DOMS' NEWSLETTER
October 12,
2009
A Christian-based newsletter for people with
Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS),
or Myalgic Encephalomyelitis (M.E.) and their families.
20 TOPICS.
READERS' COMMENTS IN BLACK. MY COMMENTS IN TEAL.
1. READERS
WRITE
"Thanks for your fabulous
newsletter."
"When no one understood my
illness or me, I found your website www.fms-help.com."
"I really enjoy your
newsletters and your ongoing links to news."
"Thanks so much for
both your spiritual support and medical insights."
"You have an amazing place...it is better than a
forum...it is more than a message board...it is a God-inspired teaching and
sharing combination of instruments."
"Thanks so much for the info and all you do for us
fibromites!"
"Sometimes what hurts the most are people's
misjudgments."
"Love your newsletter."
"It is just wonderful that you have your website and news,
because it is so comforting to know others 'out there' are right with
me."
"I really enjoy your
newsletter. It has been a big help."
2. RETROVIRUS LINKED TO
CFS
From several readers--
XMRV virus linked to chronic
fatigue, says study--
FROM DOM: WOW!!!!
Scientists are getting closer to discovering the root cause of CFIDS!
I developed CFIDS in 1987, but for the past 5 years (since working in toxic
mold in 2004 and developing a painful respiratory infection), I have felt
like I was dying. It's hard to describe the suffering, but it
included: brain pain - not a headache, but like my brain was
exploding, chest crushing sensations, congestive heart failure
symptoms, gasping for air, groaning with the strain of even simple efforts
like making a meal or getting dressed, mental confusion, intense sweating,
couldn't ride in a car more than 25 minutes without collapse, debilitating
fatigue, much "down time" unable to function or think, many battles with
viruses, infections, etc. The good news is: I have felt
"NORMAL" for 7 weeks now! I began putting stabilized liquid oxygen (SLO)
in my drinking water - it alkalizes and oxygenates. I wonder
if these viruses change the way cells utilize or recognize oxygen? I'm
not a doc or scientist - just a patient. The suffering and
debilitation of FMS/CFIDS affects the lives of millions of formerly active
people worldwide - check out the occupations of my readers www.fms-help.com/occupations.htm.
3. FLU SHOT
RESPONSES
Reader 1--
"I got a flu shot last year and had a
very nasty reaction.....within 2 hours of getting the shot, I got very ill, like
I got a bad flu....I was vomiting, had horrible diarrhea, high fever....terrible
aches and pains...called my doc and she told me it would pass within a few hours
and I was having a bad reaction and not to get flu shots anymore...Now I don't
know if the fibro had anything to do with this reaction, but the doc said that
it was a very rare reaction."
Reader 2--
"I want to comment on the "vaccination"
debate for us FMS/CFS suffers. I had (few years ago) received a Flu Shot
...big mistake! After 24 hours I went into a serious full on Flare.
I felt like dying. I phoned my doc and he said to rest that I would feel
better in a few days. I didn't, it took over a month to feel somewhat
normal (our version of normal). Then I spoke to a rheumatologist that said
that because Fibro and Chronic Fatigue attack the immune system, flu shots are a
Big NO NO for us. After that I NEVER took another shot again. Even
with the new flus and viruses that are out there, I choose not to. I take
necessary precautions with santizing my hands and all that common sense
stuff. Just please, if you are thinking about it - think about what I
said."
Reader 3--
"My Naturopath gives a natural (plant
extract) flu shot good for many viruses. She says too many unknowns
yet for H1N1. Read Dr. Mercola's site and you will not have the
shot."
Reader 4--
"I had a flu shot this past weekend.
No reaction at all. I get one every year and never have a reaction.
It's really surprising considering I seem to react to everything in the
environment."
Reader 5--
"there is a site with a lot of
info - it is
called: www.theflucase.com and scroll down
all the way to where it
says: HEALTH EXPERTS WARY OF FLU
VACCINE and there is an excellent
article by: a Dr. Russell L. Blaylock,
MD who says
that young people are more at risk because the vaccine has
substances
in it that make young people's immune systems going overboard.
