DOM'S FMS/CFIDS NEWSLETTER
www.fms-help.com
DECEMBER 28, 2012
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1. READERS WRITE
"I think I can speak for a lot of people that we bless you for your continued work to
bring us information. I've gained much needed help from this resource. Thanks again
and again!"
2. UNDIAGNOSED FIBROMYALGIA IN MEN
From a reader--
http://www.healthcentral.com/chronic-pain/c/5949/158002/fibromyalgia
FROM DOM: See my MEN WITH FIBRO page at www.fms-help.com/men.htm.
3. WARNING ABOUT LDN (LOW DOSE NALTREXONE)
From a reader--
"The LDN web-site says "virtually no side effects". Let me just say, that is not true. I
am however extremely sensitive to medication, EXTREMELY. I opened the 1.5 mg
capsule, dissolved it in water, then only sipped 1/3 of it. I did this for a week. It causes
extremely vivid dreams and nightmares. But I began to feel so sedated, I couldn't get
out of bed, I couldn't think. I started cutting back on some of my meds one by one,
which helped, but I was still overly sedated. It had literally taken me 5 years to get up
to my current doses (before cutting back) and now here I was going down to nothing.
Turns out my doctor said that LDN can increase the levels or your other meds and b/c
I'm so sensitive it was like 20x's what I was taking normally. I had to quit it and now my
sleep has never been the same; horrible horrible insomnia. I am finally increasing my
meds again, but it totally screwed up what I had worked on for years. I have to take a
lot of downers to sleep."
4. OVERWHELMED DURING THE HOLIDAYS?
From a reader--
http://spiritdaily.com/joylistcompassion.htm
5. ENVIRONMENTAL TOXINS CAUSING EARLY PUBERTY IN BOYS & GIRLS
http://articles.mercola.com/sites/articles/archive/2012/12/19/precocious-puberty.aspx
- Snippet: "Recent research shows that boys, like girls, are beginning sexual
development much sooner than historically normal. Boys are now developing six
months to two years earlier than the medically accepted standard based on previous
studies. Precocious puberty can affect both physical and psychological health,
including raising the future risk for hormone-related cancers. The trend raises serious
questions about environmental factors spurring this development, as it cannot be
explained through genetic changes. Xeno-estrogens (estrogen-mimicking chemicals)
behave like steroid hormones and can alter the timing of puberty, and affect disease
risk throughout life. In adults, such chemicals have been linked to decreased sperm
quality, stimulation of mammary gland development in men, disrupted reproductive
cycles and ovarian dysfunction, obesity, cancer, heart disease and more. Top
environmental offenders include plasticizing chemicals like BPA, BPS, and phthalates,
agricultural chemicals, and food-related substances like MSG, bovine growth hormone
(rBGH), and unfermented soy products. Research has confirmed the existence of a
previously unknown class of estrogen-mimicking metals referred to as
"metalloestrogens." These metals, which are added to thousands of consumer
products, including vaccines, have been identified as being capable of binding to
cellular estrogen receptors and mimicking the actions of physiological estrogens."
6. HAPPIEST PEOPLE ON THE PLANET
http://www.myfoxdc.com/story/20385232/poll-says-latin-americans-most-positive#axzz2FYJD2vT3
FROM DOM: This poll says that Latin Americans are. Well, I can say that this was
certainly of a man (in his 60's) from Costa Rica whom I met in a church a few years
ago. He said to me with surprise in his voice, "Why is no one in America happy?" He
was the epitome of joy, positive emotions and love. Many of us were invited to their
home for a big dinner, which was prepared by his wife and their adult children who
lived in the area. This family was the epitome of warm hospitality. What a joy to be
around happy people (despite problems).
7. BACK SURGERY DOES NOT CURE VIRUSES IN THE SPINE
From a reader--
"I just wanted to drop you a line to let you know that I did have my blood work tested
for viruses with Dr. Daniel Dantini and they have found very high levels/high viral loads
for two of the four viruses. Ebstenin-Barr and Herpes Virus (mouth sores) So, I am
going to invest in his advice and try the anti-virals and see how well they work. I have
researched these viruses and have found alot of good ongoing data about these
viruses. Dr. Dantini may very well be on to something. He told me that he has had
numerous, and too many patients to count, who have had multiple neck and back
surgeries only to find out that the surgeries were not the problem. Instead, the
problem associated with their back and neck pain were coming from these viruses
wreaking havoc on their bodies. He told me about one woman who had EIGHT back
surgeries! EIGHT?!? Something needs to be done about this. I had 4 back and
neck fusions (spinal surgeries) and none of them helped for the pain. I think the
medical community is really doing a disservice to so many fibro / CFS sufferers."
