My piano and guitar students at the annual fall recital last Friday night. They did a wonderful job!
OCTOBER 18, 2010
A Christian-based newsletter about Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.) - sharing thoughts, research and experiences.
FIBRO STORY CFIDS STORY INSOMNIA STORY HELPFUL THINGS I USE PREVIOUS NEWSLETTER ARCHIVES
25 TOPICS below. Don't miss the RED ones. Readers comments in BLACK. My comments in TEAL.
Be sure to see #14, 17 and 18.
1. READERS WRITE
"It is so refreshing to know and see a real, genuine site www.fms-help.com on the net."
"I look forward to your newsletters www.fms-help.com/newsletters.htm."
"Just read your site and was very impressed with your many great solutions www.fms-help.com/what.htm."
"Thank you for giving of yourself so others may be educated about this awful illness that we live with every day."
"You and your newsletters are a constant source of great info to me and the other members of the group. Your sharing comes from your heart"
"Thank you for posting so much useful information."
"You cannot know what a blessing and comfort your newsletter is!"
2. NARCOLEPSY & FIBROMYALGIA
From a reader--
3. NEUROFEEDBACK, PSYCHOSOMATIC THERAPY & EFT FOR FMS/CFS
From a reader--
"I have had severe FMS/CFS for at least 10 years (when I was officially diagnosed). My childhood was really horrible - trauma and every kind of abuse. Of course I've read all the studies that say that abuse is the cause of FMS and honestly it always made me mad when I read that as it implies it's only of psychological origins. I recently read an article about neurofeedback being effective for managing chronic pain so I found a practitioner who thankfully is covered under my insurance. She also has FMS and is a psychologist specializing in treating PTSD (I have been diagnosed w/ that also). I have been getting treatments for about 2 months and the neurofeedback helps so much with brain fog and a lot with pain though so far the effect only lasts a few days. My brain map showed my brain is stuck in fight/flight mode all the time so we are working to find ways to calm my brain down and help me relax. The therapist has a protocol combining neurofeedback w/ psychosomatic therapy. For those unfamiliar w/ psychosomatic therapy it basically is a type of therapy where they look at the pain in your body as a symptom of unresolved trauma or emotional issues of some kind. You locate a specific pain and then think back to the time in your life when you first began feeling that specific pain. If there is a traumatic event or memory related to it then EFT (Emotional Freedom Technique) therapy is done to reduce the pain. EFT is a simple technique where you tap with your fingers on accupressure points in your body to block nerve signals. Thankfully my therapist is also a Christian (what a gift from the Lord!) so she uses lots of prayer and scriptures when we are working through my trauma memories which is very helpful. She has also taught me several relaxation and breathing techniques based on using God's WORD. In the last 2 months I've been able to decrease my pain medications by 50% and my depression (which is especially bad this time of year) is almost gone. I have been amazed to discover just how strong of an effect stress has on my pain. If my pain is up to an 8 or so now I can lie down, use EFT and recite scriptures and most of the time I can get my pain down below a 5. Also as I have worked on getting my stress down and looking up specific scriptures about trust, faith, hope, etc. and memorizing/repeating over and over I have found my attitude has gotten so much more positive (even in the midst of having bad FMS days). It's given me such a hunger and thirst for God's word! I certainly am not saying that FMS is caused by stress or psychological issues, but I will say those things play a big role in the severity of symptoms in my opinion. I've often told my husband I feel as if "my brain and body are not connected". Neurofeedback is supposed to help the brain and body communicate better and balance/stabilize the brain. Here are a few links if you are interested in learning about neurofeedback and/or EFT for FMS, CFS, and chronic pain (the techniques can be used individually or together). You can also find videos on youtube that explain how to do EFT on yourself as well as many testimonials of it's effectiveness for Fibro and CFS.
4. CFS BARBIE
FROM DOM: Go to the bottom of this page and type headache in the Google search box. I have mentioned headaches in many past newsletters - might be some good info there. Also, if anyone has suggestions for this reader, please write email@example.com.
10. READERS' PRAYER CORNER
Susan - "Please continue to pray for my fibro friend's daughter Megan - see www.prayersformegan.com. [Recap: When Megan was in labor with her first baby in July, doctors discovered that she had leukemia, despite a perfect blood test just 2-1/2 weeks before! She was taken to oncology for cancer treatments to save her life immediately following delivery.] Now, in October, Megan had been doing so well after she received her brother's bone marrow, they were hoping she could go home to Ryan (her husband), and Rylee (newborn) would come home from Grandma and Grandpa's house early next week. Unfortunately, Megan's had a severe set back. Again, she's been put on a drug induced coma, in ICU. She's having difficulty getting her heart and lungs to cooperate at the same time. She has a severe infection in her lungs or heart...and Ryan went over immediately from school, and for the first time, he wasn't allowed into her room. Our friend Dianne has gotten a Run4Megan in downtown Sonora... I was planning on attending, but after having a fever of over 101-102...I checked in with my doc (waiting for 4 days...I really believed it was going away) I have bacterial pneumonia! I'm just disappointed that I can't be there to support the women (woman) that is putting it on. Pam, Meg's mom has gone to Seattle to help with Rylee. Since Ryan is in Dental School, Rylee went back to spend some quality time with Grandma Boyack and Grandma Smith. I know you have a lot of people that you can connect with, and I know how much Pam (Megan's mom) would appreciate it. I don't know how she's doing this with her FMS. Ryan has up a Facebook page about Megan at http://www.facebook.com/pages/Prayers-For-Megan/119177548129242."