(He
makes a comparisson to Gulf War syndrome illnesses. He says that
Vit
D3 will modulate the immune system, or you can take fishoil.
One
teaspoon a day, if you do get sick (from the shot) take 2
teaspoons.
Specially young people's immune systems are very strong,
therefore
vaccinations for these young people might not be good at all as
the
vaccine like I said contains harmfull elements that might drive
their
immune systems overboard. The vaccine also can do a host of
other
things."
Reader 6--
"Even regular doctors think the
swine flu is a hype in order to make more money from the vaccine for the drug
companies. I read an article about people in a South American
country actually developing TB from these nasal mist vaccines.
So they stopped them. And this was in my normal daily city newspaper, not some
alternative press. I feel so horribly bad for this poor suffering woman. If I
were her, I would for sure get some homeopathic flu treatments. I have had good
results with B&T homeopathic flu treatment and cough medicine. 6000 mg/day
vitamin C (Allergy C Twinlab)."
Reader 7--
"I have a question about your last
newsletter where the woman told about the bad reactions she had to the H1N1
shot. How is that possible since they are just now getting the shot to
doctors, and ordinary people will not get it first. I heard this on Fox
News yesterday, and wondered how she got it already."
Reader 8--
4. THE RAPTURE
From a reader--
"I own Perry Stone’s 5 part DVD and study
book series called “The Rapture Revelation”. It’s interesting. I’ve
had for about 2 years. I bought it off voice of evangelism http://voe.org/
It was expensive but quite interesting. The rapture is correlated
strongly to Judaism."
5. ALKA SELTZER HELPS READER'S
FMS
From a reader--
"Concerning alkalizing my body...I'm
having a bit of a surprise...I'm having a great deal of success with simple Alka
Seltzer! I have high cholesterol so my doctor put
me on baby aspirin, but even that upsets my stomach. I switched to Alka Seltzer
because of the stomach relief it promised. I have been doing much better. It
took several months to see results, but I'm able to move, function and
live again much more easily! Of all
simple grocery store remedies! Be sure you are
aware that all aspirin products can have the side effect of bleeding if
you use them excessively, and they can be allergenic for some
people. The side effects of Alka Seltzer are the same as
those for regular aspirin. Probably it is good to follow label instructions and
not take too many. I take two packets (2 doses) a day and have very good
results. I don't dare take more because I have GERD, but this so far is the only
pain reliever I can tolerate that isn't perscription and narcotic. I feel a bit
'buffered' to be truthful. I hurt less, even when the medicine has worn off for
the day, and I'm sleeping a bit better because I have less pain.
I have pretty bad fibro and have had other neuromuscular
problems, and I have a migraine disorder and 4 herniated disks. I'm pretty much
always in pain, but this has tempered it and made my life livable. All for
$3.49 for 20 doses. Not a bad price for
relief."
FROM DOM: http://wiki.answers.com/Q/What_are_the_active_ingredients_in_alka_seltzer
Alka seltzer contains a
combination of aspirin, citric acid, and sodium bicarbonate (baking soda). The
aspirin works to relieve headaches and muscle pain. The last two ingredients,
citric acid and sodium bicarbonate, are simply a mixture of a weak acid and a
weak base (when you add alka seltzer to water, the fizzing is the reaction of
the two with each other). When you have a weak acid and a weak base, the result is a buffer solution, which works to stabilize the
pH. And here are the side effects of Alka Seltzer Effervescent Tablets -
http://www.drugs.com/sfx/alka-seltzer-side-effects.html:
"All medicines may cause side effects, but many people
have no, or minor, side effects. Check with your doctor if
any of these most COMMON side effects persist or become bothersome when using
Alka-Seltzer Effervescent Tablets: Heartburn; nausea; upset stomach.
