#7 SYMPTOMS OF CFIDS
- excellent list from the CFIDS Association of
America
#17 RADIATION &
FIBRO - very important
question from a reader
#18 FIBROMYALGIA IS NOT A PSYCHOLOGICAL
PROBLEM - AAAAMEN!
#26 DOM'S UPDATE - 4 months without pain, fatigue or fog - enjoying
life again
1. READERS
WRITE
"I have read your newsletter for
years and love that you provide all this information for
sufferers."
"Your website www.fms-help.com is the best one I have seen since I
have searched many trying to find some help."
"It's good to hear that you are getting better and thank you
for the time and effort you put into your
site."
2. VIRUS-INDUCED
CENTRAL NERVOUS SYSTEM DYSFUNCTION
From a
reader--
"Check this
site that shows the studies being conducted Stamford Univ. on the connection of
Viruses and CNS Dysfunction, like CFS, FM and the like - http://www.vicd.info."
3. SLEEP STUDY (revisited)
From a reader--
4. NEW CFS/FMS MESSAGE BOARD
From Dr. James Rippe--
"I do Chronic
Fatigue Syndrome Research and am starting a forum where people can share what
treatments have worked for them and it also has a pretty extensive blog that
details all of the emerging treatments we are studying that may be of interest
to patients. Im working to make it a great informational site and a community
where CFS Patients can really help each other out. The URL is
www.chronicfatiguetreatments.com Blog:
www.chronicfatiguetreatments.com/wordpress/index.php."
5. ANTI-DEPRESSANTS (revisited)
From a reader--
"About
antidepresants & side effects,,i totally agree!!!i hate them....they
take away my spirit (like a zombie) & i have most if not all of the
side effects they claim.TERRIBLE STUFF!!!!!!!!!!!!!!!!!"
Wow. I sure agree. The worst ones for me were
Pamelor, Trazadone, Remeron and Prozac. I felt
possessed!!! I could tolerate Elavil (amitriptyline) in tiny doses.
Basically, I was prescribed these meds for help with sleep, but also I suffered
from depression too. However, an anti-depressant that helped me with
uncontrollable crying for 8 months after my father died was Lexapro. My
husband called them my "numbing pills." We are all so different - some
readers recommended some of the anti-depressants I tried because they helped
them, but they had a bad effect on me. There has been a lot of
discussion lately about the negative effects of Effexor. At the
suggestion of my sister-in-law who has a Ph.D. in virology, I now take Omega 3
fish oil (good brand, no rancidity!) It really does help with
depression and blue moods. I know of two reputable and safe brands - write
dombush@bellsouth.net for info.
You don't want to put more toxicity in your body.
6. FIBRO HEREDITARY?
(revisited)
Reader 1--
"I agree that
fibro is hereditary. My grandmother had it (they used to call it
fibrositis). My mother has it, & my uncle has
it."
Reader 2--
"I haven't found any studies being
done as of now, but my grandmother, my mother, my cousin and I all have fibro
and I know of a couple of other families who have 2 or more members with it as
well. So I'd say, unscientific as it may be, that there's definitely
'something' that is hereditary about FM. Exactly what that is I can't say,
but hopefully one of these years somebody will figure out something that is
testable with fibro and then compare that within families, along the lines of
the 'breast cancer gene'."
When I was first diagnosed in 1982, it was called
fibrositis. I am the only one (so far) in my family with this. Visit
my homepage at www.fms-help.com
and check out the interesting links in the yellow box on the
left.
7. SYMPTOMS
OF CFIDS
"CFIDS is
characterized by incapacitating fatigue (experienced as profound exhaustion and
extremely poor stamina) and problems with concentration and short-term memory.
It is also accompanied by flu-like symptoms such as pain in the joints and
muscles, unrefreshing sleep, tender lymph nodes, sore throat and headache. A
distinctive characteristic of the illness is post-exertional malaise, a
worsening of symptoms following physical or mental exertion occurring within
12-48 hours of the exertion and requiring an extended recovery period.
