DOM'S FMS/CFIDS
NEWSLETTER
May 23, 2009 - Memorial Day
Weekend
A Christian-based newsletter for people with Fibromyalgia (FMS),
Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS), or Myalgic
Encephalomyelitis (M.E.) and their families.
26 TOPICS IN BLUE. READERS'
COMMENTS IN BLACK. MY COMMENTS IN
TEAL.
1. READERS
WRITE
"You do a WONDERFUL service for everyone who
is suffering and needing support."
"I am now reading your site in tears. I
am 28 years old."
"I?m so grateful to you for putting together such an amazingly helpful
and inspiring website www.fms-help.com. It really has been a
revelation for me to hear someone else describe my own symptoms so clearly and
to know that it?s NOT ?all in my head?. I cried with relief when I first
read it! Thank you so much for showing me that there is hope for
ME/CFS/FMS sufferers."
"Your newsletter is so
informative."
"I really enjoy your mailings. It is
comforting to know that there are those out there that experience the same
thing, though I wish there were none."
"As usual, I INHALED your
newsletter!"
"I am very much enjoying your letters I no
longer feel quite as alone."
2.
PHYSICIANS FOR PATIENTS
From Art Kaminski MD, President, Physicians
for Patients at www.physiciansforpatients.com--
"I
am writing to make contact in regard to a new Fibromyalgia resource that is
available: www.fibromyalgia.physiciansforpatients.comWe are a group of doctors dedicated to helping people online in a way
to help with high health care costs. The idea is to give a resource to people
that need alternative opinions and information. There are a lot of people that
have limited access to health care (either uninsured, simply can't afford it, or
can?t find a specialist in their area). This way it is easier for a smaller
number of physicians to help a larger number of people.
Patients, family,
and supporters of those with fibromyalgia can ask a physician specialist any
questions they may have. (everything is free).
Dr. Vallance is the
doctor. He is board certified in Rheumatology. He trained at The University of
Michigan.
The format in which we are doing this is via a virtual support
group.
The site is part of a larger site, www.physiciansforpatients.com.
You can select the ?Our Physicians? tab to see all of the participating
physicians and their credentials. As a result of an overwhelmingly positive
response from Fibromyalgia and Complex Regional Pain Syndrome (CRPS) patients,
these chronic pain conditions have become our focus."
3. MEN'S FIBRO CLOTHES
From a male
reader--
"I liked the clothes article
in the last newsletter www.fms-help.com/051409.htm.
But men are not really represented. I do know that I have to wear baggy
jeans to the point of almost looking like a gangster. After wearing even
sort of fitting ones, I get in pain, pressing on my below naval region. I
had some clothes stolen while at my apartment during my bad fall, naturally, my
most comfortable pair of pants, jeans, went. No one understood it."
FROM DOM: Good point. We women can wear dresses
that don't pinch, although we do have the bra problem. I haven't been able
to wear jeans or belts since I got fibro. It hurts my stomach and intestines
somehow. I have opted for comfort for many decades at the expense of
style. For lounging at home, how about sweatpants with either loose
elastic or string tie? For going out, I think they make slacks for guys
with elastic at the waist so it will expand. If you add an overshirt
(don't tuck in), you can probably get by with a loose waist or in my case -
unbuttoning a tight button. Don't worry about what others can understand -
we have our comfort clothes and WE NEED THEM!
4.
ITCHING & RASH
From a reader--
"You mentioned itching
and rash in the newsletter www.fms-help.com/051409.htm.
In late October, I had this horrible mysteriously appearing rash, it looked like
what they called urtikaria, big red welts, like a sunburn, but when you pressed
it, the skin turned white. I got prednisone, a 13 day taiper. I
then developed a prednisone psychosis. Could that rash havebeen
related to FMS? I never thought of rashes related to it, and I bet acne
is, too."
5. CELIAC, GLUTEN
& NALTREXONE
From a
reader--
"I have suffered with fibro for approx 3 years
now and after spending thousands on doctors, meds, treatments and supplements...
it's finally come to light that i have Celiac Disease! Just like
other fibro sufferers, i had to be my own advocate and keep pushing for answers
and not just be happy with trying to treat the symptoms. There had to be
an underlying reason my body kept creating all the fibro pain and toxicity
and now we've found out why. The minute i got on a gluten-free diet - ALL
my symptoms vanished ! Wanted to share this info with you to get the
word out to others that they should keep pressing for the answer, even if the
docs are happy letting you keep suffering.
