This wonderful poem was sent in by a newsletter reader.  Thanks, Mary!

by Mary Hastings
written May 2003
When you see me on a "good day"
I may look as if nothingís wrong,
But I, myself, am very aware
That the energy wonít last long.
You may think that I am lazy,
Or I just donít like to try,
Or maybe I am just depressed,
When sometimes you see me cry.
You may not understand me,
Itís not easy to explain,
The struggles that I so often endure,
As I live each day in pain.
People may offer their opinions,
Thinking that I just need some advice,
Yet they donít really comprehend,
Although they are trying to be nice.
What for some may be so easy,
Is almost impossible to me,
But because I may look healthy,
Many around me fail to see.
Perhaps it seems that Iím sloppy,
If I would only take more pride,
Itís sad that many donít stop to see,
The person who is inside.
Planning things is so hard to do,
With each day uncertain fate,
The best that I can do is try,
And oftentimes I have to wait.
Life can be so stressful,
Even when you have your health,
Many people cannot even imagine,
Giving up their dreams and wealth.
While some people may worry,
How to fit everything into each day,
Others of us must struggle,
To even find a way.
So often misunderstood,
Some say that is must be "in my head,"
Yet there are days that it takes all I have
To even get out of bed.
Youíd think that if one is weary,
Then why not just take a nap,
But the fatigue at times is so severe,
That nothing seems to help.
If exercise were the answer,
I would just move into a gym,
But intolerance and unbearable pain
Makes it difficult to stay trim.
Thatís alright just take a pill--
Medications can always do some good,
However, sometimes the effects are far worse,
Oh, but how wonderful it would be if I could!
Living each day fighting defeat,
Knowing that you canít give up and quit,
Even though it gets hard to do,
Find ways of accepting it.
I guess it would be a better thing,
If there were a little more support,
Everyone longs for acceptance and love,
As they keep their life in sort.
If I could make the world aware,
Help them to see things in a new light,
Be careful on what they base their view,
That they may receive a new insight.
Then maybe when someone else comes along,
Who is going through something unknown,
They may not feel so hopeless and scared,
And will know that theyíre not alone.
Whether it be a terminal thing,
Or something chronic with no known cure,
There are many processes that will be faced
In this we can rest assured.
The grieving over loss is hard,
Whatever the loss may be.
What may be just a bump for you,
Could seem like a mountain to me.
Everyone responds so differently,
We all have our own ways to cope,
But the one thing that we must never do,
Is believe that thereís no hope.
For I faithfully trust in God above,
And no matter what the future may bring,
I know that He is holding my hand,
And Heís in control of EVERYTHING.


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II Corinthians 1: 4 - "[God] Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God."  Visit Dominie's FMS/CFIDS Homepage at for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.