The symptoms of CFIDS are
highly variable and fluctuate in severity, complicating treatment and the ill
person’s ability to cope with the illness. Most symptoms are invisible, which
makes it difficult for others to understand the vast array of debilitating
symptoms with which people with the illness must contend.
Other Common Symptoms
Additional symptoms
are reported by people with CFIDS (PWCs) such as word-finding difficulties,
inability to comprehend/retain what is read, inability to calculate numbers and
impairment of speech and/or reasoning. PWCs may also have visual disturbances
(blurring, sensitivity to light, eye pain, need for frequent prescription
changes); psychological problems (depression, irritability, anxiety, panic
attacks, personality changes, mood swings); chills and night sweats; shortness
of breath; dizziness and balance problems; sensitivity to heat and/or cold;
alcohol intolerance; irregular heartbeat; irritable bowel (abdominal pain,
diarrhea, constipation, intestinal gas); low-grade fever or low body
temperature; numbness, tingling and/or burning sensations in the face or
extremities; dryness of the mouth and eyes (sicca syndrome); gynecological
problems including PMS and endometriosis; chest pains; rashes; ringing in the
ears (tinnitus); allergies and sensitivities to noise/sound, odors, chemicals
and medications; weight changes without changes in diet; light-headedness;
mental fogginess; fainting; muscle twitching; and seizures."
8. A WORD OF
CAUTION ABOUT DR. MERCOLA
From a
reader--
"I noticed that you are referring a lot to Dr. Mercola's web
site. His site can be useful for information but beware
that he can be very extreme in his views. I was a
patient of his for 2 years. His gimmick is that you are either a
protein type, carb type or mixed which is deteremined from blood work and
questions. I did not get any relief from the fibro. He put me on a high protein
diet which I got a kidney stone from. He also did not notice from my bloodwork
and I was tested often, that I was type 2 diabetic (now have neuropathy from not
being treated). I spent a lot of money and time, which I
feel was wasted and caused me other health problems."
Then I got this comment from
another reader about docs in general--
"Sometimes I think these doctors take advantage of our
syndrome...they really do not know how to treat us because they have no
idea what FMS really is. My dr told me that usually doctors stay
clear of FMS because they have no idea how to treat us."
9. VITAMIN D &
FIBRO (revisited)
From a
reader--
"Please THANK the person that shared this item on
your current newsletter. I have
increased my Vit D, and this was so so
helpful. I live in a very dark place
in Alaska so it is very relevant."
10. SLEEP
COMMENTS
From a
reader--
"Every article I've ever read regarding sleep advises that if
a person does not get at least 7-9 hrs per night, it can and does shorten the
lifespan. Why? The deep sleep phase is the critical issue
and something most with Fibro don't get and why they "sleep" so much...their
bodies are trying to "find" it. Otherwise, it causes confusion,
disorientation, loss of memory, all that good stuff. One
of the latest articles advised that they only allowed a test group 4 hrs sleep
each night for 2 weeks and at the end of that time they began responding with
the SAME complaints that those with Fibro have!"
11. ABOUT THE
MISINFORMATION WARNING
"Depression, PTSD, GERD, TMJ, asthma and osteoporosis...I've all of this
(and more) which is a direct result of the Fibro (and/or the meds I have to
take for it) and that includes the osteoporosis. Dr. F. Tennant is
a respected doctor in the field of Fibro. His latest handbook is a
god-send. Perhaps others should take advantage of it if they
don't believe your readers. It seems to me that
most of your readers have firsthand knowledge/experience regarding fibromyalgia
and what they are trying to do is help others who have just found out they too
suffer from this debilitating disease. Yes, attention does have
to be paid to the other disorders that come along and, yes, they have to be
treated individually, BUT, the cause of the developments still rises from the
onslaught of Fibro."
