DOM'S NEWSLETTER

www.fms-help.com

 

February 19, 2010

 Previous newsletter: www.fms-help.com/021510.htm.

26 TOPICS BELOW  - DON'T MISS THE RED ONESReaders' comments in BLACK.  My comments in TEAL.



1.  READERS WRITE

"Your website www.fms-help.com is remarkable, and I am amazed that in the time that I suffered and searched for support groups, that I did not run across your site or someone that knew of it. 

"I am still going through your newsletter.  There are so many sources and the collection of articles and recommendations made by you and others is a wonderful find."

 

2.  XMRV THEORY FAILS ANOTHER TEST

 
http://news.sciencemag.org/sciencenow/2010/02/new-challenge-to-chronic-fatigue-virus.html - A theory linking chronic fatigue syndrome (CFS) to an infectious mouse virus known as XMRV has taken a second major hit. First proposed last October in Science, the virus-CFS connection was quickly  challenged by a British group. Now a second team of British virologists reports that, after examining tissue from 170 CFS patients, they have failed to find evidence of XMRV.
 
http://news.sciencemag.org/sciencenow/2010/01/06-01.html - To resolve the dispute, both sides say they are willing to work with the other and possibly test each other's samples. In the meantime, more papers exploring the link are slated to appear in the next few months, and each side says it knows of work supporting its hypothesis. Meanwhile, the field will continue to churn. As McClure told Science, "We take no pleasure in finding colleagues wrong or dashing the hopes of patients, but it's imperative the truth gets out."

RESPONSES FROM READERS-- 

Reader 1--

"I discussed this with my rheumatologist - he said it was unlikely and research will prove it.  Drs. say it's a central nervous system problem."

FROM DOM:  Good point.  Below are some fascinating pages on my site that you may want to visit.

The brain and CNS is definitely involved--

www.fms-help.com/nervous.htm

www.fms-help.com/virologist.htm 

www.fms-help.com/autonomic.htm

www.fms-help.com/ME.htm

www.fms-help.com/dysautonomia.htm

www.fms-help.com/genetic.htm

www.fms-help.com/yuppie.htm

www.fms-help.com/hypothalamus.htm

But there is also a viral component that hasn't been discovered yet--

www.fms-help.com/stealth.htm

www.fms-help.com/mycoplasma.htm

FMS/CFIDS is a totally confusing multi-system disorder--

www.fms-help.com/mitochondria.htm

www.fms-help.com/neuro.htm

www.fms-help.com/energy.htm

 

Reader 2--

"I just watched a video on this and the doctor said that they don't know what methods the British group used.  Not to give up hope and he feels that alot more will be revealed within the next six months.  Watch Dr. Bell's lecture - it is very very interesting.  It is long but well worth watching.  

http://www.davidsbell.com/DSBEvents.htm  Here is Dr. Bell's lecture without Q&A 

http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=15114&B1=EM012710N - Dr. Mikovits' lecture

 

Reader 3--

"What was done differently in the two groups that caused different results??  How can one group get such possitive results and the other group get such negative results?  This makes no sense to me.  How can the testing that came up with so many CFS people testing possitive for the XMRV be faked?  Is the test itself flawed?  Also, for the past almost 2 years why do I feel everyday like I have the Flu if this illness is not caused by some sort of Virus or Bacteria?  It is also the way that CFS started in me was with very extreme flu symptoms daily for several years before that part of it went into remission and more of the other symptoms came through.  Are we back to square one?"

 

Reader 4--

"IT IS ALMOST EXPECTED.  NOTE  BOTH OF THESE STUDIES ARE FROM THE UK.   I WONDER IF XMRV ONLY SHOWS UP IN LIVE TESTS - MAYBE IT DIES AFTERWARDS - NOT HAVING THE TEMPERATURE, OXYGEN, TO SURVIVE, ETC.  HOPE WHITTEMORE/PETERSON KEEPS US UP TO DATE."

FROM DOM:  I am attempting to keep my XMRV page at www.fms-help.com/XMRV.htm as up to date as possible.

