And to buy a tooth-sensitive toothpaste when you use the white strips as they may make your teeth sensitive.  Evidently you're only supposed to use them once in several months;  otherwise they can do damage.  I find it interesting that you are taking oxygen.  I stumbled on to this myself a few months ago.  The drops really do give me more energy and less pain!  I don't need the nap that I took in the afternoons after work any more.  I'm taking something called "Cell Food", which is $33 (Cdn), but it lasts a month.  Remember the lady on your chat line a few years ago who talked constantly about alkalizing your body?  She may have been right.  Of course, trying to stick to a diet low in acidic foods is difficult.... I agree with you that fibro is probably an infection or virus in our brains.  No one has found it yet."
 
FROM DOM:  I tried Cell Food a few years ago without any noticeable effect, but each of us are different as to what helps.  I guess we must be like detectives, looking for our unique clues to improved health.  I'm still getting good results from the alkalizing and oxygenating drops.
 
Reader 4--
 
"For teeth-whitening I have used (for years) a product called Opti-white that I can buy at Walgreens or CVS.  It usually runs about $8 but it lasts a long time.  It is a 4 ounce bottle of gel that you squeeze into the provided trays.  You can check Walgreens for similar knockoff that may be a few bucks cheaper.  As long as the active ingredient is carbamide peroxide it will whiten teeth.  Here’s a photo of the package: http://www.asseenontvdiscounts.com/optiwhite_tooth_whitening_system.htm; but don’t order it here because it’s cheaper at Walgreens. "
 
Reader 5--
 
"A few weeks ago, I saw a 
photo of myself, and was shocked at how brown my teeth were.  I can't 
do the tooth whitening kits, due to all the chemicals, and MCS. 
However, since I have the Food Grade Hydrogen Peroxide (H2O2) in the 
house, I have been brushing my teeth with it, and in the past week, my 
teeth have gotten a lot whiter.  I'm not sure if there is a right way 
to do it. But, what I do is: Put about one Tbsp of water in a drinking 
glass, then six drops of H2O2 and swirl it around.  I dip my 
toothbrush in this and leaning over the sink (to prevent getting it on 
my clothes).  I brush my teeth for about two minutes, only doing it 
once a day.  When I am finished, I rinse my mouth with plain water, so 
the H2O2 doesn't irritate my gums, or lips.  I haven't remembered to 
do it every day, but it has really made a difference."

 

 
7.  THOUGHTS ON IMMUNITY
 
From a reader--
 
"My honest opinion is that a new type of specialist be educated for these immune disorders.  My reason for saying this is everyone can have like symptoms, and these are different in all, but the trigger is most unique for each individual. The person or persons treating such individuals should be able to do so refining each case as non comparable to any other one.  The reason I say this each one has a different trigger that is responsible and controls the illness, and without defining the trigger it can not be treated!  If a trigger is chemical and one is given meds with like or the same compound that trigged the illness this would only make it worse, this happens in so many cases and just adds to the complications.  I myself have been on that merry-go-around!! To begin with the worst that ever happened was all the new antibacterial chemicals on the market have also killed off the good bacteria that protects the immune system.  It all starts thinking back when we drank milk right from the cow and babies were feed breast milk! Now it's all pasteurized and baby formulas are fed that are sterile and artificial, so at the beginning there is no resistance built up to any natural bacteria . So this child grows up and passes the already zero immune system to there child plus this child is exposed to more new minus natural bacteria issues until there is no immunity at all! Until the  government goes back and changes all this I don't see any real road to a cure! This is just one thing that has induced these immune disorders, it goes on and on and I don't see anyone willing to reproduce a way to reinstate good bacteria into our bodies after it's undone. And how would they get the good bacteria to do this? Of course it would be artificial and would it cause more problems? And how would all us disabled people pay for it if they did?"
 
