DOM'S NEWSLETTER
Check out the topics below!
OCTOBER 10, 2012
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1. READERS WRITE
"I really enjoyed your newsletter this week www.fms-help.com/100112.htm! There was a "flow" to it, and the joy felt from your readers was soaked up by me! and I enjoyed your sweet picture of the deer. WHAT an adorable face!!"
"Love your newsletters!"
"Your newsletter has been a true lifesaver for me, and I cannot thank you enough, for both the factual info and your faith. We are about the same age, and I have been sick since the early 1970's. I've had a very difficult and similar path as most sufferers who have had symptoms that long."
"Thanks for your continued support to all of us."
"You have done such a fantastic job on your site for the benefit of others. Thank you for your hard work. There are more of us out here than we know. I just met someone that had to courage to speak up about her condition. She was so happy to find me, and realize that she was not alone She is tired of hearing folks say, " You look okay" when we feel far from it at times. Like her, I have my good days and my bad days."
"After doing a search engine search for FM and CFS, I came across your website www.fms-help.com and found it more helpful than anything else I've read. I'm 48 and feel like death."
2. FIBRO CAUSED BY COLD SORE VIRUS?
http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1428363 - Snippet: "We may have found a rather big piece of the puzzle that no one has been able to figure out.” – 10-center phase II clinical trial of anti-herpes drug combo hopes to resolve the question. Fibromyalgia and various gastrointestinal disorders may all be caused by a virus - specifically herpes simplex type 1 - according to University of Alabama virologist Carol Duffy, PhD, and Tuscaloosa-based GI surgeon/chronic pain specialist William Pridgen, MD."
3. GABAPENTIN (NEURONTIN) FOR FIBROMYALGIA
From a reader's friend--
"Fibromyalgia is neuro based... overstimulated neurons that are sending the same pain message over and over... sort of like a record that would get stuck during our day. I know that since I was put on Gabapentin I am feeling better (even sleeping more). Info is as follows: PRESCRIBED FOR: Gabapentin is approved for treating seizure disordersand nerve damage from herpes zoster (shingles, postherpetic neuralgia). There are many non-approved uses for gabapentin. These include alcohol withdrawal, cocaine withdrawal, hiccups, restless leg syndrome, hyperhidrosis, headaches, diabetic neuropathy, hot flashes, and fibromyalgia. It works for me and there has not been any side effects. Have used it for a year."
FROM DOM: Neurontin (Gabapentin) works well for me too. Dosages prescribed by docs vary. I have used the 100 mg capsules and also the 300 mg capsules, depending on how I feel (in my nervous system). I began using it a few months ago in hopes of being able to ride in a car further than 30 miles. As most of you know, ever since I worked in a "sick building" in 2005 (story at www.fms-help.com/mold.htm), I have had some kind of weird neurological damage to my brain that prevents me from traveling very far by car. It is too over-stimulating neurologically and I almost have seizures. I haven't had a chance to go anywhere since being on Neurontin, but next time we go to see the grandbabies (61 miles), I'll find out. I tried Lyrica for this same problem, but had a terrible reaction (severe suicidal thoughts). I mentioned this in a newsletter earlier this year. You can search for Lyrica on my site using the box at the end of this page.
4. EHLERS DANLOS SYNDROME
From a reader--
"re: your October 2003 newsletter: www.fms-help.com/October2003.htm - Topic 19: Interesting article. We (my children and I) found out 2 summers ago that we have a congenital birth defect called Ehlers Danlos Syndrome. Our bodies don't produce collagen properly. (We discovered that our FMS is secondary to EDS.) Alot of the symptoms are similar. Makes me wonder if more people have EDS, and don't know it."
FROM DOM: Search for Ehlers Danlos in my past newsletters using the search box at the end of this page.
5. MORGELLONS & PARASITES
From a reader--
"RE: 17. ARE FIBROMYALGIA SYMPTOMS CAUSED BY PARASITES?
http://www.fms-help.com/100112.htm - Hi Dom, I'm just reading your newsletter www.fms-help.com/100112.htm and got to topic 17, about the parasites. I have something that I read that may interest you both. Not sure if it has anything to do with Fibromyalgia, but some of the symptoms are very close to what this reader described. Here is the link:
http://alignlife.com/articles/terrifying-and-mysterious-disease-ignored-by-cdc/."