 

 

3.  MOBILE HOME

From a reader--

"I feel as if I have been slowly submerging into the dark hole over the past three years..even though our mobile home is new..I feel it is something in the home or even outside on the property which is constantly under water.  I liveon 2-1/2 acres.  Before coming here I was sick with fibro and CFS since 1989 but at least functional now I have more bad days than good."

FROM DOM:  See my mobile home page at www.fms-help.com/mobile.htm and mold page at www.fms-help.com/mold.htm.  Or it could be that this reader's decline is just part of the FMS/CFIDS illness that seems to sometimes have no rhyme or reason to it.

 

4.  MATTRESSES

Reader 1--

"I have a Sleep Number bed that I purchased 4 years ago...and yes, there is a tremendous difference in how I feel in the mornings especially.  The best part is I can adjust the bed according to how I feel.  My very bad back is not as painful, and my Fibro is definitely  less painful.  I'll never have another mattress again after having this Sleep Number."

Reader 2--

"I use a tempurpedic. But I'd never buy another one. I had to get used to it and for the first severalmonths it outgased and I worried I'd never get past the smell. I don't tihnk it outgases anymore, thank God.  I think it quits doing that after a few months. You'd think they would tell you.  Anything new smells.  I can't imagine sleeping on rubber."

Reader 3--

"Regarding Memory Foam mattresses:  Memory Foam cradles the body and is a lot like sleeping on air.  This take the pressure off spine, joints and muscles.  However, the major complaint regarding memory foam is that is retains a tremendous amount of body heat making a person quite warm while attempting to sleep.  Not the greatest for menopausal women. Latex provides supportive cushioning for spine and pressure points and is not nearly as hot to sleep on.  I’ve owned both kinds of mattresses and ultimately ended up with a Sealy latex bed.  There are endless varieties of mattresses to choose from anymore, and the consumer has to be very careful to research the materials in the mattress and the mattress top.  Otherwise, you can experience too much stiffness, too much sinking, or temperature problems.  No one with Fibro or CFS needs to be dealing with all that while trying to get restorative sleep."

Reader 4--

"After much research, I had a mattress made for my daughter at a local mattress company. He ordered two thicknesses (2” and 4”) and weights (softest and firm) of natural latex from Since I wanted no chemicals of any kind in the mattress, I had to sign a statement that I knew I was getting a mattress that would not have chemical treatment to make it less flammable. Mattresses manufactured for sale in the U.S. have to have flame retardants applied. He also agreed that no one would be allowed to smoke in the area while the mattress was being made.

On one side the softer latex is on top and if turned over, the firm latex is on top. If I had known the softer was what she liked most to lie on, I would have done another layer of soft on the other side so that the mattress would be the same no matter which side was up. But she was not able to try out the mattress first, so we made it so there would be a choice of sides. We bought a platform type bed with slats so that the mattress is exposed to air on the underside. This is important so that moisture from the body can be released. There is a plain, unpadded quilted cotton blend mattress covering, and she uses an organic cotton mattress pad on top. The mattress is lightweight and can be taken outside for airing whenever desired. Latex will yellow if exposed to lots of sun, so we don’t lay it in the sun for long, but the cotton cover should protect the latex anyway.

Natural latex lasts a long time—longer than most mattresses that have coils and such. There is no need for a box springs foundation. The slats are used around the world for beds. The mattress cost over a thousand dollars, but it is just what we wanted and we expect it to last longer than the other expensive mattresses I researched. The pre-made latex mattresses were more expensive than this custom-made.

As soon as our daughter lay down on the mattress to try it out, she did not want to get back up and in fact, dozed off with two other people in the room who were quietly picking up wrappings and blankets. After the first night, she said she felt for the first time like she had slept all night even though she slept only 4 or 5 hours.

We had always used a foam topper on a fairly firm padded top mattress, but the foam off-gasses and traps smells, I think.

If I couldn’t afford a latex mattress, I would buy a 2 or thicker latex layer to put on top of a regular, cheaper mattress and cover it all with a good mattress cover. There are online sources where you can order a thin natural latex pad for whatever size mattress you have. There is even a place where you can buy layers and covers to put together your own mattress. Still expensive to do that but if you don’t have a custom mattress company nearby, it’s cheaper than buying a pre-made latex mattress by the famous companies."

