DOM'S
NEWSLETTER
www.fms-help.com

February 19,
2010
Previous newsletter: www.fms-help.com/021510.htm.
26 TOPICS BELOW - DON'T MISS THE RED ONES. Readers' comments in BLACK. My
comments in TEAL.
1. READERS
WRITE
"Your website www.fms-help.com is remarkable, and I am
amazed that in the time that I suffered and searched for support groups, that I
did not run across your site or someone that knew of it.
"I am still going through your newsletter.
There are so many sources and the collection of articles and
recommendations made by you and others is a wonderful find."
2. XMRV THEORY FAILS ANOTHER
TEST
http://news.sciencemag.org/sciencenow/2010/02/new-challenge-to-chronic-fatigue-virus.html - A theory linking chronic
fatigue syndrome (CFS) to an infectious mouse virus known as XMRV has taken a
second major hit. First proposed last October in Science, the virus-CFS connection was
quickly challenged by a British group. Now a second team of British virologists
reports that, after examining tissue from 170 CFS patients, they have failed to
find evidence of XMRV.
http://news.sciencemag.org/sciencenow/2010/01/06-01.html - To resolve the dispute, both
sides say they are willing to work with the other and possibly test each other's
samples. In the meantime, more papers exploring the link are slated to appear in
the next few months, and each side says it knows of work supporting its
hypothesis. Meanwhile, the field will continue to churn. As McClure told
Science, "We take no pleasure in finding colleagues wrong or dashing the
hopes of patients, but it's imperative the truth gets
out."
RESPONSES FROM
READERS--
Reader 1--
"I discussed this with my rheumatologist - he said it
was unlikely and research will prove it. Drs. say it's a central
nervous system problem."
FROM DOM: Good point. Below are some fascinating
pages on my site that you may want to visit.
The brain and CNS is definitely involved--
www.fms-help.com/nervous.htm
www.fms-help.com/virologist.htm
www.fms-help.com/autonomic.htm
www.fms-help.com/ME.htm
www.fms-help.com/dysautonomia.htm
www.fms-help.com/genetic.htm
www.fms-help.com/yuppie.htm
www.fms-help.com/hypothalamus.htm
But there is also a viral
component that hasn't been discovered yet--
www.fms-help.com/stealth.htm
www.fms-help.com/mycoplasma.htm
FMS/CFIDS is a totally
confusing multi-system disorder--
www.fms-help.com/mitochondria.htm
www.fms-help.com/neuro.htm
www.fms-help.com/energy.htm
Reader 2--
"I just watched a video on this and the doctor
said that they don't know what methods the British group
used. Not to give up hope and he feels that alot more will be
revealed within the next six months. Watch Dr. Bell's lecture - it is
very very interesting. It is long but well worth
watching.
http://www.davidsbell.com/DSBEvents.htm Here is Dr. Bell's lecture without Q&A
http://www.prohealth.com/fibromyalgia/library/showArticle.cfm?libid=15114&B1=EM012710N - Dr. Mikovits' lecture
Reader 3--
"What was done differently in the
two groups that caused different results?? How can one group get such
possitive results and the other group get such negative results? This
makes no sense to me. How can the testing that came up with so many CFS
people testing possitive for the XMRV be faked? Is the test itself
flawed? Also, for the past almost 2 years why do I feel everyday like I
have the Flu if this illness is not caused by some sort of Virus or
Bacteria? It is also the way that CFS started in me was with very extreme
flu symptoms daily for several years before that part of it went into remission
and more of the other symptoms came through. Are we back to square
one?"
Reader 4--
"IT IS ALMOST EXPECTED. NOTE BOTH
OF THESE STUDIES ARE FROM THE UK. I WONDER IF XMRV
ONLY SHOWS UP IN LIVE TESTS - MAYBE IT DIES AFTERWARDS - NOT HAVING THE
TEMPERATURE, OXYGEN, TO SURVIVE, ETC. HOPE
WHITTEMORE/PETERSON KEEPS US UP TO DATE."
FROM DOM: I am attempting
to keep my XMRV page at www.fms-help.com/XMRV.htm as up to
date as possible.
3. MOBILE
HOME
From a reader--
"I feel as if I have been slowly submerging into the
dark hole over the past three years..even though our mobile home is new..I feel
it is something in the home or even outside on the property which is constantly
under water. I liveon 2-1/2 acres. Before coming here I was sick
with fibro and CFS since 1989 but at least functional now I have more bad days
than good."
