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"I too have FMS and had a terrible time
getting numb and the dentist office had become a house of
horrors for me. My dentist Rod Zimmerman, in Mandarin, FL
has worked with me for 18 years and has never hurt me. Like
you just the sound of the drill caused anxiety and I think they had to dig
my fingernails from out of the arm rest of the dental chair when I was
finished. For the past few years Dr. Zimmerman has been
using conscious sedation with me and it is absolutely wonderful!!!!
I take a pill 1.5 hr before the procedure and then upon sitting in the
chair they give me a little nitrous and after that I don't remember a
thing. My hubby has always been allowed to stay with me through my
procedures and he says when the dentist talks to me I respond
appropriately. When they are through with my work I am always amazed
that I had been in the chair for 3-4 hrs. Hubby takes me home and I
sleep it off. Now having dental work isn't the least bit scary and
anxiety producing for me and the only thing that is scary is the bill.
:-) Consider giving conscious sedation a try, it makes
a world of difference. The pill he gives is
Halcion. It is a sleeping pill. Insurance
does not cover the sedation, but for me it is so worth paying for it out
of pocket. If you choose not to go with conscious sedation, Dr
Zimmerman can also use a numbing procedure called
Stabident. He has always used that on me even
before sedation and it worked 100%, such a relief after years of dentists
telling me 'there is no way you feel that" etc...even though the Stabident
worked I was so stressed just anticipating hurting that I was a mess
during my appointment and the rest of the day I was
exhausted."
Reader 2--
"I am writing w/ some tips for you and your
reader who spoke of how Novocain doesn't help. YES I have the same
problem...once I went in and not only did it not numb me, the dentist kept
giving more and more and I told him I was really light headed and
nauseous. He said, "oh, it's just because you have a fear of
needles, Novocain doesn't make you feel nauseous". He didn't
stop and soon I passed out, waking up w/ an IV in me to revive me after
I'd also thrown up! Let's say as soon as I came to my senses I left
quickly and found another dentist after 4 years of not going at all due to
the fear that built up after that horrifying experience!
After reading Dr. Flora Stay's book "The
Fibromyalgia Dental Handbook", I learned so much and began searching for a
good dentist in my area that understood FMS. Finally found a great one and
here's some things that help...
1. He uses only
PLASTIC/RUBBER instruments on me because after testing the acidity in my
mouth it was 1000X (yes, one thousand!) higher than "normal". Because of
that, you can feel sensations of being shocked from the metal. I always
thought I imagined this and my dentist said the acidity increases
electrical current in your nerves and the metal instruments are the best
conduits of that so it's no exaggeration - you can even feel the shocks
just having them in your mouth, before the dentist even starts poking
around!
2.
Sedation an hour before going - THE BEST THING
EVER...it's called "sleep dentistry" or sedation dentistry.
Basically it's a little pill they give you to take that eliminates the
anxiety and also helps you not remember a lot of the experience to follow
at the dentist's office. Someone has to accompany you - of course
- as you walk in feeling very tired and
relaxed.
3. Nitrous
Oxide/GAS - This doesn't completely stop pain but it does help relax you
even more to where you just don't really care or notice the pain
much. One note here is that he had me sitting in the chair w/ the
gas on for 15 MIN BEFORE moving forward as he said w/ FMS it often takes
us longer to get the effects of the meds.
4. The actual
dental procedure is then done w/ you in as much of a comfortable position
as possible, neck supported, headphones w/ relaxing music (or bring your
MP3 player if you have one).
A few notes:
My dentist is kind enough to offer any or
all 4 of these options for me even for simple things like teeth cleanings
or gum cleanings because of my extreme sensitivity and anxiety.. For
cavities I still need Novocain but because the things above relax and
reduce my pain he doesn't have to use extra and I haven't had a reaction
to just normal amounts. Also I think he doesn't use Novocain itself but
another similar med in the same family that he said is good for some
people who have allergies or reactions to Novocain so you may ask...it
seems it may be called "procaine" or something similar but I'm not
certain. When I've had to have teeth extracted (3 in the last 5
years), he's always had me see an oral surgeon who completely puts me
under. He still prescribes the anti-anxiety pill for me to take an hour
before I go in. My dentist was very reassuring and told me that
especially after seeing my high acidity that it absolutely is not in my
head that I have much more pain than "normal" people from dental work. He
said the high acidity greatly increases pain, plus the FMS. Also my
insurance will not pay for the nitrous gas in addition to all the other
things so I had to pay out of pocked $100 for it but let me tell you it
was well worth it! So really, you do NOT have to suffer!