8. THE MOST UNUSUAL CHRISTMAS GIFT
Used with permission from the Joni and Friends International Disability Center
The Most Unusual Christmas Gift
"The Lord will indeed give what is good." - Psalm 85:12
It was 1968, the Friday before Christmas. Still rather new to my wheelchair, I was
feeling sad, frustrated, and tired of being paralyzed. But a few of my friends who
dropped by that night knew the best tonic. Singing Christmas carols! On this particular
evening, someone suggested we drive down to the old Pennsylvania Railway Station
in Baltimore City because, "The acoustics would be great!"
We weren't disappointed. The station was nearly empty at that late hour, and our last
glorious note of our "Joy to the World" reverberated off the domed ceiling. Suddenly
a uniformed guard appeared. "Okay, okay, enough of this now. This isn't a Christmas
party or a church," he said gruffly. "You young people need to clear out. Get going!
And you..." he pointed at me in my wheelchair, "you put that back where you found it!
Get out of it, missy, right now!" This was too funny to be true. "Sir," I said, "I wish I
could get out of it, but I can't. It's mine." The guard was getting angry. "Don't sass me.
Now you put it back!"
"Honestly," I said, trying to keep a straight face, "I'm paralyzed. I really am!" All of a
sudden he turned red. "Okay, okay, just get out of here. All of you!"
No, I didn't get healed in that Christmas of 1968. But in the eyes of a guard in the
railway station, I was just a normal, energetic, mischievous teenager hanging out with
her friends. And that, right then, in that place and time, was a wonderful gift.
God gives many, many gifts in the course of our lives that go unnoticed, un-thanked,
and unappreciated. How different would your days be if you started viewing all of the
good things of life -- down to those small but significant things that bring us pleasure --
as love gifts from our Father?
Lord, forgive me for an ungrateful heart, so often blind to your kindnesses. Thank you
for your sovereign love revealed even in the little details of my life.
Blessings,
Joni and Friends
www.joniandfriends.org
9. FIBRO-SISTERS BLOG
www.fibrosisters.blogspot.com - follow the thoughts of a fellow fibromite
10. ANTIBIOTIC USE IN FOOD ANIMALS
http://articles.mercola.com/sites/articles/archive/2012/12/19/gap-sues-fda.aspx -
Snippet: "The Government Accountability Project (GAP) has filed a lawsuit against the
FDA after the agency refused to release data on the amount of antibiotics sold for use
in food animals. The US uses nearly 30 million pounds of antibiotics annually in food
production. Livestock antibiotic use accounts for 80 percent of the total antibiotics
sold annually. Antibiotics such as penicillins and tetracyclines are routinely added to
animal feed in order to make the animals grow faster. Non-medical use of antibiotics in
food animals is a major driving force behind the rampant development of antibiotic-
resistant bacteria. In other parts of the world, such as the European Union, the use of
antibiotics as growth promoters in animal feed has been banned for years. You can
help protect yourself and your family -- and prompt change in the consumer realm --
by purchasing only antibiotic-free meats that were raised on high-quality organic
farms."
11. ABSOLUTELY AMAZING HALF-TIME SHOW!!!
From a friend--
http://link.brightcove.com/services/player/bcpid1418565565?bctid=23207933001
FROM DOM: These girls are INCREDIBLE!!!! I can't even begin to imagine the long
hours of practice and dedication they put into this. The girls have almost super-human
coordination! Have never seen anything like this before.
12. EXPLANATION OF FMS/CFIDS/ME FOR YOUR EMAIL CONTACTS
FROM DOM: The following was at the end of an email I got from a reader...it is her
email "signature." I'm sure some readers could use something like this to close their
emails:
"Please be patient, I may not be able to return your email in a timely fashion because I
am chronically ill and deal with a lot of fatigue and excessive daytime sleepiness.
Thank-you, and if you are interested and want to learn more, here is some information
about CFS/M.E.: http://www.cfids.org/about-cfids/default.asp. "
13. LOVE VS. EVIL
From a reader--
http://globalrumblings.blogspot.com/2012/12/christmas-reflections-sandy-hook-horror.html
14. ANTIBIOTICS CAN CAUSE C-DIFF
From a reader--
"I read this topic but never got to read the information, now can't find the newsletter.
Anyhow, yes antibiotics can cause C-diff, though Flagyl is supposed to prevent that. It
is very important to talk about this with any prescribing doctor. I was treated for lyme
for a year and my LLMD never even mentioned it, nor did I know. He wasn't paying
attention to my meds and I developed C-diff. It was horrible. Non-stop diarrhea for
weeks then my GP put me on flagyl and it continued...he then said that I needed to
"gear up" and it would be fine, it was not fine. I was finally referred to GI and it had
gotten really horrible, they found a pharmacy to compound a very expensive antibiotic
for me and that cleared up the c-diff. I was told not to do anymore lyme treatment (it
was that bad). Just make sure you doctor is on top of your antibiotics and always ask
about C-diff, never stop your flagyl."