FROM DOM: See my mobile
home page at www.fms-help.com/mobile.htm and mold page at www.fms-help.com/mold.htm. Or it could be that this reader's decline is just part of
the FMS/CFIDS illness that seems to sometimes have no rhyme or reason to
it.
4.
MATTRESSES
Reader 1--
"I have a Sleep Number bed that I purchased
4 years ago...and yes, there is a tremendous difference in how I feel in the
mornings especially. The best part is I can adjust the bed according to
how I feel. My very bad back is not as painful, and my Fibro is definitely
less painful. I'll never have another mattress again after having
this Sleep Number."
Reader 2--
"I use a tempurpedic. But I'd never buy
another one. I had to get used to it and for the first severalmonths it outgased
and I worried I'd never get past the smell. I don't tihnk it outgases anymore,
thank God. I think it quits doing that after a few months. You'd think
they would tell you. Anything new smells. I can't imagine sleeping
on rubber."
Reader 3--
"Regarding
Memory Foam mattresses: Memory Foam cradles the body and is a lot
like sleeping on air. This take the pressure off spine, joints and
muscles. However, the major complaint regarding memory foam is that
is retains a tremendous amount of body heat making a person quite warm while
attempting to sleep. Not the greatest for menopausal women. Latex
provides supportive cushioning for spine and pressure points and is not nearly
as hot to sleep on. I’ve owned both kinds of mattresses and
ultimately ended up with a Sealy latex bed. There are endless
varieties of mattresses to choose from anymore, and the consumer has to be very
careful to research the materials in the mattress and the mattress
top. Otherwise, you can experience too much stiffness, too much
sinking, or temperature problems. No one with Fibro or CFS needs to
be dealing with all that while trying to get restorative
sleep."
Reader
4--
"After much research, I had a mattress made for my daughter at a local
mattress company. He ordered two thicknesses (2” and 4”) and weights (softest
and firm) of natural latex from Since I wanted no chemicals of any kind in the
mattress, I had to sign a statement that I knew I was getting a mattress that
would not have chemical treatment to make it less flammable. Mattresses
manufactured for sale in the U.S. have to have flame retardants applied. He also agreed that no one
would be allowed to smoke in the area while the mattress was being
made.
On one side the softer
latex is on top and if turned over, the firm latex is on top. If I had known the
softer was what she liked most to lie on, I would have done another layer of
soft on the other side so that the mattress would be the same no matter which
side was up. But she was not able to try out the mattress first, so we made it
so there would be a choice of sides. We bought a platform type bed with slats so
that the mattress is exposed to air on the underside. This is important so that
moisture from the body can be released. There is a plain, unpadded quilted
cotton blend mattress covering, and she uses an organic cotton mattress pad on
top. The mattress is lightweight and can be taken outside for airing whenever
desired. Latex will yellow if exposed to lots of sun, so we don’t lay it in the
sun for long, but the cotton cover should protect the latex
anyway.
Natural latex lasts a long time—longer than
most mattresses that have coils and such. There is no need for a box springs
foundation. The slats are used around the world for beds. The mattress cost over
a thousand dollars, but it is just what we wanted and we expect it to last
longer than the other expensive mattresses I researched. The pre-made latex
mattresses were more expensive than this custom-made.
As soon as our daughter lay down on the
mattress to try it out, she did not want to get back up and in fact, dozed off
with two other people in the room who were quietly picking up wrappings and
blankets. After the first night, she said she felt for the first time like she
had slept all night even though she slept only 4 or 5 hours.
We had always used a foam topper on a fairly firm padded top
mattress, but the foam off-gasses and traps smells, I think.
If I couldn’t afford a latex mattress, I would
buy a 2 or thicker latex layer to put on top of a regular, cheaper mattress and
cover it all with a good mattress cover. There are online sources where you can
order a thin natural latex pad for whatever size mattress you have. There is
even a place where you can buy layers and covers to put together your own
mattress. Still expensive to do that but if you don’t have a custom mattress
company nearby, it’s cheaper than buying a pre-made latex mattress by the famous
companies."