One item to note... i did find a holistic md and
got an appt with him 3 or 4 months ago. At that time, he put me on
Naltrexone to boost the immune system. HUGE difference - i could actually
vacuum and clean my house over the weekend and not be down for days
afterward. So this was the start of my bouncing back to somewhat
normal. It made all the difference in the world, and now it makes more
sense bc my immune sys was so impaired from the celiac disease and gluten
toxicity. Anyhow, the gluten-free wheat-free/barley/oats diet is not
easy... but Whole Foods has alot of gluten-free offerings and makes it much
easier. Trust me, the way i feel now - i wouldn't trade it for all the
bread, bagels and pizzas in the world!
Please share this with your readers, hopefully i
can help someone - even just 1 person would thrill me. I purchased
the book "The G-Free Diet" by Elisabeth Hasselbeck and it has helped me identify
hidden sources of gluten that you'd just never think of. It contains tips
and helpful info about certain flours you CAN use and things to steer clear
of. I pretty much had to self-diagnose since the docs couldnt get it
right. One day in Barnes & Noble i picked up a book about sugar -
thinking it was my problem - but nope, it didnt help. Then i ran across
the G-Free book and BINGO - everything fit me and it finally made sense why i
was sick on my stomach all the time and tons of other symptoms. Thanks for
listening to my long rambling email. Still, there are good days and
bad days for me until i get the diet fully incorporated. But the pain and
fatigue is gone and it is truly a miracle."
FROM DOM: Good info.
I have reported numerous times on celiac, gluten, and naltrexone in my
past newsletters www.fms-help.com/newsletters.htm. To read more on these topics, use the
SEARCH BOX on that page.
6.
FREEZING FEELING
"Freezing: I have this and it responds
very well to 5 pellets of histaminin hydrochloride (30 C) homeopathic from
Boiron at the health food store!! This works amazingly well for that
horrible freezing thing. (I love homeopathics - they are inexpensive and work
well with symptoms)."
7. BABY'S
COLIC
Reader
1--
"Colic: Gripe water
(homeopathic, health food store can be helpful) I have also read that this can
be caused by not enough fat in the formula. http://westonaprice.org/children/calming-colic.html.
Lastly, I would remove all chemicals from the baby as well. Use organic
everything, detergents on sheets etc Everything can affect your gut. Not
that I don't believe in Probiotics.They are very important. I think they just
need to consider other alternatives as well."
Reader 2--
"I
am a believer in probiotics too, but I would certainly hope that they closely
monitor a baby that they are giving goat?s milk too. Yes, Goat?s milk is
alkalinizing and easy to digest and therefore healthful, but it is ?orders of
magnitude? more constipating than
cow?s milk or
mother?s milk. I would sure hate to think that they are trying to cure
colick only to
inadvertently
constipate a already-miserable child. We tried goat?s milk in our
family. I loved the health benefits but the constipation problems
associated with it are well-documented. PLEASE warn these parents to
closely monitor the BM?s of this baby, they
may be completely unaware of this side
effect."
8. USE
OMEGA 3's ONLY
From a
reader--
"All of the health food stores are still
selling Omega 3-6-9 blends, but the one took look for is just the Omega 3.
Do not buy the Omega 3-6-9 blends. Omega 6 is
actually an essential fatty acid that our bodies need, BUT American?s
get too much Omega 6 already in our sad diet and we certainly don?t need
extra amounts of it in our supplements or our fish. Happy eating (or make
that healthy eating) to you. Karri
-
Large predatory
fish. Shark, swordfish,
tilefish, king mackerel, and white (albacore) tuna may have high levels of
mercury. Pregnant women and children are particularly vulnerable to the
effects of contaminants, and should avoid these species. (Small-catch tuna is
OK, as it has high levels of omega-3s.)
-
Omega-6 rich
fish. Farm-raised
tilapia is one of the most highly consumed fish in America, yet it has very
low levels of beneficial omega-3s and very high levels of potentially
detrimental omega-6 fatty acids. Omega-6 fatty acids are pro-inflammatory, and
inflammation is known to cause damage to blood vessels, the heart, lung and
joint tissues, skin, and the digestive tract.
-
Farmed
salmon. Avoid farmed
salmon (also called Atlantic salmon), which is what you typically find in
supermarkets, restaurants and fish markets. While less expensive than wild
salmon, farmed salmon is lower in omega-3s and may contain residues of
antibiotics and other drugs used to treat diseases in fish farming pens.