Reader 5--

"A little over a year ago I purchased a sleep numbers mattress, plus topper and then I purchased a mattress warmer mainly because prier to this purchase I had a water bed which was nice and warm. I get the best sleep I have ever gotten. I have a cal king and when my husband is in bed it does not affect my side at all. Wonderful wonderful wonderful is all I can say. I don’t wake up as sore as I used to. The heated mattress cover is like a large heating pad, But all is adjustable. How soft or how hard how cool or how warm. I sleep like a baby now. Hope this helps someone else who is thinking about a new mattress. Worth every penny."

 

5.  RINGING IN THE EARS (TINNITUS)

Reader 1--

"I just finished reading your newsletter and I too have the ringing, buzzing, high pitched whirring in my ears and the only thing that works for me and this may sound crazy but I sleep in a football mouthpiece.  I got the idea when my dentists ask me if I grind my teeth when I sleep because I suffer from migraines and TMJ, I told him no but I tend to worry a lot and that keeps me under a lot of stress. He then asked me if I had a way to release the stress and worry, again I answered no. He suggested that I although I may not grind my teeth, I clench them more than I realize.  When he told me that a light bulb went on in my head, that is exactly what I do! So to keep me from clenching my teeth together and putting all that pressure on my jaw's joint which can wear it down and to keep the muscle surrounding the joint from further fatigue, my husband came up with the football mouthpiece idea and it works. (I wish I had something for his snoring):)  I wear the mouthpiece for 2 to 3 days or until the ringing goes away and when it comes back the mouthpiece goes back in.  It's not the most beautiful thing to wear to bed but it works for me, I hope it will work for someone else."
 
FROM DOM:  Interesting.  I have no cartilage left in my jaw joints.  I think this is what causes the continual ringing. I also had TMJ for many years back in my 30's - jaw clicking, lots of dental work, etc.   I might try this!  (Between a football mouthpiece and black eye mask, I will be a real night-time beauty!  I already look like the Lone Ranger.)
 
Reader 2--
 
"I ran across this website a few days ago regarding certain drugs and their potential tinnitus side effects.   http://www.tinnitusformula.com/infocenter/articles/conditions/drugs.aspx.  Many common pain and sleep meds are on this list.  Though the site also sells tinnitus products, it also contains a lot of information that may be worth sending out to your readers.   I have suffered for 2 ˝ years with dizzy spells and some tinnitus.   Apparently, many people with dizziness also have tinnitus, though not all tinnitus sufferers experience frequent dizziness (which is not necessarily the same as vertigo).  I believe that diet has a huge impact on vestibular conditions, particularly food intolerances and food allergies."
 
Reader 3--
 
"I have heard from some people that they are taking the RingStop capsules (not the drops) and some within two weeks notice a difference but usually after about the 2-3 month mark is when some have total relief and some have such a significant drop in the noise level that they are happy.  I have also read about some type of massagework(?) called RESET that works on the jaw and can help with tinnitus (if that happens to be the cause of the tinnitus)."

 

6.  RESISTANT YEAST & SINUS

From a reader--

"Two products for resistant yeast and sinus: FYI Ultra by Garden of Life brand combined with Allertonic from Herbs etc.   With these products I am actually able to eat more things without getting sick."

 

7.  IRON DEFICIENCY ANEMIA

From a reader--

"In December I discovered that my iron/ferritin/TIBC/transferritin saturation rate levels were low. However, it was ME that detected this - since my levels were extremely low but not lower than the range listed on the labwork results (ie. out of range), my doctor’s office did not pick up on this.  I compared my levels to what other specialists recommend (including Dr. Teitelbaum’s information) and drew it to my doctor’s attention.  In two months time I’ve experimented with six different kinds of iron including two liquid varieties (Floradix which contains yeast and honey, and FloraVital which is sugar-free, gluten-free but still contains fruit juices).  I finally settled on NOW Brand Iron and take it at night with 1,000 mg Vitamin C.  My energy is just beginning to increase, my body temperature is better, I sleep better, and my hair no longer falls out.  It really is crucial that Fibro/CFS/ME patients get their iron levels checked at least once per year:  mine decreased drastically between 2008 and 2009 after I cut red meat out of my diet due to IBS symptoms that have now resolved.  One other critical point:  Adequate iron levels are absolutely crucial to the absorption of thyroid medications and the function of the thyroid in general.  I was not aware of that until just last month when I stumbled across this fact on a thyroid site." 

