DOM'S
FMS/CFIDS NEWSLETTER
October 10, 2008
Topics are in PURPLE. Readers comments are in
BLACK. My comments are in TEAL.
Don't miss the RED TOPICS!
Do you
like the background color (gray) for this newsletter or the other color (tan) that
I used in the last newsletter at www.fms-help.com/092708.htm? Write dombush@bellsouth.net. I'm trying to find a color that is easy on the eye -
and brain.
1. READERS WRITE
"I
spent a couple of hours on your website www.fms-help.com and was
delighted at what I read."
"I absolutely loved
your [site]. It was inspiring, informative and so warm and
personal!"
"As far as I am concerned your site is one of the best that
I have found on the internet. I use it regularly when talking to the members of
the two support groups that I run."
"I am very impressed by your
compassion and
dedication."
"Your website has been a big help this past
week."
"I
just found your website. What a blessing. I've read as
much as I could for today. There's so much you are sharing with us. Thank
you."
"Fibromyalgia is zapping my life
away."
"Your website is very well put together and full of so much
great information."
2. "BEYOND THE DARK CLOUD"
Thea Schlosser, author of the CFIDS book, "Beyond the Dark
Cloud" told me she lowered the price of the book on Amazon.com to $4.95.
Thea has had a terrible battle with CFIDS and suffered much because of the
misdiagnosis and mismanagement by doctors. Her book is written very personally
and straight from the heart. It has gotten mixed reviews on amazon.
I have read the book and think much of it has merit. Thea concludes that CFIDS
is a herpes strain virus infection. She also gives other important information
about CFIDS, as well as her personal story.
3. LYRICA
From a reader--
"I READ YOUR ARTICLE ON LYRICA AND
FOR ME IT'S NOT GOOD EITHER. I WAS IN A COMA FOR THREE WEEKS
WHEN I WAS TAKING LYRICA. ALL I DID WAS SLEEP. I MEAN IT
WAS GOOD TO FINALLY SLEEP, BUT NOT LIKE THAT. I WOKE UP FOR AN
HOUR AND SLEPT AND SLEPT. IT WAS HORRIBLE AND DIDNT EVEN
HELP WITH PAIN OR ANYTHING ELSE FOR THAT MATTER."
4. YERBA MATE
From a reader--
"In South America, yerba mate has
been revered for centuries as the “drink of the gods” and is drunk daily for
optimum health, sustained energy and mental clarity. Of the six commonly
used stimulants in the world: yerba mate, coffee, tea, kola nut, cocoa, and
guarana, yerba mate triumphs as natures most balanced stimulant, delivering both
energy and nutrition. The leaves of the rainforest mate tree naturally
contain 24 vitamins and minerals, 15 amino acids, abundant antioxidants. In
fact, The Pasteur Institute and the Paris Scientific society in 1964 concluded
"it is difficult to find a plant in any area of the world equal to mate in
nutritional value" and that yerba mate contains "practically all of the vitamins
necessary to sustain life. See http://en.wikipedia.org/wiki/Yerba_mate and
http://www.guayaki.com/index.php?p=mate&id=136."
5. IT WASN'T FIBRO
From a long-time
reader--
"I
ended up having Parkinson’s and severe allergies. The
pain stiffness malaise exhaustion etc were caused by these, not fibro.
It
took almost 20 years to figure it out and find solutions. I
now take levo/carbidopa ,IV vitamin therapy and homeopathics and have a life
again."
6. CHOLESTEROL-LOWERING STATIN DRUGS LEAD TO MUSCLE
PAIN
From a reader--
7. WHAT COUNTRY ARE YOU FROM?
My newsletter
readers are from many countries: U.S., Canada, Australia, United Kingdom, New
Zealand, South Africa, Belgium, Israel, Argentina, Cayman Islands, Uruguay,
Bermuda, France and Singapore - to name most, but not all, of them. If you
don't see your country on my list, please write dombush@bellsouth.net.
8. IF A DOG WAS THE TEACHER
This has
nothing to do with fibro - except maybe give us some pointers on "stress management!" I loved this
email!
"If a dog was the teacher you would
learn things like:
When loved
ones come home, always run to greet them.
Never pass up the opportunity
to go for a joy ride.
Allow the experience of fresh air and the wind in your
face to be pure Ecstasy.
Take naps.
Stretch before
rising.
Run, romp, and play daily.
Thrive on attention and let
people touch you.
Avoid biting when a simple growl will do.
On
warm days, stop to lie on your back on the grass.
On hot days, drink
lots of water and lie under a shady tree.
When you're happy, dance
around and wag your entire body.
Delight in the simple joy of a long
walk.
Be loyal.
Never pretend to be something you're
not.
If what you want lies buried, dig until you find it.
