DOM'S NEWSLETTER
www.fms-help.com
 
July 18, 2008
 
A compassionate, informative newsletter for people with Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS), and Myalgic Encephalomyelitis (ME).  
 
II Corinthians 1:4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble,
by the comfort wherewith we ourselves are comforted of God." 
 
TOPICS ARE IN PURPLE.  READERS COMMENTS ARE IN BLACK.  MY COMMENTS ARE IN TEAL.
 
I tried to make this newsletter easier to read by leaving more blank space between topics.  
Check out the topics in PURPLE.  I marked VERY important ones in RED!

 
1.  READERS WRITE
 
 
"I am in shock at how close to home your article www.fms-help.com/fibro.htm hits with me."
 
"Thank you, thank you, thank you for your wonderful website on Fibromyalgia.  It has helped me tremendously. I have found the "100 Tips for Coping with Fibromyalgia" www.fms-help.com/tips.htm very useful."
 
"Your newsletter is a saving grace and I feel you have a genuine concern for others."
 
"I'm overwhelmed by all you have written. It's amazing!"
 
"Thanks for putting your site out there for us, and doing it in a way an average person can read it!  I have dyslexic issues and find many things I read just too hard to comprehend. I am also chronically ADHD, but I am serious, your page kept me reading for 17 minutes at a time....I didn't leave it out of boredom, more like from the pain of sitting at my computer!!"  
 
"I read your website www.fms-help.com with great interest."
 
"Sometimes I think I am doing well and then I have a day like today, when for whatever reason I feel like hell."
 
"I am so-o-o thankful for your newsletter.  I don't even remember how I happened upon it, but I read it all the time and I have passed your site www.fms-help.com address on to fellow sufferers of Fibro/CFS." 
 
"Thank you for the newsletter!  It is wonderful.  A little overwhelming at times, but great."
 
"I love your newsletter because it lets me know there are so many other people out there with the same problems I face each day."
 
 
 
 
2.  SLEEP MEDS DON'T WORK ANYMORE
 
From a reader--
 
"I'm going to take my second sleep analysis soon.  I was wide awake until 3 a.m. for the last one, so they sent me home with no results!  I have been using Sleep Link and L-Theanine from the Pain and Stress Center online successfully for several months, but it seems that things usually wear off in time."
 
See my list of things I've tried for sleep www.fms-help.com/sleep.htm.  My current list is at www.fms-help.com/what.htm. 
 
 
 
3. "SMOKING TEETH"
 
From a reader--
 
"The reason that fibromyalgia and chemical sensitivities hit at around age 40, and soemtimes sooner, is because that is when most of the mercury from our amalgams has left our tooth fillings and gone into all of our tissues organs and systems.  That process takes approximately 25 years.  Every time someone with mercury fillings chews, grinds his teeth, or drinks hot liquids, enough toxic mercury vapor is released from each mercury filling to cause OSHA to close down your mouth, if it were a workplace!  At that point, it is ingested and goes into the body and brain.  See the video, "Smoking Teeth" at  www.iaomt.org.  Due to a lawsuit brought by www.toxicteeth.org, the FDA will now have to abide by a 32-year-old court order to classify dental mercury amalgam.  Public comments on this issue are being taken until 7/28 at www.regulations.gov2.  Put "FDA 2008-N-0163" in the box on the page and be sure and demand that the FDA make mercury amalgam a class III dental device.  That way, the burden of proof for it's safety will fall on the amalgam manufacturers, and not on innocent and unwitting consumers who have NOT even been told that their "silver" fillings are actually 50+% mercury!  (Labeling fraud!) Since there is no scientific study proving mercury amalgam's safety, in the 170 years of it's use, it is unlikely that manufacturers will be able to prove it is safe.  This is why it has never been classified, to keep it on the market for the American Dental Association, which was formed as a trade association to protect dentist's rights to use this cheap, poisonous garbage as dental filling material.  They are in cahoots with the FDA, but are now pitted against each other in this current battle over dental mercury amalgam."
 