FROM DOM:  I began using an immune balancing shake in 2001, when a reader told me about it.  I still drink one of these daily.  Still tastes great after all these years and keeps me from having swollen glands, gas and bloating, complexion breakouts, racing thoughts, and keeps my sleep from becoming so badly deregulated (even with sleeping pills.)  The immune shake is one of the main things I take daily to try to have a functioning immune system.  I was given gamma globulin shots as a child because I had so many respiratory illnesses (which runs on one side of our family).  I grew up to be a sickly adult and had to quit teaching school (even though I loved it), because I was sick all the time with viruses, flus, fevers, nausea, etc. www.fms-help.com/fatigue.htm.  I am glad that I have been able to be a piano teacher www.fms-help.com/students.htm for the past 17 years, but I still have to manage my exposure to germs and viruses carefully, using essential oils in the classroom, etc., washing my hair when I get home, etc.  (It's a part-time job just being a fibromite!)
 

 
8.  SAVELLA
 
From a reader--
 
"I found about 4 articles in your newsletters www.fms-help.com/newsletters.htm regarding Savella.  Sounds like I better be very careful with this drug!  I'm going to give it a try and watch VERY carefullly for any side effects! I already have a history of heart palpitations and this is one of the side affects.  My Dr even made the comment "I have been waiting for a Fibro patient that could be a guinea pig for me."  I saw him hoping for some other relief for my Fibro symptoms as I just have been feeling horrible.  I guess he was at least honest.  I will start this evening on a 'trial pack' which consists of me slowly weaning off of Cymbalta and on to the Savella.  BUT if I suffer ANY adverse side affects I will call him and stop it immediately!  He said there may be a period of adjustment where my emotions will be on a roller coaster etc until I adjust to the meds. And, yes, the info pack was pretty scary in describing this drug.  I will at least give it a try as it has worked for SOME people with Fibro. But proceeding very cautiously!"
 
FROM DOM:  Good idea!  I have always been very cautious with meds, having had so many bad experiences with some of them, especially the ones I tried for sleep since 1982: www.fms-help.com/sleep.htm.  A current list if things that works well for me is at www.fms-help.com/what.htm.
 

 
9.  BURNING MOUTH
 
Response from a reader about Topic 2 at www.fms-help.com/091109.htm--
 
"This is the first place I've read anything about the burning mouth I've had for months.  Thanks to the other readers for  the references that eventually led me to the Mayo Clinic site.  I have some real information to take to my doctor on Monday."
 

 
10.  MAGNESIUM & HEART BEAT
 
From a reader--
 
"At age of 60, I was diagnosed with Mitral Valve
Prolapse Syndrome. Had medications  to control  arrhythmia's and other
heart related problems.  I did not tolerate different heart
meds.Often heart rate dropped  to 28 beats p.m. or meds caused atrial
fibrillation.   Many other side effects, I suffered much! Was
diagnosed  with fibromyalgia at age 49  but as a child and young
person already had Chronic Fatique Syndrome.  There is a DEFINITE
LINK between  FIBROMYALGIA  and MITRAL VALVE PROLAPSE (you can Google
this).  A friend suggested  I take  liquid Magnesium to regulate
heart beat and to avoid atrial fib.
  Have taken it now for 6 years and
even though I have a Pacemaker, the Magnesium has greatly helped my
heart. All my Dr's agree that I did the right thing!! Each person  in
his/her 50's  is becoming more  or less deficient in Magnesium.
Magnesium is being used in more than 200 of the body's biological
pathways and has many functions. The (concentrated)  Magnesium  I take
comes in either 2 or 4 oz dropper bottles and I have at all times a
bottle in my purse (my heart could go crazy while  at the
supermarket, I can take 2 to 3 dropper fulls in half cup of water).
This is a first grade Magnesium 400 mg and  1120 Mg Chloride in  0.08
tsp or 4ml liquid serving size,  from the Great Salt Lake in Utah,
LIQUID MAGNESIUM (concentr./ mix w/water) GOES MUCH QUICKER INTO  YOUR
SYSTEM  than  capsules, specially when your heart needs it quickly to
stop uncomfortable flopping or racing. (Was given my own liquid
Magnesium once in ICU  for atrial fib when ER  Dr gave me meds to
raise low heart rate!!)  Having  had to deal with heart problems and
the Fibromyalgia, has been a challenge, especially since I had to work
full time till I was 68.....The use of liquid Magnesium has helped
both conditions greatly.  The Liquid Magnesium I use is called Trace
Minerals and you can order it from: NATURES FOUNDATION in UTAH  PHONE
1-888-844-6286. (Their website www.Naturesfoundation.com does not show
the Liquid Magnesium, I usually call them.)   Hope this info will help
those that suffer from Fibromyalgia and the related Heart problems
that many have!  I know for a fact that there is a LINK between the two conditions, I really
want others to know how to help themselves better!! I usually run
everything by my DR's for approval and they all approved this!!!"
 