Seek medical attention right away if any of these SEVERE
side effects occur when using Alka-Seltzer Effervescent Tablets: Severe
allergic reactions (rash; hives; itching; difficulty breathing; tightness in the
chest; swelling of the mouth, face, lips, or tongue); bloody or black stools;
confusion; diarrhea; dizziness; drowsiness; hearing loss; ringing in the ears;
severe stomach pain; unusual bruising;
vomiting."
6. MICROCHIP
RESOURCES
From a reader--
"
You might consider directing people to www.spychips.com and
www.nocards.org where MANY
references abound. I own the book “spychips” and have had it for years. It’s
available “used” on Amazon for very cheap. The library probably also has
it."
7. EXPLODING
PYREX
From a reader--
"There are many reports that Pyrex dishes have exploded in ovens. If
you
have an old Pyrex dish, you should be ok. Corningware sold their
rights to
other companies, and others now are producing dishes similar
to Pyrex, and
they might even have the name Pyrex on it. (Chinese, and
they might have
substituted wrong ingredients for the glass). Please
go to the following link
and read up about it:
http://www,snopes.com/food/warnings/pyrex.asp"
8. VACCINE MORE DEADLY THAN FLU
ITSELF
Video clip
from a reader--
Doctor Admits Vaccine Is More Deadly Than Swine Flu Itself
& Will Not Give It To His Kids
http://www.youtube.com/watch?v=E1z7KSEnyxw -
Dr. Kent Holtorf (infectious diseases expert) said he will not give the swine
flu vaccine to his kids and that
PEOPLE WITH
FIBROMYALGIA OR CHRONIC FATIGUE SYNDROME ARE DEVASTATED BY
IT!!
Plus, this link from another reader--
9. SECURITY
From Moody Adams--
"Daniel knew the secret of security. When King Darius passed a law
that any person praying to anyone other than Darius was to be thrown into a den
of lions. Daniel prayed in plain sight and was cast into the lions’ den. The
entrance was sealed until the next morning. But morning brought a big surprise:
Daniel was alive, “Then said Daniel unto the king, O king, live forever. My God
has sent his angel, and has shut the lions’ mouths, that they have not hurt me:
for as much as before him innocence was found in me; and also before thee, O
king, have I done no hurt. Then was the king exceeding glad for him, and
commanded that they should take Daniel up out of the den. So Daniel was taken up
out of the den, and no manner of hurt was found upon him, because he believed in
his God” (Daniel 6:21-23). Daniel knew he was more secure in
the lions’ den, doing God’s will, than on the outside dodging God’s
will."
10. HOUSEWORK-SAVING
TIP
From a reader--
"Here's a tip that a friend of mine always used:
Specially if you have
long hair and after a shower you have to brush
and comb this... Remember the
floor of your bathroom all covered with
hair?? This friend used an old
bedsheet anytime she took a bath or
shower! She just draped it over the
floor, between bath and sink etc.
Then when she was all done and dressed, she
would simply pick up the
corners of the sheet and shake it out outside!! She
ended up with a
clean floor!! The sheet went into a hiding place until the
next
bath!!"
11.
STILLTASTY.COM
From a reader--
"I think you will find this very interesting – I certainly
did. One of my pet habits through the years has always been to put
an opened loaf of bread in the fridge until it has been used up. Now I
find that it will stay fresher if left on the counter, that the fridge dries it
up faster. How long can that bottle of ketchup
stay in your fridge before it goes bad? I'm thinking a couple of years but
if you want an expert opinion, go to the web site below. This site lists
all kind of foods and how to keep them fresh longer as well as when to get rid
of them. If you have a question click on the particular picture, and a
whole list of stuff appears.............. WHAT A GREAT
SITE!!!!!!!!!!!!! http://www.stilltasty.com/"
12. THE MOM
REVOLUTION
From a reader--
"Hey Ladies, I just wanted to share this info with you
all. Glenn Beck had a studio full of Moms on his show last week who are
concerned about the future of their children and family and
America. Several of them have started a MOM Revolution after being on
Glenn's show. One particular site has hundreds of thousands of members already,
just over the last week. If you are a MOM and you're tired of the
government running family values and America into the ground, you may want
to check this site out and join the Moms who are Uniting for a Better
America. http://asamom.ning.com/ I've joined the
California Moms Group there and there are many other State Groups if you don't
live in California. You can even start a group for your own area if
you'd like. Lots of great MOMS are there already!! I have connected with
many here in my area already."