 

8.  NEUROGEN FOR PAIN

From a reader--

"I see a lot of neurogen advertised in diabetes magazines. They have a pill, and an oil (the one you mentioned) and a cream. You can buy it at Walgreens. It also has a very strong smell. Has anyone tried anything else other than the oil that this reader mentioned? I am so glad to hear that it actually works for someone www.fms-help.com/021510.htm.  I have been mentioning it to people but not sure if it worked or not - so very glad to hear that it does."

 

9.  ANXIETY

FROM DOM:  Lorazepam (generic ativan) works great for me.  It's on my list of helpful things at www.fms-help.com/what.htm.  I take .5 (that's 1/2) mg of lorazepam in the afternoon and also again in the middle of the night.  Helps with the feeling of chest tightness and pressure, helps insomnia, and relieves nervousness while piano performing.  I also found 2 essential oil blends that help anxiety:  Peace and Calming and Valor (www.fms-help.com/oilsstore.htm and http://dom.younglivingworld.com - these affect the limbic portion of the brain.)

 

10.  BRAIN-BASED THERAPY & HCG

From a reader--

"Regarding the Brain Based Therapy I tried it.  Still was not diagnosed with Fibro then. A Chiropactor here in Tinley Park, IL Dr Edward Beyer was the one I saw. He has testimonials on his site too.  http://tinleyparkbbt.com/fibromyalgia-treatment

However I did a 10 day treatment that consisted of spinal manipulations with a small instrument starting from the cerebellum down my spine on my left side of the brain. Considering my major pain was on the right side shoulder and arm. Then they would take me to do decompression of the spine lower lumbar area strapped in at the waist the machine pulls to stretch your spine, the same was done to the neck an entrapment for the head that decompressed the neck. All the time having oxygen administered. Then they would take me to have electrical stiumulation on my back along with heat.  10 day...straight. I didn't get to do the right side of my brain & spine regarding manipulations (I had met my max. for BCBS for the year 09) It did help me with headaches and migraines subsided. I was still having flare ups and pain in shoulder. I even had pain in my hip area one day. He was the one who told my primary care doctor that I had Neuropathy, instead of Fibromyalgia. I didn't have much neck pain like I do now either. However I went to him when winter hit..because I felt a flare up of pain and was trying to be prepared...for this was my 3 year suffering.
 
Now I want to share something with you. This is my theory of things...
 
The link you had about the doctor about the brain based therapy that is 45 minutes from you. In his video he (very informative) speaks of the hypothalamous gland not function like it should. Which is the same thing Dr. Beyer said. That there is a misfiring of nerve ending that creates pain in fibro patients. How to you get the brain balanced...they say by brain based oxygen therapy. So we all lacking "oxygen" and "glucose" is needed and we probably have a overdose of that..lol
 
However, I came across something I am going to try to see if it works.  People have been using HCG to lose weight. HCG InjectionsI want to do the homeopathic HCG tincture sublinqual doses...it is not about weight loss. It is about resetting the hypothalamus gland which HCG is known to do. Along with the piturarity gland and thyroid function. FMS and CFS is all about the hypothalamus not functioning up to part. Oxygen and glucose is essential however...HCG is known to reset the hypothalamus to get it functioning like it should. Although it has to be done at least 21 times, I believe, to reset it, immediately improving sleep, metabolism, and diffuses chronic pain.
 
