*** DOMINIE'S NEWSLETTER ***
JUNE 2005 - PAGE 2
(continued from Page 1 at www.fms-help.com/June2005.htm)
 
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this newsletter is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this newsletter.

 
20. NEW CFIDS BOOK BY DR. SHARON KIRK
 
I received this important information from Janet--
 
"I learned about the Million Letter Campaign www.fms-help.com/letter.htm from a friend through
www.Care2.com, just in time to participate. I will gladly be mailing out
letters on May 1.  I also wanted to let you know about two new campaigns, and I'd like to
ask how we can best use these campaigns to help you keep the momentum
of your campaign going:

1. Dr. Sharon Kirk, who has suffered from CFIDS for 19 years (a former
psychotherapist who treated 300+ CFIDS patients and is now on
disability), has just authored a new book on CFIDS, called
When I Cry
Wolf: A Society Lost to Chronic Fatigue Syndrome & Mold
. The trade
paperback will be released on May 12 (hopefully!). The e-book package
(which contains related e-books) is available already, and will soon
be linked to another fundraising e-book on Environmental Illness.

Dr. Kirk is using this book launch as an immediate call to action for
greater CFIDS awareness. Proceeds will go to CFIDS research, patient
care and a project near and dear to Dr. Kirk's heart: Construction of
a CFIDS respite house out in the countryside, where PWCs can stay and
receive counseling while they decide the next step on their journey.
Dr. Kirk is going to give as many interviews as possible (not easy in
her current condition, but she is determined!) to raise CFIDS
awareness and to call for immediate action.

2. In support of Dr. Kirk's efforts, I have just launched a campaign
to End Environmental Illness. I've suffered from CFIDS and related
illnesses for 13 years and I am sick (literally) of the environmental
triggers that keep worsening people's health and compromising more and
more people's immune systems. The problem is getting worse and worse
and worse...

At the center of this campaign will be a free online journal where I
hope people from many different disciplines, along with the general
public that is tired of being sick, will come to post articles. I will
provide online support for the discussions I hope these articles will
create. Everyone has a piece of the puzzle, and I'd like to help
everyone bring those pieces together.

As part of this campaign, I am also busy at the moment writing as many
e-books as I can that I will sell to raise awareness and funds for
several organizations that support research and advocacy for
environmental illness, including the CFIDS Association of America and
the National CFIDS Foundation. It's very easy for me to write e-books,
it's what I do best, so I hope to reach out to a lot of people this
way.

I am in the process of putting this campaign information on my website
this week
http://www.jwrites.com - you'll see it's undergoing a
metamorphosis right now). I already have monthly subscribers and I'm
sure that list will grow, so please tell me how I can best support
your efforts. Would monthly follow-up letters to the 5 prime targets
be helpful? I am going to include on my website letters people can
modify and print out and mail. I'd be happy to add letters to those
targets. How else can I help? Please let me know. I am 100% committed
to these campaigns, I'm devoting nearly all of my time to this right
now, and I will do whatever I can to help make some noise so this
problem is finally addressed - as I know it can be! It's high time for
this."
 
Janet Helin
 janet.helin@gmail.com
 

 
21. VITAMINS UNDER ATTACK
 
From a reader--

Vitamin Freedom Update
Antivitamin Durbin Senate Bill to Be Reintroduced; CAFTA Set for Vote
by James South, M.A.

Lee Bellinger, editor of The American Sentinel, reports in his March 2005 edition, that Sen. Hillary Clinton and Sen. John McCain are joining forces with Sen. Dick Durbin to reintroduce his failed S.722 legislation that would weaken DSHEA (the law that protects vitamin freedom) and allow FDA to regulate supplements as drugs based on a few (anonymous!) consumer complaints.

If you contact him at:   Lee Bellinger, 1000 Water St. SW, #54, Washington D.C. 20024, or lee.bellinger@gte.net  he’ll send you a free information kit on how to get involved with medical freedom groups actively working to
combat efforts to weaken DSHEA.