My mouth is paved with mercury.  Also have a gold crown.
 
 
 
4.  COCONUT OIL
 
From a reader--
 
"I need extra fat in my diet to keep me from getting too weak and hypoglycemic and I know fat helps with this, but Coconut oil has not been a cure or a significant help. Any fat works for me."
 
 
 
5.  CYMBALTA WITHDRAWAL & SIDE EFFECTS
 
From a reader--
 
"Suffering from Cymbalta Withdrawals? Discuss the symptoms and side effects that other members here are experiencing and how they got through this. http://www.cymbaltawithdrawal.Com/viewforum.php?f=4  I was led to it from here: http://www.whatwinnersdo.Com/severe-Cymbalta-withdrawal-symptoms."
 
Wow.  This makes me even more thankful for the many "natural" things I use to help me function.  It is not entirely possible to  avoid prescription drugs, as you can tell from my personal list at www.fms-help.com/what.htm, but I sure try.  Here's the "official" Cymbalta site http://www.cymbalta.com/fibromyalgia.jsp explaining how Cymbalta is supposed to help fibro.
 
 
 
6.  OXYGEN THERAPY
 
From a reader--
 
"Your doctor is very mistaken if he will not prescribe oxygen therapies for you- oxygen kills viruses, we all need to be doing regular oxygen therapies whether it is hyperbaric, infrared saunas with ozone, etc etc etc.  I know of a place in NJ and also NYC if anyone needs help in finding places to do oxygen based treatments. - Jo"
 
 
 
7.  DANGEROUS NEW CFL LIGHTBULBS
 
From a reader--
 
"THANK YOU for the You Tube video www.fms-help.com/070808.htm on the dangers of mercury filled energy saver lightbulbs.  I will NOT use these!  What is wrong with our government? These bulbs are so dangerous, and should they break, nobody would be able to easily follow the procedure to safely protect herself from the mercury!  Most of America does not even recycle, so all this mercury will end up in landfills!"
 
Home Depot will be the recycling center for these CFL bulbs.  You can't just "throw them away" when they break.  There are special safety clean-up procedures due to mercury exposure if they break in your house - take them to Home Depot to recycle.  http://articles.mercola.com/sites/articles/archive/2008/07/17/home-depot-recycles-compact-fluorescent-bulbs.aspx?source=nl
 
 
 
8.  VEGAN DIET
 
From a reader--
 
"Re: Topic 18, www.fms-help.com/070808.htm - (Quote from a reputed health leader: "No vegetarian diets if you’re over 35!  Hormones suffer on vegetarian diets.")  Wow, that’s about the WORST advice I’ve EVER come across as a PWC. I owe my life to following a Vegan diet. While everyone else suffers from FMS that I know with CFIDS, I experience no pains at all. For MANY years it baffled me what it was about Vegan that made me so much healthier than all the other PWCs I’ve ever met, then I started reading about alkaline and non-inflammatory diets. Now it’s a no brainer! Geez, you even reference the alkaline connection below on point 16. As for hormones, before being a Vegetarian I suffered crippling pain during menstruation. I also had chronic bladder infections. I can’t even begin to emphasize the radical improvement in my health thanks to my diet, and I’m a 45 year old female. I would STRONGLY encourage you to do more homework on this before posting such a strong statement like that. I wouldn’t believe anything your source says and I wonder what agenda they have. I can’t tell you how many times I’ve heard a falsehood like that stated not only without any scientific evidence to support it, but on the contrary…. When all the scientific evidence proves Vegetarian and Vegan diets to be the healthier option in study, after study, after study. Thank God I didn’t read that before I became Vegan!  Coincidentally, I heard in the news today how kids as young as 8 years old have to take anti-cholesterol meds due to the horrendous meat/cheese diets their parents shove down their throats. It’s horrible!  This is one of the best Health Sites I know of: PCRM  http://www.pcrm.org.  They do fantastic work, offer free online classes every Thursday to help people either cure or treat their Diabetes. They have a reference section on their website, so that you can look up scientific studies and various conditions.  Here’s a study on Arthritis and mentions FMS: http://www.pcrm.org/health/prevmed/latest/arthritis.html"
 
 
That's great!  Interestingly, I have not changed my diet much (just avoid a few things), but have been pain free since 1996 (after 14 years of suffering with fibro pain).  I have some pain suggestions at www.fms-help.com/what.htm.
 