12. RLS MEDS CAUSE COMPULSIVE
BEHAVIOR
"Pharmaceutical company GlaxoSmithKline has updated the package insert for
its restless legs syndrome (RLS) drug Requip. According to the
new insert, Requip may cause “pathological gambling” and “increased
libido including hypersexuality.” These side effects are
reportedly a class-wide effect, which impact all the drugs belonging to the
non-ergoline dopamine agonist class of drugs. Specifically, the insert
reads: “Impulse control symptoms, including compulsive behaviors such as
pathological gambling and hypersexuality, have been reported in patients treated
with dopaminergic agents.” Another RLS drug,
Mirapex (which is also used to treat Parkinson’s disease), has
reported similar symptoms. The Mirapex package insert reads: “Patients
taking certain medicines to treat Parkinson’s disease or RLS, including Mirapex
. . . have reported problems with gambling, compulsive eating, and increased sex
drive.” A 2005 study published in the Archives of Neurology also found
that dozens of patients using Mirapex or similar drugs developed serious
gambling addictions. Hundreds of people have reportedly contacted lawyers
about joining class-action lawsuits that allege Mirapex and Requip caused
unusual side effects such as compulsive gambling, shopping, painting and
eating."
13. BATTLING
EXTREMES
From a reader--
"Having tried other things like SSRI's that help serotonin and I tihnk I
tried one that did both dopamine and serotonin maybe cymbalta, horrible, i
wondered if there is an herbal natural something that is gentler. I have
had trouble with Lunesta too. I get up sometimes and I think I eat or
something. It's weird. May try 5-HTP. Now I'm in my slightly
hypomanic phase and only need 4 hours sleep a night. From
one pillar to the other extreme--yuck."
I'm kind of this way too. I have to manage my
sleep very carefully - see www.fms-help.com/sleep.htm. I tried 5-HTP three times in my fibro life and it never
helped. I used melatonin for 3 years until age 47, when it suddently
stopped working for me. I have relied on ambien (thank God the generic
zolpidem is available - which saves $75 per month) for over 10 years now.
Lunesta works okay, but I think zolpidem is better - at least for me. I do
not have the eating binges or amnesia with zolpidem, but I do with
ambien!
14. THERE IS NO
DISEASE
Very intriguing article sent by a
reader--
This is worth reading. The
author contends that eating foods that make our pH acidic causes everything from
brittle bones to high blood pressure.
15.
VIVAROL
16. SICKO
(revisited)
"Why oh Why do these
types of articles of Canadian health care bashing keep coming up and being
printed on your site?!?! Look it is enough already. The fact is health
care is a provincial matter in Canada. In some provinces you pay a yearly health
premium and in others you don't pay a cent. In Canada a person doesn't really
NEED additional health care insurance, in the States you absolutely do but that
doesn't mean you'll get the medications you need covered or services you need
covered. The Americans that are against our health care system always yowl about
our tax system. Truth is when you add up all the numbers you pay about
the same because by the time you pay for your health insurance, cancer
insurance, co-payments etc it is about the same and NO ONE that I know nor have
I read about where a family has been wiped out financially and had to file
bankruptcy because someone in the family got cancer!!!!
Also this doc
going on about having to pay for your neighbor's health coverage, well guess
what - we live in a larger community and if most of that community is looked
after then ALL benefit. For crying out loud, remember Jesus? He lived in, get
this, a commune AND they pooled ALL their resources together and lived as one
unit. Wow. Jesus didn't hoard all the money nor did anyone else - they lived as
a collective. Now THAT I am sure would blow some people's minds, but its the
truth. Also, it is such a ridiculous argument, I mean you could
apply that same logic to highways or sewer service - that gee. There are miles
and miles off highway that all use that NO one could afford to build for just
him or herself but because of collective responsibility we ALL get to benefit
from it. The unbelievable selfishness that has become evident in our mutual
societies under the guise of political ideology is morally repugnant. I
can see that some Americans have a real problem with our health care system
which was implemented I believe late 50's early 60s so that, get this, our
nation would have a healthy workforce and be a just society!!!!