CAFTA on the Fast Track

CAFTA (Central American Free Trade Agreement) is set for a vote in June or July (when many people are on vacation, not paying attention to Congress), as a prelude to passing FTAA (Free Trade Area of the Americas). These bills are on “fast-track” status, meaning no debate—just a “yes” or “no” vote. Codex is built into these agreements as the standard to regulate foods and vitamins.

Immediately call or write your U.S. Senators and Representatives and tell them you’ll vote against them if they vote for the Durbin-McCain-Clinton bill that restricts vitamin freedom, or if they vote for CAFTA or FTAA.

You can call your Senators/Representatives through the Capitol switchboard at 1-202-225-3121.

E-mails don’t count. John Hammell reports Congress has special e-mail filters to screen out most e-mails.

Just send them a postcard with two or three handwritten lines making the above points. Even a brief handwritten postcard (not a form letter) gets their attention. Let them hear from you today!


 
22. RADON THERAPY
 
Interesting!--
 
"Radon therapy is found to induce beneficial long term effects for many who suffer conditions of chronic pain due to disease or injury. Additionally, this modality is effective for - but not limited to - the following immune system conditions and symptoms: [Fibromyalgia is listed]."
 
http://www.radonmine.com/why.html
 

 
23. FATAL INSOMNIA & MAD COW DISEASE
 
From a reader--
 
"Fatal Insomnia is a disease with a protein in the brain that causes the body to shut down.  Alzheimers too is a disease where a protein is destroying the brain.  Parkinsons also.  Now I am beginning to think that M.E. (CFIDS) is also a protein disease from a defective gene." [SEE ARTICLE BELOW...]
 
Family battles fatal insomnia

"Just imagine what it would be like one day to wake up and never fall asleep again, to be tortured in a twilight world of perpetual insomnia, lying in bed, exhausted but with eyes wide open, listening to the groans and whispers of the night--sleepless, until death mercifully claims you."
www.msnbc.msn.com/id/6822468
 
Medical researchers believe this condition is related to Mad Cow Disease. See www.mad-cow.org/jul99_mid_news.html  "It is clear that the prion strain causing bovine spongiform encephalopathy (BSE) in cattle has infected human beings, manifesting itself as a novel human prion disease, variant Creutzfeldt-Jakob disease (CJD)." 
 
[NOTE FROM DOMINIE:  From the MSN article above, click on the video called "DYING FOR SLEEP."  It's about a family in Italy who are carriers of the fatal familial insomnia gene.  There are 25 families worldwide (4 in the U.S.) who have this disorder which causes rogue proteins to form in the brain. The brain of a man in this family who died in his 50's from fatal insomnia was sent to the U.S. for examination.  There were many holes in his brain tissue.  This family has watched loved ones turn into zombies who can't sleep, yet they are conscious.  Eventually they get trapped between waking and sleeping and death comes suddenly.  Fatal insomnia is caused by a mutated gene and there is no cure, but research is ongoing.  Having been awake most of 20 years prior to finding help for my relentless and ravaging insomnia, I am very interested in this.  I felt like I was dying.  Many long-time readers know that there is a sleepless man on our mailing list whose body has been shutting down for years from severe insomnia, yet doctors have not been able to help him.   I am immensely thankful for being able to get restorative sleep once again.  This simple body function that most people take for granted can go awry and cause torturous misery--if not early death. To read what I use for sleep now, see www.fms-help.com/sleep.htm ]
 