I put together all the things he said in the video with the research I did online and put them together to see if that will help with my pain. If I lose weight in the process great. It couldn't hurt no matter what as long as my brain (hypothalamus) is reset and hopefully rebalanced. I may have stumbled across something beneficial. I have found a site, where persons have already reasoned similarly regarding this matter. I believe this could be an solution to fibro sufferers. 
 
http://www.drrickmarschall.com/How_HCG_Works.html--

Dr. A.T. Simeons, an English physician specializing in treating overweight patients, noticed that human chorionic gonadotropin mobilized abnormal fat in patients that were taking it for other conditions.  After much research it was discovered that HCG corrects a poorly functioning hypothalamus gland so it can control your appetite and burn 2000 calories from the abnormal fat reserves.  As the abnormal reserves are released, patients lose weight, the body reshapes itself and as a pleasant side benefit, often the energy, blood pressure, blood sugar and metabolism are restored to normal.   Consequently, besides losing weight, migraine headaches, fibromyalgia, chronic fatigue syndrome, arthritis, immunological and endocrinological conditions have reduced in intensity or disappeared. 
 
Method:  You take a daily administration of HCG which burns 2,000 calories, 1500 calories from the abnormal reserves and 500 from the diet.  You will lose on average one pound a day, while modifying your body contour, and feel in excellent mood and energy throughout the program.  You will be doing all of this without excessive exercise, surgery or hunger.

You must take a minimum of 23 doses of HCG to a maximum of 40 to achieve a correction of the hypothalamic dysfunction.  Since HCG burns 2000 calories, you will only be allowed to eat 500 calories, but your appetite will be well controlled by the HCG.  At the end of the treatment you will go into Stage 2.  During Stage 2 you will reset the hypothalamus based on a pre-industrial revolution diet.  Before the Industrial Revolution people did not have easy access to starch and sugar.  Today, starch and sugar are so easily available, they are hard to resist.  By avoiding starch and sugar for 21 days, the hypothalamus will thereafter allow you to have a cookie with lunch or a piece of chocolate with dinner without a gain in weight.

Cravings and Keeping the weight off
Double Blind studies have demonstrated that patients in the control group had cravings during the program while those receiving the HCG did not have cravings, lost more weight and kept it off.   A 20 year study showed that 60-70% of patients kept the weight off permanently.  This program is the ONLY solution I know for “The Overweight Syndrome” here in America.  My patients tell me it is the easiest weight they have ever lost.  They lose their cravings within 72 hours and go through the treatment losing about one pound a day, effortlessly, without anymore exercise than walking 15-30 minutes 3 times a week or just staying active in their work or play.  No exercise program, diet drinks, will power or protein powders are required. You will eat ordinary healthy foods; you can drink coffee, tea, herb tea and enjoy social events with ease, regardless of what other foods are being served.  I did this program myself, lost 26 pounds in 26 days and never felt better in my life.  All these years it may have seemed like regaining your health was an endless series of diets, pills and powders.  I hope this challenges you to take responsibility for what might truly transform your appearance, health and energy once and for all.

 To schedule an appointment, call The Natural Healing Clinic
360-457-1515

FROM DOM:  Keep me posted if anyone tries this!  Write dombush@bellsouth.net.
 
 
11.  CAN'T CLOSE HANDS IN THE MORNING
 
Reader 1--
 
"I had forgotten all about that [unable to close hands in the morning www.fms-help.com/021510.htm] but as soon as I read it I remembered as a child and even into young adulthood having a hard time putting on socks and stockings in the morning because it took a long time for my hands to 'wake up,' as I thought of it then."
 
Reader 2--
 
"Closing hands syndrome?? (LOL) yep!! i I have a difficult  time describing it because I have trigger finger and thumb from the scleroderma and I have carpul tunnel (from fibro? I am told)...and I have so many pains in the pads of my hands and the nerves in the wrist...and my fingers are painful and have Raynaud's....but in the monring, one of two things happens:  ONE is I cannot close my hand to save my life.  it is painful, yes. but more than that.  it seems that my  hand cannot hear the brain instructing it.  SECOND is that I awaken witha TIGHT FIST and I cnnot OPEN my hand....and when I DO get it open, it is always with deep painful ridges that I find My nails have dug into my skin.  the ridges stay for a long time ...I am actuallu digging my nails into my skin....why?  who knows. but if they have anything to do with my horrible, vivid nightmares....I just know I never had it before I got ill."
 