FROM DOM: I've reported on Morgellons in past newsletters. Use the search box at the end of this page.
6. FOOD INTOLERANCES, LEAKY GUT, ALLERGIES
From a reader--
"I have found allergies to be tied to food intolerances developed over time. As we get older, inflammation caused by toxic overload creates havoc causing leaky gut. Leaky gut can be caused by food intolerances and then cascade into autoimmune reactions. Things that never bothered me before: milk, eggs, wheat, gluten, eggs, dairy, corn and nuts. Share with your reader that a trial of removing these top allergens may remove their need for Singulair all together. Give it a good six weeks and I'll bet dollars to donuts they will begin to feel surprisingly BETTER. One key to determining top allergens/intolerances: they are most likely the foods that you crave the most.
Prescription drugs do not CURE. They merely mask symptoms. So instead of reaching for the RX, reach for whole, fresh organic foods and good clean water and let your body begin to heal from the inside out."
7. FIBRO SHIRT
From a reader--
http://www.zazzle.com/womens_fibro_flare_t_shirt-235771395089641144
FROM DOM: You can find another fibromyalgia T-shirt at Candy's site: http://www.nhws.com/fm/index.html. The back of her shirt says:
"FIBROMYALGIA . . . WHAT'S THAT?
Fibromyalgia Syndrome, pronounced "fie-bro-my-
al-jia" sind-drom", is a chronic pain condition
which has been around for many years. The
word can be broken down into, "fibro" (con-
nective tissue fibers) "my"(muscle) "al"(pain)
and "gia"(condition of). The American Medical
Association recognized FMS as a major cause of
disability and true illness in 1987. The average
sufferer spends thousands of dollars on medical
tests and spends up to five years searching for
a diagnosis. FMS can have flare-ups and times of
remission, so many sufferers "look fine". But
during a flare-up, they suffer from widespread
musculoskeletal pain or aching, non-restorative
sleep, fatigue, stiffness, skin hypersensitivity,
and multiple tender point pain. In addition, this
syndrome (which means a group of symptoms), can
include headaches, sinus conditions, vertigo, irritable
bowel/bladder and digestive problems, Reynaud's, short-
term memory impairment, vision changes, heart-attack
like pain, muscle twitching, numbness, tingling,
burning sensations, weakness, exercise intolerance,
cold and heat sensitivity, and the list goes on.
There are no blood tests for FMS but a Rheumatologist
can diagnose FMS by looking for 11-18 tender points
located in four quadrants of the body. It has been
called the "Irritable Everything" illness. What can
trigger FMS? It is believed that biochemical changes
can activate FMS caused by trauma, surgery, Lyme
Disease, viral infections, Stage four sleep
Deprivation, childbirth, accidents causing injury,
And many other events as reported by sufferers.
It may be hereditary. FMS can co-exist with other
Conditions such as Chronic Fatigue, MS, Multiple
Chemical Sensitivities, Lupus, Thyroid problems,
Myofascial Pain, Rheumatoid and Osteoarthritis,
Hypoglycemia, Reflex Sympathetic Dystrophy, and
Others. To put it simply, FMS can cause pain in
specific areas of the body or from head to toe.
It can affect many different body systems. There
are treatments for FMS from Physical Therapy, mild
exercise, rest medications, vitamins, and alternative
treatments for pain relief. This can include
Chiropractic care, bio-feedback and meditation
techniques. Some people are mildly affected by
this illness while others can be totally disabled.
At times hospitalization is needed to help with
the severe pain and associated depression and
medication side-effects of this chronic (recurrent)
condition. Now that you have an idea of what FMS is,
hopefully you will have a better understanding of
this condition and of the sufferer. This illness
is seen world-wide and does not discriminate by
age, sex or race. How can you help a friend or
relative with FMS? Encourage them, offer help,
listen, educate yourself about the persons new
lifestyle changes, and just lend a shoulder to
lean on. Good jokes help out a lot and "gentle"
hugs and hand-shakes are always appreciated. FMS
sufferers or maybe better called "survivors", are
always hoping for better medical treatments, more
research, and of course, a cure. Just by learning
what the word Fibromyalgia means, is a help to us
all. This actually is a brief description of FMS.
