*** DOMINIE'S NEWSLETTER
***
DECEMBER
2004
PAGE 2 (Topics 6-20)
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia/chronic fatigue
syndrome survivor. The purpose of this newsletter is not to diagnose or cure any
disease or malady, but is presented as food for thought. This information
cannot take the place of professional medical advice. Any attempt to diagnose
and treat an illness should come under the direction of a physician. No
guarantees are made regarding any of the information in this
newsletter.
6. WHICH TYPE OF FIBRO
DO YOU HAVE?
What Type (s) Of Fibromyalgia Do You Have?
Over the years, working in the pain field, I have concluded that
there is than one form of fibromyalgia. The following are some of my ideas on
types of fibromyalgia. The same concepts may apply to lesser
pain syndromes such as headaches, neck or back pain, and limb pain
syndromes.
I have already written a fair amount on the subject of
fibromyalgia, and what I believe to be the origin of many of the symptoms and
signs. In this section, I will break up fibromyalgia into the different types as
I see it when I see a patient. When I refer to different types or forms of
fibromyalgia, I am referring to the different contributing causes of the
condition with that individual. When I see pain patients, I find it very
important to attempt to recreate the "mechanisms" - whether chemical, electrical
or mechanical that are involved in that person. On most occasions the mechanisms
are mixed.
For the most part, most (but not all) fibromyalgics will fall
into the following categories:
-
Post-Traumatic
-
Repetitive Strain (or Repetitive Traumatic)
-
Mood-Related & Sleep disruptive
-
Rheumatoid and Chronic Disease
-
Hormonal
-
Age-Related
In Post-Traumatic cases (which
represent about 50% of cases statistically), there is a history of a single
event such as a car accident that pre-dates the pain syndrome. The accident
commonly causes profound spasm and scarring of the spinal muscles, and it tends
to worsen over weeks or months. Patients often complain of headaches first, and
then complain of arm or leg numbness or tingling or pain.
Carpal tunnel syndrome, disk injury will commonly eventually
occur from the persistent spinal muscle compression. To complicate insurance
claims, many of these cases have a history of minor pain syndromes before the
accident, giving the insurance companies an easy out for the injury claim.
In general, the sooner therapy can be initiated the better, as
spinal muscle scarring will soon develop. As well, I find it very common for the
spinal problems to be delayed about two to four months, or more. Trauma can
cause fibromyalgia to anyone at any age; but trauma is particularly
problematic for older individuals, as the elderly have greater difficulty
in recovery.
Repetitive Strain Injury or
RSI was certainly a buzzword of the nineties and I believe is fairly accurate
term. The idea is that a repeated injury can add up to the same result as one
big car accident. In some ways, I believe an RSI can be worse. In RSI the spinal
muscles can insidiously shorten and scar, and become very weak. As well, most
RSI’s (computer work, Piano and assembly work) are typically a static injury
which is a very bad combination as it causes the spinal muscles to shorten
at rest and while performing the static activity (see static injury). Return
to work or the pain causing activity can be very difficult as it
causes static shortening. Most of the cases of RSI fibromyalgia begin gradually
with carpal tunnel syndrome, tennis elbow, ulnar neuritis and shoulder Dr.
problems. The reason for this is that the repetitive work is causing progressive
compression or traction polyneuropathies, or nerve en trapment. I often call RSI
a "slow whiplash", as the same problems occur, but just more
slowly. Prevention is very important in these cases, as well as
early recognition of the pain patterns. I believe it is important
to begin thorough stretching as prevention in people who have
repetitive-type professions. Unfortunately, most of us fall into this
category.
Mood-Related fibromyalgia is
important to talk about. However, I find that most physicians are fairly quick
to apply anxiety and depression to sufferers of fibromyalgia and
chronic pain. I agree that anxiety and depression may aggravate any pain
syndrome and it is very important that anxiety or depression be dealt with
properly whether a pain syndrome exists or not. However, It is my opinion that
most fibromyalgics suffer the syndrome as a result of the other reasons
mentioned. I find that the pain syndrome will often cause depression both from
the pain and from the suspected alteration of neurotransmitters within the
brain. Nevertheless, I have found some patients can develop a diffuse myofascial
pain and neuropathic pain syndrome (Fibro) from a profound and persistent
anxiety or depressive disorder. Disruption in sleep will tend to
contribute to progressive muscle shortening and scarring in the neck and back an
d limbs. The result can be joint and nerve compression and therefore pain. It is
important to note that chronic pain disrupts sleep and sleep disruption will
aggravate or cause chronic pain and muscle dysfunction.
