*** DOMINIE'S NEWSLETTER ***
DECEMBER 2004
PAGE 1
DISCLAIMER:
I am not a medical doctor. I am a
fibromyalgia/chronic fatigue syndrome survivor. The purpose of this newsletter
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this newsletter.
Scroll down this page
to read Topics 1-5:
1.
LETTERS FROM READERS
2.
MILLION LETTER CAMPAIGN UPDATE AND T-SHIRT/SWEATSHIRT INFO
3.
POSITIVE RESULTS IN 150 FIBRO PATIENTS
4. FIBROMYALGIA TALES
5. FMS
ARTICLE WRITTEN BY A READER'S BROTHER
6.
WHICH TYPE(S) OF FIBRO DO YOU HAVE?
7.
MAMMOGRAMS BAD FOR YOU?
8. FLU
AND EARS
9.
FOOD ALLERGIES (revisited)
10. CONNECTIVE TISSUE DISORDER SITE
11.
BEXTRA WARNING
12.
HEART DAMAGE AND CFIDS/M.E.
13.
FIBROMYALGIA MAGAZINE
14.
THYROID MEDICATION HELPS READER'S FMS SYMPTOMS
15.
INTERNATIONAL FIBROMYALGIA ORGANIZATIONS
16.
POST-POLIO SYNDROME AND CFS
17.
HOW TO CHECK YOUR THYROID YOURSELF
18.
CHRISTMAS BLUES?
19. 15
MISTAKES YOU CAN'T AFFORD TO MAKE IN FILING FOR DISABILITY
20. M.E.OR CFS AND DISABILITY
21.
BRAIN AND SUBSTANCE "P"
22.
PAIN SCALES
23.
THYROID MEDICATION CYTOMEL
24.
NEW EVIDENCE FOR CFS
25.
WILSON'S THYROID & CHILDBIRTH
26.
SINGLE WITH CFS?
27. TV
SHOW PORTRAYS FIBRO IN A NEGATIVE MANNER
28.
LYMPHATIC MASSAGE
29.
FIBROMYALGIA & FATIGUE CENTERS
30.
ALTERNATIVES TO ANTI-DEPRESSANTS
31.
FMS SURVIVORS SUPPORT ONLINE
32.
CHOCOLATE FOR COUGHS?
33.
ROOT CANALS BAD
34. A
MERRY HEART
35.
SPIRITUAL UPLIFT CORNER
36.
DOMINIE'S PERSONAL UPDATE
1. LETTERS
FROM READERS
"I was thrilled when I
found your site...thank you for all the helpful
information."
"You have a wonderful informative website.
Plan to share your website with our support group members."
"I have received my T-Shirt and
Sweatshirt http://www.fms-help.com/tshirts.htm for
The FMS/CFIDS Million Letter Campaign. They are Really
Beautiful and I am Proud to wear them. I have
been dx with Fibro now for 6 years now. I really enjoy your website. I am so
glad I have found it. It helps me deal and understand this Disease. Thank you
for being here for all of us."
"Thank you for your help and
newsletter. I have just signed up and am learning so
much! I don't feel as alone in all
this."
About the marriage booklet at http://www.fms-help.com/marriage.htm: "I
am so thrilled to see that you are also a Christian (as are many
others that I talk to that are dealing with CFS/FMS). It certainly helps when we
are trying to deal with things as a godly wife/mother, etc., to know that there
are others who can encourage us along our
way."
"I am reading your story on fibromyalgia http://www.fms-help.com/fibro.htm I was diagnosed with it approximately 2 years ago.
Thank you for having this web page. It is good to know
someone knows how you feel and why."
"I love my Tshirt!! http://www.fms-help.com/tshirts.htm
I wore it right away!! The ribbon colors, purple and green look amazing
together! Thank you so much. I already have my letter written http://www.fms-help.com/letter.htm
just waiting now for May to send them out! Thank you Dominie and to Jason
too for such prompt, polite and friendly service!" [NOTE FROM
DOMINIE: Jason at Cornerstone Graphics is making the T-shirts for
us. He has been wonderful to work with! They are donating a portion
of the proceeds from the shirt sales to the campaign.]
"I have been reading on your site http://www.fms-help.com for a good 1/2
hr. now & I'm very impressed. I'd like to request the list of helpful
sites about family relationships for those who have
FMS/CFIDS."
"I'm getting a bit overwhelmed by all the material I could
read, but will look for items of interest in your [newsletter] table of
contents." [NOTE FROM DOMINIE: This is the best way to
utilize my newsletter....just look for topics that catch your
interest--otherwise it can be mind-boggling.]
"I really enjoy your newsletters. they are most informative.
I am continually struck by new information you
send."
"I have also been battling with this problem for about forty
years, diagnosed about 11 years ago. I have been bed-ridden, befuddled,
and house bound many times and must still bow to this spectre. No
longer able to work, teach dance, or walk very far without assistance, I
am still plodding along, hoping for some relief from this nightmare of
constant jabbings, stabs, aches, cramps and the constant feeling of being
'one big bruise.' Thank you for stepping up to the forefront as our champions.
Perhaps something will come of it that is positive and nothing like the many,
many, doctors, (of whom I've forgotten names because there ARE so many) who know
less than I of this malady."
"Thank you for your tireless work to supply we in the
hinterlands with validating and comforting
messages."