 
 
12.  FREE PRESCRIPTION DRUG DISCOUNT CARD
 
From a reader--
 
"There is a FREE prescription drug DISCOUNT card that is available to everyone (at least for now) and one card can be used for the whole family.  It is accepted at most pharmacies and you just show them your card and they give you the discount.  It is funded by pharmaceutical companies and other companies who advertise on their website. I have a contact that can send church groups as many cards as they want and even print the name of the church on the card if they want it, but anyone can go on the website (and weed through the advertising--hence the FREE drug discount card) and print one out.  They also have a discount card for pet medications.  I have used the prescription card and have many friends at church who have used it as well.  I know it works. It gives a hefty discount on some medications and a moderate discount on most. The last medication I got was $26.92 because they  forgot to run the card for me. I gave it back and asked them to use the discount card and it was only $6.00. Quite a savings when we are all counting pennies, and this is just one example. Just wanted to pass this along. The website is www.freeusadrugplan.com/u331.  Hope this helps someone."
 
 
13.  ADVICE FROM VA & SOCIAL SECURITY ADVOCATE
 
From a reader to the couple whose husband desperately needs work--
 
"Sounds like you are brothers and sisters in the Lord and are using His wisdom. Not sure of your ages, but because you do not mention children have to assume you are 40+.  I am a VA and Soc. Sec. advocate that has often done what it takes for people to retire and still pursue church activities, hobbies and life activity in moderation.
 
If he has an injury, could get unemployment or disability benefits, even if temporary, and could return to school and get money and grants. Vocational schools or local colleges, may offer work in his present field or fields and even a new and unrelated challenge that is less strenous may be of interest. Could be a new season in his life.  Sounds difficult for you right now, and quite a few other folks, but things can change. Use wisdom God gives.
 
I already can tell that the wife has the problems in Dominie's site [ www.fms-help.com ] and husband obviously has an injury to his lower back.  Neither one of you are likely candidates for regular insurance, unless you retire with a disability from former work, medicaid, or disability insurance.  If you apply and do not delay.  If this is an option, and it sounds to me like it should, start..!  You need each other for support and someone that can help to organize to focus the case.
 
Otherwise I would recommend that he go to Lowe's (or somewhere like this), if he does not mind this kind of environment.  He may however be required to lift.  My son in law who suffered from an emotional disability from childhood, miraculously and with my daughter's help and patience, has been a success story!  He has been working for Lowe's for 3 yrs. though his son, my granchild, can read better than him.  "With God all things are possible"!   Don't give up and keep going...! 
 
If you want to stay put rather than moving around to save your sanity/ stress, I suggest you keep working with your landlord,(I am one and also had to lower my rent). Get on Section 8 and all helps till you, and/or your wife get disability. There should be a helps pamphlet in your area: Organizations and churches will help you as long as you are working towards the goal. Go to the nearest type shelter or help center in your community and there may be one rather than having to find information, one piece at a time (see my P.S at bottom).
 
I am presently working a case, as an advocate, from two opposite sides of the country.  The gentleman got awarded past unemployment thru a hearing I attended after two previous attempts he did on his own.  The importance of doing correct preliminary work in a disability, unemployment, VA for example, is to cover all corners (imperative). I am not keen on attorneys, because it is not their responsibility to set your case up to win. They are guaranteed to get paid, usually 25-35% of retro pay as long as the case takes, and usually only accept you after you have been declined.
 
Look up great answers by Googling Binder and Binder  online.  The type of pamphlet I speak of is at the following: http://lightupfellowship.com."

 

14.  NATURAL "CRYSTAL" DEODORANTS DANGEROUS

http://articles.mercola.com/sites/articles/archive/2010/02/16/aluminum-lurks-in-crystal-deodorants.aspx

 

15.  CONTINUOUS CHEST COMPRESSION CPR

 http://www.youtube.com/watch?v=E5huVSebZpM&feature=channel - no mouth to mouth contact needed
 
 
 
16.  VIDEO REMOVED ABOUT ME/CFS PATIENT DYING
 
From a reader--
 
"There is a cultural bias about CFS in the UK.  No wonder they came out with that study [saying CFS patients do not have XMRV].  They have the belief that CFS is really depression and not a true biological illness.  Many who are diagnosed end up in mental hospitals like the woman whose email I sent.  Many go underground when they realize what they have for fear of being treated the same."
 