What's more, levels of PCBs and other contaminants in some farmed salmon have
been found to be much higher than those found in wild salmon. Always splurge for wild salmon for
its higher Omega 3 content and less toxicity."
FROM DOM: I
use an Omega 3 that I love. It helps me with depression. Write me
dombush@bellsouth.net for info.
9. ONIONS
"Reading your newsletter, I remembered
receiving the onion/mayonnaise scare in an email several months ago. It
seemed fishy to me. Following is what snopes has to say! www.snopes.com/food/tainted/cutonions.asp."
FROM DOM: I still
say it was the onions that made me so sick that night, but it could have been
from a contaminated cutting board or unsanitary practices at the little
drive-thru burger place.
10. ANY
"AWARENESS DAY" RESPONSES?
Did anyone receive
sympathy or any sign of increased understanding about FMS/CFIDS from
sending out Fibromyalgia Awareness Day letters or emails to friends and
family on May 12? I sent out a heartfelt email (below) to approximately 30
close friends and family and received only 1 reply.
Hmmmm. Either nobody cares, they have their own problems, or
they don't know what to say. I "look" normal.
A reader wrote
this recently--
"We are modern day
lepers. No one wants to know about us. We
are here to teach people - that is our lesson on this earth. We will be
stronger spiritually for it. They won't. Have pity on them - they
know no better."
Another reader
whose husband has FMS/CFIDS wrote--
"I have seen first hand the frustration that fibromites experience
over the insensitivity of family and friends.
Unfortunately, my mother-in-law still believes that diet, and a change in scene
(going to their house which is a long distance away) will make my husband
better. The last time she came to visit, my husband started shaking and
stuttering so badly I was afraid that he was going to have a heart attack.
He told me after, that he never wants her to come to visit again. It is so
sad. She seems to know it all, but knows so little. She only takes
out bits and pieces from literature that I send and wants to make him
well. Oh well, our heavenly Father knows all things and He will provide.
'Give your burdens to the Lord, and He will take care of you.' (Psalm
55:22) Don't let the ignorance of others get you down. I will
continue to love and support my husband unconditionally, just as your husband
loves and supports you."
Here was the letter
I sent to close friends and family on May 12,
2009--
Dear Family and
Friends,
Today, May 12, is Fibromyalgia
Awareness Day, so I am writing to the important people in my
life.
I don't want to bore you with
details, but I feel that some explanation of my behavior is necessary since
I don't look sick. FMS/CFIDS is a chronic, invisible illness. My
experience with fibromyalgia began in June of 1982 www.fms-help.com/fibro.htm. Five years later, I developed chronic fatigue
syndrome www.fms-help.com/fatigue.htm after a lengthy viral illness. I
believe that FMS/CFIDS is a breakdown of immune and nervous system
function. I have a severe sleep disorder, debilitating
fatigue, cognitive difficulties, and susceptibility to viral and bacterial
infections. I experienced continual pain during the first 14 years of
my FMS, but that is gone now, thankfully. There are degrees of
FMS/CFIDS - some are able to work, while others are bedridden. Some people
vacillate between the two extremes, like me.
As an advocate since 1996 for
people with Fibromyalgia (FMS) and Chronic Fatigue & Immune Dysfunction
Syndrome (CFIDS), I have a website at www.fms-help.com. Perhaps you know of other formerly active
people like me who have been side-lined by this disabling condition. A
list of occupations my readers had when they became afflicted with FMS/CFIDS is
at www.fms-help.com/occupations.htm. We are a diverse group. Contrary to current
TV ads, there is no "cure" for this illness.
I had the FMS/CFIDS managed fairly
well until I worked in toxic mold in 2005 www.fms-help.com/mold.htm. Since then, I have gone downhill. One of the
problems affecting my relationships is that I can't travel more than 30 minutes
by car without collapse. The inability to travel has cut me off from
family and friends that I would love to see. My social life is
"zero." I have to save my limited strength for the necessities - work
(part-time piano teacher), church (playing organ/piano), and home
responsibilities. However, I am very thankful for the functionality I
do have, and the many helps I have found along the way www.fms-help.com/what.htm. I realize that many people have much worse problems
to deal with, so I am not complaining! I am also blessed with a loving and
compassionate husband who knows what I go through on a daily basis and has been
unwaveringly supportive of me and others with this illness.