 
24. FIBROMYALGIA - A DISEASE OF THE CENTRAL NERVOUS SYSTEM
 
From a newsletter reader--
 
"Recently The Wall Street Journal published an article on fibromyalgia stating, and I quote 'Until recently, scientists thought fibromyalgia may be a problem of the muscles and bones, or inflammation....With modern brain-imaging techonology, researchers say they have shown fibromyalgia to be a disease of the central nervous system in which pain-processing system between the brain and spianl cord is out of whack.'  It also talks about studies of medications companies are researching and trying to get approaved for treatment for fibro.  I would also like to quote form the article 'A fraction of physicians remains unconvinced that fibromyalgia really exists.  Nortin Hadler, an immunologist at the University of North Carolina at Chapel Hill and a prominent skeptic, calls the disorder a sociocultural phenomenon.  But most doctors today accept that it's a true distinct disorder.'  So while this doctor may be a know-it-all-idiot, he may be right about the thinking to change it to being a neurological disorder.  I talked to my rheumatologist about the Wall Street Article. My rheumatologist said yes the medical profession is now viewing this as a problem with the nerve endings getting messages to the brain.  Who knows but if brain imaging techonology can help the cause, so be it.  This doctor should have to spen a day in one of our lives."  [NOTE FROM DOMINIE:  See the link on my site about autonomic nervous system dysfunction and FMS www.fms-help.com/dysautonomia.htm ]
 

 
25. "ALL NATURAL" SLEEP PRODUCTS REVIEWED
 
Alternatives to prescription sleep meds--some might work for you, some might not!
 
[dead link removed 6/25/14] - See www.fms-help.com/sleep.htm for a list of things I've tried for sleep.
 

 
26. SAVE MONEY ON PRESCRIPTIONS
 
From a reader--
 
"Here's a program to save money prescriptions www.togetherrxaccess.com"
 

 
27. UPDATE FROM THE SLEEPLESS MAN
 
Here is the latest update--
 
"Still no good sleep.  EBV titers not falling although 6 months on Valtrex/Valcyte."
 
[NOTE FROM DOMINIE:  He does not write much--feels his body is shutting down.  Is now divorced.  Scorned by doctors.  Was once an admired professional in his field.  This sure sounds familiar.....  Keep him in your prayers.]
 

 
28. WORK FROM HOME?
 
Debra dap17@atvci.net wants to know if there is any work she can do from home. 
Please write to Debra directly. 
 
[NOTE FROM DOMINIE:  Those of us with FMS/CFIDS are almost always highly intelligent, articulate, responsible, and have good computer, communication and writing skills.  Most of us are former professionals who were used to working many hours and being very productive.  I see a huge amount of untapped talent and employment potential in our group!  Even working around flares, we can still get a lot done...the Million Letter Campaign volunteers proved that during the past 8 months!  If a company will hire us, we can work from home via computer.  Anyone have an idea about this??]
 

 
29. ADRENAL REBUILDER
 
From a newsletter reader--
 
"I'm still taking my adrenal rebuilder and it is a wonderful product.  I
stopped taking it for awhile because I felt that I could handle the stresses
of everyday life without it.  Recently, my son and his family came to live
with me and now I'm moving so I started taking one tablet a day and what a
difference it makes.  It definitely does help you handle stress and I pretty
much have no aches and pains.  I can carry boxes down 2 flights of stairs
from the attic and then carry them up again to the attic at the new house.
There is no way I could do this if my adrenal wasn't functioning properly or
if I had aches and pains. 
I sleep at night and wake up refreshed in the
morning. My mood is better and I can think much more clearly now. I have no
side effects from this at all. 
I know I wrote to you about this before for
people who have FM or CFS because of the severe stress it puts on the body.
Any serious illness such as this is going to tax the adrenals like nobody's
business. Here is a link:
www.adrenalfatigue.org/adrenal_function.php 
Hopefully, someone will try this product and see for themselves how much
better they are going to feel."
 
 

 
30. BETTER SLEEP
 
From a reader--

"I have used the Cuddle Ewe mattress pad for two years, with wonderful results. Bought a California King size and use it doubled on my twin bed. Luxury and refreshing sleep till a long bout of shingles interrupted my healing. 5-HTP is helping me get back on track now. Am following the excellent advice of Dr. Rodger Murphree, in TREATING AND BEATING FIBROMYALGIA AND CHRONIC FATIGUE SYNDROME." [NOTE FROM DOMINIE:  I tried a Cuddle Ewe mattress pad several years ago, but didn't sleep well on it.  I gave it to a friend who has lupus and she loved it!  We are all different!  I have been using a magnetic mattress topper and magnetic pillow for years that I am very happy with.   I am now reading Dr. Rodger Murphree's excellent books!  He has a lot to say on many subjects that I mention in my 100 Tips for Coping with Fibromyalgia and Insomnia at  www.fms-help.com/tips.htm]
 