There are many books and On-line information you
can read if you would like to become more informed.
THANK-YOU for hanging in there to read this. Now
One more person knows what Fibromyalgia means."
8. DRUG INTERACTION STUDY ON 58 YEAR OLD FEMALE
From a reader--
A study of drug interactions between Lyrica, Cymbalta, SAVELLA, Elavil, Lunesta, Klonopin, Singulair, Synthroid, Vagifem for a female patient aged 58, from 3 reports: http://www.ehealthme.com/drug-interactions-side-effects/Lyrica-Cymbalta-SAVELLA-Elavil-4064927.
9. BREAST IMPLANTS
From a (male) reader--
"If a woman had FMS and still wanted breast implants—should she get them? I think not. The silicone might mess her system up even in the kind that use salt water."
FROM DOM: Much on silicone and implants in past newsletters. Use search box at end of page.
10. LACTIC ACID BUILD UP IN MUSCLES
From a reader--
"I have fibro and CFS. A big problem I have is I quickly get a build up of lactic acid in my legs upper thigh muscles)with use. It does not take long - walking 1/2 city block or standing while cooking for /15-20 min. It feels like my mitochondria get used up quickly. I have to use a wheelchair for any distance greater than this. Have you had other readers experience this? Any suggestions for improving this? Thank you so much!!!"
FROM DOM: Write dombush@bellsouth.net with any suggestions/comments. I can relate to this reader's problem. The first 14 years that I had fibro, I felt like this. It was even awful to go to church where you have to stand up and sit down several times. Sitting was painful, and trying to rise was agonizing. However, I found a powerful antioxidant that took away my pain, and that was 16 years ago now.
11. ANTIVIRALS FOR CFS
From a reader--
"re: Virus as root cause of CFS: Is there an antiviral or mixture of antivirals that help you?"
FROM DOM: I used Acyclovir for several years (mainly for cold sore/shingles suppression). When that stopped working I tried Valcyte with no success. I'm now using 3,000 mg of L-Lysine daily. Dr. Daniel Dantini in Ormond Beach, FL uses antivirals, L-Lysine and B-complex with CFS patients with great success. Use the search box at the end of this page to find the references in my past newsletters. Use keywords (one at a time): Dantini, antiviral. Also, here's further info on Dr. Dantini's treatment for CFS: http://phoenixrising.me/archives/5199 and http://www.4fibromyalgia.com/news10.html. Any doctor (internist) can prescribe antivirals.
12. NO FLU SHOT? NO JOB OR DAYCARE!
From a reader--
http://articles.mercola.com/sites/articles/archive/2012/10/03/hype-vs-evidence-of-influenza-deaths.aspx - Influenza Deaths: The Hype vs. the Evidence
FROM DOM: I don't take flu shots. My immune system is weird enough already. Now that I am eligible age-wise for a shingles vaccine, my doc does not recommend that I take it due to CFIDS. BEWARE of flu shots and vaccines. Read this article.
13. WATER DAMAGED BUILDINGS CAUSE ILLNESS
Excerpt from the book: "Surviving Mold: Life in the Era of Dangerous Buildings" (pgs. 29-30)--
"MOLD ILLNESS: For the record, my use of the term "mold illness" needs to be clarified: It’s merely an expression for a sub-category of biotoxin illness, a jargon term, a shortcut I use, one that connotes that this illness is an acute and chronic, systemic inflammatory response syndrome acquired following exposure to the interior of a water-damaged building (CIRS) with resident toxigenic organisms, including, but not limited to fungi, bacteria, actinomycetes and mycobacteria as well as inflammagens such as endotoxins, beta glucans, hemolysins, proteinases, mannans, c-type lectins and possibly spirocyclic drimanes, plus volatile organic compounds(VOC's). There is no one element that is a causative of mold illness. It is the end result of countless aspects of innate inflammation merging together. While molds themselves may be associated with human illness, in my opinion the secondary metabolites of microbial growth and inflammagens from those microbes are of greater overall importance. Until we have a way to identify the specific interaction that each individual component of the "biochemical stew" found inside Water Damaged Buildings can cause, we can only look at exposure to the entire interior environment as the cause of the illness." - Ritchie Shoemaker, MD
FROM DOM: My mold story is at www.fms-help.com/mold.htm. I hear from many readers who are living in mold-filled homes or working in "sick" buildings. On my mold page you will find a simple test you can do at home at no cost to find out if you are in the 20% of the population that is severely affected by mold. (The simple test is in my December update - toward the end of the page.)