Rheumatoid Disease and Chronic
disease can easily cause a chronic pain syndrome that recurs with
every flare up and can cause permanent joint and muscle dysfunction. Rheumatoid
basically refers to a "blood-borne" disease. Rheumatoid is a fairly
general term that indicates the body is "attacking" itself with the
immune system. The most common form is rheumatoid arthritis but
there are other forms such as Crohn’s Disease and Lupus. These reoccurring
"auto-immune" arthritic diseases will cause spinal and limb spasm that is
persistent, even after the rheumatoid attack has settled. Often, one joint (such
as the ankle or knee) may remain painful and rheumatic but I find many of the
other joints can be very receptive to rehabilitation. Many chronic diseases can
contribute to a neuromusculoskeletal pain syndrome. Chronic disease such as
anaemia, cancer and radiation treatment are to name a few.
Hormonal abnormalities can
contribute to many problems including a pain syndrome such as fibromyalgia.
Hyperthyroid (overactive thyroid) disease will commonly increase muscle tension
and cause agitation and sleep disruption - a perfect recipe for fibromyalgia.
Hypothyroid disease (underactive thyroid) can also be associated with chronic
pain. Menopause and perimenopause are commonly associated with disruption of
almost every aspect of a woman’s life, and may contribute to headaches, neck or
back pain, and, of course, the big Fibro. Other hormone disorders may also alter
muscle dysfunction, and contribute to various pain syndromes proving once again
that the body likes to be a finely tuned machine.
Age-Related Fibromyalgia is
actually quite common and often works in conjunction with other contributing
factors. It should not surprise anybody to find that a young healthy twenty year
old person is more likely to come through a major accident without chronic pain
when compared with an eighty year old person with multiple levels of
degenerative disk disease and arthritis. Furthermore, the ability of an older
person to heal is greatly impaired both at the hormonal level and at the DNA
level. Even without trauma, hormone abnormalities, chronic disease, mood
disorders or repetitive work, the elderly will have to fight to prevent the
onset of spinal compression in their necks and backs. Degenerative spinal
disease, loss of flexibility and spinal or joint compression can easily cause a
progressive compressive polyneuropathic condition causing many pain syndromes
including Fibro.
The "Three-in-one combo pak"
is probably the most common form of chronic pain and Fibro. Most
sufferers have a bit of a "Heinz 57" mixed version. These individuals usually
have a combination of repetitive minor trauma (including improper exercise),
single major trauma, are on the older side of life or have a chronic disease or
any other possible combo-pak. Others will have one major factor. Still others
will have other identifying causes that do not fit into the above recipes.
However, my point is that I believe it is important to identify as many of the
major factors as possible, as they may be ongoing and contribute to a
difficult recovery to a pain syndrome. They may also be reversible, making the
pain syndrome more manageable or even aid in recovery.
Finally, it is interesting to note that most acute and
chronic pain will fall under similar tendencies. So people suffering
chronic headaches will be triggered or aggravated by sleep disruption neck
trauma, aging, hormonal disruption, repetitive work, chronic disease, anxiety
and sleep disruption. The same will apply to tennis elbow, back pain, arthritis
and most other pains including emotional pain.
7. MAMMOGRAMS
BAD FOR YOU?
From a newsletter reader--
The Depths of Deceit on Mammography
The great deceit began in the early 1970s. It was concocted by
insiders at
the American Cancer Society (ACS) and their "friends" at the
National
Cancer Institute (NCI). The number of women who were put "at
risk" or who
died as a result of this nefarious scheme is not known but
estimated to be
huge. ...
In 1978, Irwin J. D. Bross., Director of Biostatistics at
Roswell Park
Memorial Institute for Cancer Research commented about the
cancer screening
program:
"The women should have been given the information about the
hazards of
radiation at the same time they were given the sales talk for
mammography... Doctors were gung ho to use it on a large
scale. They went
right ahead and X rayed not just a few women but a quarter of
a million
women... A jump to the exposure of a quarter of a million
persons to
something which could do more harm than good was
criminal and it was
supported by money from the federal government and the
American Cancer
Society."