9.  8 DRUGS DOCTORS WOULD NEVER TAKE
 
http://articles.mercola.com/sites/articles/archive/2008/07/08/8-drugs-doctors-would-never-take.aspx?source=nl
 
 
 
10.  HYPERBARIC OXYGEN 
 
From a reader--
 

"About oxygen- I found this article that talks about %oxygen levels in people who require home oxygen:  http://www.pcca.net/HomeOxygen.html

My question is- why don't they test our oxygen levels during or just after exercise?  I read somewhere that CFS patients often have elevated nitric (not nitris) oxide levels after exercise and this lowers oxygen availability to the muscles and leads to prolonged recovery time after exercise.  Maybe if you were tested after some exertion (whatever level is safe for you) the Doc would find a reason to prescribe oxygen.

I USE A MILD HYPERBARIC CHAMBER AND OXYGEN CONCENTRATOR

My father has chronic Lyme and I have CFS.  When I was so debilitated I that felt like I was dying (literally) he and I pooled our resources and bought a soft sided mild hyperbaric chamber.  We aslo bought an oxygen concentrator to go with it.  My father got the script from his doctor  to use it to treat Lyme . 

I go in the chamber and breathe 95% oxygen through a mask while under 4 PSI pressure which is around 1.5 ATA. (Sorry, I don't know exactly what ATA stands for, I only kow that it measures air pressure.)  I went in it twice a day for one hour each session in the beginning when I was so miserable.  Now I go in it once a day or sometimes twice if I feel like it.

Does it help? Yes, I believe it does.  I think it works to help in at least three ways:  it supplies oxygen to the brain in a way that  breathing oxygen alone cannot do, it reduces inflamation in the brain and other parts of the body, and it helps fight yeast.  (It is also supposed to help kill off microorganisms like Lyme.)

Healthy people say that a session in the chamber helps the sleep like a baby at night.  Well, is hasn't done that for me yet.  I have had about three months of sessions in the chamber so far.  My sleep is starting to be more restful, but it is still fragmented, and most nights I sleep 4 or 5 hours.  I tried melatonin but it didn't seem to help much.  I am not on any sleep med right now.

I have not tried breathing the oxygen without being in the chamber so I don't know how helpful it would be that way, but the first two weeks we had the chamber we didn't have the oxygen concentrator, and breathing room air alone in the chamber still helped me.

It is my understanding that athletes breathe %100 oxygen sometimes to get a boost, but when they stop breathing it the benefit goes away.  With hyperbaric the benifit continues on after you leave the chamber."

 
 
 
11.  CHEAP FOOD
 
From a reader--
 
http://www.angelfoodministries.com
"This site provides discount food with no qualifications.  We tried it last month and found the food - while not exceptional - was acceptable.  It came frozen and wrapped.  It also contained canned good and dry packaged foods.  It is only available in certain states so check the web site to see if your state is participating in the program.  New states are being added all the time as well as new distribution sites.  There are no financial or income qualifications.  The only thing is you have to order by the dates on the sites and pick up the food about 2-3 weeks later. The usual distribution site is a church. "
 
 
 
12.  OVERSTIMULATED AMYGDALA
 
From a reader--
 
"I wanted to quickly comment on the over stimulated amygdala in your newsletter www.fms-help.com/070808.htm (topic #2). I went through significant emotional trauma when I was a young child. Like the writer in #2, I was super sensitive to fear and danger. I am wondering if this over stimulated my amygdala and one of the many reasons for my affliction with CMF/Fibro at such an early age (other than contracting the Epstein-Barr virus which also has contributed to my depleted immune system)?? I think your reader/writer (#2) is on to something. Thanks for sharing this!!!"
 
