*** DOMINIE'S NEWSLETTER ***
DECEMBER 2004
PAGE 2 (Topics 6-20)
 
Continued from PAGE 1 http://www.fms-help.com/December2004.htm
 
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this newsletter is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this newsletter.

 
6. WHICH TYPE OF FIBRO DO YOU HAVE?
 
From http://www.drlamb.com/--
 
 What Type (s) Of Fibromyalgia Do You Have?

Over the years, working in the pain field, I have concluded that there is than one form of fibromyalgia. The following are some of my ideas on types of fibromyalgia. The same concepts may apply to lesser pain syndromes such as headaches, neck or back pain, and limb pain syndromes.

I have already written a fair amount on the subject of fibromyalgia, and what I believe to be the origin of many of the symptoms and signs. In this section, I will break up fibromyalgia into the different types as I see it when I see a patient. When I refer to different types or forms of fibromyalgia, I am referring to the different contributing causes of the condition with that individual. When I see pain patients, I find it very important to attempt to recreate the "mechanisms" - whether chemical, electrical or mechanical that are involved in that person. On most occasions the mechanisms are mixed.

For the most part, most (but not all) fibromyalgics will fall into the following categories:

  • Post-Traumatic

  • Repetitive Strain (or Repetitive Traumatic)

  • Mood-Related & Sleep disruptive

  • Rheumatoid and Chronic Disease

  • Hormonal

  • Age-Related

In Post-Traumatic cases (which represent about 50% of cases statistically), there is a history of a single event such as a car accident that pre-dates the pain syndrome. The accident commonly causes profound spasm and scarring of the spinal muscles, and it tends to worsen over weeks or months. Patients often complain of headaches first, and then complain of arm or leg numbness or tingling or pain.

Carpal tunnel syndrome, disk injury will commonly eventually occur from the persistent spinal muscle compression. To complicate insurance claims, many of these cases have a history of minor pain syndromes before the accident, giving the insurance companies an easy out for the injury claim.

In general, the sooner therapy can be initiated the better, as spinal muscle scarring will soon develop. As well, I find it very common for the spinal problems to be delayed about two to four months, or more. Trauma can cause fibromyalgia to anyone at any age; but trauma is particularly problematic for older individuals, as the elderly have greater difficulty in recovery.

Repetitive Strain Injury or RSI was certainly a buzzword of the nineties and I believe is fairly accurate term. The idea is that a repeated injury can add up to the same result as one big car accident. In some ways, I believe an RSI can be worse. In RSI the spinal muscles can insidiously shorten and scar, and become very weak. As well, most RSI’s (computer work, Piano and assembly work) are typically a static injury which is a very bad combination as it causes the spinal muscles to shorten at rest and while performing the static activity (see static injury). Return to work or the pain causing activity can be very difficult as it causes static shortening. Most of the cases of RSI fibromyalgia begin gradually with carpal tunnel syndrome, tennis elbow, ulnar neuritis and shoulder Dr. problems. The reason for this is that the repetitive work is causing progressive compression or traction polyneuropathies, or nerve en trapment. I often call RSI a "slow whiplash", as the same problems occur, but just more slowly. Prevention is very important in these cases, as well as early recognition of the pain patterns. I believe it is important to begin thorough stretching as prevention in people who have repetitive-type professions. Unfortunately, most of us fall into this category.

Mood-Related fibromyalgia is important to talk about. However, I find that most physicians are fairly quick to apply anxiety and depression to sufferers of fibromyalgia and chronic pain. I agree that anxiety and depression may aggravate any pain syndrome and it is very important that anxiety or depression be dealt with properly whether a pain syndrome exists or not. However, It is my opinion that most fibromyalgics suffer the syndrome as a result of the other reasons mentioned. I find that the pain syndrome will often cause depression both from the pain and from the suspected alteration of neurotransmitters within the brain. Nevertheless, I have found some patients can develop a diffuse myofascial pain and neuropathic pain syndrome (Fibro) from a profound and persistent anxiety or depressive disorder. Disruption in sleep will tend to contribute to progressive muscle shortening and scarring in the neck and back an d limbs. The result can be joint and nerve compression and therefore pain. It is important to note that chronic pain disrupts sleep and sleep disruption will aggravate or cause chronic pain and muscle dysfunction.