Wow, so all citizens (not consumers) pay taxes so that our nation could
build itself up and be a success on the world stage. And lookee, lookee, it's
happened and it is one of the things I would fight for if some greedy corporate
player was eyeing our market to dismantle so that they could privatize it
completely and make more profits off misery and illness. Oh wait, they are
already here! Every one has an agenda. There are so many inaccuracies and I
would go as for to say as intentional misrepresentation of our system that it
borders on slander. This doctor is obviously biased against social care
while other American doctors I have read and listened too wonder why they can't
practice medicine the way they need to but instead have to continually look to
insurance to see what health procedures they can or cannot do.
All I know is
that if I was in the States with this condition I would not have been able to
afford all the care I have needed and my doctors would have had their hands tied
with what medications or procedures they could try. Most have been
covered but some treatments I had to pay out of pocket for. Guess what, there is
already privatized medical care here in Canada. Our system is a combination of
both."
We have a huge problem in the U.S.
with 20 million illegal immigrants, millions of criminals, and millions on
welfare (not sick people) already overburderning our taxpayers. This is a much
different scenario than in Canada. Many law abiding American citizens do
not feel they should have to support even more irresponsible people. We
are happy to welcome immigrants who enter legally. My own father and my
mother's family were from other countries and entered legally. You would be
shocked to know how generous the benefits are toward irresponsible people in our
country - the government already pays for their health care, groceries, any
babies they produce, plus many more benefits. The sad thing is they have a free
ride, whereas many of our elderly who worked for 50 years are living in
poverty--our Social Security system is in shambles. To put it bluntly, we
have leeches sucking the system dry. They are stealing from the truly
needy (the sick and disabled) in our society. There's only so much money in the
pot.
17. RADIATION &
FIBRO
"Did you ever know anyone who has had radiation
treatments and did they make the FMS worse. 35 radiation
treatments wouldn't be nice for anyone. Thanks. - Brian"
This is a very good
question! Hope Brian gets some responses to this
one.
18. FIBROMYALGIA IS
NOT A PSYCHOLOGICAL PROBLEM
by Karen Lee Richards
Myth: Fibromyalgia is a
psychological problem.
Fact: Fibromyalgia is a
physical disorder with real, measurable biological abnormalities.
This myth probably causes the most frustration to Fibromyalgia
patients. After years of being told “It’s all in your head,” patients finally
have proof that Fibromyalgia is a very real, physical illness. Research studies
have revealed a number of biological abnormalities, including:
- Decreased blood flow to specific areas of the brain, particularly
the thalamus region, which may help explain the pain sensitivity and cognitive
functioning problems experienced by Fibromyalgia patients.
- High levels of “substance P,” a central nervous system
neurotransmitter involved in pain processing.
- Low levels of nerve growth factor.
- Low levels of somatomedin C, a hormone that promotes bone and
muscle growth.
- Low levels of several neurochemicals: serotonin, norepinephrine,
dopamine and cortisol.
- Low levels of phosphocreatine and adenosine, muscle-cell
chemicals.
Despite the scientific evidence, some medical professionals
continue to dismiss Fibromyalgia as a psychological problem, insisting that the
symptoms are caused by depression. The fact is that the percentage of FM
patients who suffer with depression is no higher than for any other chronic
illness. Unfortunately, since it takes an average of 17 years for new research
to become part of mainstream medicine, we’re probably going to be fighting this
myth for several more years.
Karen Lee Richards is the Expert Patient,
specializing in Fibromyalgia and Chronic Fatigue Syndrome, for HealthCentral's
ChronicPainConnection (http://www.chronicpainconnection.com).