13.
CHEMTRAILS
From a reader--
"If you go to the Liberty for Life site and find the chem
trail
info, it will give some more insight why so many people are
sick......I had
just come to this country, and went one Sunday
morning from San Diego to L.A
with the nurse of the dr office where I
worked. It was a Sunday in December
in 1966. Two days later or so, in
the Dr office, I could not breathe, my
shoulders cramped together and
I felt I was being suffocated, and had a very
sharp pain in my left
lung, all I could do was utter a noice. After one whole
minute (seemed
endless) I could breathe again little by little, the nurse
grabbed me
and took me to one of the Drs and he put me in front of an
Xray
machine and they found a cloud on my one lung. Nobody could figure
out
what it was..... I developed a high fever and was ill for many
months.
They put me on an antibiotic and I developed after many months on
this
med. a bloody diarrhea. I had ulcerative colitis and enteritis
and
C-diff. Years and years later I read in a Time magazine
about
tests that were done by people from this country, and the
strange
symptoms those tests gave.... I recognized my situation..... Then
they
gave locations, dates and times..... and I read exactly where I
had
been, the entrance of the freeway, the times and that's where
they
had done some things, letting out certain substances into the
air. I
suffered terrible for many years, however God healed me
from the
intestinal problems caused by that. I have to keep saying:
whatever
they did, I forgive them, Lord I forgive them....
and the LORD
REIGNS!! (as a kid we would often pass by a
small white house in
the Dutch country side, on the front was painted:
De Here Regeert,
which mean: The Lord Reigns!! And HE
DOES!!)
14. MOLD
From a
reader--
"I have used the Bronchitis formula
(homeopathic) by Heel... Very helpful for me. Available at most health
food stores. You also may want to consider to take the Allertonic by Herbs
etc with meals. Both of these products helped me a great deal.
Mold can do terrible things. There were two
people at Dr. Rhea's environmental treatment place when I was there [several
years ago] who were perfectly normal prior to
exposure to mold."
15. MOBILE
HOMES
From a reader--
"MOLD IS A KILLER...I was in Utah for 6 weeks and felt so much better...we
moved from [Nevada]and the first year I felt good...then we moved to a mobile
home....New....and I got very sick..feel it was a
combination of outside mold and formaldehyde which is very
prominent in mobile homes...caused me severe depression and
fatigue."
16. AIRPORTS TO SCREEN PASSENGERS
FOR H1N1
17. MISUNDERSTANDING OF
FIBROMYALGIA
"I feel just
sooo depressed. I have just spent an (exhausting) hour on the phone to a friend
of many years, and she has just told me (quote) "I really believe that
the fibro/cfs that you and all the others have is either all in your heads or
it's a spiritual thing." Can you believe it? I was near to tears when
she said that. If only people could UNDERSTAND. If only it was something as
simple as being 'spiritual' - then we could all be prayed for - and healed. I
guess i am probably rambling at the moment, but i feel so absolutely devastated
by her comments - especially seeing as i had somebody else say the same thing to
me last night!! AND - the person who said it last night has received a number of
emails from me & print-outs from me about fibro/cfs. I am really beginning
to wonder if they even bothered to read them.. )-: I am now
contemplating whether to send a couple of print-outs to my friend who i just
spoke with on the phone. She has to realise that she can't go around acting all
'super spiro' accusing chronically ill people like that. Does she not realise
how much she has hurt me? Now, despite the fact that she is one of my best
friends, i really don't want to talk to her for at least a couple of weeks - i
am hurting so much by her harsh words. )-:
Have you come across this kind of situation
before? And if you have, how was it handled? I don't wanna lose my
friend, but on the other hand i cannot 'put up' with that kind of talk
either. I am so sad. My health has not been good of late. Had to be
hospitalised this week. Sure glad to be home though!! I hate
hospitals. )-: Please keep me i your prayers that God
will give me the wisdom to know what to say to people like this. - Lyn plantonio@bigpond.com"
FROM DOM: I think we all have been through something hurtful
like this with a friend or family member who doesn't understand our
illness. It seems that even when we try to educate some people, they still
don't understand or even show sympathy. I have encountered this many
times. I have a lot of helpful articles at www.fms-help.com -
look in the yellow box on the left - that can help explain FMS/CFIDS.