Every now and then, I have a good
day and feel like a "normal" person. Life is easy! It's
great! However, I can never plan ahead. I used to play
the piano for weddings and special events, but now I never know when I
will be functional. I have had to cancel out of so many social events at
the last minute, that I have found it is better not to promise, than to
disappoint others and myself. Here are some brief articles that
explain FMS/CFIDS:
An open letter to anyone who has a
fibromyalgia patient in his or her life
by Karen Richards
When You See Me
poem by Mary Hastings
Dominie's letter to Congress
2006
My Name is Fibromyalgia
classic article by Terri
Been
Thanks for reading this. I
hope you have a good day. I sent you this email because you are important
to me, and I care about how my illness affects our relationship. God
bless you for your kind understanding!
Dominie
11. MAYO
CLINIC PIANO
An older couple walked into Mayo Clinic and
spotted a piano in the atrium. They have been married 62 years and he will
be 90 soon. They are charming! As a lifelong pianist, I enjoyed
this so much - it will put a smile on your face!
12.
DOXYCYCLINE
From a reader--
"I just saw
an advertisement for a new treatment for rosacea.
40 mg of
doxycycline! In my opinion this may represent a
superb
opportunity to finally get an effective treatment for
CFIDS, FMS,
arthritis and other chronic inflammatory
mycoplasma infections. All
it should take is getting some
folks to ask their doctor for an off-label
prescription. This
low dose treatment is "not for use as an antibiotic" (in
a
"sub-antimicrobial activity" dosage) so the age old mantra
of fear
mongering warnings about over-prescription of
antibiotics may finally have a
loophole in it now. (the real
problem is not over-prescription, it's idiotic
standardized
courses that are too short in duration, often because of
the
side effects of too high of a dosage) Low dose long
duration antibiotics are
the perfect thing to help curtail
slow growing chronic mycoplasma infections
and the
hundreds of accompanying symptoms and "syndromes".
The biggest
problem I can see with this is the potential for
secondary fungal (and yeast)
infections, but there are many
effective alternative treatments for this
common side effect.
Probiotics like Three-Lac, and JarrowDophilus,
Undecyn,
Grape leaf extract, Digestive enzymes, etc.. Also this being
such
a low dose of doxycycline should help prevent this
from being a major issue
as shown by early studies.
http://tinyurl.com/LoDoseDoxy or
http://dermatologytimes.modernmedicine.com/dermatologytimes/article/articleDetail.jsp?id=383309
Who cares if they don't understand
how it works? Finally,
something that potentially could be of use for the
thousands
of sufferers of many kinds of chronic
illness."
13. RISING
TO THE CHALLENGE
From a
reader--
"One thing I've learned with FMS. You
seem to always get through the important things that come up, and you deal with
them....but when all is said and done you crash."
FROM DOM:
Maybe it's my age plus FMS/CFIDS, but I can't even rise to the challenge
anymore. I have to carefully orchestrate my life (work / church / home) to
not overload the circuits. Stress is our worst enemy www.fms-help.com/tips.htm.
14. MOLD
& FMS/CFIDS
I hear from readers who
have discovered, as I did, that mold exposure (in their home or workplace) makes
their FMS/CFIDS just debilitating! Here's my experience about
working in a moldy building in 2005: www.fms-help.com/mold.htm. I
have still not fully recovered my health to where I was at before the mold
exposure. I feel sorry for fibromites who are living in moldy conditions
who cannot change the situation. It's impossible to feel better if you
live or work in mold and happen to be in the 25% of the population who is highly
sensitive to mold, like I am.
15.
XYREM
From a
reader--
"I had sleep lab test done. They found
I get Zero amount of REM sleep. So, I take Xyrem for
sleep. I have been taking it for about a year. It literally
knocks you out and yes you do get REM sleep with it. I tried
Trazodone. I like Xyrem better. It is a cleaner med, and leaves no hang
over or weird side effects. It is the most
controlled med in the country. Only one pharmacy in St Louis is allowed to
dispense it. It is what they used to call 'date rape
drug'."
16. SLEEP IMPROVED
From a
reader--
"Since I'm now
taking two scoops of the immune balancing powder, my sleep has
improved."
17. SUICIDAL
THINKING
From a reader--
"I feel for the person who wrote on suicide
www.fms-help.com/051409.htm.
I had a friend pray for me to get Satan out of my life, because of all the
suicidal thoughts. It is only the fact that I dont want to disappoint God,
and my belief in Him, and dont want to go to hell, if it is worse than the hell
we go through every day...that sometimes stops me from taking that final
step. Then the next day, I cant believe I was so suicidal, and say now I
had done it? I have to remind myself how much Jesus suffered. It
just makes a difference to some people who for example, have cancer, knowing
that the disease has an end, but ours does not."