 
11.  FITNESS SHOES
 
From a reader--
 
"MY NIECE HIGHLY RECOMMENDS THESE SHOES.   I HAVE NOT TRIED THEM YET.   SHE SAYS YOU NEED TO WEAR THEM JUST ONE HOUR A DAY - THEN TWO HOURS A DAY ETC.   SHE SAID THEY HAVE HELPED HER GREATLY.  www.skechers.com/info/shape_ups.
 

 
12.  READER SUFFERING WITH CYSTS
 
Please respond directly to Sissy itreeit@aol.com--
 
"I was diagnosed with Common Variable Immune Deficiency 10 years ago. I am 62 yrs old, so this diagnosis so "late in life" was a complete shock. How had three dozen specialists in all modalities skip the one test (IGG) that would have diagnosed me years earlier. Because of the late diagnosis, I am convinced that my immune system became so comprised that I now suffer from CFS and Fibro.  I also have been diagnosed with mylodysplastic syndrome which I also blame on years of misdiagnoses. I now take bi weekly infusions of Intravenous Gammaglobulin, which has helped lower the number of infections dramatically.  I am suffering from a new malady. Large painful boil-like reoccurring cysts under my arms. I would be very interested to know if any of my fellow readers have problems like this. They are extremely painful and despite my best efforts to shorten the course, it usually take 5-7 long days to resolve. I have tried the usual "drawing" salves, hot packs and lidocaine. Any advice would be wonderful. If readers want to contact me directly, they can do so at itreeit@aol.com. - Sissy"
 

 
13.  MAKERS OF VACCINATION REFUSE TO TAKE H1N1
 
From a reader--
 
http://www.youtube.com/watch?v=B4SmFxyust0&feature=player_embedded - children are the guinea pigs!
 

 
14.  LYRICA
 
From a reader--
 
"I have used Lyrica;; my doctor used it for my fibro when it was not being used for it; since I have diabetes, he was allowed to use it for my nerve damage....but I did not get to find out if it worked because it made me a zombie."
 
FROM DOM:  See more reader comments about Lyrica at www.fms-help.com/newsletters.htm.  Search Lyrica.  One thing my doc recommended Lyrica for was shingles nerve pain.  I tried it for a few days to see if it would help with fibro sleep, fog, etc. but felt really weird on it, like "hide the knives and guns."  However, I am managed well for the sleep disorder with meds (thanks to my doc) www.fms-help.com/what.htm, and I have several "remedies" for brain fog (some quick, some slow), with the best one being the oxygenating drops<a href="http://neveranoutbreak.com/index.php?partner=FM5H1PDB">  that I began using a month ago.  No fog in 4 weeks!  No collapsing feeling either!
 

 
15.  PAIN KILLER DOESN'T HELP
 
From a reader--
 
"Feeling really down today after being hospitalised with a severe kidney infection, so in pain and 'trying' to recover from the MASSIVE doses of morphine i was given to 'try' and alleviate my pain. Have you found in some of your readers (and maybe yours) experiences that us fibromites seem to have a huge tolerance to drugs? I was given over 20mg of morphine over a few hours and was still in acute pain. The drs at ED couldn't understand what on earth was going on. Is this a common thing with fibro patients? I would be interested to hear yours and your readers experiences in this area."
 