Rheumatoid Disease and Chronic disease can easily cause a chronic pain syndrome that recurs with every flare up and can cause permanent joint and muscle dysfunction. Rheumatoid basically refers to a "blood-borne" disease. Rheumatoid is a fairly general term that indicates the body is "attacking" itself with the immune system. The most common form is rheumatoid arthritis but there are other forms such as Crohn’s Disease and Lupus. These reoccurring "auto-immune" arthritic diseases will cause spinal and limb spasm that is persistent, even after the rheumatoid attack has settled. Often, one joint (such as the ankle or knee) may remain painful and rheumatic but I find many of the other joints can be very receptive to rehabilitation. Many chronic diseases can contribute to a neuromusculoskeletal pain syndrome. Chronic disease such as anaemia, cancer and radiation treatment are to name a few.

Hormonal abnormalities can contribute to many problems including a pain syndrome such as fibromyalgia. Hyperthyroid (overactive thyroid) disease will commonly increase muscle tension and cause agitation and sleep disruption - a perfect recipe for fibromyalgia. Hypothyroid disease (underactive thyroid) can also be associated with chronic pain. Menopause and perimenopause are commonly associated with disruption of almost every aspect of a woman’s life, and may contribute to headaches, neck or back pain, and, of course, the big Fibro. Other hormone disorders may also alter muscle dysfunction, and contribute to various pain syndromes proving once again that the body likes to be a finely tuned machine.

Age-Related Fibromyalgia is actually quite common and often works in conjunction with other contributing factors. It should not surprise anybody to find that a young healthy twenty year old person is more likely to come through a major accident without chronic pain when compared with an eighty year old person with multiple levels of degenerative disk disease and arthritis. Furthermore, the ability of an older person to heal is greatly impaired both at the hormonal level and at the DNA level. Even without trauma, hormone abnormalities, chronic disease, mood disorders or repetitive work, the elderly will have to fight to prevent the onset of spinal compression in their necks and backs. Degenerative spinal disease, loss of flexibility and spinal or joint compression can easily cause a progressive compressive polyneuropathic condition causing many pain syndromes including Fibro.

The "Three-in-one combo pak" is probably the most common form of chronic pain and Fibro. Most sufferers have a bit of a "Heinz 57" mixed version. These individuals usually have a combination of repetitive minor trauma (including improper exercise), single major trauma, are on the older side of life or have a chronic disease or any other possible combo-pak. Others will have one major factor. Still others will have other identifying causes that do not fit into the above recipes. However, my point is that I believe it is important to identify as many of the major factors as possible, as they may be ongoing and contribute to a difficult recovery to a pain syndrome. They may also be reversible, making the pain syndrome more manageable or even aid in recovery.

Finally, it is interesting to note that most acute and chronic pain will fall under similar tendencies. So people suffering chronic headaches will be triggered or aggravated by sleep disruption neck trauma, aging, hormonal disruption, repetitive work, chronic disease, anxiety and sleep disruption. The same will apply to tennis elbow, back pain, arthritis and most other pains including emotional pain.

 7. MAMMOGRAMS BAD FOR YOU?

From a newsletter reader--
 
The Depths of Deceit on Mammography
 
The great deceit began in the early 1970s. It was concocted by insiders at
 
the American Cancer Society (ACS) and their "friends" at the National
 
Cancer Institute (NCI). The number of women who were put "at risk" or who
 
died as a result of this nefarious scheme is not known but estimated to be
 
huge. ...
 
 
In 1978, Irwin J. D. Bross., Director of Biostatistics at Roswell Park
 
Memorial Institute for Cancer Research commented about the cancer screening
 
program:
 
 
"The women should have been given the information about the hazards of
 
radiation at the same time they were given the sales talk for
 
mammography... Doctors were gung ho to use it on a large scale. They went
 
right ahead and X rayed not just a few women but a quarter of a million
 
women... A jump to the exposure of a quarter of a million persons to
 
something which could do more harm than good was criminal  and it was
 
supported by money from the federal government and the American Cancer
 
Society."

[NOTE FROM DOMINIE:  To read the rest of this, email me at dombush@bellsouth.net and request the mammogram article.]