Even if you can't find a dentist who understands FMS you should be able to
find one who does sedation/sleep dentistry (which involves the
anti-anxiety pill you take an hour before going in) and then I'd ask
if you can have nitrous gas also and say you'd be willing to pay for it if
your insurance doesn't cover it. Also you may want to ask if you can take
an anti-inflammatory ahead of time and that helps w/ some of the aching
after. Don't forget
to ask if the meds the dentist will use could interact w/ any other meds
you may be taking as well."
Reader 3--
"Just read about your dentist problems www.fms-help.com/020910.htm
(I am up as I can't sleep again!) When I
had a procedure done, my doctor told me to never have anybody
give me conscious sedation as it is NOT good if you have the slightest
heart problem. So you might want to ask your doctor,
but maybe and hopefully you CAN take it! Another
thing: the cost of dental care..... My income is soooo small that I
qualify for help (we have a dental clinic here run by the State or State
University) and I am allowed to pay according to a scale system. Who
knows, you can ask, my Mother used to say, ask because "no" you already
have!! Then may be you could find a Christian dentist, sometimes
they offer a bit of a discount, when you tell them that you might not be
able to pay the whole bill. (I had that happen here a few times too!!!
PTL!!) Or, if they have children, may be offer to give them
piano lessons (barter!) Re: your newsletter:
I could not open the attachments either, but will look certain items
up later on your website. One more thing: LATELY I
FELT I HAD MORE AND MORE PAIN, SPECIALLY AFTER I MADE A VERY BAD
FALL (Nov, 2009). I MUST HAVE STRAINED MANY, MANY MUSCLES AND
OTHER PARTS WERE BRUISED AND SWOLLEN. I STILL HAVE A LOT OF
PAIN. BUT I DID START MORE THINGS, MORE GLUCOSAMINE ALSO, AND OTHER
HOMEOPATHIC HELPS. THEN ALL OF A SUDDEN I FELT I WAS TAKING
TOO MUCH OF ALL THE GOOD THINGS, AND I STOPPED ALMOST COMPLETELY
EVERYTHING EXCEPT THE MAGNESIUM FOR MY HEART, AND THE POTASSIUM. I
RESUMED, AFTER A WEEK OR SO, AND I THINK IT HELPS THE BODY TO GET RID OF
CERTAIN THINGS WHEN WE GIVE THE BODY A REST OF ALL THE NATURAL
HELPS!! SOMETIMES JUST 2 DAYS, OR MAY BE 3 OR 4 DAYS OF NOT TAKING
SO MANY THINGS, AND THEN START AGAIN. AND DO THAT FROM TIME TO
TIME. THE HOMEOPATHIC SUPPLEMENTS SEEM TO WORK BETTER FOR
ME THEN ALSO."
FROM DOM: Many thanks
to these readers for their FMS/dental information.
5.
NEUROGEN FOR BURNING PAIN
From a reader--
"TO ANY READERS WHO SUFFER FROM BURNING
PAIN (NERVE PAIN)... My husband accidentally found a miracle!
"neurogen" is a liquid that you can mix with any carrier oil (i use emu
but you ca use even peanut oil or carrier olive oil, etc) and i have
horrible burning pain all over. my feet especially burn..like a
torch is being held to them; i cannot walk...i cannot LIVE without
feeling on fire. the neurogen works!!!! at first
for only a half hour or so, and now that I have used it several times, I
am getting relief for up to 5 hours!!!!! it is expensive! however, there
is a coupon inside the trial size ($15 for that small thing) and it helps
when buying the dropper bottle. you can go online and find them, but most
Walgreen's sell this product. I cannot tell you the relief..and
the carrier oil extends it...but since it is so expensive, I cannot use it
all the time, so I suffer with my pain until I need to go out for
something..to finally have dinner with a friend or a date with
hubby. this thing is wonderful. it is a Canadian product that is
finally in the U.S.!! I have taken lyrica
and neurontin..but the side affects are no fun...NO side affects with
neurontin! all natural - eucalyptus and lavender, etc. i
was put back on lyrica this past horrible flare..i had injections, lyrica,
etc. to get me over this huge flare! Also,
the CALMAG is working like a miracle! i did not want to say
anything....and then have to take it back. but the [stabilized
liquid] oxygen drops are working for my cognitive and fatigue...and the
calmag (calcium, magnesium, vitamin C) in powder form have begun actually
work! i have been on them for several weeks now (more like two?) and
two days ago, I got up EARLY and made husband breakfast and cleaned up
after...and after kissing him goodbye, began to ready myself to drop
into bed from the pain that would be coming....and hours later, I found
that I had dusted the family room, cleaned the kitchen, did my desk work,
filed paperwork, shredded the necessaries....and TWELVE hours passed
before I needed my pain meds! so I took them...and the
neurogen...and ACTUALLY WENT TO SLEEP!!!!!!!!!! I woke up the second day and repeated the first day (with a
different list of things to do) and TODAY I went to my
therapy (hand surgery) and di not have to go home and collapse into
bed! it has been a LONG LONG day! now I do
hurt when my meds wear off....i HURT LIKE CRAZY! but my meds
use to simply TAKE OFF THE EDGE! they now give me COMFORT!!!