 
31. GRANTS AVAILABLE FOR THE ILL
 
From a reader--
 
www.free-government-grants-site.com/healthcare.htm
www.grants.gov
www.arthritis.org/research/ProposalCentral.asp
www.pharmacy.org/company.html 
www.health.grantgate.org


 
32.  HHV-6A VIRUS & CFIDS
 
From a reader--
 
Health Supreme - www.newmediaexplorer.org/sepp

"What do people suffering of AIDS and those suffering of CFIDS - chronic fatigue and immune dysfunction syndrome - have in common? Apparently more than immune trouble. There is a virus that seems to be present in both, but is almost never tested for. HHV-6A, thought to be a genetic cross www.bulkmsm.com/DMG/web12.htm  between Cytomegalovirus and African Swine Fever Virus, is found in both www.immunesupport.com/healthwatch/wtr98/98wtr006.cfm AIDS and CFIDS patients. HIV instead, a relatively harmless retrovirus that cannot cause the symptoms of Aids, has been given all the blame. The hypothesis that HIV = AIDS has been scientifically and quite thoroughly discredited www.buildfreedom.com/tl/tl09a1.shtml  by Peter Duesberg in his book 'Inventing the AIDS Virus', although officially it is thought to be rock solid and today, highly cytotoxic anti-retroviral treatment is almost universally recommended for AIDS sufferers by health authorities around the world, while those suffering of Chronic Fatigue and CFIDS are told that 'it's all in your mind' and are given psychological treatment or prescribed psychiatric medication. June 2004: Enter a new point of view... In June last year, Jonathan Campbell www.cqs.com/aidstherapy.htm introduced me to a new and - I must say - intriguing angle to the AIDS catastrophe, which we will explore further in this article. (4/28/2005 12:45:50 PM)"
 


33.  GOOD TV SHOW ABOUT FMS/CFIDS
 
From a reader--
 
"With all the 'Bad Press' for FMS lately on TV shows, I thought I would share this with you. It is an old one, from Strong Medicine on Lifetime. I saw this episode, it was good and they did NOT portray FMS as a waste basket DX. YAY for Lifetime!  We should probably also be writing notes to thank or commend the programs that are depicting FMS appropriately. It is easy to act upon the bad ones, but I don't think we give Kudos enough to those that do support our plight."
 
http://www.lifetimetv.com/shows/strongmed/patient/patient1_13.html
 

 
34. COMPASSIONATE LETTER BY A DOCTOR
 
From a reader--
 
Sick and Tired by Dr. David Saul

"I feel ashamed to be a member of the medical profession when I hear from my fibromyalgia (FM) patients that they left in tears from a doctor's office after being addressed in a rude and abrupt manner.  For doctors who are skeptical about the diagnosis of FM—this article is for you......'Pain is exhausting. It is an overwhelming feeling of incapacity, of being spaced out all the time, of being neither awake, nor asleep.'"  Read more at http://www.medicalpost.com/mpcontent/article.jsp?content=20050411_161246_4696


 
35. NASTY PHARMACIST
 
From a reader--
 
"I had a VERY unfortunate experience with a Pharmacist at Million Letter Campaign www.fms-help.com/letter.htm time.  I see now that at least I was given an opportunity to give her my letter.  I asked her to please educate herself and her staff.  She gave me such a terrible time in filling my prescriptions, as they were controlled substances. No kidding!  I got the usual judgmental looks and stares from both her and the staff in the Pharmacy when I dropped them off.  I told her I have lived with this disease for over 4 years now and am well aware of how to take my medications!  She refused to fill my prescriptions and asked me where I had gotten them and that she was calling my doctor immediately!  She implied, VERY strongly, that I had taken a prescription pad and wrote these myself!  I was VERY angry and felt VERY degraded!  People really need to understand, this type of treatment needs to stop, now!  I am praying that we get a tremendous response from the Campaign.  Thank you for making this Campaign happen!!
 