Still, not everyone is going to read them or even try to understand. If
you have some good ideas for Lyn, please write to
her.
18. PROFOUND
FATIGUE
From a reader--
"I have hit an extreme fatigue period the last
week or so just when I want to do [some important volunteer work]. It is now
noon and I am still trying to "wake up." No one around me understands
this. My best friend has fibro. She has a lot more pain than I do
but she only sleeps 3-4 hours a night and is on the go constantly. Even
she doesn't understand why I don't follow through on things I am supposed to be
doing with her. I haven't read all your material yet burt am going
to. Thank you for being here. I have many, many of the symptoms
including heat and cold sensitivity, noise sensitivity, pain, brain fog, dry
eyes etc. but those don't keep me from doing things--the fatigue
does. It is so profound at times that I'm not sure I would move if
there was a fire in the house."
FROM DOM: I totally get this.
I have spent many years as a "zombie." Could the oxygen drops help
this reader?? Also, I schedule nothing for the morning hours. I may
be awake, but I don't go out anywhere - I do laundry, write the newsletter, pay
bills, etc. I go to bed late, work late and get up late.
(Fortunately, as a piano and guitar teacher, I can schedule my
own time. As a church musician, I play for 3 services a week, 2 of
which are at night.) Early schedules don't agree with me at
all! (My husband has to get up at 4:30 a.m. for work every day -
ugh!!!) After 40+ years of having a sleep disorder, I doubt anything is
going to change for me. I have had to depend on sleep meds for 12
years or I wouldn't sleep at all. I don't get sleepy - I get a sick
feeling, or "wired and tired." My insomnia story is at www.fms-help.com/insomnia.htm.
A list of helpful things I use now is at www.fms-help.com/what.htm and I have
"100 Tips for Coping with Fibromyalgia and Insomnia" at www.fms-help.com/tips.htm.
19. STABILIZED LIQUID OXYGEN
From a reader--
""YOU WERE RIGHT…!!! So, far
anyway. I was on Day #4 of the Oxygen drops today…..
record productivity and energy/calm/focus for
me in some time. I am only using ONE drop in 6-8 ounces of water @ 3
x day.. Today was terrific!!! I walked, cooked,
laundered, shopped, and drove around with my long suffering husband and I’m
still feeling good with NO brain fog. The time of this e-mail is
10:20 pm California time… it feels like 8:30pm to me. Well…. I
couldn’t wait to report in to you. You are DEFINITELY onto
something here. My CFIDS/Fibro specialist uses nitroglycerin
pills and patches in order to boost nitric oxide/oxygen but I failed that
treatment due to severe bloating, fatigue, headaches, etc. The
specialist has also found a 99.99% correlation between their patients and
positive testing for heavy metal toxicity. HOWEVER…. I can’t wait for my next
appointment to present this stuff to my doctor since he himself also has
CFIDS. I am fairly sure that he’ll be intrigued and thrilled…
though, not as much as we are!!!! I hope to continue to feel well as
you have. This is really something. God Bless You, and
Thanks be to our Merciful God!!"
FROM DOM:
I'm still feeling
great! No brain fog or debilitating fatigue for 7+ weeks now. The
oxygen drops are working for me! I was touched by these words from a
reader this week: "Great to hear you're
feeling better. I pray that your latter years be much better than your former,
as the Lord so ordained it."