REAL COMFORT! all day long! and my
burning toes and feet return...oh that is painful! and i have to
live with it until I am able to use the neurogen...it is expensive and i
must be careful! but as much as that powder
stinks when i pour the hot water into it (I add lemonade to it so
that it is a drink) I now look FORWARD to drinking that armpit
juice!! I got this from that man on the radio..Dr. Pinkerton..something
like that. He has a lot of good stuff..the
dark chocolate tea...you will not believe what this stuff
does! for the first time since 1995, I have
had literally PAIN FREE DAYS....i don't know if it
will last, but I know one thing....it works and even if it comes and
goes...it works when it works, giving me freedom! i actually MADE MY BED!!!! AND DID NOT RETURN TO BED UNTIL....WELL,
HAVE NOT BEEN THERE YET. I am so
thrilled...i jump around the house and praise God. I am so thankful
for His mercy....and I began using the treadmill!!!!!!! i can
only go for 15 minutes because of my breathing problems and heart
problems, but i can actually DO IT. before I could not breathe well
enough to do it! i am so excited!!! i
have not yet told my mother....just in case it does not work for
good. but PRAISE GOD for directing us to
the right stuff. the story behind finding all of this is someething
else! I wont take up all your time and space, but I will say
this? GOD'S HANDPRINTS ARE ALL OVER THE PLACE
HERE!!! he is so good. I do not deserve
it! i cannot get over it. pain free...i mean for up to 12
hours at a time!!!!!!! and I did have my pain return all over the
place, but I knew I would be OK again when i laid down and took all my
natural stuff!!!! PRAISE GOD, PRAISE GOD, PRAISE
GOD!!!!!!!
FROM DOM: I am so happy
for this reader to have found things that help relieve her pain. My
doc told me that Lyrica helps nerve pain, such as with shingles. I
also heard that Serzone has helped some people who have burning
pain. A list of things that keep me pain and fog free is at
www.fms-help.com/what.htm. The stabilized liquid oxygen drops are at http://neveranoutbreak.com/oxygen.php?
partner=FM5H1PDB.
6. ADRENAL
EXHAUSTION
From a
reader--
"I wanted
to suggest a supplement for the man with adrenal exhaustion. I get
this supplement from my chiropractor's office, but he might be able to buy
it online. It is the ONLY thing I've ever been able to take for my
adrenals and immune system that doesn't "rev me up". This product
supports the adrenals and strengthens them without giving you the shakes,
restlessness, heart palpitations, or "fake energy" that ends up wearing
you out.
or
7. CLOSING HANDS IN THE MORNING
From a male reader--
"I just am sick of the work involved just
to be able to function, always try to go to bed at a certain time, get up
not too late, take your supplements. you know. Eat
right. I notice in the morning, I can't always close my
hands very hard."
FROM DOM: This reader's
comment intrigued me about closing hands. When I was a
child/teenager I couldn't close my hands very hard in the morning either
(to make a fist). It wasn't due to stiffness, as in arthritis - it
was more of a neurological thing coming from my brain. I
wonder if it's a preliminary indicator of fibro?? I am now 58.
Anyone else experience this? Write dombush@bellsouth.net.
8. HOW
DOES FIBROMYALGIA AFFECT YOUR LIFE? - QUIZ
FROM DOM: Great set of
questions. Beware though of being targeted for drug
marketing.
9. 50 SIGNS OF
FIBROMYALGIA
FROM DOM: Some readers are
struggling to get a diagnosis of fibromyalgia from their doctors.