Believe it or not, the only reason I went to that pharmacy, which was my first time there, was to get the $25 gift card by filling my scripts there.  You know how tight money is when you cannot work.  I saw a way to make a quick $25 so I took it.  Dummy me!  I will NEVER make that mistake again.  Yes, I did speak to her store supervisor immediately after the incident and also went into the store and saw her store manager, who said that he had spoken to her.  He really didn't seem to care very much either.  Does anyone really??
 
I was also told by my doctor that the 'medication agreement' I signed with him instructs me to always go to the same pharmacy.  Oops, I didn't know that.  Have you ever heard of that?  He was furious and took it out on me in front of everyone, when I had to go to his office, for him to re-write the scripts the other nasty pharmacist wrote all over.  Once again, mortified!  I called him later, as I could not face the people in the office any longer, and asked him if he still wanted me as a patient because I was SO ready to make a move.  He said he loves having me for his patient.  I AM a good patient Dominie.  He has always been a good doctor and very empathetic to my needs and condition.  When I spoke to the medical assistant afterwards, he told me to just, 'let it go.'  I know my doctor was so mad because this nasty pharmacist called him continuously on Friday, which was his day off."
 

 
36. FREE MEDS LINKS
 
From a reader--
 
www.needymeds.com/newuser.html

www.freedrugprogram.com/can_we_simplify_your_life_just_a.htm

www.drugassistant.com/patients

www.medicinebridge.com

www.themedicineprogram.com 

www.disabilityresources.org/RX.html

 

 

37. PSYCHOLOGY TODAY???

This has been called to my attention.....GRRRRR!!!!!--

From Psychology Today at end of readers' Feedback section:

"Speak UP! Send feedback to letters@psychologytoday.com Please include your city and state of residence. PT regrets that we cannot respond to individual letters or queries.”

Editor in Chief: Kaja Perina
Psychology Today
Sussex Publishers, Inc.
115 East 23rd Street, 9th Floor
New York, NY 10010
212-260-7210
Fax 212-260-7566

June 2005 Cover storyline:

"Chronic Fatigue: How Your Mind Makes You Sick"

Article title:

"Is it all in my head? With diseases like chronic fatigue syndrome and fibromyalgia, what you believe about your illness influences how sick you become." By Melissa Schorr

Photograph of doctor with stethoscope on patient's head.

Here is another letter from a reader about this subject--

"I am so angry I could scream!  Apparently Psychology Today has done a very destructive article about CFIDS and Fibro, suggesting strongly that it is psychological! You can take action by going here: http://capwiz.com/cfids/issues/alert/?alertid=7635331&type=CU   All you have to do is sign the letter that has already been written- you can add you own comments to it if you wish.  I sure did- lol!  We cannot sit back and let arrogant and ignorant doctors say incorrect things about us, and let Psychology Today make money off our pain.  Please take action today, by signing and sending this letter."

[NOTE FROM DOMINIE:  Are we going to let this one go by???  I have a B.A. in psychology from U.C.L.A. and I think this article in Psychology Today is an affront to all of us with FMS/CFIDS.  We were the "movers and shakers" in society before our illness struck.  We did not CHOOSE to live like this....it chose us!  Articles like this "add insult to injury!"]


38. HISTAMINE
 
From a reader--
 
"With confidence, I can now tell you that I have been taking honey bee venom shots for almost 3 months.  I live normal life.  I still love my coffee,but now just drink it for pleasure, while before I would need 5-6 cups to drag myself through the day.  The main ingredient in venom that gives effect is histamine.  I talked to many people while in the office and recommended two friends of mine to go their.  One had hives and did not know what caused them.  She does not know now but got rid of them.  The other had CFS with fybromyalgia plus asthma.  She is better with the first and does not have asthma.  I am talking about the same doctor (Ravikovich) who wrote the book The Plot Against Allergy and Asthma Patients.   I feel sorry for people who cannot get good therapy, for I know how miserable it is not to be able to get up in the morning and go to work.  Try this therapy.  The effect is very solid." [NOTE FROM DOMINIE: Do a search on my site for histamine and also the book, The Plot Against Allergy and Asthma Patients.  Lots of intriguing items on my site.  Go to www.fms-help.com and click on the search link in the yellow box.]
 