15. FREE DAILY DEVOTIONAL FOR 2013
FROM DOM: Check out Joni Eareckson Tada's daily devotional at
http://www.joniandfriends.org/daily-devotional/. On the right side of this page you can
sign up for Joni's daily devotionals via email. I have been getting them every day for
several years now, and they are a huge blessing! A reader told me about these
devotionals a few years ago, and I am so glad he did!
16. ANTI-DEPRESSANT INDUCED SUICIDE & VIOLENCE
From a reader--
It is depressing (no pun intended) to be sitting at the computer on Christmas Eve
contemplating the murders, suicides and other tragedies that are known to have
occurred due to legally prescribed medications. Yes you read that correctly –
LEGALLY PRESCRIBED by doctors with credentials – those who should know what
the side effects are, if any, of the drugs they are prescribing.
http://justmeint.wordpress.com/2012/12/24/prescription-for-mass-murder/ and
http://www.ssristories.com/index.php - Snippet: "SSRI Stories - Antidepressant
Nightmares - We Speak for the Dead to Protect the Living - Sortable Database of
4,800+ Media Articles Naming Antidepressants - WARNING!
Withdrawal can often be more dangerous than continuing on a medication. It is
important to withdraw extremely slowly from these drugs, usually over a period of a
year or more, under the supervision of a qualified specialist. Withdrawal is sometimes
more severe than the original symptoms or problems. This website is a collection of
4,800+ news stories with the full media article available, mainly criminal in nature, that
have appeared in the media (newspapers, TV, scientific journals) or that were part of
FDA testimony in either 1991, 2004 or 2006, in which antidepressants are mentioned.
This web site focuses on the Selective Serotonin Reuptake Inhibitors (SSRIs), of
which Prozac (fluoxetine) was the first. Other SSRIs are Zoloft (sertraline), Paxil
(paroxetine) (known in the UK as Seroxat), Celexa (citalopam), Lexapro
(escitalopram), and Luvox (fluvoxamine). Other newer antidepressants included in this
list are Remeron (mirtazapine), Anafranil (clomipramine) and the SNRIs Effexor
(venlafaxine), Cymbalta (duloxetine) and Pristiq (desvenlafaxine) as well as the
dopamine reuptake inhibitor antidepressant Wellbutrin (bupropion) (also marketed as
Zyban). Although SSRI Stories only features cases which have appeared in the
media, starting March 2012 there will be a Website: http://www.rxisk.org/ which will
allow personal stories to appear in a different Website from SSRI Stories. This is the
work of Dr. David Healy http://davidhealy.org/welcome-to-data-based-medicine."
17. HEARTBROKEN HOLIDAY
Used with permission from Joni and Friends International Disability Center www.joniandfriends.org--
Heartbroken Holiday
Hear my prayer, O Lord, listen to my cry for help; be not deaf to my weeping. - Psalm 39:12
"After gathering up torn ribbon and piles of ripped Christmas wrapping, the young
mother carried trash out to a back alley. Their traditional Christmas morning had been
cut short when her three children said, "Hurry up, Mom! We have to be at Dad's by
10:00 this morning." At the beep of his horn, all three raced out the door to repeat the
gift-giving scene with their father, his new wife and her two children. They would be
there all day and then leave on a trip for the holidays. Suddenly, both house and heart
felt alone and desolate. She sat on the warm hearth of the fireplace allowing tears of
emotion to run free. Then with an overwhelming sense of loneliness, she cried out to
God."[1]
This scene will be repeated countless times during the Christmas season. While the
holidays are a happy, festive time when we celebrate the arrival of Immanuel, "God
with us," remember our Savior focused so often on the brokenhearted (Psalm 51:17).
Jesus proclaimed "he has sent me to bind up the brokenhearted..." (Isaiah 61:1).
What a comfort to widows and single parents during Christmas! Psalm 34:18
underscores again, "The Lord is close to the brokenhearted and saves those who are
crushed in spirit."
Loneliness is a state of sadness which comes from feeling cut off from others. If this
describes you, join the psalmist in crying out to God, "Turn to me and be gracious to
me, for I am lonely and afflicted..." (Psalm 25:16). If you are not isolated, ask God to
reveal someone in your neighborhood or church to whom you can show His love,
compassion, support and friendship. Find a person who is wounded and hurting --
give the best gift this season; be the hands, heart and smile of Christ.
Lord, show me someone this Christmas to whom I can be a companion and helper.
Reveal to me that one who is wounded. I wait for your answer...
[1] June Hunt, "Loneliness... How to Be Alone but Not Lonely," Biblical Counseling
Keys, 05.01/4-pg 1, Dallas, Texas.