FROM DOM:  This reader also alerted me that the video on my site, "Doctors' Disbelief Kills Young Woman with CFS/ME" at www.fms-help.com/disbelief.htm has been removed!   This was a sad story from the UK, I believe.  I went to several other sites that used to have this video, and it is no longer available anywhere!  However, I did find a link to a page that has a number of videos about CFS/ME and what it's like for patients: http://www.wamcare.org/videos.html.  Also, see my page about the MISERY INDEX of CFS/ME, which rivals terminal cancer www.fms-help.com/misery.htm, except that CFS/ME sufferers get no understanding or sympathy and are expected to keep up their normal responsibilities!
 
 
 
17.  CAN FMS CAUSE HEART ATTACK SENSATIONS?
 
From a reader--
 
"Over the last year or so I've had episodes with my heart that "act" as if I'm having a heart attack.  Not all episodes are the same, but the results are similar in that I am left disoriented, I pass out or collapse, literally gasping for air.  A few days ago I went through a series of heart tests after another collapse.  All were negative, but they did find an "abrasion on my esophagus".  A friend of mine has been having similar episodes, and also they find nothing wrong with her heart.  She also has fibromyalgia, as do I.  I am not convinced my esophagus is the culprit, so am still researching that... My question is ... can fibromyalgia make you think you are having a heart attack?  Can it cut off your air supply, causing disorientation and fainting?"
 
FROM DOM:  I say yes.  Please write dombush@bellsouth.net if you have feedback.  This reader's symptoms could be from costochondritis (inflammation of the sternum, common in FMS) or the hypothalamus (regulatory) gland in the brain malfunctioning (again).  I've had the same symptoms as this reader at times, minus the fainting.  For years I attributed it to a lack of oxygen getting to my brain, which is why I think the stabilized liquid oxygen drops have helped me so much since August 2009.  But I'm not a doc. 
 
 
18.  FISH OIL HELPED INSOMNIA
 
From a reader--
 
"I added a tablespoon of high quality fish oil and a tablespoon of essential fatty acids to my diet now everyday. I also take 4 of Dr. Yasko's neuro formula multi. Guess what i no longer feel wired and alert at bedtime. I have finally been able to sleep after many months of insomnia."
 
 
19.  ADRENAL FATIGUE

From a reader--

"There are lots of supplements that really help with adrenal function.  Siberian Ginseng, Astragalus Root, Licorice Root, Ashwaghandha (spelling?), as well as B6 or B100 complex can impart natural energy without  caffeine-like reactions. The supplements do not provide an artificial “high” but can instead assist in longterm healing of the adrenals.  Dosage and tolerance of the supplements, ofcourse, differs from person to person.  I’ve had very good results from Siberian Ginseng and Astragalus.  I am a Chronic Fatigue Patient and wish so much that I had taken some of these 3 years ago when CFS began gaining control over my life."

FROM DOM:  I also think Adrenal Cortex from Dr. Rodger Murphree's site is pretty good.  Used it many years ago after the death of my father www.fms-help.com/eulogy.htm, when I was very emotionally and physically depleted.

 

20.  INSPIRATIONAL

FROM DOM:  A blind newsletter subscriber called my attention to a lady named Laura Bridgman, who was one of the first deaf/blind people to learn to communicate with the rest of the world.  Her story is at http://perkins.pvt.k12.ma.us/museum/section.php?id=213.  We hear most often of Helen Keller in regard to the deaf/blind, but Laura Bridgman was first.  This reader also pointed out that the famous hymnwriter Fanny Crosby was blind.  When I consider my health struggles, I have such awe for the blind who are able to function in this world, but how incredibly difficult to be both deaf & blind!  I thank God for the ability to see and to hear (even with ringing in my ears!)  May I never take these blessings for granted!

 

21.  AMINOSWEET

From a reader--

"Aspartame has been renamed to AminoSweet http://blogs.healthfreedomalliance.org/blog/2010/02/15/aspartame-has-been-renamed-and-is-now-being-marketed-as-a-natural-sweetener/."

