Few health recommendations have
had as damaging an effect as the advice that you should never leave your house
without sunscreen. Wearing sunscreen effectively blocks your body’s production
of vitamin D, which happens naturally when your skin is exposed to sunlight. In
fact,
sunscreens reduce vitamin D production by as much as 97.5 to 99.9
percent. The widespread acceptance and adoption of this faulty
doctrine has
contributed to severe vitamin D deficiency on a grand
scale, which in turn
claims
about one million lives a year from 16 different types of cancer and other
common diseases."
19. THE HEART ATTACK GERM
From a
reader--
20. SEROQUEL
My doc
recently recommended Seroquel for sleep. It is an anti-psychotic, mostly
used for bipolar and schizophrenia www.seroquel.com. Has anyone tried Seroquel for insomnia? Write
dombush@bellsouth.net.
21. NEED A CHUCKLE?
22. FIBROMYALGIA AND THE ATTEMPT TO FORCE IT INTO A "DISEASE"
CATEGORY
"Things are going to
get a lot worse before they get worse." - Lily Tomlin
Very
insightful article by fibromite, Barbara Keddy, about fibro and a hyper-aroused
nervous system. This article reminds me of the book I read recently called
HIGHLY SENSITIVE PEOPLE. It's just the way we are wired. Also, see
my pages about the central and autonomic nervous systems - look in the yellow
box on my home page at www.fms-help.com.
23. "HIGHLY SENSITIVE PEOPLE"
Well,
here's a website describing the traits of high sensitivity that most fibromites
seem to have too http://www.highlysensitivepeople.com - maybe one day medical science will find out if these two
conditions are related (or not??)
24. ASHOK GUPTA'S AMYGDALA RETRAINING THEORY
From a
reader--
"I'm not out of the woods yet, but
after about 4 months following Ashok Gupta's techniques www.guptaprogramme.com,
I feel alot stronger, less brain fog and less muscle twitching.
I was diagnosed with FMS about 10 years ago (1 year after a whiplash
accident). Then two years ago suffered a bout of optic neuritis with some
vision loss, ongoing neurological issues, and ongoing eye pain. I did test
positive according to IGENEX for Lyme exposure. (There is no fully accurate test
for chronic lyme disease). But given my family history (mother with IBS/FMS,
sister with interstitial cystitis, nephew borderline autism), I was not
convinced lyme/ long term abx treatment was the answer. I am leaving that
as a last resort. I followed an herbal lyme (Dr. from NYC) protocol
for 8 months, but that did nothing. I also tested positive for
fungal/candida according to a great plains lab test. I did 5 months
of a candida diet and antifungal drug (nystatin) for about 4-5 months. The
end of the candida treatment overlapped with my start of Ashok's program.
I am continuing the candida diet while on ashok's program, but I'm
pretty sure his program is making a difference. Ashok's theory does make
a lot of sense to me and his tapes are excellent. It does require a
time commitment and discipline to do his "exercises" every day /throughout the
day. I haven't been as disciplined as I should given I work full time
(mostly from my home) and have children, garden, etc , etc. I feel
better now than I have in a year. I will report back in on my progress
after the full 6 month protocol. Ashok has a 6 month money back
guarantee, so no risk to you but your time. I am also in the process of
getting my amalgams safely removed and have had some major dental work
which under past circumstances would have set me back/had a reaction to, but I
fared really well through all of the dental work so far while practicing Ashok's
techniques! All of us know stress is a key component of this illness and
worsens the symptoms, brings onset of new symptoms, etc.... so his theory
seems sound to me/makes sense."
I've
discussed Ashok Gupta's theory in previous newsletters www.fms-help.com/newsletters.htm -
made sense to me. So glad this reader is having success with it.
Stress is definitely a trigger for this illness - both the onset and subsequent
flares. You can now view
a FREE online video course about the causes of ME/CFS and FMS. The videos are
from the first 3 sessions of the Gupta DVD Programme - go to
www.guptaprogramme.com.
25. LYME DISEASE
MASQUERADING AS FMS/CFIDS
From a
reader--
"Five years later and three Rheumatologist I was diagnosed
with Fibro. None of the medications worked for me for the R.A. or the
Fibro. And something else that was weird, everything was happening to
me on my right side. I ended up going to five different Rheumatologist and
not one ever suggested that I be tested for Lyme Disease. One of the
people I had gotten acquainted with, we had both been diagnosed with R.A.,
had gone to an Infectious Disease doctor and was tested for Lyme and was
positive. She called and suggested I be tested. After two years
on antibiotics I was better but a long way from getting well. The
doctor began testing all the patients that weren't getting well for the
co-infections. I tested negative for all of them. But
he suggested I go on the meds for them anyway.
