November 10,
2006
10 topics for people
with fibromyalgia, chronic fatigue syndrome or
M.E.
1. INSOMNIA &
ROZEREM
From a
reader--
"I found your site www.fms-help.com
when searching for information on insomnia (not FMS), as I have chronic insomnia
with no cause determined. I had been taking Lunesta
and getting 5-6 hours of decent sleep a night. But after taking over six
months it began working less and less until after a year virtually not at
all. I have since switched to Rozerem (3 months ago) and
am back to getting 5-6 hours of not only decent sleep, but sleep full of vivid
dreams -- something I did not experience while taking Lunesta. The switch
to Rozerem was difficult as it required about 3 weeks to have an effect and
could not be combined with any other sleep aids. That three week period I
went with almost no sleep. But it was worth it. Again, I do not have
FMS or CFIDS, just chronic insomnia, but perhaps Rozerem would be worth a try
for some of your readers."
[FROM DOMINIE: We
are all so different. Some drugs work better than others for each of
us. See my sleep page at www.fms-help.com/sleep.htm for a list
of sleep things I tried and how they worked for me. Another resource is
www.remedyfind.com where
people can report on meds they have
used.]
2. MERCURY REMOVAL
QUESTION
From a
reader--
"Do you (or your readers) have any
experience with mercury filling removal? I have about 5 mercury amalgams. I
had 1 removed about a month & a half ago. Just curious if any one has any
comments, advice, horror stories, improvements... I don't think that I need to
have any mercury in my head despite of what the American Dental Association has
to say. My doctor who has Lyme's disease (& problems with
mercury) said to do it VERY SLOWLY. I didn't seem too bad from getting one
removed so I'm going to try for having another
removed on the 17th. I think chlorella is supposed to absorb the mercury
out of your system but you have to make sure it's from a pure source & not
contaminated. There were a number of other things on the internet for
mercury
detox. This site had some interesting info-
http://www.eytonsearth.org/mercury-toxicity-bentonite-clay.php. This one too - http://www.magneticclay.com/index.php."
[FROM DOMINIE: My
mouth is paved with mercury, but I'm a dental phobic due to grisly experiences
with my childhood dentist, so I think I'll have to stay the way I am for
now. Check online for success with mercury removal and
chelation. My mail runs about 50/50 as to whether it is helpful or
not. If you had fillings removed for help with your FMS/CFIDS, write me at
dombush@bellsouth.net - your experience could help others
to make a decision about this important
issue.]
3. SWEATING
(revisited)
From a
reader--
"I just wanted to reply to your
newsletter posting for excessive sweating. That was my first indicator that
something was wrong with my body. I had night sweats so bad that
my pjs and sheets would be soaked in the morning. During the day I could SIT in
a cold environment and sweat while everyone else wore coats and multi-layers. Of
course my doctors couldn’t tell me what it was other than “you just had a baby”
or “you’re getting old”. My “baby” was 3 years old and I was only 33. Once I saw
a rheumatologist who diagnosed me with fibro, and started taking pain meds and
muscle relaxants, the nightsweats decreased and diminished entirely. I would
occasionally have cold sweats during the
day, but was able to track it to eating too much saturated fats (fried foods
especially) and nutrasweet or Splenda or overly sweet or carb foods.
I have cut most
fried foods from my diet, eat little sugary or high-carb foods, and stay away
from all artificial sweeteners, and I rarely have excessive sweating
anymore. The only time I do is when I give in to my
cravings. Sometimes the temporary satisfaction of eating some of things are NOT
worth the side effects, so I rarely give in to my temptation. I hope this helps
the reader who posted the question."
[FROM DOMINIE:
This info was very helpful! Thanks very much to this reader. By the
way, check out my good doctors / bad doctors page at
www.fms-help.com/doctors.htm.]
4. SEROQUEL,
CYMBALTA, EFFEXOR & LYRICA
(revisited)
Reader
#1--
"I also took
Seroquel at 25 mg for
sleep. It would (sort of) work, but for only four hours. It felt not like sleep
but like I was skating on the edge of sleep. It made me sick during the day and
I was also nervous about the diabetic thing since my family has diabetes on both
sides. I tried Cymbalta but it made me so
nauseated and out of it that I had to call in sick for five days in a row. And
then I stopped taking it.
