Dom's Newsletter

www.fms-help.com

Happy New Year!

 January 3, 2011

14 TOPICS in this issue.  Don't miss the RED ones, especially #12! 

Readers comments in BLACK.  My comments in TEAL.

A Christian-based newsletter about Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS) and Myalgic Encephalomyelitis (M.E.) - sharing thoughts, research and experiences.

FIBRO STORY       CFIDS STORY       INSOMNIA STORY        HELPFUL THINGS I USE       PREVIOUS NEWSLETTER       ARCHIVES    

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1.  READERS WRITE

"It did help to read your page www.fms-help.com.  I've given up with doctors and everyone forgets I'm trapped in a living hell [with fibromyalgia] because I look great each day with my makeup on as usual and my sense of humor which makes everyone laugh."

 

2.  DANGERS OF CERTAIN ANTIBIOTICS

From a reader--

"Get familiar with a particular class of antibiotics called fluoroquinolones. The FDA has given these drugs a "Black Box" warning because they are so dangerous. Be familiar with the drugs in this class. Do not take this class of antibiotics. Write down the names:

http://www.fqresearch.org/ - DANGERS OF FLUOROQUINOLINES (CERTAIN BROAD-SPECTRUM ANTIBIOTICS)
 
http://en.wikipedia.org/wiki/Quinolone - DANGERS OF CIPRO, LEVAQUIN & OTHER QUINOLONE ANTIBIOTICS.
 
http://www.fqresearch.org/ftrf_anxiety.htm - BRAIN FOG, ANXIETY& PANIC ATTACKS FROM ANTIBIOTICS
 
FROM DOM:  Some of these cause antibiotics cause symptoms just like FMS/CFIDS.  Interestingly, I was treated with Cipro and 5 other broad-spectrum antibiotics for a period of 6 months in 1987 for a resistant lung infection (bronchitis that turned into pleurisy).  That's the year when my FMS (onset 1982) www.fms-help.com/fibro.htm morphed into CFIDS www.fms-help.com/fatigue.htm.

 

3.  RSD (CRPS)

From a reader--

"For the lady in chronic pain, here is some information about RSD pain (now called CRPS) - see http://www.rsdfoundation.org/en/Medical_Synopsis.htm - Before and after videos of RSD/CRPS  patients.  This will give this lady a good idea as to whether or not she thinks she may have RSD/CRPS.  The hallmark of RSD/CRPS is the burning pain which can be in one limb or spread to multiple limbs, the whole body, even into the internal organs.  You can get skin ulcers, dystonia, problems with the function of our internal organs, etc.  Here another links that she might find useful.  Dr. Kirkpatrick (from Tampa, Florida) has made these available for doctors and patients to learn about the condition, how it affects people and how it can be successfully treated:  http://www.rsdfoundation.org/en/en_clinical_practice_guidelines.html.
 
FROM DOM:  More on RSD (Reflex Sympathetic Dystrophy) in past newsletters - search using the Google box at the end of this newsletter.
 
 
4.  DISABILITY
 
From a reader--
 
"I got awarded the disability but it feels like a hollow victory to me. I'm sorry I killed myself to get a masters degree. The cognitive issues and the fatigue are significant though and working full-time would be impossible."
 
FROM DOM:  30 years ago, I had a friend who worked as a secretary.  She got divorced and realized she would need a better job to support herself.  She began taking classes at night after work to learn computer programming.  After a year or two, she got a job as a programmer.  She told me she didn't realize that she would have to work 60+ hours a week.  She went in to work when it was dark, and left work when it was dark.  After 1 year of that schedule, she developed fibro (possibly from the flickering monitor screen and the lack of sunlight or daylight affecting her pineal gland?)  That was 20 years ago, and FMS has greatly hindered her ability to earn a living.  (The saying that hard work won't kill you is wrong.  It can.)  For disability tips, see my page at www.fms-help.com/disability.htm.
 
 
 
5.  CHIMERIX'S ANTIVIRAL CMX157
 
From a reader--
 
http://findarticles.com/p/articles/mi_m4PRN/is_2010_Dec_13/ai_n56480423/?tag - Snippet: "Chimerix's Antivirall CMX157 Demonstrates Positive Phase 1 Clinical Results With Favorable Pharmacokinetics, Safety and Tolerability PR Newswire, Dec 13, 2010 - Exhibits Potent In Vitro Activity Against XMRV and Highly Resistant HIV - DURHAM, N.C., Dec. 13, 2010 /PRNewswire/ -- Chimerix, Inc., a pharmaceutical comppany developing orally-available antiviral therapeutics, today announced first-in-human Phase 1 clinical trial results for CMX157 demonstrating a favorable safety, tolerability and drug distribution profile. In addition, results from a series of preclinical studies showed that CMX157 exhibited highly potent in vitro activity against human immunodeficiency virus (HIV), including HIV strains resistant to current therapies, and potent in vitro activity against xenotropic murine leukemia virus-related virus (XMRV), a blood-borne retrovirus recently associated with chronic fatigue syndrome (CFS)."
 
