Page 1 (Please scroll down to read Topics 1-7):
1.
LETTERS FROM READERS
2. MERCURY POISONING
3.
PAIN IN CALF OF LEG
4.
TESTS FOR FMS/CFIDS
5.
COLD SORES
6. MILLION LETTER CAMPAIGN UPDATE!
7.
DETOXING AND FIBRO
8. HEPARIN (revisited....DANGERS!)
9. BREAST IMPLANTS AND PAIN PACEMAKERS
10.
HATE TO FLOSS?
11.
VALTREX DANGERS (DR. DANTINI revisited)
12. HOLOSYNC FOR SLEEP AND DEPRESSION
13. THE MAKER'S DIET
14. PAINLESS EXERCISE
15.
DR. WONG & VITALZYME (revisited)
16. SLEEP IDEAS FROM A READER
17.
CHECK YOUR MEDS FOR INTERACTIONS
18.
WHAT ARE ENZYMES?
19.
DRY EYES & MOUTH; FINGERS SWELLING
20.
FMS "DREAM" DOCTOR
21.
YOGA BALL FOR STRETCHING
22.
MYOFASCIAL RELEASE
23. SLEEP COMMENT
24. IN
REMEMBRANCE OF DONNA
25. ANA POSITIVE
26.
SPIRITUAL UPLIFT CORNER
27.
DOMINIE'S PERSONAL UPDATE
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
1.
LETTERS FROM READERS
"I have had FMS
for about 10 years, suffering a lot. Your website http://www.fms-help.com is unbelievable -
fantastic, and thank you for doing what you have done, and continue to do with
respect to all the information etc. posted there. Your comments are 100%
right, and what you have experienced and talked about is
the real story and the real pain."
"I love your newsletter. I am now
21 but have had FMS since I was 16. Cause still unknown. I
definitely take comfort in your newletter and love the new theories that
will help or just any medical info! I'm really just writing to say
thank you for what you do. We are all not "crazy" but the pain is
real. I no longer can sleep without medication, but I need to sleep so I'm
taking ambien. Its one of the few medications I have tried that has no
horrid side affects! My birthday is ironically on May
12...so I make sure to tell everyone that it's also FMS awareness
day!"
"I have been able to go to church 11 out of 13 Sundays now
and Sunday School last week. I will always be grateful to God and to you
for your encouragement and ideas. No one can make it when they lose
HOPE! You are a great cheerleader! You dish out lots of that wonderful
HOPE!"
"I have enjoyed your newsletter
sooooo much. I have even put them all on CDs so as to have them
to reread."
"I have read both parts of
the marital harmony--an emergency marriage manual http://www.fms-help.com/marriage.htm
yesterday. Thank you so much for writing it. I really enjoyed reading it and know it will be helpful.
I will be referring back to it as
well. I have also passed it on to a Christian
Women's Group that I am a part of. Many
are struggling in marriages there."
"I'm a nurse health educator that teaches
pain management and I always give your site http://www.fms-help.com at one of the
classes. Thanks for sending the newsletters to me."
"I really like
reading your newsletters. They have been such
great help to me and some of my friends as well."
"You are AWESOME! My daughter just asked me
had I ever met you for you to be so kind to send so much helpful information. My
answer - no, but I feel like I've known you for years. Thank
you so much. I've never been given so much information on migranes. Definitely
not from any of the doctors we have seen. Not even her
neurologist."
"Thank you for your tireless
efforts for all those experiencing FMS."
"I found your website http://www.fms-help.com I have
suffering with FMS and chronic fatigue for at least 20 years, but have been
at my lowest point the past 2 weeks . I thank God for everything.
You are a true blessing from above."
2.
MERCURY POISONING
This link was sent by a newsletter
reader--
http://www.mercurypoisoned.com (Marie's
Story)
Also, I received this email from another
newsletter reader about successful mercury removal--
"My father in law puts his improvement down to having
all his old mercury fillings removed after reading about it in a link you
provided - he discovered a dentist years ago had left mercury in his gums too
and can trace his improvement since having months of work to sort this
out. He would not be feeling so much better now
without your help - so we thank you for your service and all the hours of work
you must put in but thought you would like to know it is worth it - you have
changed Tom's life."
3.
PAIN IN CALF OF LEG
From Shirley PryWarr@aol.com--
"Has anyone that you can recall ever said
anything about pains in their legs, especially the calfs? Mine hurt me a
lot, especially when I am resting and the pain keeps me up at night way too
often. Haven't been to the dr. yet because most of the time it's
fruitless. Any help you can give from any one of your clients would be
appropriate. i know you can't give medical advice, but maybe one of your
clients has an answer. Thanks for keeping all of us with FIBRO
informed."
[NOTE FROM DOMINIE: If you have
comments or information, please respond directly to Shirley at
PryWarr@aol.com]
4. TESTS FOR
FMS/CFIDS
From immunesupport.com's Tip of the
Day--
Garth Nicolson, Ph.D., recommends a series of tests important in charting
the proper course of treatment for his CFS and FM patients. To determine the
presence of mycoplasma infections, a Polymerase Chain Reaction (PCR) test is
crucial because of its being "very sensitive and highly specific." Sensitivity
is required to detect mycoplasma presence since these microorganisms hide in the
tissues and organs and are not as evident in the blood stream.
Dr. Nicolson also suggests PCR tests to detect Chlamydia, Lyme disease, HHV-6, and cytomegalovirus as these infections are also commonly found in CFS and FM patients. Tests to spot various coagulation problems are also encouraged. To receive accurate results for most of this lab work, patients should be off all antibiotics and immune-enhancing products for at least four weeks prior to testing. (For more information on testing see "Important Tests for Chronic Fatigue Syndrome and Fibromyalgia Patients", www.immunesupport.com/library/showarticle.cfm?ID=3683.)