Even though one of the medications cost $1,000
a month I decided to give it a try. (Thank God for credit
cards) In three months I felt normal for the first time in 15
years. Because of the cost and by this time I was in the donut
hole with my insurance I went off the miracle meds. In a month
I was back in pain and fatigue. I'm back on the meds and look
forward to being without pain again. My doctor says that
60% of those diagnosed with fibro have Lyme Disease and
possible a co-infection. Only if everyone would get tested.
Although being tested once isn't enough. Most lab techs just do not know
how to do the correct testing. My doctor sends his test to a lab in
N.J. So everyone needs to do some research on the lab that is doing the
testing. It is so important to getting well. You can not
just put it in the hands of doctors and labs. So few know about
Lyme Disease. You could have been bitten as a child and
it go dormant and become active after a stressful event. The coinfection I
have is Babesia and by the way it can affect the body only on one side. If
not taken care of it's fatal. Once I began to research it it all began to
fall in place. I have a good doctor but I have learned more from doing
research than I have from him. In fact he gave me his email address so
that I could send him the reports that I consider excellent."
Now that's a good doc! BTW,
I have mentioned Lyme disease numerous times in this newsletter - search
the archives at www.fms-help.com/newsletters.com. How many of us have been bitten by a tick? I know I
have. Write dombush@bellsouth.net about any tick or
Lyme-related personal experience - I already have a lot of technical info about
it, just interested in what you have found that helps.
26. "BUT YOU DON'T
LOOK SICK"
There are many good articles on my
FMS/CFIDS/ME homepage at www.fms-help.com that you can share with
people who don't understand what's wrong with you.
I now just say "I have a central
nervous system disorder." This usually scares them off or sounds too
baffling to pursue with too many more questions. Only a very
few people in my life actually CARE what FMS/CFIDS is and will listen long
enough for me to explain. Frankly, unless they have a medical
degree, it's just too complicated. (BTW, my brother
says I'm older than my mother - she's 86, runs circles
around me and still travels cross country to see her sister in a nursing
home.)
27. LYRICA LINKED TO
SUICIDE
From a
reader--
28.
BIOFREEZE
From a
reader--
"I have been using Biofreeze in gel,
spray and roll-on. Without it I would could mad for the pain in the area
of the trapezius muscle in my back. I get it off the internet and it
has saved my life."
29. CALIFORNIA
DOCS
From a
reader--
"I just wanted to pass
along some treatment resources for patients in California: 1)
Dr. Michael Powell in Sacramento. He has a
structured treatment protocol that begins with yeast and immune system
resolution. His website is : http://www.fmtlc.com/index.html
which explains latest research and treatment for CFIDS/FMS. He
works with much of the Teitelbaum treatments, and does accept some major
insurance plans. 2) Dr. Kent Holtorff, an
endocrinologist based in Torrance in Southern California. They will
be opening an office in Northern California in the next month or so. His
website is: http://www.holtorfmed.com/.
Unfortunately, Dr. Holtorff does not handle patient insurance. Both
doctors have conducted current research and have extensive experience with the
CFS/FMS conditions. And, both doctors have seen dramatic improvement
or even resolution of these conditions in their
patients."
30. DIET & FIBRO
PAIN
From a
reader--
"When I went on a diet of organics (as much
as possible financially), stopped pork products, no breads, no sugars or
sweeteners, I was feeling pretty good. It was hard! I have
been off of it for awhile now and am feeling it! I wrote you before about
Dr. Pompa and how he healed himself of chronic fatigue and helps others with
fibromyalgia...and other like diseases."
31. CORTISOL &
ADRENAL FATIGUE
"I was wondering if you or any readers have any advice
about
adrenal fatigue and cortisol levels. I just took
the adrenal saliva test and I learned
my adrenals are barely
functioning. No surprise. My cortisol is up too. I am
bloated, gaining weight, and feeling more sluggish than ever. Treatment is
$50/visit and doc wants me to go 3xs/week. Quite honestly, I can't afford
it. Will health coverage even cover something like this? I
know most health professionals are still skeptical of Fibro
related issues which drives me crazy. Doc said, I am a
"sick
chick" and she can't turn me away. Maybe you or a reader could
offer advise. Doc also suggested an all organic diet as I am having
intestinal troubles. Hoping someone out there can help. Thank you so
much! - Christy
webpaige118@comcast.net."
32. VIROLOGIST
DISCOVERS CAUSE OF CFS!
Dated June 22, 2008
A Protein from a Common Smoldering Virus Linked to Chronic
Fatigue Syndrome and Depression