 
 
6.  CFS/ME/FMS PEN PAL APPLICATION FORM
 
From a reader--
 
"Make New Friends Who Understand - CFS/ME/FM International Pen Pal Application PLUS Receive a FREE set of Awareness Postcards when you apply for a Pen Pal. (Offer expires January 28, 2011) - To Print the International Pen Pal Program Application: http://cf-alliance.tripod.com/id19.html."

 
 
7.  HELP FOR TINNITUS - RINGING IN THE EARS (BRAIN)
 
From a reader--
 
http://www.resound.com/us/Download%20Document%20Library/ReSound%20Live/White%20papers/ReSound%20LiveTS%20Whitepaper.pdf
 
 
 
8.  LYME DISEASE
 
From a reader--
 
"Lyme, (CFS, FM), XMRV - ILADS 2010 Conference Takeaways http://www.ilads.org/ - Snippet: 'Take-home message: DETOXIFY YOUR LYME PATIENTS!  It does NOT matter what antibiotic you give people, they will NOT get better without detoxification.'"

 

9.  TART CHERRY JUICE HELPS INSOMNIA

From a reader--

http://www.naturalnews.com/030760_tart_cherries_insomnia.html

 
 
10.  ONE FIBROMITE'S STORY
 
From a reader--
 
"Found your page www.fms-help.com/fibro.htm with interest.  As a busy secretary last year I suddenly became unwell and was unable to type.  Symptoms got worse and I was referred to a Rheumatologist who diagnosed Fibromyalgia.  I'm in my late 30's and this has literally turned my world upside down.  Like you my job was high stress and I have always prided myself on being able to multi task and work ten to the dozen for the last 20 years.  Needless to say, accepting has been really hard, in fact - I still haven't accepted.  My sleep is dreadful without Amitriptyline and I can still lay awake on 40 mg of the stuff.  Then in the morning when the alarm goes is when I could sleep.  I have 3 horses and lots animals so to be honest, they are the whole reason I get moving. I have burning muscles 24/7, TMJ pain and constant neck occipital area pain that causes bad headaches.  Like you said, the sheer stress of getting to work everyday is soul destroying.  My employers are not very tolerant now even though I only take one day off here and there every few months when I really crash out.  I reduced hours to 30 per week but although it was a drop in salary, they would not remove any of my workload so now I get to work the same job into less hours for less money....go figure!  I'm at my wits end, I have a week off this week and the weather is quite damp which just causes my symptoms more misery.  My once astute memory is dreadful now to the point I think of going into a room to do something and in the 10 seconds it takes to get there, just stand looking around with no clue what I was going for.  My brain says move and sometimes my legs don't.  Despite all this, I push myself like crazy....NO pain meds work.  I simply can't give up my job due to finances."
 
FROM DOM:  This sure sounds familiar.  My FMS experience was just like this reader's.  The onset was overnight in June of 1982 www.fms-help.com/fibro.htm.
 
 
 
11.  SIX THINGS YOU SHOULD CLEAN, BUT PROBABLY DON'T
 
From a reader--
 
http://myamazingfact.blogspot.com/2010/12/6-things-you-should-clean-but-probably.html - surprising!

 
 
12.  SURVIVING MOLD
 
From a reader--
 
"Dr. Ritchie Shoemaker has a new book, Surviving Mold.  You should check it out.  The absolute latest information.  Also, a new website www.survivingmold.com has been launched.  A clearinghouse of information."
 
FROM DOM:  Wow!  This site is AWESOME!!!!   I still suffer effects caused by working in a WDB (water-damaged building) in 2004-2005 www.fms-help.com/mold.htm.  The mold and fungi in that hurricane-damaged building wreaked havoc with my already fragile immune system and CFIDS.  It has taken me 5 years to gain back about 70% of my "pre-mold" health status.  One major remaining problem is the inability to travel more than about 30 minutes by car without my brain becoming overwhelmed from excessive stimuli, leading to neurological "crashing."  Here's a snippet from Dr. Shoemaker's diagnosis page www.survivingmold.com/diagnosis - be sure to read the LIST OF MOLD SYMPTOMS at the end of this quote - they are almost identical to FMS/CFIDS symptoms!