 
 
13.  GULF WAR SYNDROME
 
From a reader--
 
"I wanted to send this website to you http://www.projectdaylily.com that was sent to me by another fellow RA suffer who has mycoplasma infection.  I was diagnosed 12 years ago, did the antibiotic protocol and got well.  Now as you know, I have FMS, but am on the mend with that too.  [The info on this site] is scary stuff actually.  I know that mycoplasma exists, and it makes you very sick.  CFS was the first symptom, than came the RA symptoms."
 
 
14.  33 SECRETS TO A GOOD NIGHT'S SLEEP
 
 
These may not work as well for fibromites as for normal people with minor sleep issues, but there are some good ideas here.  Also read my 100 Tips for Coping with Fibromyalgia and Insomnia at www.fms-help.com/tips.htm.   A list of things I've tried for sleep is at www.fms-help.com/sleep.htm.  A list of things I use currently is at www.fms-help.com/what.htm.
 
 
 
14.  MONOLAURIN & LOW DOSE NALTREXONE
 
From a reader--
 
"I have been taking Monolaurin (lauric acid) by Ecological Formulas for about 5 years now.  I can't be without it.  The problem is--there is "die off' or "break-through" symptoms.  It took me about 2 months to work up to the 6 recommended.  I now take 2 or 3 a day.  Monolaurin is what has kept me going these past 5 years.  It was the first real break through for sore stiff muscles that I had since FMS symptoms 8 years ago.  Even my chiropractor noticed the difference in my muscles,  they were more pliable and much of the 'ropiness" in my thigh muscles went away!  It was awesome, believe me.  So, yes, lauric acid has worked for me.  This is what is found in the coconut oil, but more easier to take.
 
I have to tell you though, I am taking Low Dose Naltrexone now.  I take 3mgs and am on the 10th week of it.  What a difference that has made.  Yes, the first week was rough as I didn't get much sleep.  But, there is a support group for LDN and I knew what to expect.  Today I was to my chiropractor.  She looked at her computer and said--it has been a month since you have been in.  I have never been able to go more than 2 weeks with out her healing hands to move my muscles and work out the knots. They aren't there now like before.   I am doing sooooo well.  But---I still have to take the Monolaurin, too.  I tried stopping it and had to start up again. I think somehow it lubricates joints and muscle tissue.   Between the 2, LDN and Monolaurin, I think I have found my combination!!  Time will tell.  It is usually about aug. that I begin to get some flares--the changing of the season."
 
For more info on both monolaurin and low dose naltrexone, go to my newsletter archives at www.fms-help.com/newsletters.htm and use the SEARCH feature.  (Use quotation marks around words you want to search for specifically.)  A few years ago, I experimented with Monolaurin (Lauricidin) but kept having some kind of problem (I think I kept getting sick), so I had to quit in order to keep working (no sick leave).  But everyone is different.  There is a lot of experimentation we must go through with this illness to try to find something that helps us uniquely.   I've had FMS since 1982 www.fms-help.com/fibro.htm and CFIDS since 1987 www.fms-help.com/fatigue.htm, so I've had a LOT of time to try to learn things to manage my condition.  My FMS/CFIDS was managed fairly well from 1996 until 2005 but then 3 things happened that threw me under the bus: my father got sick died (which was terribly emotionally stressful for our whole family) www.fms-help.com/eulogy.htm, I was teaching in a very moldy building www.fms-help.com/mold.htm, and I caught a severe - almost deathly - respiratory virus that was going around the students and some of my co-workers.  Since 2005 - it's now July 2008 - I have had to claw my way back to health with the help of meds and supplements.   A current list of things that keep me functional is at www.fms-help.com/what.htm.   My main problem is the inability to travel more than about 30 miles without extreme fatigue, due to the physical jostling of travel and flickering light and objects passing by.  My brain can't process all these signals at once, and it wears me out to the point of collapse.  I did not have this problem until I was exposed to toxic mold.  A reader sent my MOLD WARRIORS by Dr. Ritchie Shoemaker, which was very helpful.  My only other complaint is that I haven't been able to sleep without meds in maybe 20 years.  My insomnia began 40 years ago when I was 16 www.fms-help.com/insomnia.htm.  Without my sleep meds, I'm sunk!  I don't sleep at all without meds.   Well, enough about me.......more good topics ahead in the newsletter.........