18. OLDEST PERSON
WITH FMS/CFIDS
From a reader--
"There has been much research lately on the physical
effect/affect (cant remember which is which) of fibro on the brain. Do you
know of any research which is related to the average maximum age of fibro
sufferers. I just cant see, that if it is killing part of your brain
a little at a time, and 6 times faster than the average person, that one would
live to be 80 or so. I personally don't know of anybody older than 60 with
it."
FROM DOM: I have heard from
readers in their 70's and 80's. However, I don't know the oldest age of
someone with FMS/CFIDS. I take into account that many people
over 80 are not familiar with computers, which is how they would be able to
contact me, so that would affect the data I receive.
However, I do hear from people caring for an elderly mother with
FMS/CFIDS, as well as people writing in behalf of a child with this
condition. If you have info, please write dombush@bellsouth.net with the age of the OLDEST person you know with
FMS/CFIDS. It would be interesting to know what we finally die from, and
if it's related to FMS/CFIDS or something else. This would be an important
study for a researcher - to keep track of people with FMS/CFIDS for the
next 20-30 years, and keep a record of "cause of death.
Here are some articles I
found:
19. CAUSES OF
CFS
The exact cause of chronic fatigue syndrome (CFS) is unknown.
Some researchers suspect it may be caused by a virus, such as Epstein-Barr virus
or human herpes virus-6 (HHV-6). However, no specific virus has been identified
as the cause.
Studies suggest that CFS may be caused by inflammation along the
nervous system, and that this inflammation may be some sort of immune
response or process.
Other factors such as age, prior illness, stress, environment,
or genetics may also play a role.
CFS most commonly occurs in women ages 30 to 50.
The Centers for Disease Control (CDC) describes CFS as a
distinct disorder with specific symptoms and physical signs, based on ruling out
other possible causes. The number of persons with CFS is unknown.
20.
FMAWARE.ORG
From a reader--
"Thank you that your newsletter had that
www.fmaware.org
website. I was
unaware of that fibro awareness site!
I read this
webpage and was taken aback by the familiarity of some it.
Helloooo?stress, sleep problems, irritable bladder, headaches and migraines,
impaired memory, Raynaud's Syndrome. Whoa, all me! Well, at least I
am so thankful that I have the muscle aches and severe joint pain managed
now. Anti-oxidants like effervescent vitamin C, and antimicrobials like
olive leaf extract make a huge difference for me which tells me it is an
infection (sort of like Lyme?s disease is a rickettsial
infection).
I have no doubt that in a decade they will determine
that fibro is a chronic infection (probably mycoplasma) and have a
quick cure just like they do for Lymes now. So sad that I see women in my fibro
support group that can barely walk, yet there they are sipping on a
diet
soda! If they would change what they put in their bodies they
would find some relief, I?m living proof. But when you start talking herbs and
natural antimicrobials, nobody listens. I took my rheumatologist some
journal
articles from the Journal of Rheumatology that significantly
pointed to a mycoplasma connection to fibromyalgia, he politely told me
twice that he didn?t want to read/photocopy them, nor would he order a
mycoplasma test for me. Bizarre, that
even good doctors can
be so closed-minded. He?s a super rheumatologist. Anyway,
I?ve gotten mostly healthy on my own with OPC-85, Saventaro, olive leaf extract,
greens with dietary enzymes, etc. and I am doing really well as far as lack of
pain the vast majority of the time. That didn?t used to be the
case!!! I honestly believe if we could get every fibro gal we know off of
soda and junk food, and onto a low-meat, organic diet with the following regime
that we could change America. It sounds like a lot, but I actually take
numerous supplements every day, I?m used to it. I still have sleep
disturbances and irritable bladder, but my muscle pain and joint aches are much,
much less."
21. 100 TIPS FOR COPING WITH FIBROMYALGIA &
INSOMNIA
22. "HEALTHIER WITHOUT WHEAT"
New
book recommended by a friend--
FROM DOM: You can search my past newsletters
at www.fms-help.com/newsletters.htm for references to gluten intolerance and celiac
disease, which are sometimes mistaken for
FMS.