 
 39. LAB TEST FOR FIBROMYALGIA!
 
From a reader--
 
 

The patented Anti-Polymer Antibody Assay, or APA Assay, detects anti-polymer antibodies in the blood of most patients with fibromyalgia and fibromyalgia-like symptoms. Research has shown that the titers of these antibodies correlate with various clinical measures of fibromyalgia severity, including headache, fatigue, anxiety and depression. This and other research data strongly suggests that fibromyalgia is associated with an abnormal immune-system response in these patients.  Autoimmune Technologies believes the APA Assay to be the first practical laboratory test for fibromyalgia. The Company expects the test to be useful (i) in assisting physicians in diagnosing fibromyalgia, (ii) in assisting physicians in differentiating fibromyalgia patients from patients with lupus (SLE) and other disorders having similar early-stage symptoms, and (iii) in identifying those fibromyalgia patients in whom a symptom-associated immune response is present so that physicians can further monitor immune-system involvement and consider attempting to modulate it using existing drugs or other means.

 
Fibromyalgia was defined in 1990 by the American College of Rheumatology (the "ACR") as a syndrome characterized by widespread musculoskeletal pain and the presence of tenderness or pain in eleven or more of eighteen specific "tender points" on the body. Nearly all fibromyalgia patients also experience severe fatigue, stiffness, skin tenderness, fragmented sleep, and pain that follows physical exertion. Many fibromyalgia patients have other symptoms as well, including tension-type headaches, cold intolerance, poor memory, dryness of the eyes, mouth or other mucous membranes, unexplained bruising, fluid retention, chest, jaw or abdominal pain, irritable bowel syndrome, bladder irritation, breathing difficulty, dizziness, paresthesias, and low-grade depression and anxiety. The ACR criteria do not address any of these other symptoms because their presence was not found to assist significantly in establishing a fibromyalgia diagnosis in severe cases.

The research conducted by Autoimmune Technologies has shown that the APA Assay detects anti-polymer antibodies in the blood of the majority of fibromyalgia patients and that the titers (amounts) of these antibodies correlate with the severity of a variety of the patients' fibromyalgia symptoms, including headache, stiffness, anxiety and depression. The presence of these antibodies is the first evidence to indicate that fibromyalgia patients mount an immunological response that is associated with their disorder, and the antibodies represent the first objective laboratory marker for fibromyalgia. Indeed, the discovery of these antibodies will probably help convince skeptical physicians that fibromyalgia is a "real disease" and not a psychologically-based condition as many now believe it to be.


 
40. LYME DISEASE OR FMS/CFIDS?
 
From a newsletter reader--
 
"I can't figure out how two illnesses can have the same symptoms and not be
the same disease.  Everyone person I have known that CFIDS and fibro, when
they were tested by Lyme literate physicians with proper and sensitive tests
showed positive to Lyme disease.  To me CFIDS and fibro are two parts of
Lyme disease."
 

 
41.  BODY PILLOW
 
From a reader--
 
"I would like to share with you the type of pillow I find incredibly comforting at night AND during television watching or lounging on the couch. For several months now I have been using a body pillow I purchased from Linens and Things. Although it is expensive ($100), it is absolutely wonderful! It utilizes the Tempurpedic technology of NASA (that's how anyone could locate it once inside the store, since I no longer remember the exact title of its brand) so it will literally conform to support any weight placed on its surface. It will also bend, fold, twist and then simply bounce right back! I have even been able to place it along the top of my bed if I'm having a bad toss and turn night and then find that I have wonderful support no matter how much I flip and flop. According to the tag this pillow is made of 100% polyurethane foam. Anyway, combined with my Select Comfort mattress, this is almost the perfect combination for someone with a lifetime of insomnia."
 