[NOTE FROM DOMINIE: To read the rest of this,
email me at dombush@bellsouth.net
and request the mammogram article.]
8. FLU AND
EARS
From a newsletter reader--
"I'm sure this sounds weird but it really works! It has
been said that most cold and flu germs actually enter the body through your
ears. Your ears are a warm safe place where the germs can multiply.
If you are coming down with a cold or the flu, lie on your side and pour a
capful of hydrogen peroxide in your ear. Let it fizz for 4 or 5 minutes,
then tip it out. Repeat with the other ear, of course! EVERY time
I've felt like I was coming down with a cold (or last year the flu) I used
peroxide in my ears and felt IMMEDIATE relief of some symptoms, with the
remainder of the symptoms gone within 24 hours."
9. FOOD ALLERGIES
(revisited)
"I just received your newsletter
http://www.fms-help.com/November2004.htm
and was very interested to read the article on food allergies. My
chiropractor recently suggested that I have blood work to test for
them. Amazingly, what came back was that I am allergic to virtually all
the foods I eat regularly -- eggs, wheat, milk, peanuts, and a few other
minor things. When I cut out those foods, instantly the irritable bowel
problems I have had for about 15 years were gone! Talk about a
miracle! Unfortunately, the fibro pain has not decreased, but hey, one
thing at a time. I am, like you, a church organist, and after a big ol'
breakfast of peanut butter on wheat bread and a glass of milk, I
could barely make it through the worship service without having to
make a run for the bathroom. Duh. You'd think I would have made the
connection. Thanks so much for your newsletter. It really gives me
something to think about each month."
[NOTE FROM DOMINIE: My mother used to say,
"You are your own best doctor, because you know your body better than anyone
else."
10. CONNECTIVE TISSUE
DISORDER SITE
From a newsletter reader--
Sandy Simmons' Connective Tissue Disorder Site has some
interesting info about fibro.
11. BEXTRA
WARNING
The COX-2 inhibitor
Bextra,
manufactured by Pfizer,
doubles patient risk for heart attack or
stroke, according to the preliminary results of a University of
Pennsylvania study presented on Tuesday at the American Heart Association annual
conference in New Orleans, the New York Times reports. The study examined data
from 5,930 participants in 12 clinical trials that involved Bextra. According to
the study, participants who took Bextra experienced heart attacks or strokes
2.19 times as often as those who took a placebo. Merck withdrew the COX-2
inhibitor Vioxx from the market in September after a "longer and
better-controlled study" indicated that the medication doubled patient risk for
heart attack or stroke, according to the Times. However, the new Bextra study
"is not nearly as persuasive as the trial that led to Vioxx's withdrawal because
it is backward-looking and simply reorganizes data presented in other settings"
the Times reports. Read the entire story at
http://www.kaisernetwork.org/daily_reports/rep_index.cfm?DR_ID=26672
12. HEART DAMAGE AND
CFIDS/ME
From a newsletter reader--
"Interesting research about infections of the heart and the connection to
CFS!"
Quote from article:
In this study, 100% of the ME/CFS participants showed signs of
weakened function on the left side of the heart. This is the
side of the heart that pumps oxygenated blood out to the body. Data, gathered
from biopsies and a 24-hour electrocardiogram (EKG) Holter monitor, showed that
patients exhibited evidence of cardiomyopathy or disease of muscle in the
heart.
13. FIBROMYALGIA
MAGAZINE
Link sent in by a newsletter reader--
14. THYROID MEDICATION HELPS
READER'S FMS SYMPTOMS
From a newsletter reader--
"Just want to let you know that my Dr. put me on Armour
thyroid about
4 months ago, even though my tests came back "normal"
(though at the
lowest end of the normal range). We started w/ 30mg and are
are now
up to 120. WHAT A HUGE DIFFERENCE!!! We are still trying to
fund
the ideal dose - they have to wait 30 days before increasing each
time. I have had several days of feeling good ALL DAY, which I
haven't
had in years. It's helped my fatigue, pain, and especially
my anxiety and
grumpy/tense mood. My husband has really noticed the
difference too and I
hardly ever loose my patience w/ the kids
anymore. It's the one medication I
would never be without! I'd even
give up sups before this and I have always
been very against
taking drugs."