8. FLU AND EARS

From a newsletter reader--

"I'm sure this sounds weird but it really works!  It has been said that most cold and flu germs actually enter the body through your ears.  Your ears are a warm safe place where the germs can multiply.  If you are coming down with a cold or the flu, lie on your side and pour a capful of hydrogen peroxide in your ear.  Let it fizz for 4 or 5 minutes, then tip it out.  Repeat with the other ear, of course!  EVERY time I've felt like I was coming down with a cold (or last year the flu) I used peroxide in my ears and felt IMMEDIATE relief of some symptoms, with the remainder of the symptoms gone within 24 hours."

9.  FOOD ALLERGIES (revisited)

"I just received your newsletter http://www.fms-help.com/November2004.htm and was very interested to read the article on food allergies.  My chiropractor recently suggested that I have blood work to test for them.  Amazingly, what came back was that I am allergic to virtually all the foods I eat regularly -- eggs, wheat, milk, peanuts, and a few other minor things.  When I cut out those foods, instantly the irritable bowel problems I have had for about 15 years were gone!  Talk about a miracle!  Unfortunately, the fibro pain has not decreased, but hey, one thing at a time.  I am, like you, a church organist, and after a big ol' breakfast of peanut butter on wheat bread and a glass of milk, I could barely make it through the worship service without having to make a run for the bathroom.  Duh.  You'd think I would have made the connection.  Thanks so much for your newsletter.  It really gives me something to think about each month."
 
[NOTE FROM DOMINIE:  My mother used to say, "You are your own best doctor, because you know your body better than anyone else."
 
10. CONNECTIVE TISSUE DISORDER SITE
 
From a newsletter reader--
 
Sandy Simmons' Connective Tissue Disorder Site has some interesting info about fibro.
http://www.ctds.info/
 
11. BEXTRA WARNING
 
   The COX-2 inhibitor Bextra, manufactured by Pfizer, doubles patient risk for heart attack or stroke, according to the preliminary results of a University of Pennsylvania study presented on Tuesday at the American Heart Association annual conference in New Orleans, the New York Times reports. The study examined data from 5,930 participants in 12 clinical trials that involved Bextra. According to the study, participants who took Bextra experienced heart attacks or strokes 2.19 times as often as those who took a placebo. Merck withdrew the COX-2 inhibitor Vioxx from the market in September after a "longer and better-controlled study" indicated that the medication doubled patient risk for heart attack or stroke, according to the Times. However, the new Bextra study "is not nearly as persuasive as the trial that led to Vioxx's withdrawal because it is backward-looking and simply reorganizes data presented in other settings" the Times reports. Read the entire story at http://www.kaisernetwork.org/daily_reports/rep_index.cfm?DR_ID=26672

12. HEART DAMAGE AND CFIDS/ME
 
From a newsletter reader--
 
"Interesting research about infections of the heart and the connection to CFS!" 
 
Quote from article:
In this study, 100% of the ME/CFS participants showed signs of weakened function on the left side of the heart. This is the side of the heart that pumps oxygenated blood out to the body. Data, gathered from biopsies and a 24-hour electrocardiogram (EKG) Holter monitor, showed that patients exhibited evidence of cardiomyopathy or disease of muscle in the heart.
http://dem0nmac.mgh.harvard.edu/forum/ChronicFatigueF/11.19.982.09PMIfinallyfoundthe
 
13. FIBROMYALGIA MAGAZINE
 
Link sent in by a newsletter reader--
http://www.fmaware.org/
 
14. THYROID MEDICATION HELPS READER'S FMS SYMPTOMS
 
From a newsletter reader--
 
"Just want to let you know that my Dr. put me on Armour thyroid about
4 months ago, even though my tests came back "normal" (though at the
lowest end of the normal range). We started w/ 30mg and are are now
up to 120. WHAT A HUGE DIFFERENCE!!!  We are still trying to fund
the ideal dose - they have to wait 30 days before increasing each
time. I have had several days of feeling good ALL DAY, which I
haven't had in years. It's helped my fatigue, pain, and especially
my anxiety and grumpy/tense mood. My husband has really noticed the
difference too and I hardly ever loose my patience w/ the kids
anymore. It's the one medication I would never be without! I'd even
give up sups before this and I have always been very against
taking drugs."
 