(Source: ProHealth's Healthwatch CFS & FM Newsletter, Vol. XI, No. 4, 2002.)
5.
COLD SORES
The best thing I've found for clearing up
cold sores is hand sanitizer gel. Apply to clean
skin. It begins to dry the sore right away and kill germs. If you
know of other remedies, write me at dombush@bellsouth.net
It seems that about 20% of the population is
afflicted with these nasty things.
6. MILLION LETTER CAMPAIGN
Comment from a newsletter reader's
doctor: "THE REASON FMS IS NOT
RESEARCHED ENOUGH IS BECAUSE IT IS A WOMAN'S DISEASE. IF MEN ALSO HAD IT
TO THE EXTENT OF WOMEN THE RESEARCH WOULD HAVE BEEN MORE
INTENSE" (She also said that her
new doctor LOVES the MILLION
LETTER IDEA and told her he was glad I was still fighting to help
others.)
[NOTE FROM DOMINIE: If we
women are good at something, it's "sharing" information with others, so please
let your fibro support groups, favorite fibro sites, posting groups, newsgroups,
etc. know about the letting writing campaign. For my male readers with
FMS/CFIDS, your life is possibly even more difficult than ours because you are
expected to provide for your family and this illness can be disabling.
Most men with FMS are not understood by their families and employers--if they
even still have one! So I urge all of my male readers to also write your
letters and send them out on May 1, 2005. See http://www.fms-help.com/letter.htm
for the addresses.]
Below are responses from newsletter readers
about the Million Letter campaign--
"I'm suffering from severe fibro
and major depression. I am very interested in writing all the letters
that are necessary for someone to help us. We need you. We will
make this work as long as
we all stick together."
"We are fighting for SSI and there is not enough research
on the disease. They make us feel that it's all in our heads. If only they
could live with this for one week then maybe they would understand how badly we
are suffering with severe chronic pains all over our bodies. I am sending
all this information to everyone, especially to my Fibro Chronic Pain
Support Group. I will be asking them to send out letters too for our
May 1st Awareness Day. I am sure they will be involved."
"About the million letters, does it count
that I send it even though I'm Dominican and live in my country, the
Dominican Republic? Let me know. I'll be more than
quick to respond. The only thing I regret is that I'm only allowed one
page!"
For those of you who don't know yet, there's a million letter
campaign scheduled for May 1, 2005.
The goal is for ABC News, CBS News,
Montel Williams and the White House to receive a million letters from
FMS/CFIDS sufferers in time for Fibromyalgia Awareness Day on May
12, 2005.
If you have 4
envelopes and 4 stamps, you can participate! I recommend
writing a one page letter on your computer (unless you prefer to handwrite
it). Then print out 4 copies, sign each letter and put them in the 4
envelopes. The 4 addresses are on my website at http://www.fms-help.com/letter.htm
By limiting our letters to just one page, we have a greater chance of them
being read (....and yes, I know that we could each write a book!)
Describe what this illness has done to your life and mention that you would like
more awareness of FMS/CFIDS--for this illness to be taken seriously by
doctors, for more medical research, for disability cases to be taken
seriously, etc. What we can't accomplish
with a single letter, we can do with a million letters sent on the same
day.
Here is a good letter someone
wrote--
"FMS/CFS (Fibromyalgia and Chronic Fatigue
Syndrome) affects over 17 million Americans and is growing in
numbers. It basically affects women but some men get it also. People are
committing suicide daily from the debilitating disease! We need NATIONAL HELP.
Please I beg you to help us to get some concrete evidence on this
disorder. The disease is so debilitating people are losing their jobs from
the pain. People are dying from the narcotics that kills the pain from FMS/CFS.
We need a law passed for SSD benefits and we need research done for the
disorder. Most people that have this disease are all well
accomplished in their careers. I am talking people with PHD, Master
Degrees, Doctors etc. It cuts your life down to becoming bedridden. Most people
that get it had some trauma to their body , either a car accident, or extreme
stress. It can happen to you at any given time. Only FMS sufferers know the pain
it is unbearable enough to place you on Morphine. Please help 17 Million
Americans."
7.
DETOXING AND FIBRO
From a newsletter reader--
"I wanted to let everyone
know about a program I started several months ago. It comes from Jordan
Rubin who was diagnosed with Crohns disease. He virtually came back
from death by changing his diet and taking supplements. I've had fibro and chronic fatigue for four years; more than that but
was diagnosed four years ago. I started this program and after a month I felt
better than I have in years. I have so much energy and 90 percent of my pain has
vanished. The first month was difficult because of detoxing but it was worth it.
The one drawback is that the supplements are expensive but I haven't seen a
doctor in months so I figure it's definately worth it PLUS I'm getting my life
back! I am able to work 25 hours a week plus I can exercise now without
experiencing pain. His book with the complete
program in it is called The Maker's Diet. I also recommend
reading his first book called Patient Heal Thyself."
Page 2 (Topics 8-16) Page 3 (Topics 17-26)
Page 2 (Topics 8-16) Page 3 (Topics 17-26)DISCLAIMER: I am
not a
medical doctor. I am a fibromyalgia/chronic fatigue syndrome survivor. The
purpose of this website is not to diagnose or cure any disease or malady, but is
presented as food for thought. This information cannot take the place of
professional medical advice. Any attempt to diagnose and treat an illness should
come under the direction of a physician. No guarantees are made regarding any of
the information in this
website.
Work from Home in Your Pajamas!
Return
to
Dominie's FMS/CFIDS Home Page