When
someone is having a bad day, be silent, sit close by, and nuzzle them gently."
9. FIBROMYALGIA & OCCUPATION
10. ACCUPRESSURE POINTS FOR INSOMNIA &
CFS
From a reader--
Wow!
These diagrams are intriguing. I'm going to try this. We need as
many non-drug ways to help ourselves as possible!
11. HOW LONG UNTIL THERE IS A CURE FOR
FIBROMYALGIA?
"Unfortunately, I don't think there
will be a "cure," because it's a neurological disorder like MS.
It's very difficult to repair damage to the nervous system.
BUT - the fact that researchers have
identified it as a neurological disorder, and that we have proof of organic
differences in fibromyalgia patients shows significant progress over the last
decade.
Other studies have identified a
genetic anomaly that seems to make some people more likely to
fibromyalgia or TMJ/TMD or other painful disorders.
Knowing that FMS is
neurological instead of rheumatological (or psychological, as some
claimed) means that there's a much higher likelihood of good treatments
coming along. And yes, it also makes it much more likely that somebody will
develop a cure."
12. TANNING BED CAUSED
VIRAL REACTIVATION
From a reader--
"I had no idea fms could be caused
by mercury. i had a very unpleasant experience with it myself. i
tried to get mercury chelation rectal suppositories, but could only take two
weeks of the proposed 90 day regimen. (i was told hospital iv chelation
could run over $25,000). it initially seemed to help me feel better
but i just had the EBV virus come out of dormancy and i'm back
to square one again. i also believe that both fms and cfs are viral
related. researchers still have a long way to go in the field of
viruses. for me i think excessive heat
reactivated the virus and they are supposed to start putting warnings
on tanning beds concerning viral reactivations, but probably won't in the
end."
I believe our condition is viral too, and it affects the
brain and nervous system. See www.fms-help.com for some interesting
articles about this subject!
13. THE TOP 10 MYCO-TOXIC FOODS
14. FIBROMYALGIA & FATIGUE CENTER - FREE
WEBINAR
15. ALPHA-STIM MACHINE
From a reader--
"Look up www.alpha-stim.com to see what it is, and what it does. It does
require having a prescription to purchase one. My psychologist let me use
a "loaner" for a month to see if it would help me, or not before I purchased a
product that cost so much.
It has helped me have lots more energy, much
better mood, I can think more clearly and have hardly any brain-fog
anymore. And, the very best part is that I SLEEP FROM 6-8 HOURS PER NIGHT
- along with my regular night time meds,, wwhich include 5 mg Elavil, and one
Xanax. Unheard of for me before the Alpha-Stim.
She would be the first to tell you that it
doesn't work for everybody - the same way medications don't work the
same for everyone. But this product started working for me after one
session of using it. I am now to the point where I only have to use it
once every TWO days. It has worked miracles for me!!! This, too has
helped with the travel -- I feel so blessed that I can travel in a limited way
again. yaaaaaa!"
One day if my ship comes in
(and doesn't sink at the dock, haha), I'd like to try one of these for
insomnia, but $495 is a lot of moola.
16. DOM'S UPDATE
I'm feeling
better today than I have in a long while! Just kicked a virus, and that
helped. I've also slowed down my schedule to a saner pace. I'm
preparing 25 piano students for a recital on Oct. 25 (7 adults and 18
children & teens). It's soooo rewarding to share my love of the piano
with others, and I'm glad I can still work, even if it is limited. I also
serve in music at my church www.fms-help.com/MBC.jpg filling in
for keyboard musicians when they have surgery, vacation time,
etc.
I will be 57
soon, and must admit I'm slowing down. Strange though....my mother (age
87) runs circles around me! At my current age she was digging up the yard
with my father and planting grass. She also went on several
trips to China with my dad www.fms-help.com/eulogy.htm to see
his family (after 40 years of separation due to China being closed for so
long). My brother quipped the other day,
"You're older than MOM!!" Fibro can sure make us feel
that way! I hear from 20-somethings who say they feel like
90. I rely on various meds and supplements to keep me going - my list
is at www.fms-help.com/what.htm.
We are all different, but you might get some ideas if you are at wit's end with
FMS/CFIDS. I know how discouraged I felt when I was first diagnosed in
1982 - you can read my interview with Bella Online at www.fms-help.com/interview.htm.
Well, that's
all for now. Sorry I can't answer all of my email, but I try to read everything
you send. Visit me on my message board at http://health.groups.yahoo.com/group/dominie.
Nearly 400 newsletter readers are using the board now to offer
information, lend support or just vent about
fibro.
Yours
truly,
Dominie
"Bear ye one another's
burdens, and so fulfill the law of Christ." Galatians 6:2
DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE
DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.