15. INTERNATIONAL FIBROMYALGIA ORGANIZATIONS
 
Link found by a newsletter reader--
 
http://www.fibromyalgie-rhp.de/FMS_International/fms_international.html
 
[NOTE FROM DOMINIE:  In the past 8 years that I have had my FMS/CFIDS site online, I have heard from sufferers on every continent...except the North and South Poles!  I realized years ago that FMS is not necessarily related to diet, culture or lifestyle.  I personally believe it is a virus or mycoplasma infection that goes into effect when the human immune system becomes compromised through extreme stress of one kind or another.]
 
16. POST POLIO SYNDROME AND CFS
 
Book recommendation from a newsletter reader--you can find more info online--
 
THE POLIO PARADOX: UNDERSTANDING AND TREATING 
"POST-POLIO SYNDROME" and CHRONIC FATIGUE
by Dr. Richard L. Bruno
 
Excerpt from a review written by a lady with spina bifida who read his book:  "I've spent the last week listening-really listening-to my body and it is SCREAMING.  I had become so accustomed to tuning out the aches and pains, the signals my body was sending out to slow down: shoulders that constantly ache and burn, neck muscles that feel too weak to hold up my head, and other
frightening goings-on have given me a real wake up call.  Now that I am
aware of what I'm doing I am truly shocked at how much I have abused my body.
I
started the protocol for PPS immediately with wonderful results!  I now know that I
am NOT giving up but merely giving in and that in itself if very empowering!
The diet is even helping with my fatigue.  Thanks to Dr. Bruno for leading
me on the next chapter of my life...the one where I stop doing for everyone else
and start caring for and taking care of myself.  I'm looking forward to a
kinder, gentler future
."
 
Another reader sent this about the polio vaccine causing CFIDS--
 
"Found this during my research....this is scary!!!  Making me wonder about vaccines more and more!!!"  
http://www.medicaltruth.com/pharmacartel/polio.html
 
17. HOW TO CHECK YOUR THYROID YOURSELF
 
From a reader--
 
"One way that is supposedly much more reliable than blood tests to check your thyroid is by taking your BMR (basal metabolic rate). It's very easy to do - simply take your temperature as soon as you wake up in the am, before you get out of bed. Do this 3 days in a row and average it out. It should be around 98 (orally) for your metabolism to healthy. Otherwise, the lower it is, the worse you probably feel and the slower your metabolism, in which case you would likely benefit from taking thyroid medication. My BMR was 95.5 when I started and now it's around 97. It's amazing what a difference that makes. Also you asked about Armour thyroid - it contains T4 and T3. For many pple w/ FMS their bodies can not convert the T4 in their blood to the active form of thyroid T3 which is what effects your metabolism, hormones, etc. That's why many people with FMS will have "normal" T4 levels in their blood work but still have symptoms of hypothyroid."
 
18. CHRISTMAS BLUES?
 
See my compassionate article at http://www.fms-help.com/Christmas.htm
 
19.  15 MISTAKES YOU CAN'T AFFORD TO MAKE IN FILING FOR DISABILITY
 
Sent in by a newsletter reader--
 
http://scottdavispc.com/articles.html - Atty. Scott Davis's website for people applying for disability
 
[NOTE FROM DOMINIE:  Also see my "Getting Disability" site at http://www.fms-help.com/disability.htm  I personally have not filed for disability, but I have received some excellent advice from those who have, so I am glad to share it with you.]
 
20.  M.E. OR CFS AND DISABILITY
 
From a newsletter reader--
 
"M.E. is used in most parts of the world except United States where the CDC went off on their own and called this disease CFS, which has been very unfortunate as you well know.  It was very much a plot to make the disease seem less serious than it really is.  And they ignored the fact that Myalgic Encephalomyelitis has been in the International Classification of Diseases since 1969 under the heading of neurological diseases.  And people with this disease have abnormal brain SPECT & PET scans, which is neurological evidence of the disease.  I have a very abnormal brain SPECT scan showing decreased blood flow to several areas of my brain.  We are trying to get M.E. reestablished here in the United States along with the neurological classification.  In fact, I had my doctor change my diagnosis to M.E. in the year 2000.  I also applied for SSD using M.E., and I received SSD with no problem after five months whereas a lot of people wait two or three years with the diagnosis CFS."
 

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.