15.  SAMENTO
 
From a reader--
 
"I take Samento for immune support.  I have been taking this herb for four years and rarely come down with anything.  If I do, even shingles is gone in a day!  Samento is the world's strongest antiviral, antibacterial, antitumor, antifungal, antioxidant and antiinflammatory & has NO side effects!  One drop a day keeps me well and boosts my energy." 
 
 
 
16.  EMOTIONAL FREEDOM TECHNIQUE (EFT)
 
Watch video - http://www.mercola.com/forms/eftcourse.htm and there's a free manual you can download.  Has anyone tried EFT for FMS/CFIDS?  Write dombush@bellsouth.net
 
 
 
17.  CELEBREX
 
From a reader--
 
"My doctor  (who is a very good, thorough doctor) put me on Celebrex, which I’ve taken for a month and a half and hasn’t done a thing!"
 
 

18.  SUNSCREEN HAZARDOUS
 

It's summer.  This article is relevant to most of us--

http://articles.mercola.com/sites/articles/archive/2008/07/01/four-out-of-five-sunscreens-may-be-hazardous-to-your-health.aspx?source=nl

"Between sunscreen and bug repellant, you may be slathering your body with a 'toxic waste dump'. 

Few health recommendations have had as damaging an effect as the advice that you should never leave your house without sunscreen. Wearing sunscreen effectively blocks your body’s production of vitamin D, which happens naturally when your skin is exposed to sunlight. In fact, sunscreens reduce vitamin D production by as much as 97.5 to 99.9 percent.  The widespread acceptance and adoption of this faulty doctrine has contributed to severe vitamin D deficiency on a grand scale, which in turn claims about one million lives a year from 16 different types of cancer and other common diseases."
 
 
19.  THE HEART ATTACK GERM
 
From a reader--
 
http://www.theheartattackgerm.com/this%20just.htm#06-04-06
http://www.theheartattackgerm.com/what%20is.htm
 
 
 
20.  SEROQUEL
 
My doc recently recommended Seroquel for sleep.  It is an anti-psychotic, mostly used for bipolar and schizophrenia www.seroquel.com.  Has anyone tried Seroquel for insomnia?  Write dombush@bellsouth.net.
 
 
 
21.  NEED A CHUCKLE?
 
Check out this blog by fibromite, Barbara Keddy, who tried to take up bridge as a hobby.  I laughed so much!  She's a great writer and sure understands fibro too!  http://womenandfibromyalgia.com/2008/06/20/fibromyalgia-and-playing-the-game-of-bridge/
 
 
 
22.  FIBROMYALGIA AND THE ATTEMPT TO FORCE IT INTO A "DISEASE" CATEGORY
 
http://womenandfibromyalgia.com/2008/06/12/fibromyalgia-and-the-attempt-to-force-it-into-a-disease-category
"Things are going to get a lot worse before they get worse." - Lily Tomlin
 
Very insightful article by fibromite, Barbara Keddy, about fibro and a hyper-aroused nervous system. This article reminds me of the book I read recently called HIGHLY SENSITIVE PEOPLE.  It's just the way we are wired.  Also, see my pages about the central and autonomic nervous systems - look in the yellow box on my home page at www.fms-help.com.
 