She is a co-founder of the National Fibromyalgia Association and was its
vice-president for eight years. From 2002 thrugh 2005 she was Executive Editor
of Fibromyalgia AWARE, the first magazine devoted to Fibromyalgia and other
invisible illnesses.
19. "FIBRO" AND HIGH
SED RATE
From a
reader--
"FIVE YEARS AGO I WAS DIAGNOSED WITH "FIBRO" BY A
RHEUMATOLOGIST. SINCE THAT DAY, I'VE BEEN TREATED BY NUMEROUS AND
VARIOUS TYPES OF DOCTORS. BEEN PRESCRIBED A MILLION DOLLARS WORTH OF
DRUGS INCLUDING INTRAVENOUS COCKTAILS. THIS SCENARIO IS NOT UNFAMILIAR
TO EACH OF YOU.
ABOUT 6 MONTHS AGO I BEGAN TO HAVE WHAT I CALLED A
"FIBRO CRASH" WHICH WOULD THROW ME INTO A BED OF PAIN SO
SEVERE THAT I CONTEMPLATED SUICIDE. RELENTLESS, EXCRUCIATING PAIN SO
HORRIBLE IT CANNOT BE DESCRIBED. I WOULD OVERDOSE ON PAIN MEDS, STAY
VERY STILL SO MY MUSCLES WOULD NOT MOVE AND CURL UP IN A FETAL POSITION.
NOTHING WOULD HELP. THESE CRASHES WOULD LAST 5 - 7 DAYS WITH A FEW DAYS OF
LOW PAIN THEN I WOULD BE ATTACKED AGAIN. THESE EPISODES WERE HAPPENING
CLOSER AND CLOSER TOGETHER. I WANTED MORPHINE AND LOTS OF
IT. TO LIE DOWN ON MY BED WAS VERY PAINFUL, THE MATTRESS
WOULD PRESS AGAINST MY BODY . I THOUGHT ABOUT THE
TEMPURPEDIC MATTRESS AND THE SLEEP BY NUMBER. BUT THEIR BOTH
EXPENSIVE AND WITH ALL THE MEDS I'M ON, IT JUST WASN'T POSSIBLE FOR ME RIGHT
NOW.
MY DAUGHTER-IN-LAW CARRIED ME TO A NEW RHEUMATOLOGIST WHO
HAD BEEN DOING RESEARCH ON FIBRO. HE'S 82 YEARS OLD AND IS STILL ACCEPTING
NEW PATIENTS. DR. "N" ORDERED A BLOOD WORKUP FOR SOME SPECIFIC
THINGS. MY TEST RESULTS CAME BACK SHOWING I HAD A HIGH "SED"
RATE - 98 I THINK IT WAS. DR. "N" CALLED ME TO EXPLAIN ABOUT THIS
AND TOLD ME HE FELT THIS HIGH SED RATE COULD POSSIBLY BE CAUSED BY
"POLYMYALGIA RHEUMATICA" AN INFLAMMATION AROUND THE
JOINTS. DR. "N" WANTED TO TREAT ME FOR "PMH" AS A PROCESS OF
ELIMINATION. HE PRESCRIBED PREDNISONE, 10 MG DAILY.
AFTER TAKING THE FIRST TABLET, THE PAIN WENT FROM A 10 DOWN TO ABOUT A 3
FOR THE FIRST TIME IN A LONG TIME.
LAST WEEK I HAD ANOTHER BLOOD TEST THAT REVEALED MY SED RATE WAS
DOWN TO 28. DR. "N" TOLD ME I WOULD BE ON THE PREDNISONE FOR QUITE A
LONG TIME ONCE WE GET THE DOSAGE REGULATED TO KEEP ME PAIN FREE. HE'S
HOPEFUL THAT I WILL BE ABLE TO COME OFF SOME OF MY OTHER MEDS.
SOME OF YOUR READERS MIGHT WANT TO REQUEST A BLOOD TEST
THAT WILL SHOW WHAT THEIR "SED" RATE IS. IT COULD BE THEY HAVE
PMH AND NOT FIBROMYALGIA. IT'S WORTH CHECKING OUT.