FROM DOM:  Aspartame is a neurotoxin.  It is also called Equal.  I don't know if it is bad for everyone, but those of us with FMS/CFIDS/ME and other neurological illnesses would do well to avoid it.  However, I know LOTS of "normal" people who are extremely healthy who are consuming diet sodas and other products with aspartame every day with no ill efffect at all.  I think some people's systems are more sensitive, especially we fibromites.  I heard a health guru on TV yesterday talking about the benefits of phenylalynine (the amino acid in asparatame) saying it helped everything from giving you a more loving outlook, eradicating candida, etc.  So much confusing info out there.

 

22.  BIG PHARMA ADMITS TO FAKED RESEARCH STUDIES

From a reader--

Big Pharma researcher admits to faking dozens of research studies for Pfizer, Merck (opinion)
(NaturalNews) It's being called the largest research fraud in medical history. Dr. Scott Reuben, a former member of Pfizer's speakers' bureau, has agreed to plead guilty to faking dozens of research studies that were published in medical journals.

http://www.theday.com/article/20100115/NWS01/100119833/1047 - Dr. Scott S. Reuben, a former member of Pfizer Inc.’s speakers’ bureau accused last year of perpetrating one of the biggest research frauds in medical history, was charged today in a federal court in Boston with falsifying medical research studies.

FROM DOM:  Some drugs mentioned in these articles are Celebrex, Bextra, Vioxx and Lyrica.

 

23.  YEAST INFECTION CURE

From a reader--

"My solution for a 5 year yeast infection; to help the woman sho wrote in your last newsletter.  I tried everything the Drs. gave me but nothing worked; so I suffered so much for all those years till I read in a magazine about Tea Tree Oil.  It worked the first time I used it!  I am from Canada so I don't know whether you have Massengill Disposable Douche in USA.  Anyways there must be something similar!  You can use the douche or just squeeze it out.  All you want is the nozzle and bottle.  Cut the hole larger in the plastic bottle so you can run warm water into it and then drop a few drops of Tea Tree oil into it.  Screw on nozzle and shake a bit gently so the mixture does not come out.  Douche after going to the bathroom (on toilet or standing in shower).  You can feel it working and it is VERY effective.  Hope this helps her (and probably many others).  May have to repeat a few times so rinse bottle and save.  Use whenever you think it may be coming back.  I had Interstitial Cystitus and CF when I had this so it was a blessing to find the answer to something.  It does help with IC somewhat too."

FROM DOM:  I so agree with this reader!  I have tea tree oil, but I used an essential oil blend www.fms-help.com/oilsstore.htm in the same manner for the same purpose with excellent results too, after nothing from the doc helped.  It ended months of misery!  Thank God for natural things that help us!

 

24.  LOW DOSE NALTREXONE (LDN)

From a reader--

"I have found some relief since taking Low Dose Naltrexone.  I am on month three and apparently it takes approx. six months to notice a difference.  I will keep you posted."

FROM DOM:  Search my past newsletters www.fms-help.com/newsletters.htm if you want more info on LDN.

 

25.  CELERY JUICE RELIEVES NERVE PAIN

From a reader--

http://www.chikung-unlimited.com/Neuralgia.html - What is this miraculous almost too-good-to-be-true treatment?  It's your humble celery!  Something easy to procure from the supermarket or vegetable garden. It doesn't even have to be organic, any kind will do. Take two or three stalks and juice them. You can add a carrot to sweeten or drink the celery juice without anything else added, but it must be made fresh, which means you can't store in the refrigerator because the enzymes responsible for removing the nerve pain will die within minutes of the celery being juiced.  What's more, I've been told celery juice should also work on fibromyalgia.

FROM DOM:  After reading about all the horrible drugs and their side effects, scams, etc., why not try celery juice?!


26.  READER IN KINGSTON, ONTARIO, CANADA

Please reply directly to newsletter reader Marilyn bobmar3@sympatico.ca--

"Our support group here in Ontario, Canada has died.  No energy to make money to pay rent for our meeting room.  I was wondering if there are other sufferers near me.  I live near Kingston, Ontario and we could compare notes, etc.  I just spent almost $2,500 at Kingston naturopath and no help.  I cannot travel long distances for medical help.  Sure would be nice to find a doctor in Ontario who cared and could help us." - Marilyn bobmar3@sympatico.ca


II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God."  Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.