FROM DOM:  The answer is YES.  See http://www.bio-medicine.org/medicine-news-1/Why-dont-painkillers-work-for-people-with-fibromyalgia-3F-2226-1/  - WHY PAIN KILLERS DON'T WORK FOR PEOPLEE WITH FIBROMYALGIA.   I would be interested in feedback about what pain killer has worked best for you?  Please let me know what TYPE of pain it relieved:  fibromyalgia, post-surgical, injury (broken bone, etc.), back problem, migraine, etc.  Write dombush@bellsouth.net - and please mention this reader in your prayers today.....she is one of US!  (So few people understand the world we fibromites live in and our unique, but often hidden, challenges.)
 

 
16.  BE CLOTHED WITH HUMILITY
 
From a reader--
 
"You have such articulation when it comes to explaining things of the Holy Spirit; in a world of such negative advise, it is refreshing to 'meet' a person (in pain and weakness, no doubt) who sees the bright side...the Light side (Christ) of life.  Yes, humility is something I want to perfect before I meet Him face-to-face!  I look back at my younger days, and I see that  I  was arrogant and did not even KNOW it.  I use to really believe I had all the answers....so "helpful" was I.....oh to CRINGE when I think of my 'youth'.  It is so TRUE that it is wasted on the young (for the most part, anyhow).  HUMILITY is a word that I need to hear often!  I wish to be transparent about myself....I desire to be humble....to realize anything good in ourselves is ONLY because of God's gifts he has given; I need the continued discipline from the Lord.  When I was healthy, I KNEW it.  I appreciated it as much as I was able to, but I did nothing about it as far as giving it back to God; I kept myself so busy that I left God out.  I could not even enjoy the present moment; I was always thinking about what I would do next!  I had unusual amounts of energy and interest in things; I would keep going and going.  Even HEALTH was something that I was not a good steward in!  I believe God has gifted me with the 'lack' of a  things;  I have no real  talent - I can do a lot of things....but I cannot do them to perfection; as a matter of fact, most of what I do is done very slightly; and that keeps me humble.  I am no raving beauty, and as I age, I look in the mirror thinking "if I were rich, I might be tempted to take care of a few of these things"......but inside I DO appreciate the fact that I am not a beauty, for I could not handle it...I have literally beautiful grand daughters, and the youngest one concerns me because she knows she is beautiful and does not know how to be humble about it....that would be ME.  I know it. It is in the lack of things that I can even be arrogant!  I mean, it would be just like me to use the fact that God keeps things from me in order to TEACH me....to use it as a snub!  I don't snub people, but I have to be careful in everything I DO.  I could even turn THAT around to make myself seem more important than I AM.  God is so good....to have KEPT these things from me - how GOOD he is.  Riches in money, skill and talent and in physical beauty can actually become curses for those who cannot be trusted with them; and that is ME....sorry to say, but it is so.  But I need to be careful....like I said before, in my position of being 'denied' things for my own good, it is the denial that could make PRIDE show its ugly face.  I can only imagine the time God has with me; sometimes I ask Him if He isn't sick of me yet.  I am such a difficult child!  I want to learn....in my  "golden' years, I should have learned a LOT by now....I guess I am spiritually ADD.  lol"
 