 
42. JUST SAY "NO!"
 
From a website reader--
 
"I am learning to slow down and say 'I can't' instead of 'Sure, I can do that!' and it's hard. But it's necessary!"  [NOTE FROM DOMINIE:  This is GREAT advice for all of us "Type A" fibro folks!]
 

 
43. SPIRITUAL UPLIFT CORNER
 
From a Million Letter Campaign worker--
 
"When we can take our mind off us, and put it on Him, it makes for a better day!!"

I asked God to take away my habit.

God said, No. It is not for me to take away, but for you to give it up.

I asked God to make my handicapped child whole.

God said, No.  His spirit is whole, his body is only temporary.

I asked God to grant me patience.

God said, No. Patience is a byproduct of tribulations; it isn't granted, it is learned.

I asked God to give me happiness.

God said, No.  I give you blessings; Happiness is up to you.

I asked God to spare me pain.

God said, No. Suffering draws you apart from worldly cares and brings you closer to me.

I asked God to make my spirit grow.

God said, No. You must grow on your own, but I will prune you to make you fruitful.

I asked God for all things that I might enjoy life.

God said, No.  I will give you life, so that you may enjoy all things.

I asked God to help me LOVE others, as much as He loves me.

God said...Ahhhh, finally you have the idea.

"I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation will be able to separate us for the love of God that is in Christ Jesus our Lord." (Romans 8:38-39)  [NOTE FROM DOMINIE:  Nor fibromyalgia!!]



44.  DOMINIE'S PERSONAL UPDATE

I've had a number of requests to explain the exercise I mentioned in the May 2005 newsletter www.fms-help.com/May2005.htm--
 
HERE'S THE EXERCISE THAT GOT RID OF MY LEFT SIDED HIP, KNEE, ARCH & TOE PAIN: 
An older man in our Sunday School class told me that this simple exercise helped his heel pain.  I was skeptical but tried it and surprisingly was pain free the next day after suffering for 2 months and limping around. Chiropractic visits hadn't helped and I had to take pain killers in order not to limp when I walked, but they wore off.  I rented a TENS unit and it helped the hip pain, but the problem returned when I couldn't use it--and I couldn't use it in the arch/toe area.  I have been doing this exercise a few times a day this past week and have remained gloriously pain free.  Here's what to do:  Take a thin bath towel and fold it up narrowly the long way.  Sit in a chair.  Put the center of the towel under your arch and pull back on the towel with both hands while lifting your leg.  You will feel a stretching sensation in the back of your leg.  Do this a few times. Then put the towel under the ball of your foot and do the same. That's it!  (I showed this exercise to my chiropractor and he said it stretches the hamstrings and might have broken up some adhesions.)
 
I am still using the immune balancing product, the alkalizing sachets in my drinking water, the natural antibiotic as needed.  See www.fms-help.com/what.htm for a complete list of things I use.  Lately I have been feeling exceptionally tired.  A blood test showed that I am now post-menopausal.  Could I be growing old???!!!  My husband says my fatigue is from the emotional pressures I'm under with the recent death of my father www.fms-help.com/eulogy.htm and concerns for my aging mother, etc.  I know I should be glad simply to be functioning again after so many years as a chronic invalid  - see my personal story at www.fms-help.com/fibro.htm.  My husband has (wisely!) recommended that I don't take on any new projects for awhile!  I think my body needs to catch up with my busy brain....
 
Well, I hope you have a great summer and take good care of YOURSELF!  My father used to say that if we don't take care of ourselves, we won't be able to help others.  How true--although it's difficult for those of us who are Type A, overly responsible, workaholic, caretakers by nature!  I'm trying to remind myself that BURN OUT IS NO FUN!!!  (I plan to slow down my pace this summer and start saying NO to any additional commitments for awhile....)
 
Love to all,
 
Dominie Soo Bush
 

 
 My Fibromyalgia Story www.fms-help.com/fibro.htm
 
 My Chronic Fatigue Story www.fms-help.com/fatigue.htm
 
100 Tips for Coping with Fibromyalgia & Insomnia www.fms-help.com/tips.htm
 
 Dominie's FMS/CFIDS Homepage www.fms-help.com