"Mold Illness begins insidiously, as it quietly and silently takes away energy, cognition, and easy breathing; it leaves behind pain, fatigue, and often weight gain.  Surviving Mold begins by teaching its victims what is wrong with them and continues by explaining how to get the proper treatment to get well.
 
You are not alone, and you are not crazy.  You may have been to numerous doctors and specialists who have told you that all of your tests are normal - and, they probably are!  But, if they have not checked on tests that have been proven to show abnormalities in inflammatory markers in your body, you have not been properly tested...if you are still showing symptoms of illness.  The illness has strong genetic roots and in the end, the injuries patients suffer will not go away without intervention.
 
Long periods of time suffering from the illness steal hope, breed depression, and erode the desire to live.  Defeating that desolation is part of Surviving Mold, too.
 
What Is Mold Illness? - Mold illness is not an allergyy.  It is inflammation within the body which is caused by an immune system that has gone haywire.  The term "mold illness" is a subcategory of biotoxin illness, called Chronic Inflammatory Response Syndrome (CIRS).  The proper definition of CIRS is: an accute and chronic, systemic inflammatory response syndrome acquired following exposure to the interior environment of a water-damaged building with resident toxigenic organisms, including, but not limited to fungi, bacteria, actinomycetes and mycobacteria as well as inflammagens such as endotoxins, beta glucans, hemolysins, proteinases, mannans, c-type lectins and possibly spirocyclic drimanes, plus volatile ogranic compounds.
 
If you are experiencing several of these symptoms, you could be suffering from mold illness.  Take the Online Screening Test to determine your probability of having this illness.
 
Fatigue
Weakness
Aches
Muscle Cramps
Unusual Pain
Ice Pick Pain
Headache
Light Sensitivity
Red Eyes
Blurred Vision
Tearing
Sinus Problems
Cough
Shortness of Breath
Abdominal Pain
Diarrhea
Joint Pain
Morning Stiffness
Memory Issues
Focus/Concentration Issues
Word Recollection Issues
Decreased Learning of New Knowledge
Confusion
Disorientation
Skin Sensitivity
Mood Swings
Appetite Swings
Sweats (especially night sweats)
Temperature Regulation or Dysregulation Problems
Excessive Thirst
Increased Urination
Static Shocks
Numbness
Tingling
Vertigo
Metallic Taste
Tremors
 
This illness affects multiple systems in the body, which causes the patient to exhibit multiple symptoms.

 

FROM DOM:  These mold exposure sytmpoms are almost identical with FMS/CFIDS symptoms - see the list at www.fms-help.com/signs.htm.
 
 
 

13.  THE 10 BEST HEALTH ARTICLES OF 2010
 
From Dr. Mercola's newsletter--
 
http://articles.mercola.com/sites/articles/archive/2011/01/01/top-10-health-articles-of-2010.aspx
 
 
 
14.  DIRTY ELECTRICITY
 
"JANUARY 17th - WAKE-UP CALL!  You're sick and the doctors can't fix it.  The Hi-Tech Explosion has brought with it deadly Electro-Magnetic Frequency (EMF) that destroys brain cells, weakens natural immunity and attacks the central nervous system.  A high percentage of the 800,000 occurrences of basal cell carcinomas in America points to EMF from cell phones, Wi-Fi, i-Pods, Smart Phones, Blue-Tooth and Airport Backscatter X-Rays, according to a Columbia University study.  Autism occurs in one of every 110 children.   Before EMF, that number was only one in 10,000.  So, it's not just vaccines causing this parabolic spike in Autism!  Join me for an important and thought-provoking hour to learn how to help protect your family from the dangers of EMF and 'Dirty Electricity'."  - Janet McBride www.janetmcbride.com  - Reserve your Webinar seat now at https://www1.gotomeeting.com/register/737760544.
 
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Closing thoughts from Dom:
 
Well, that's all for this issue.  A list of helpful things I use is at www.fms-help.com/what.htm.  
 
I've really enjoyed the Christmas break, but will be glad to get back to teaching.  Our School of Music resumes Wednesday, January 5 www.fms-help.com/students.htm
 
Our pastor says that we can face the new year with confidence and joy, abiding in Jesus daily.  That works for me!  I hope to be His more faithful and obedient servant this year.   
 
We never know how long we have on this earth, so we need to be saved www.fms-help.com/salvation.htm, learn our life lessons, and be a blessing to the people around us.  We will all be at our eternal destination before we know it!   When I read the obits in the paper, it's surprising how many people die young, or at least younger than I am (59). That's a "wake up call" to me to live each day purposefully - in fellowship with God and with love for others. Forgive and we will be forgiven.
 
Wishing you a blessed New Year in His will!
 
Dominie Bush


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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.