FROM DOM:  Back in my college days at UCLA (40 years ago - where has the time gone?!) a Christian friend was wondering what to wear to a party.  She recalled that we should be "clothed with humility."  Those wise words coming from such a young person have stayed with me all these years!  She  was one of the most inwardly beautiful people I have ever known - so caring, kind and intelligent, but not very attractive outwardly - at least by worldly standards. But what a strong and Godly spirit she had!  She later married and had some kids - they must be in their 30's by now.   I found the verse: 1 Peter 5:5 - "Likewise, ye younger, submit yourselves unto the elder. Yea, all of you be subject one to another, and be clothed with humility: for God resisteth the proud, and giveth grace to the humble."  Personally, I'm glad I wasn't more blessed with more outer beauty, because I'm positive that pride would have overtaken me.  (God knows what he is doing......ha!)  About me wearing out from answering email, I get a ton of email I can't answer, but there are some I just can't resist....like this one! - I sure do understand what you mean about meeting people when we don't look or feel our best.  But a spiritually positive thing about this illness is it can be humbling and let us realize that it is our INNER BEAUTY which is most important to God.  I think of the Christians who are deformed, like Nick http://www.lifewithoutlimbs.org/ born without legs, or so many others.  I was meditating on these verses today: 1 Peter 3:3-5 (KJV) --  3Whose adorning let it not be that outward adorning of plaiting the hair, and of wearing of gold, or of putting on of apparel;  4But let it be the hidden man of the heart, in that which is not corruptible, even the ornament of a meek and quiet spirit, which is in the sight of God of great price 5For after this manner in the old time the holy women also, who trusted in God, adorned themselves.  A reader who met me once at my house got all dressed up .... to meet lowly little me.  I felt bad that she felt she had to fix up just to come over.  Remember what Paul said in Galatians 4:13, 14: "Ye know how through infirmity of the flesh I preached the gospel unto you at the first. And my temptation which was in my flesh ye despised not, nor rejected; but received me as an angel of God, even as Christ Jesus." Sometimes it's just our female pride that makes us want to look beautiful outwardly.  I have to balance that a lot in my life - you know - the inner and outer beauty thing.  Frankly, it's not too hard. in my case - inner always wins over outer these days........ha!!!  Here's a snippet from our church bulletin Sunday that explains it all:
 
 

Well, that's all for now.  Whew!!!  It's been quite an adventure writing these new shorter newsletters instead of my former "jumbo" ones www.fms-help.com/newsletters.htm.  (I'm sure my loyal readers are much relieved by the shorter format!)  Our communication is more meaningful now, because we are discussing fewer topics in each issue - which is much more manageable for us mentally.  It's amazing that there is always SO MUCH MORE to say and share about FMS/CFIDS/ME!!!  After 13 years of writing the newsletter, I can still have new insights that arrive almost daily - and I continue to feel a moral obligation to share this info with my fellow sufferers. 
 
My two "hobbies" are piano and writing FMS/CFIDS/ME newsletters.  I am blessed to be able to do the two things that I truly love!!!!   I'm not a big TV watcher (although it can fill empty hours, especially if you are sick, bored or stuck at home), but I do like to read!  My favorite type of book is "Christian fiction romance."  OK, so it's not heavy reading - I get enough of that with my health research and my overwhelming email.  But these short novels are a great escape and also build my faith, which I also desperately need at times.   I really like the "Love Inspired" titles from Steeple Hill publishers http://www.amazon.com/Steeple-Hill-Love-Inspired-Books/b?ie=UTF8&node=13432.  A friend from church loans me dozens of these books....her supply is endless, so I am very happy!!!   They are also available in public libraries....I know we fibromites are mostly broke and can't spend money on frills.  For example, yesterday at the pharmacy, my "must have or I won't sleep" meds came to $116.75 (and that's WITH a prescription card!)  My husband said this is why I don't have new clothes....but not to worry - I shop at yard sales and thrift stores and love getting a great buy!  
 
Survival and comfort are the two biggest things I look for in clothing.  As a piano teacher and church pianist, I want to (and should) look nice, but I am definitely not a "fashion diva" anymore.  I am reminded of what is beautiful to God:  "Whose adorning let it not be that outward adorning of plaiting the hair, and of wearing of gold, or of putting on of apparel; But let it be the hidden man of the heart, in that which is not corruptible, even the ornament of a meek and quiet spirit, which is in the sight of God of great price." (I Peter 3: 3,4)
 
Til next time,
 
Dominie
www.fms-help.com
dombush@bellsouth.net
 


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100 Tips for Coping with Fibromyalgia & Insomnia

  My Fibromyalgia Story

  My Chronic Fatigue Story

  My Insomnia Story

  What I Use

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II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God."  Visit Dominie's FMS/CFIDS Homepage at www.fms- help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.