15. INTERNATIONAL FIBROMYALGIA
ORGANIZATIONS
Link found by a newsletter reader--
[NOTE FROM DOMINIE: In the past 8 years that I have had
my FMS/CFIDS site online, I have heard from sufferers on every
continent...except the North and South Poles! I realized years ago that
FMS is not necessarily related to diet, culture or lifestyle. I personally
believe it is a virus or mycoplasma infection that goes into effect when the
human immune system becomes compromised through extreme stress of one kind or
another.]
16. POST POLIO SYNDROME AND
CFS
Book recommendation from a newsletter reader--you can find more info
online--
THE POLIO PARADOX: UNDERSTANDING AND TREATING
"POST-POLIO SYNDROME" and CHRONIC FATIGUE
by Dr. Richard L. Bruno
Excerpt from a review written by a lady with spina bifida who read his
book: "I've spent the last week listening-really listening-to my
body and it is SCREAMING. I had become so accustomed to tuning out the
aches and pains, the signals my body was sending out to slow down: shoulders
that constantly ache and burn, neck muscles that feel too weak to hold up my
head, and other
frightening goings-on have given me a real wake up
call. Now that I am
aware of what I'm doing I am truly shocked at how
much I have abused my body. I
started the protocol for PPS
immediately with wonderful results! I now know that I
am NOT giving up
but merely giving in and that in itself if very empowering!
The diet is even
helping with my fatigue. Thanks to Dr. Bruno for leading
me on the next
chapter of my life...the one where I stop doing for everyone else
and start
caring for and taking care of myself. I'm looking forward to
a
kinder, gentler future."
Another reader sent this about the polio vaccine causing
CFIDS--
"Found this during my research....this is scary!!! Making me wonder
about vaccines more and more!!!"
17. HOW TO CHECK YOUR THYROID
YOURSELF
From a reader--
"One way that is supposedly much more reliable than blood tests to check
your thyroid is by taking your BMR (basal metabolic rate). It's very
easy to do - simply take your temperature as soon as you wake up in the am,
before you get out of bed. Do this 3 days in a row and average it out.
It should be around 98 (orally) for your metabolism to healthy. Otherwise, the
lower it is, the worse you probably feel and the slower your metabolism, in
which case you would likely benefit from taking thyroid medication. My BMR was
95.5 when I started and now it's around 97. It's amazing what a difference that
makes. Also you asked about Armour thyroid - it contains T4 and T3. For many
pple w/ FMS their bodies can not convert the T4 in their blood to the active
form of thyroid T3 which is what effects your metabolism, hormones, etc. That's
why many people with FMS will have "normal" T4 levels in their blood work but
still have symptoms of hypothyroid."
18. CHRISTMAS
BLUES?
19. 15 MISTAKES YOU CAN'T
AFFORD TO MAKE IN
FILING FOR DISABILITY
Sent in by a newsletter reader--
[NOTE FROM DOMINIE: Also see my "Getting Disability" site
at http://www.fms-help.com/disability.htm
I personally have not filed for disability, but I have received some excellent
advice from those who have, so I am glad to share it with
you.]
20. M.E. OR CFS AND
DISABILITY
From a newsletter reader--
"M.E. is used in most parts of the world except United States where the CDC
went off on their own and called this disease CFS, which has been very
unfortunate as you well know. It was very much a plot to make the disease
seem less serious than it really is. And they ignored the fact that
Myalgic Encephalomyelitis has been in the International
Classification of Diseases since 1969 under the heading of neurological
diseases. And people with this disease have abnormal brain SPECT & PET
scans, which is neurological evidence of the disease. I have a very
abnormal brain SPECT scan showing decreased blood flow to several areas of my
brain. We are trying to get M.E. reestablished here in the United States
along with the neurological classification. In fact, I had my doctor
change my diagnosis to M.E. in the year 2000. I also applied for SSD using
M.E., and I received SSD with no problem after five months whereas a lot of
people wait two or three years with the diagnosis CFS."