Lyrica is treating me very well. I'm on a
low dosage (75 mg twice a day) but I have more energy and (I believe) better
sleep. It does pretty good on the pain but not when I'm having a major flare.
Then nothing seems to work except riding it
out."
Reader
#2--
"Cymbalta made my
Restless Leg Syndrome uncontrollable. I thought I was going to die.
Effexor did the same thing
but I broke out in hives and my face swelled
up."
5. GOOD DOCTOR
LIST
http://www.immunesupport.com/ has a
"Good Doctor" referral section on their site to help you find a doctor who
understands FMS/CFIDS.
If you have had a
bad or traumatic experience with a doctor that left you feeling upset or
angry, see my page Good Doctors/Bad Doctors at www.fms-help.com/doctors.htm.
So many doctors still do not understand
FMS/CFIDS.
6. DO YOU SPEAK
SPANISH, LIVE IN
Got this from Marly
Silverman of PANDORA on Nov. 8, 2006--
If you are Spanish
speaking and you have CFS, P.A.N.D.O.R.A needs you! A local Hispanic Newspaper
would like to interview Spanish (Hispanic individuals) speakers who can share
their personal stories on what means to have CFS. Please call 954-783-6771 and
leave your complete name, address and phone number. You can also send an
e-mail to contact@pandoranet.info Help us raise awareness for CFS!
- Marly C. Silverman- Founder
7. "BIRD FLU: A
VIRUS OF OUR OWN HATCHING"
Got a copy of this post
from a newsletter reader who downloaded Dr. Greger's free
book:
michaelgregermd
<mhg1@cornell.edu>
wrote:
My new book, "Bird Flu: A Virus of Our Own
Hatching," will be released in hardcover after the
mid-term elections, but in the spirit of open access, I've put the entire
contents of the book online at http://www.BirdFluBook.org.
With all 3,000+ references
hyperlinked, hundreds of full-text articles, etc. In addition to putting the
whole thing up for free, all the proceeds I receive from the actual book are
donated to charity as well. I hope to keep it an updated living document, and so
I'd love everyone's feedback! I'm afraid I do come out in favor of developing an
H5N1 vaccine, but am open to be persuaded otherwise.
-Michael
[FROM DOMINIE:
The Table of Contents for Dr. Greger's book is on this page also. Looks
fascinating!]
8. ESSENTIAL OILS
KILL VIRUSES, BACTERIA, ETC.
I just received several
remarkable articles on this topic. They are too long for this
newsletter, but if you're interested, I can send them to you.
Write me at dombush@bellsouth.net.
You can also download a free report about essential oils from my site at http://dom.younglivingworld.com/.
Fill in your email info and it will be sent automatically. In this
dangerous age we live in, we need to learn how to protect ourselves. I
know that with my
compromised immune system I have to take
extreme care
managing my health. My CFIDS story is at www.fms-help.com/fatigue.htm.
A list of things I use that help me function is at www.fms-help.com/what.htm. I
keep this list current and updated for my readers, since most of us struggle
with the same health issues.
9. SUPERBUG
BROUGHT BACK FROM
A reader sent me an
email with several news articles on this subject. Too long to put it in
the newsletter. If you have friends or family in the military, write
me at dombush@bellsouth.net and I can forward
this info to you. I have the greatest appreciation and respect for our
military personnel who defend and protect freedom around the
world. This coming Sunday morning, Donnie and I have a part in the
Veterans' Day service at our church. He will be reading an article called
"Our Troops" while I play "
10. PERSONAL
UPDATE
Presently, I have a
case of laryngitis, most likely from sitting beside so many sick piano students
these past several weeks. Actually I was surprised that I outlasted so
many of my ill students before having to throw in the towel myself for a few
days. I finally went to the doctor and got an antibiotic. I
hope it kicks in soon, as I need to get back to
work.
If you're looking
for something specific related to FMS/CFIDS/ME, try using the Google search
box on my homepage at www.fms-help.com. Many times readers ask me
questions that have already been addressed on my site. You can get the
info a lot quicker by using my search box. I am also putting more of my
past newsletters in the archives on my site. This way, the search feature
will have access to those also. So much fascinating
information!
Although I am not able
to answer all of my email, I do try to read everything that you, my loyal
readers, send me. We continue to learn together.
Til next
time,
Dominie
Soo Bush
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