 
 
23.  "HIGHLY SENSITIVE PEOPLE"
 
You've heard about the book by Elaine Aron www.hsperson.com
Well, here's a website describing the traits of high sensitivity that most fibromites seem to have too http://www.highlysensitivepeople.com - maybe one day medical science will find out if these two conditions are related (or not??)
 
 
 
24.  ASHOK GUPTA'S AMYGDALA RETRAINING THEORY
 
From a reader--
 
"I'm not out of the woods yet, but after about 4 months following Ashok Gupta's techniques www.guptaprogramme.com,  I feel alot stronger, less brain fog and less muscle twitching.  I was diagnosed with FMS about 10 years ago (1 year after a whiplash accident).  Then two years ago suffered a bout of optic neuritis with some vision loss, ongoing neurological issues, and ongoing eye pain.  I did test positive according to IGENEX for Lyme exposure. (There is no fully accurate test for chronic lyme disease). But given my family history (mother with IBS/FMS, sister with interstitial cystitis, nephew borderline autism), I was not convinced lyme/ long term abx treatment was the answer.  I am leaving that as a last resort.    I followed an herbal lyme (Dr. from NYC) protocol for 8 months, but that did nothing.   I also tested positive for fungal/candida according to a great plains lab test.  I  did 5 months of a candida diet and antifungal drug (nystatin) for about 4-5 months.  The end of the candida treatment overlapped with my start of Ashok's program.  I am continuing the candida diet  while on ashok's program, but I'm pretty sure his program is making a difference.   Ashok's theory does make a lot  of sense to me and his tapes are excellent.  It does require a time commitment and discipline to do his "exercises" every day /throughout the day.  I haven't been as disciplined as I should given I work full time (mostly from my home)  and have children, garden, etc , etc.  I feel better now than I have in a year.  I will report back in on my progress after the full 6 month protocol.  Ashok has a 6 month  money back guarantee, so no risk to you but your time.  I am also in the process of getting my amalgams safely  removed and have had some major dental work which under past circumstances would have set me back/had a reaction to, but I fared really well through all of the dental work so far while practicing Ashok's techniques!  All of us know stress is a key component of this illness and worsens the symptoms, brings onset of new symptoms,  etc.... so his theory seems sound to me/makes sense."
I've discussed Ashok Gupta's theory in previous newsletters www.fms-help.com/newsletters.htm - made sense to me.  So glad this reader is having success with it.  Stress is definitely a trigger for this illness - both the onset and subsequent flares. You can now view a FREE online video course about the causes of ME/CFS and FMS. The videos are from the first 3 sessions of the Gupta DVD Programme - go to www.guptaprogramme.com.
 
 
 
25.  LYME DISEASE MASQUERADING AS FMS/CFIDS
 
From a reader--
 
"Five years later and three Rheumatologist I was diagnosed with Fibro.  None of the medications worked for me for the R.A. or the Fibro.  And something else that was weird, everything was happening to me on my right side.  I ended up going to five different Rheumatologist and not one ever suggested that I be tested for Lyme Disease.  One of the people I had gotten acquainted with,  we had both been diagnosed with R.A., had gone to an Infectious Disease doctor and was tested for Lyme and was positive.  She called and suggested I be tested.  After two years on antibiotics I was better but a long way from getting well.  The doctor began testing all the patients that weren't getting well for the co-infections.  I tested negative for all of them.  But he suggested I go on the meds for them anyway.  Even though one of the medications cost $1,000 a month I decided to give it a try. (Thank God for credit cards)  In three months I felt normal for the first time in 15 years.  Because of the cost and by this time I was in the donut hole with my insurance I went off the miracle meds.  In a month I was back in pain and fatigue.  I'm back on the meds and look forward to being without pain again.  My doctor says that 60% of those diagnosed with fibro have Lyme Disease and possible a co-infection.  Only if everyone would get tested.  Although being tested once isn't enough.  Most lab techs just do not know how to do the correct testing.  My doctor sends his test to a lab in N.J.  So everyone needs to do some research on the lab that is doing the testing.  It is so important to getting well.  You can not just put it in the hands of doctors and labs.   So few know about Lyme Disease.  You could have been bitten as a child and it go dormant and become active after a stressful event.  The coinfection I have is Babesia and by the way it can affect the body only on one side.  If not taken care of it's fatal.  Once I began to research it it all began to fall in place.  I have a good doctor but I have learned more from doing research than I have from him.  In fact he gave me his email address so that I could send him the reports that I consider excellent."
 