14. DIET VIDEO
From a reader--
"Hungry for Change" - http://www.hungryforchange.tv/book-free-screening - Your health is in your hands (the dangers of sugar for your health).
15. MOLD, HYDROGEN PEROXIDE & NYSTATIN
From a reader--
"I was on Singulair for years while I lived in Florida. The mold also got me big time from the places I lived as well as the four hurricanes. I never thought about Singular until your email. My health definitely went down hill with Singulair and prednisone. I do know that the Doctors finally told me that they could not stabilize me and that I must move from Florida within 6 months or be dead. I was five years in Florida and that was when I was diagnosed with FIbro and Chronic Fatigue and allergies and chemical sensitivities and and and....I am trying hydrogen peroxide IV and nystatin (3 months of it). Are there others who have done this?"
FROM DOM: Write dombush@bellsouth.net if you have comments.
16. ABORTION DANGERS
From a reader--
http://www.jillstanek.com/bio/
17. COLD SORE VIRUS COULD CURE CANCER
http://www.dailymail.co.uk/health/article-5196/Cold-sore-hold-key-cancer.html - Snippet: "Herpes, the common cold sore, could become a powerful new weapon in the fight against cancer, following pioneering work by British doctors. Neurologists have been using the herpes virus to treat a range of cancers that have failed to respond to conventional treatment."
18. B12 INJECTIONS CAN HELP CFS & FIBRO FOG
http://drmyhill.co.uk/wiki/B12_-_rationale_for_using_vitamin_B12_in_CFS
19. RELIEF FROM GRIEF INSOMNIA
"I had trouble sleeping after the death of a loved one. I resisted the temptation of taking prescription sleeping pills and decided to try ImmuPro. What a blessed relief. Not only does ImmuPro work fabulously for sleep, but it contains several medicinal mushrooms that have been studied for their profound effect on the immune system. So while I'm in deep REM sleep, ImmuPro boosts my body systems to stay healthy and strong." - J.M., Arizona
ImmuPro provides the benefits of natural immune-supporting Ningxia wolfberry polysaccharides in the convenience of a delicious fruit-flavored chewable supplement. Beta glucan has been shown in studies to enhance the immune system's response and to help maintain cholesterol levels that are already within the normal range. ImmuPro contains reishi and maitake mushrooms, which support the activity of antibodies and natural killer cells. This formula is enhanced with calcium, zinc, selenium, and copper, all needed for proper immune function. How to use: Chew 1 tablet before retiring. If under stress, chew 2-4 tablets before retiring or 1 tablet as needed. May cause drowsiness.
20. THE ENCOURAGING WORD
“Our people must learn to do good by meeting the urgent needs of others; then they will not be unproductive.” - Titus 3:14 NLT
21. SOME ILLNESSES MAY BE GOOD FOR YOU
http://articles.mercola.com/sites/articles/archive/2012/10/06/dr-palevsky-disease-vaccines.aspx - Snippet: "Safety studies regarding vaccines have not been performed using proper scientific standards; those that have been done compare vaccinated populations only to other vaccinated populations, and only follow kids for 4-6 weeks. Some of the diseases vaccines are designed to prevent, such as chickenpox, measles, and the flu, may actually have an important place in childhood development – and may ultimately be beneficial for the child’s future health by helping their immune system, nervous system and brain mature. All 50 states allow a medical exemption to vaccination; 48 states allow a religious exemption to vaccination; and 18 states allow a personal, philosophical or conscientious belief exemption to vaccination; however, all vaccine exemptions are currently under attack. If you have concerns about vaccinations, try having an open conversation with your physician; if enough people speak up, we can reach a critical mass within the population that will prompt real change. If your physician is not open to your concerns, find a new physician who is."
Dominie Bush
100 Tips for Coping with Fibromyalgia & Insomnia
Dominie’s FMS/CFIDS newsletters
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DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.