Click on the picture 
then click Oxygen at the
top of that page (in the pink bar). These are alkalizing and oxygenating
drops (stabilized liquid oxygen). A reader told me about this site when I
was looking for help with cold sores - I never expected this to help
my FMS/CFIDS problems. I make up a day's worth of the
treated water and drink it throughout the day. I feel NORMAL.
I guess I needed the oxygen, or maybe it's the alkalization. I'm not
a doc, just a patient who has tried everything. I can now see how
"normal" people can so much done with so little effort! You
start with just 1-2 drops in 8 oz. of drinking water 3 times and day - then
add a drop every several days. Do not start with the 10 drops recommended
on the label or you will detoxify too fast. I now use 8 drops and feel
fine at that level. I HIGHLY RECOMMEND getting the book, because it
explains how this works in detail (excuse the typos). If you have cold
sores (herpes simplex 1) like I battled for the past 10 years, the DMSO
cream works great! I am so thankful to the reader who directed me to this
site when I was looking for help. I have a very busy life as a music
teacher and church musician, but couldn't enjoy my work because I felt so bad
all the time. I continue to feel fine! What a blessing!
I hope this works for others too. My husband always said it was like I
wasn't getting enough oxygen, and he was probably right. I just didn't
know how to go about it until I started using the oxygen drops. There's
lots of info on the site explaining it all. (Don't get any of the drops on
your skin - they are highly alkaline and will burn.) Of course,
don't drink sodas, coffee, excessive sugar, nutrasweet, etc. while using the
oxygen drops, because the whole point is to lower an acidic pH.
And take a look at this! Dom's
Newsletter had the info back in 2007--
TOPIC
12.
OXYGEN
From a reader--
"The past two years I have mirrored your health
circumstances [www.fms-help.com/mold.htm].
I initially got sick in the early 90's after receiving my first teaching
position in a sick building...I was finally diagnosed with
Epstein Barr-fibromyalgia by my gynecologist, but a neurologist suggested I had
been environmentally compromised (sick-building) + bad genes. I will not
let this world tell me that it's my genetic fault that I had CFIDS/fibromyalgia,
Dominie. I tried OXYGEN therapy. I am back in public teaching, and
the chronic upper respiratory yuck is fading...I tried stabilized liquid
oxygen -- I am still using the original bottle...I found this website
doing CFS research, and I figured since Epstein Barr was a type of herpes virus,
I may as well give the Oxygen a try."
20. FOOT & ANKLE
PAIN
"I have been suffering from Fibromyalgia for about 5
years. I am also ready by the first of the year to start up a support group. I
am still able to work a full time job for 8-5 pm M-F. The meds I take are
Savella (it is working), Lyrica (has helped but lots of weight gain),
Ambien CR. My problem is pain in my feet and ankles. I have had test for
circulation (normal) and nerve test (normal) . My ankles and feet feel like they
weight a ton and they are constantly sore. I have not been able to exercise in
four years. Please ask your readers if anyone is or has suffered with this
problem. I world be almost pain free if I did not have sooooo much pain in my
ankles and feet. I have wasted so much money on shoes and inserts to take
the pressure off. I don’t think it is my weight because the pain was there
before I was diagnosed with Fibromyalgia. The pain fist started in my legs
and feet. It just never goes away. - Michelle mguidry@cppj.net"
Dominie Soo Bush
II Corinthians 1: 4 - "Who comforteth us in all our
tribulation, that we may be able to comfort them which are in any trouble, by
the comfort wherewith we ourselves are comforted of God." Visit Dominie's
FMS/CFIDS Homepage at
www.fms-help.com for
Fibromyalgia and Chronic Fatigue Syndrome sufferers and their
families.
DOMINIE'S FIBROMYALGIA & CHRONIC
FATIGUE SYNDROME HOMEPAGE
DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.