Now that's a good doc!  BTW, I have mentioned Lyme disease numerous times in this newsletter - search the archives at www.fms-help.com/newsletters.com.  How many of us have been bitten by a tick?  I know I have.  Write dombush@bellsouth.net about any tick or Lyme-related personal experience - I already have a lot of technical info about it, just interested in what you have found that helps.
 
 
 
26.  "BUT YOU DON'T LOOK SICK"
 
There are many good articles on my FMS/CFIDS/ME homepage at www.fms-help.com that you can share with people who don't understand what's wrong with you.  I now just say "I have a central nervous system disorder."  This usually scares them off or sounds too baffling to pursue with too many more questions.  Only a very few people in my life actually CARE what FMS/CFIDS is and will listen long enough for me to explain.  Frankly, unless they have a medical degree, it's just too complicated.  (BTW, my brother says I'm older than my mother - she's 86, runs circles around me and still travels cross country to see her sister in a nursing home.)
 
 
 
27.  LYRICA LINKED TO SUICIDE
 
From a reader--
 
http://www.yourlawyer.com/topics/overview/Lyrica
 
 
 
28.  BIOFREEZE
 
From a reader--
 
"I have been using Biofreeze in gel, spray and roll-on.  Without it I would could mad for the pain in the area of the trapezius muscle in my back.  I get it off the internet and it has saved my life."
 
I have a favorite pain relieving gel also!  Write dombush@bellsouth.net for details.
 
 
 
29.  CALIFORNIA DOCS
 
From a reader--
 
"I just wanted to pass along some treatment resources for patients in California: 1)      Dr. Michael Powell in Sacramento.  He has a structured treatment protocol that begins with yeast and immune system resolution.   His website is : http://www.fmtlc.com/index.html which explains latest research and treatment for CFIDS/FMS.    He works with much of the Teitelbaum treatments, and does accept some major insurance plans.  2)  Dr. Kent Holtorff, an endocrinologist based in Torrance in Southern California.   They will be opening an office in Northern California in the next month or so.  His website is: http://www.holtorfmed.com/.  Unfortunately, Dr. Holtorff does not handle patient insurance.  Both doctors have conducted current research and have extensive experience with the CFS/FMS conditions.  And, both doctors have seen dramatic improvement or even resolution of these conditions in their patients."
 
 
 
30.  DIET & FIBRO PAIN
 
From a reader--
 
"When I went on a diet of organics (as much as possible financially), stopped pork products, no breads, no sugars or sweeteners, I was feeling pretty good.  It was hard!  I have been off of it for awhile now and am feeling it!  I wrote you before about Dr. Pompa and how he healed himself of chronic fatigue and helps others with fibromyalgia...and other like diseases."
 
 
31.  CORTISOL & ADRENAL FATIGUE
 
Please reply directly to Christy webpaige118@comcast.net--
 
 "I was wondering if you or any readers have any advice about adrenal fatigue and cortisol levels.  I just took the adrenal saliva test and I learned my adrenals are barely functioning.  No surprise.  My cortisol is up too.  I am bloated, gaining weight, and feeling more sluggish than ever.  Treatment is $50/visit and doc wants me to go 3xs/week.  Quite honestly, I can't afford it.  Will health coverage even cover something like this?  I know most health professionals are still skeptical of Fibro related issues which drives me crazy.  Doc said, I am a "sick chick" and she can't turn me away.  Maybe you or a reader could offer advise.  Doc also suggested an all organic diet as I am having intestinal troubles.  Hoping someone out there can help. Thank you so much! - Christy  webpaige118@comcast.net." 
 