MY SOLUTION TO THE MATTRESS PROBLEM WAS THE
PURCHASE OF A DOWN-TOPPED FEATHERBED THAT LAYS ON TOP MY EXISTING MATTRESS AND
IS HELD IN PLACE BY A MATTRESS PAD THAT IS DEEP ENOUGH TO ENCASE THE TOPPER WITH
THE MATTRESS. I'VE SLEPT ON THAT FOR TWO NIGHTS AND IT'S MUCH SOFTER THAT
THE MATTRESS AND IT'S COMFORTABLE. OTHERS MAY BE HAVING THE BEDDING
PROBLEMS AS WELL. THE WEB SITE I USED FOR THE FEATHERBED IS www.comforthouse.com.
THANKS FOR LETTING ME SHARE THIS WITH YOU AND THE OTHERS.
I'M MORE HOPEFUL THAN I'VE BEEN IN A LONG TIME AND PRAY THAT DR."N" HAS ME
ON THE ROAD TO A BETTER QUALITY OF LIFE."
Just gotta say here to be very careful about prednisone. Many years ago, I was prescribed prednisone to reduce inflammation from a 3-month long ear infection. Amazingly, my fibromyalgia pain disappeared! I was ecstatic! When my prednisone ran out, I begged the doctor for a regular prescription for the fibro pain, but he refused. He told me predisone was "short term magic, long term tragic." Some of the long term side effects are severe, so be very careful with this drug. In good news, I have been pain free for quite awhile now, although I still battled the fatigue and fog until June 5, 2007. A list of things I currently use is at www.fms-help.com/what.htm.
20. OVERACTIVE IMMUNE
SYSTEM
From a
reader--
"I used to be science and architecture reference
librarian in a university library for many years, so I know how much trouble
you are going to, to help others. I am so glad that what you are
recommending is an immune balancer, and not a booster. Very few
people know, that an over active immune system has the same symptoms as
an underactive one and can be just as dangerous. For instance,
one of the immune boosters which sells the most in South Africa, is Procydin, as
well as Moducare. What people don't know, is that they contain
echinacea, which is fantastic. I take it at first sign of cold. What they
dont know is that you can't use echinacea for more than 6 weeks at a
time, without a break of 1-3 weeks, or you will cause an overactive immune
system. Of course, the manufacturers don't tell them this.
I happened to accidently find out, then contacted one of the manufacturers and
they confirmed it. My pharmacist had a board up at one stage with
the symptoms, and they were all the symptoms I was having e.g. tired, pain in
legs, brain fog, actually many of the symptoms of fibro!!!!! At that
stage, I did not have fibro, so I did not have such a good look at the symptoms,
just remembered some (fibro fog!!), but would love to see them again. I
also have difficulty finding anything I can take for cartilage, as most of them
contain sulphur, which can kill me because of my hereditary blood disease.
One of the things that make me suspicious, is what they add to water: aluminium
sulphate, even knowing that aluminium can cause alzheimers. I keep on
thinking about these symptoms, and of how many of us were treated for an illness
before we had fibro, and whether the treatment, and not the disease, has caused
the fibro. Whether what we have is not an under stimulated immune
system, but an over stimulated immune system, so it just does not
attack what is happening to us, but attacks the body instead when it tries to
cope with what is happening to us. It would explain the autoimmune
symptoms and many other symptoms. Our bodies are not in a static state, as
one would expect with an under developed immune system, but in a constant state
of attack - ie over active immune system, and then attacks itself. Think
of it, we dont show the symptoms of a "fight or flight syndrome", but of
that condition after a bad bout of "fight or flight", lethargy,
pain, and not being able to concentrate on anything... I am sure that
one day, they are going to find out they have had the cat by the tail. And
the stress story, naaaaaahhhh. Fibro causes stress, not the other way
around. Otherwise more men would have it, they die of more stress
orientated diseases than us.My fribo fog is made worse by the fact that I had a
stroke at 37. It just does not make sense, women have all the diseases,
but still outlive men!!!! And, I am sure it has something to do with
hormones."