"A bit of information that you might like to know about. We have friends here in our community and one of their sons is an Entomologist (insect expert), and has been telling them that there is an epidemic of bed bugs now occurring in America. Recently I have heard on the news that several stores in NYC have had to close their doors due to bed bug infestation problems, as well as a complete mall in New Jersey.
He says that since much of our clothing, sheets, towels, etc. now come from companies outside of America, (sad but true), even the most expensive stores sell foreign clothing from China, Indonesia, etc. The bed bugs are coming in on the clothing as these countries do not consider them a problem. He recommends that when you buy new Clothing, underware, socks, sheets, towels, etc. that you bring them into the house and put them in your clothes dryer for at least 20 minutes. The heat will kill them and their eggs.
DO NOT PURCHASE CLOTHES AND HANG THEM IN THE CLOSET FIRST!
It does not matter what the price range is of the clothing, or if the outfit comes from the most expensive store known in the U.S. They still get shipments from these countries and the bugs can come in a box of scarves or anything else for that matter. That is the reason why so many stores, and many of them clothing stores have had to shut down in NYC and other places. All you need is to bring one item into the house that has bugs or eggs and you will go to hell and back trying to get rid of them. He travels all over the country as an adviser in prevention and helps many stores after they had the problem."
FROM DOM: My husband has been a pest control tech for 24 years now, and he says that only HEAT will kill bed bugs, and even if you eradicate them from your home, they can easily reinfest your home by hitch-hiking in on visitors or objects you bring in. What a nightmare! Reminds me of the plagues that God brought on Egypt because the Pharoah would not free the Israelites from slavery. God used gnats, flies and locusts!! Amazing what misery such small creatures can cause! My mom (89) said that in the 1920's in Michigan they used kerosene to kill bed bugs! Kerosene is not as flammable as gasoline, but just as dangerous. (I guess nobody smoked in bed back then!)
16. KILLER BEES
FROM DOM: On the bug theme, just wanted to mention that on our local TV news this week, they showed a huge nest of African killer bees - they are finally here in the Northeast Florida. These bees swarm their victims, sting them to death and continue stinging even after the victim is dead. I pray that no one will be hurt by these horrible bees!
20. IS THERE A CURE FOR XMRV?
FROM DOM: Many readers have asked me that if they take the XMRV test and it comes back positive, then what is the cure? Answer: Presently no one knows. Research is in its infancy, but I've heard that some AIDS anti-virals are being tried, but that we should not let a doc prescribe anti-virals "willy nilly," because if you use the wrong ones and become immune to them, then it will mess up your immune system. As you can see by reading this, I am not a doc or a medical expert. I am just a patient (CFS since 1987), having suffered in many ways from this illness www.fms-help.com/fatigue.htm but doing well now for about a year using things on my list at www.fms-help.com/what.htm. Each person is different.
21. TINNITUS IS RINGING IN THE BRAIN
FROM DOM: My dearest friend from childhood just snail-mailed me an article from Discover Magazine (Special Anniversary Issue 1980-2010 - Thirty years that changed everything, pages 22 and 24) about tinnitus (ringing in the ears - something I have suffered with for decades.) Researchers have found an auditory network running throughout the brain. This is why traditional tinnitus "remedies" for ears don't work very well. However, there is a new approach now. See "Cured of the Rings" at http://discovermagazine.com/2002/sep/breakcured. Also see http://blogs.discovermagazine.com/80beats/2009/12/29/specially-modified-music-can-rewire-brain-alleviate-tinnitus/.
22. HELP FOR TMJ
From a reader--
"Have you ever suffered from TMJ? It is very painful. Other than getting a splint made from a dentist (out of pocket expense) do you have any suggestions that may help? I can hardly chew my food!!"
FROM DOM: Yes. For many years. I wore a mouth splint at night. My teeth kept shifting around for some reason. Dentist has to grind them down, etc. I have been told that I have no cartilage left in my jaws. Don't know what actually cured my TMJ symptoms, but it's been gone for about 15 years now. Here's an article that discusses TMJ from someone who also has fibromyalgia, and lists some things that can help: http://www.ctds.info/tmj.html. I think as I got stronger physically with good supplementation that this had a lot to do with the improvement. My list of things I use is at www.fms-help.com/what.htm.
23. SLEEP STUDY
From a reader--
"Have you ever had a sleep study done? Have you heard of any 'consistency' between studies done in folks with fibro? Perhaps, in 'wave' type or frequency or etc.?"
FROM DOM: I never did back when I had insurance coverage for it. Wish I had now! My insomnia story is at www.fms-help.com/insomnia.htm. It began when I was 16. I would be curious of the findings of anyone who has had a sleep study done. Please write firstname.lastname@example.org. Basically there are 4 levels of sleep. They say that fibromites don't get to the deepest level due to alpha wave intrusions. There has been a lot of info regarding sleep and insomnia in my past newsletters www.fms-help.com/newsletters.htm.
FROM DOM: Interesting new site where you can type in your health condition and see available treatments, etc. www.healthetreatment.com.
25. THE ENCOURAGING WORD
Our plumber, Alan, sends out an encouraging Word every day--
“Work willingly at whatever you do, as though you were working for the Lord rather than for people."
(Colossians 3:23 NLT)
1: 4 - "[God] Who comforteth us in all our tribulation, that we may be able to comfort
them which are in any trouble, by the comfort wherewith we ourselves are
comforted of God." Visit Dominie's FMS/CFIDS Homepage at
www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their
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DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.