23. ASHAMED TO HAVE
FIBROMYALGIA
From a
reader--
"There are doctors out there (though too few) fighting very
hard to establish a respect for the medical diagnosis
"Fibromyalgia." I am so ashamed to tell people I
have fibromyalgia because of the reaction I have gotten from people in the
past. I often just say I have arthritis or lupus because it is
easier. When you say you have arthritis or lupus no one says "well I hurt too
all the time but I just have to work through it." or the many other hurtful
remarks or questions posed. I have lost so much to this illness: the
opportunity for a career, the wellbeing to pursue my interests, the option to
raise my teenage children, the ability to continue pursuing a higher education,
the freedom to drive, the certanity of my future, my right to plan ahead
my relationships with friends and family...the list is so long. It is not
fair to experience so much loss and then have to argue with what should be your
support system and to suffer the loss of our dignity too! But it helps me to
know that my doctor John B. Winfield M.D. http://medicine.med.unc.edu/divisions/rheumatology-allergy-immunology/faculty-profiles/john-b-winfield-md has
been viciously working to educate family, friends, the public and most of all
other doctors by publishing well supported medical articles about the
neuroscientific facts and the medical significance of ours and other pain
syndromes. You can find some of his work at emedicine by just entering the
search words FMS or fibromyalgia. He speaks up about our experience with
judgmental and inadequate health care providers. If the field of medical care
providers can have their perception changed I believe they would influence the
general public to also respect this as a legitimate illness. Anyway, I share
your pain and sorrow about people's misunderstanding."
24. AVOID SOY MILK
From a
reader--
FROM DOM: I had to give up
cow's milk years ago due to respiratory allergies and weird hormone
reactions. I switched to Rice Dream Original Rice Milk to use on cereal
and for making my immune shakes. I tried soy milk but didn't care for
it. A lot of people with FMS/CFIDS have soy sensitivity - read
my 100 Tips for Coping with Fibromyalgia at www.fms-help.com/tips.htm.
25. DON'T WASTE MONEY
ON THE ELDERLY?
Link from a
reader--
http://www.onenewsnow.com/Blog/Default.aspx?id=527884 - "This is a sentiment heard more and
more these days - because the elderly are such a drain on society we should just
come up with a way to better manage the growing elderly segment of
society......[note] the statements of Baroness Warnock in Britain who believes
that people should soon be "licensed to put others down" if they are
unable to look after themselves. Why should the government
waste money on the elderly (or the terminally ill or senile) who won't live for
very long anyway. Those resources could be better spent on other younger,
more deserving people, right? I am afraid that this scenario is
exactly what will have if a national health care system comes to
pass. Watch the video."
26. DOM'S
UPDATE
I'm busy and doing fine, but
had a rough spell last Saturday night. Took my sleep meds too
early, hoping they would clear my system by Sunday morning when I play the piano
for church and have to be wide awake and alert. For some reason I didn't
fall asleep until 3 a.m., woke up at 6 a.m. and couldn't go back to
sleep. Grrrr! (I know you know the feeling!) Felt weird
all day - hard to get through 2 services and choir practice without sufficient
sleep. Tried to nap in the afternoon, but it didn't happen...actually
never does. Sunday night I took my sleep meds later and slept fine.
For some reason, my system rebels against being a morning
person. I've been like this all my life...I'm now 57.
Thankfully, nights like last Saturday are rare for me anymore.
My fibro began in 1982 after a
year of sleeping about 2-3 hours per night due to severe job and home
stress. My insomnia story is at www.fms-help.com/insomnia.htm.
My sleep disorder began when I was 16, over 40 years ago.
A list of things I use to make my life more comfortable and functional is at www.fms-help.com/what.htm. I
have 100 Tips for Coping with FMS & Insomnia at www.fms-help.com/tips.htm, and there
are lots of FASCINATING articles about FMS/CFIDS on my homepage at www.fms-help.com.
I hope everyone is having a
reasonably good week. I'm thankful we have the internet to do medical
research and connect with others. The internet was not available in 1982
when I was first diagnosed - such a lonely, confusing time of pain,
losses and misunderstanding. See www.fms-help.com/interview.htm where I answered questions about life as
a "fibro-newbie."
This Memorial Day
weekend let us remember our brave military personnel who died in the service of
our country. "You gave up all your tomorrows so that I could have mine.
Thank you!"
"Greater love hath
no man than this, that a man lay down his life for his friends." John
15:13
Dominie
II Corinthians 1: 4 - "Who
comforteth us in all our tribulation, that we may be able to comfort them which
are in any trouble, by the comfort wherewith we ourselves are comforted of
God." Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for
Fibromyalgia and Chronic Fatigue Syndrome sufferers and their
families.
Return
to Dominie's FMS/CFIDS Home Page
DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.