"I was just given, by a
chance conversation, a copy of the Million Letter Campaign http://www.fms-help.com/letter.htm
I was EXTREMELY interested in your website & read most of it. In
the last 10-12 months I have developed a lot of oddball
symptoms that after reading your articles, I am afraid that I MAY be
suffering from FMS. I am by NO means a hypochondriac, I just want to know
what is going on & that it's not all in my
head."
myself. I have FMS/CFS and I will send out the letters as
requested. If there is anything I can do for DOCTORS, LAWYERS, PEOPLE
to take me serious in this uphill battle I face EVERYDAY
of my life I will do it."
"Kudos to you for your determination to help
others!!! I thank you many times over. Keep up the good work as one
of God's 'angels' here on earth."
"I was just reading your story on Fibro http://www.fms-help.com/fibro.htm after
looking at all the copies of my doctors reports and test results since 1982.
I was just recently diagnosed with FMS but didn't really believe it until
I read your story. It's all too familiar. I think
I'm starting to reach my limit of endurance and need to reach out to
others who understand. In my family I'm considered the strong one
and always have to support everyone else. They don't care about things
such as 'what's that Fibro thing?'"
2. MILLION
LETTER CAMPAIGN UPDATE AND
T-SHIRT/SWEATSHIRT INFO
There are 17 ladies now working on the MLC
team to get the word out to people with FMS/CFIDS, support groups and
organizations. You can learn about the Million Letter
Campaign at http://www.fms-help.com/letter.htm We are asking people with FMS/CFIDS to write a one page letter
about their illness and snail mail it to the 5 addresses listed on the site on
May 1, 2005. The difference between writing letters individually vs. the
MLC plan is the difference between snowflakes and an AVALANCHE!! Please
plan to participate. We hope to gain national recognition for this illness
and media coverage to help increase awareness of fibromyalgia and chronic
fatigue syndrome. The Million Letter Campaign T-shirts and
Sweatshirts are REASONABLY PRICED, BEAUTIFUL and HIGH
QUALITY!!! http://www.fms-help.com/tshirts.htm Wearing them will help support the campaign and get the word
out!
Here's a letter from a
newsletter reader about her shirt--
"Just thought I would let you know about how
your t-shirts/sweatshirts can be a teaching tool. I stood in line at the grocery
store last week and the woman behind me was reading the back of my sweat shirt
and asked me about it. I was able to tell her about fibromyalgia, facts, not
myths and she was very interested to hear about it. So, not only will
be educating those we write letters, but by wearing our shirts, we can
educate the public, one person at a time. By the way, if anyone
is interested, I love my sweatshirt, and it washes up
wonderfully!"
3.
POSITIVE RESULTS IN 150 FIBROMYALGIA PATIENTS
From a newsletter reader (if this article
were written in PLAIN English, it would be more helpful)---
Article from Aging
Healthfully Magazine
The data in this clinical outcome study
document the efficacy of the ecologic-integrative management protocols used in
reversing fibromyalgia (excellent or good outcome in 84.7%).
Abstract from The Journal of Integrative
Medicine Volume 3 Number 1
Majid Ali, M.D., Judy Juco, M.D., Alfred O.
Fayemi, M.D., Omar Ali, M.D., Mahboob Baig, M.B.,B.S.;
Marta Babol, M.D.,
Karimullah Zirvi, Ph.D., Carol Grieder-Bradenberger, R.N., Mary Ann Carroll,
R.N.
Here's an excerpt--
Ecologic-Integrative Management
Protocols
The comprehensive, ecologic-integrative
management protocols employed were based on clinical, biochemical, and
high-resolution microscopic assessment of the microecologic cellular and
macroecologic tissue-organ systems of the body. Such protocols included the
following: choices in the kitchen designed to provide for optimal hydration,
elimination of foods causing incompatibility reactions and rapid
glucose-insulin-adrenaline shifts; supplementation with vitamins, minerals, and
some "redox-restorative substances" (RRSs) such as glutathione, taurine,
methylsulfonylmethane (MSM), coenzyme Q10, and lipoic acid; ample herbal support
for the bowel, blood, and liver ecosystems (including colon hydrotherapy and
liver flushes); endocrine support, especially for the thyroid, adrenals, and sex
hormones; intramuscular and intravenous nutrient protocols; oxygenative
therapies, including nasal oxygen, intravenous infusions of hydrogen peroxide
and ozone, and EDTA chelation; gentle stretching and noncompetitive (limbic)
exercise; and training in effective methods for self-regulation, stress
reduction, and guidance for spiritual surrender.
4.
FIBROMYALGIA TALES
I found your wonderful fibromyalgia
website today and I was wondering if I could publish your story of fibro on my
own new website. I currently run a site called IBS Tales for irritable bowel
syndrome sufferers at www.ibstales.com and the site is
basically a way for sufferers to read about the experiences of others and swap
stories.
Because a lot of IBS people suffer
from fibro as well I am starting a new site called Fibromyalgia
Tales. Because it is brand new I need a few stories to get it going,
and I was wondering if you would mind if I included yours? I would of course be
happy to include a link to your website or email
address.
Although there is nothing online yet
the URL will be www.fibromyalgia.org.uk and I expect to
have something online during this coming weekend.
I would be
very grateful if you could let me know whether this would be OK, and if there's
anything extra you would like to write about your fibro experiences then I would
be very happy to hear about them. The limit should be 3,000 words, but I'm
happy to edit stories if someone has a particularly long version of
theirs.
All the
best,
5. FMS
ARTICLE WRITTEN BY A READER'S BROTHER
WHEN
A LOVED ONE HAS FIBROMYALGIA, HOW CAN I HELP?
DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.