 
 
32.  VIROLOGIST DISCOVERS CAUSE OF CFS!
 
http://www.hhv-6foundation.org/
 
Dated June 22, 2008

A Protein from a Common Smoldering Virus Linked to Chronic

Fatigue Syndrome and Depression

A twenty-year search by a top Japanese virologist has led to the discovery that protein

from the quiet smoldering of a common virus can cause Central Nervous System

disease and mood disorders

BALTIMORE, MD (June 22, 2008) - A study suggests that a ”smoldering” central

nervous system (CNS) infection may play a role in conditions that plague millions of

Americans. Kazuhiro Kondo, MD, PhD, of the Jikei University Medical School in Tokyo

identified a novel human herpesvirus-6 (HHV-6) protein present in Chronic Fatigue

Syndrome (CFS) patients but not healthy controls that may contribute to psychological

symptoms often associated with that and other disorders.

Read more at http://www.hhv-6foundation.org - look for the link - it's a PDF file.

 
 
 
33.  DOM'S UPDATE
 
 
Last night I re-read a GREAT book called "Healing for Damaged Emotions."  I bought it for $4 on ebay for a friend who is struggling with emotional problems from horrific childhood abuse.  In re-reading the book, I realized that I STILL struggle with feelings of depression, worthlessness, inadequacy, etc.   Some of it is based in my childhood, but I also think having FMS/CFIDS gives us plenty of reasons to have negative feelings about ourselves because we can't keep up with "the pack" anymore and we often become social outcasts (minus our "online" involvements).   Many fibromites get NO EMOTIONAL SUPPORT from friends and family - they are ridiculed and scorned!   It's hard to keep up one's feelings of healthy self-esteem with all this going on!

I am a Type A personality, so achieving goals is important to me.  Rolling the calendar back many years....I was the co-valedictorian of my large high school graduating class in 1968, went to U.C.L.A. at age 16, got a B.A. in psychology one month after I turned 20.  Etc., etc.  However, with FMS/CFIDS (onset age 30
www.fms-help.com/fibro.htm), I can't live a disciplined life even though I am "managed" with meds and supplements www.fms-help.com/what.htm.  For instance, I might plan a housecleaning project on my day off, but instead it might be one of those days where I am wandering around in a fog, flopped in bed, or too exhausted to do more than pay a few bills (with great mental effort!)  This kind of irregular, unpredictable living is REALLY IRRITATING to Type A folks who value order, progress and achievement. (Now, Type B folks probably don't care if the house gets cleaned or not, and if they aren't careful, the bills don't get paid on time either....)

The author of "Healing for Damaged Emotions," David Seamands, describes himself as a high-strung, sensitive person (I can relate to that!)  He says that negative feelings about ourselves come from childhood experiences - often abuse or abandonment, unrealistic expectations of parents, and sometimes from our genetic make-up and tendencies.   So h
ere I am at 56 and still wondering about myself (often anxiously)....who am I??, do I "measure up," etc., etc. - all very draining and useless emotions!!!!  I am a born "pleaser" and "perfectionist," which isn't too bad until I start beating myself up to meet unrealistic goals...and it's even more ridiculous if they are someone ELSE'S goals for me!
 
Physical pain in life is unavoidable, but hopefully we can resolve our emotional baggage so we are not suffering in that way too!   Anyway, I just feel soooo LIBERATED this morning!!!   It was a good read last night - I felt like someone understood me and walked in my shoes!  I feel much more secure now as the person God made me to be, and I don't EVER WANT TO FORGET what I learned from this book!!!   What a comfort to know that God loves and accepts me as I am.  I don't feel anxious and worried anymore.  I feel much more confident!   There IS healing for damaged emotions!  I hope my friend will be helped by this book too!
 
Your fibro friend,
 
Dominie
www.fms-help.com
 

 
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DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.