Reader 5--
"A little over a year ago I purchased a sleep
numbers mattress, plus topper and then I purchased a mattress warmer mainly
because prier to this purchase I had a water bed which was nice and warm. I
get the best sleep I have ever gotten. I have a cal king and when my husband is
in bed it does not affect my side at all. Wonderful wonderful wonderful is all I
can say. I don’t wake up as sore as I used to. The heated mattress cover is like
a large heating pad, But all is adjustable. How soft or how hard how
cool or how warm. I sleep like a baby now. Hope this helps someone else
who is thinking about a new mattress. Worth every penny."
5. RINGING IN THE
EARS (TINNITUS)
Reader 1--
"I just finished reading
your newsletter and I too have the ringing, buzzing, high pitched whirring in my
ears and the only thing that works for me and this may sound crazy but I
sleep in a football mouthpiece. I got the idea when my
dentists ask me if I grind my teeth when I sleep because I suffer from migraines
and TMJ, I told him no but I tend to worry a lot and that keeps me under a lot
of stress. He then asked me if I had a way to release the stress and worry,
again I answered no. He suggested that I although I may not grind my teeth, I
clench them more than I realize. When he told me that
a light bulb went on in my head, that is exactly what I do! So to keep me from
clenching my teeth together and putting all that pressure on my jaw's joint
which can wear it down and to keep the muscle surrounding the joint from
further fatigue, my husband came up with the football mouthpiece idea and it
works. (I wish I had something for his snoring):) I wear the mouthpiece
for 2 to 3 days or until the ringing goes away and when it comes back the
mouthpiece goes back in. It's not the most beautiful thing to wear to bed
but it works for me, I hope it will work for someone
else."
FROM DOM: Interesting. I
have no cartilage left in my jaw joints. I think this is what causes the
continual ringing. I also had TMJ for many years back in my 30's - jaw
clicking, lots of dental work, etc. I might try this! (Between
a football mouthpiece and black eye mask, I will be a real night-time
beauty! I already look like the Lone Ranger.)
Reader 2--
"I ran across this website a few days
ago regarding certain drugs and their potential tinnitus side
effects. http://www.tinnitusformula.com/infocenter/articles/conditions/drugs.aspx.
Many common pain and sleep meds are on this list. Though the site
also sells tinnitus products, it also contains a lot of information that may be
worth sending out to your readers. I have suffered for 2 ˝ years
with dizzy spells and some tinnitus. Apparently, many people with
dizziness also have tinnitus, though not all tinnitus sufferers experience
frequent dizziness (which is not necessarily the same as vertigo). I
believe that diet has a huge impact on vestibular conditions, particularly food
intolerances and food allergies."
Reader 3--
"I have heard from some people that they are
taking the RingStop capsules (not the drops) and some within two weeks notice a
difference but usually after about the 2-3 month mark is when some have total
relief and some have such a significant drop in the noise level that they are
happy. I have also read about some type of massagework(?) called
RESET that works on the jaw and can help with tinnitus (if that happens to be
the cause of the tinnitus)."
6. RESISTANT YEAST
& SINUS
From a reader--
"Two products for resistant yeast and sinus: FYI
Ultra by Garden of Life brand combined with Allertonic from Herbs
etc. With these products I am actually able to eat more things
without getting sick."
7. IRON DEFICIENCY
ANEMIA
From a reader--
"In December I discovered that my
iron/ferritin/TIBC/transferritin saturation rate levels were low. However,
it was ME that detected this - since my levels were extremely low but not lower
than the range listed on the labwork results (ie. out of range), my doctor’s
office did not pick up on this. I compared my levels to what other
specialists recommend (including Dr. Teitelbaum’s information) and drew it to my
doctor’s attention. In two months time I’ve experimented with six
different kinds of iron including two liquid varieties (Floradix which contains
yeast and honey, and FloraVital which is sugar-free, gluten-free but still
contains fruit juices). I finally settled on NOW Brand Iron and take it at
night with 1,000 mg Vitamin C. My energy is just beginning to
increase, my body temperature is better, I sleep better, and my hair no longer
falls out. It really is crucial that Fibro/CFS/ME patients get their iron
levels checked at least once per year: mine decreased drastically
between 2008 and 2009 after I cut red meat out of my diet due to IBS symptoms
that have now resolved. One other critical point: Adequate iron
levels are absolutely crucial to the absorption of thyroid medications and the
function of the thyroid in general. I was not aware of that until
just last month when I stumbled across this fact on a thyroid
site."