I take an immune balancer daily
(since 2001). Let me know if you want info - email dombush@bellsouth.net.
21. MIND CONTROL
THROUGH YOUR NOSE
Short snippet:
"Hundreds of companies already set your mood with piped-in aromas, in everything
from real estate show rooms to shoe stores. Advertising Age named the practice
one of the top 10 trends to watch in 2007. ScentAir, a producer of
aroma-marketing systems, stated their business quadrupled between 2005 and
2006. But why use scent? Because companies have
realized that to stay competitive, and be successful in an advertisement-crammed
world where consumers are bombarded with sights and sounds, other avenues must
be tapped. "Fragrance is the only thing left," says Harald
Vogt, founder of the Scent Marketing Institute. "You cannot turn off
your nose. You have to breathe."
Check out this article - the
implications for people with MCS (Multiple Chemical Sensitivities) is
dreadful! Also, scroll down this article to read some good comments about
essential oils. I have many that I love and use daily. Write
dombush@bellsouth.net for info and
a link to my store.
22. BIOMERIDIAN
MACHINE
From a reader who tried
this--
"THE BEST WAY TO DESCRIBE IT, IS IT WORKS SIMILAR TO HOW AN
EKG WOULD WORK BY PICKING UP SIGNALS/VIBRATIONS INSIDE YOUR BODY AND
TRANSFERRING IT TO A COMPUTER SCREEN AND A VERY SOPHISTICATED COMPUTER
PROGRAM."
Watch the video at www.biomeridian.com - this is really
neat! It uses acupuncture points combined with the latest in electrical
knowledge to show what organs or systems are not working right and what
homeopathic remedies are needed.
23. CHRONIC PAIN
SUFFERER JAILED, NOW RELEASED
From a
reader--
"Congress: I found out that no one has been lobbying on behalf of
people in pain. Not one of the offices visited had heard of the issue or
of any of these "pain foundations" with multi-million dollar budgets.
Don't know if you people are aware of it or
not but a chronic pain patient who had been placed in prison for 25 years was
granted an unconditional pardon from the FLA governor this past
week! You see, he had in his possession, more than the quantity allowed at
any given time by that state of opiods EVEN though all his prescriptions were
LEGAL. He's been in prison for the past 3 1/2
years. There aren't many organizations
out there fighting for the rights of people who suffer from malignant chronic
pain/fibromyalgia and other non-cancer related pain. But there is one
which I owe a deep gratitude to for assisting me with my ongoing problems of
under-medications. Please visit their site: www.painreliefnetwork.org
(Pain Relief Network). With their influence, they were able to
assist Richard Paey in his release."
24. WHY AMERICANS
KEEP GETTING FATTER
The bottom line is sugar
consumption.
25. CHRONIC
MYOFASCIAL PAIN OR TMJ?
"I would like to know if anyone else has been diagnosed
with chronic myofascial pain. It is similar to fibro but not just like it. It is
an all over the body thing also. I have it really bad in my face and head and I
have been just diagnosed with it, for years I thought I had TMJ but recently I
went to see an oral surgeon and he said it was myofascial pain. I am having to
change my diet to all soft food so I want have to chew anything. Chewing causes
horrible pain in my head and face, pain in my upper back and neck. It radiates
into my ears also. It is so hard to know what to take for the pain. I am
thinking of trying Lyrica, the oral surgeon suggested advil or anti-depressants.
They say there is lots of things that trigger the pain and one of them is dental
work among others. Thanks for reading my letter and any input you can give
to me."
DOMINIE'S FIBROMYALGIA & CHRONIC
FATIGUE SYNDROME HOMEPAGE