They are being told it is depression or a sleep disorder. Read
50 Signs of FIbromyalgia at www.fms-help.com/signs.htm. Also, see my personal story www.fms-help.com/fibro.htm to compare symptoms. I was a "classic" case.
Diagnosed in 1982 even when relatively little was known about FMS.
(It was called "fibrositis" back then and the "treatment" was
antidepressants, particularly amitriptyline/elavil.)
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"Phishing is the process that criminals use when trying to acquire sensitive information (passwords, account numbers, user names, etc.) in order to do things such as steal money or steal your identity. For example, a fraudulent party sends out an email to you posing as your bank. The email looks exactly like it could be from your bank with graphics and everything. The email might tell you that you need to click on a certain link within the email and verify your account information. You then click on that link within the fraudulent email, which takes you to what you believe to be your bank’s web site—but it is NOT. You think the web page you have linked to is your bank’s web site and you proceed to "log in" to your account or enter your sensitive information just like the email directed. The criminal then has all your sensitive password information just as you typed into that fraudulent web site which was a link from the email you received. Whatever you type in is recorded for the criminal to use! IF YOU EVER RECEIVE AN EMAIL THAT YOU BELIEVE COULD BE FRAUDULENT AND ASKS YOU TO CLICK ON A LINK TO VERIFY SOMETHING OR ENTER SENSITIVE INFORMATION—DON’T. Instead, go to your web browser and go directly to the web site of your bank (or any other entity—don’t use the link from the email!). Criminals are extremely gifted in how they can make you think you have received an official email from your bank, etc. These people are professionals and their web sites which they link you to will look just like your banks or another entity. To the reader who had your email blocked because it was labeled as a phishing email—my only explanation would be that because of all the links put within your newsletter, the reader’s security software inadvertently picked it up as a possible phishing email. The reader should be able to click on the message and verify that it is safe and label your name as a trusted source for emails. Sometimes security software is very sensitive—but it’s better to be safe then a victim."
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"Vitamin D inhibits NF kappa,
which is an immune factor that is high in FM and causes cancers...
arthritis, heart disease, and on and on...i think Dr. Weil has recommended
2000 mgs a day... some recommendations are higher, but i tend to
side with caution."
20.
BRAIN BASED REHABILITATION FOR FIBROMYALGIA
From a reader--
"I found some information, by
accident, while I was on Face Book the other night and wanted to share it
with you. It was an ad on the side of the page and at first, I was going
to ignore it, then I noticed the facility was just about a 45 minute
drive away from me, so of course that peaked my
interest. The information below
came directly from the doctors office and contains about 5 videos ranging
from 5 minutes to 12 minutes, I think they were 40-45 minutes
total. There is also a link to some testimonials from some
of the doctors patients you can view after the videos. I am
seriously thinking about looking into this, and if I can afford it, trying
it. I've tried pretty much everything else and it hasn't worked. The videos made a HUGE amount of sense to
me. If you have an newsletter followers in
California, especially Central California, they may also like to check
into this facility."
Hi, it's Celia.
The thing I really like about working with Dr. Boydston is he cares about his patients, almost to a fault. I know most doctors will walk into a room, talk to you for 3 minutes, and then give you a prescription. That is definitely not what Dr. Boydston does. Many times I have to pull him out of a
room (nicely of course), because when he starts talking about his work,
you can't stop him. I told him to make a video all about how he helps his
patients with fibromyalgia so they can really understand what he does. He
actually listened to me.
Here is the video he
made:
I hope you like
the video. Also could you do me a favor? Could you let me know what you
thought of the report, and the video (after you watch it)? Any feedback
you can give me will help me do my job better. I am here to help and want
to make sure I am doing the best job possible. When you come in as a
patient I will get to serve you a lot better, and we can put faces to
names.
Best,
Celia, Office Manager
Boydston Institute For Fibromyalgia Recovery
255 W Bullard Ave Suite 116 Clovis, CA 93612 559-297-9218 FROM DOM:
Search my newsletter archives at www.fms-help.com/newsletters.htm for another chiropractic neurologist, Dr.
Michael Johnson. Much interesting information about upper brain stem
overfiring and misfiring.
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II Corinthians
1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort
them which are in any trouble, by the comfort wherewith we ourselves are
comforted of God." Visit Dominie's FMS/CFIDS Homepage at
www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their
families.
DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME
HOMEPAGE
DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.