Blessings,
Joni and Friends
www.joniandfriends.org
18. MAMA DOG INTERACTING WITH PRECIOUS DOWN SYNDROME CHILD
From a friend--
http://www.youtube.com/watch_popup?v=JA8VJh0UJtg
19. CLEAN INTERNET FILTER
FROM DOM: This is an inexpensive way to protect yourself, children, spouse, and family from
internet porn. Porn is addictive and destructive, particularly to young males. Here in our community, there
was a terrible tragedy: a 7 year old girl, Somer Thompson, was abducted on her way home from school
by a young neighbor man who was addicted to kiddie porn. Her body was later found in a garbage dump.
If you have children in your home, or just don't want to run across porn when you are surfing online, then
check out this low-cost filter. Porn is everywhere. Don't let your sons or grandsons get hooked on this
vile stuff! It only takes one such image for them to develop an addiction. If you notice personality changes
in them or loss of interest in other things, you can suspect that they have gotten hooked on internet porn.
Check their computer usage, and always monitor your child when they are researching online, even for
school projects. This also applies to online gambling addiction. (What a world!)
20. DANGERS OF FLAME RETARDANT CHEMICALS IN FURNITURE
http://articles.mercola.com/sites/articles/archive/2012/12/27/flame-retardant-chemicals.aspx
Snippet: "In the largest study to date of its kind, researchers found in
utero and childhood exposures to flame-retardant chemicals (polybrominated diphenyl
ethers, or PBDEs) were associated with neurodevelopmental delays in school-age
children. As many as 97 percent of all Americans have significant levels of PBDEs in
their blood, which makes in utero exposure highly likely; up to 80 percent of children’s
products, including 60 percent of car seats, also contain PBDEs and other chemicals.
PBDEs easily leach from consumer products and are released into the environment
during manufacturing, where they persist and accumulate in your body. PBDEs have
also been linked to decreased fertility, thyroid problems and liver toxicity. Your
mattress is likely to be one of your most significant exposures to PBDEs, as all U.S.
mattresses are required to be highly flame retardant; look for a chemical-free, organic
or 100% wool mattress for yourself and your child instead......SOLUTION: Clean and
vacuum frequently. Dust bunnies are dangerous."
21. MAKING SENSE OF SUFFERING
http://library.constantcontact.com/download/get/file/1101216782486-88/JoniAndAspire_email+.pdf
FROM DOM: This page has snippets from Joni Eareckson Tada's booklets: "When is It Right to Die?,"
"When God Seems Unjust," "Making Sense of Suffering," "Gaining a Hopeful Spirit".....
and many more that look interesting and relevant. Joni has been a quadriplegic since a diving
accident at age 17. She knows what she's talking about, and I love her thinking and writing!
22. FREE & SIMPLE ADVOCACY IDEA FOR CFIDS/ME
From a reader--
In terms of simple advocacy, we need to get-off-the-internet, start thinking OUTWARDS, and get the message to the masses (not continuously repeated amongst ourselves).
A FREE & EASY idea is to order bulk business cards , and start leaving them around in your travels. The areas I've focused on in the past are: coffee shops, libraries, grocery stores, doctors offices, therapists offices, colleges, cabs, metro trains, STD testing clinics, etc.
FREE BUSINESS CARDS : http://search.yahoo.com/search?p=free+business+cards&ei=UTF-8&fr=w3i&type=W3i_DS,136,0_0,Search,20120102,6901,0,8,0
Modify it to be whatever you want:
FRONT OF CARD (EXAMPLE):
I am very concerned with the lack of research and public attention towards Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (ME), often referred to as "CFS/ME."
CFIDS & ME are acquired multi-system illnesses adversely affecting the heart, brain, immune system, nervous system, circulatory systems and muscles, including post-exertional malaise and neurological/cognitive manifestations. End Stage CFIDS cases are often referred to as "NON HIV AIDS."
BACK OF CARD (EXAMPLE):
Research to help people suffering debilitating illness from NON HIV AIDS, who are often homebound and bedbound, does not exist*. Just from what we know today, in terms of the immune dysfunction and human suffering, CFS/ME is just as serious a public health problem as AIDS.
Please visit www.mecfsforums.com to learn more about this hideous acquired illness, and to get more involved."
Whatever you make it --> Be sure that your anonymous business card has a "CALL TO ACTION" at the end ("please visit..", "please write..." etc.).
Start leaving them EVERYWHERE!! And/or, give a bundle to your family and friends to pass-out.
Well, that's all for now! I wish everyone a blessed New Year in 2013 relying on God our Strength in
good times and bad. Jesus is coming back. Are you ready? (Matthew 25:1-13)
Dominie Bush
100 Tips for Coping with Fibromyalgia & Insomnia
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DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.