8. NEUROGEN FOR
PAIN
From a reader--
"I see a lot of neurogen advertised in diabetes
magazines. They have a pill, and an oil (the one you mentioned) and a cream. You
can buy it at Walgreens. It also has a very strong smell. Has anyone tried
anything else other than the oil that this reader mentioned? I am so glad to
hear that it actually works for someone www.fms-help.com/021510.htm.
I have been mentioning it to people but not sure if it worked or not - so
very glad to hear that it does."
9.
ANXIETY
FROM DOM: Lorazepam (generic
ativan) works great for me. It's on my list of helpful things at www.fms-help.com/what.htm. I
take .5 (that's 1/2) mg of lorazepam in the afternoon and also again in the
middle of the night. Helps with the feeling of chest tightness and
pressure, helps insomnia, and relieves nervousness while piano
performing. I also found 2 essential oil blends that help
anxiety: Peace and Calming and Valor
(www.fms-help.com/oilsstore.htm and http://dom.younglivingworld.com - these affect the
limbic portion of the brain.)
10. BRAIN-BASED
THERAPY & HCG
From a reader--
"Regarding the Brain Based Therapy I tried
it. Still was not diagnosed with
Fibro then. A Chiropactor here in Tinley Park, IL Dr Edward Beyer was the one I
saw. He has testimonials on his site too. http://tinleyparkbbt.com/fibromyalgia-treatment
However I did a 10 day treatment that consisted of
spinal manipulations with a small instrument starting from the cerebellum down
my spine on my left side of the brain. Considering my major pain was on
the right side shoulder and arm. Then they would take me to do
decompression of the spine lower lumbar area strapped in at the waist the
machine pulls to stretch your spine, the same was done to the neck an entrapment
for the head that decompressed the neck. All the time having oxygen
administered. Then they would take me to have electrical stiumulation on my back
along with heat. 10 day...straight. I didn't get to do the right side
of my brain & spine regarding manipulations (I had met my max. for
BCBS for the year 09) It did help me with headaches and migraines
subsided. I was still having flare ups and pain in shoulder. I even had pain in
my hip area one day. He was the one who told my primary care doctor that I had
Neuropathy, instead of Fibromyalgia. I didn't have much neck pain like I do now
either. However I went to him when winter hit..because I felt a flare up of pain
and was trying to be prepared...for this was my 3 year suffering.
Now I want to share something with you.
This is my theory of things...
The link you had about the doctor about the brain
based therapy that is 45 minutes from you. In his video he (very informative)
speaks of the hypothalamous gland not function like it should. Which is the same
thing Dr. Beyer said. That there is a misfiring of nerve ending that creates
pain in fibro patients. How to you get the brain balanced...they say by brain
based oxygen therapy. So we all lacking "oxygen" and "glucose" is
needed and we probably have a overdose of that..lol
However, I came across something I am going
to try to see if it works. People have been using HCG to lose
weight. HCG Injections.
I want to do the homeopathic HCG tincture
sublinqual doses...it is not about weight loss. It is about resetting
the hypothalamus gland which HCG is known to do. Along with the
piturarity gland and thyroid function. FMS and CFS is all about the hypothalamus not functioning up
to part. Oxygen and glucose is essential however...HCG is known to reset the
hypothalamus to get it functioning like it should. Although it has to be done at
least 21 times, I believe, to reset it, immediately improving sleep,
metabolism, and diffuses chronic pain.
I put together all the things he said in the video
with the research I did online and put them together to see if that will help
with my pain. If I lose weight in the process great. It couldn't hurt no
matter what as long as my brain (hypothalamus) is reset and hopefully
rebalanced. I may have stumbled across something beneficial. I have found a
site, where persons have already reasoned similarly regarding this matter.
I believe this could be an solution to fibro sufferers.
Dr. A.T. Simeons,
an English physician specializing in treating overweight patients, noticed that
human chorionic gonadotropin mobilized abnormal fat in patients that were taking
it for other conditions. After much research it was discovered that HCG
corrects a poorly functioning hypothalamus gland so it can control your appetite
and burn 2000 calories from the abnormal fat reserves. As the abnormal
reserves are released, patients lose weight, the body reshapes itself and as a
pleasant side benefit, often the energy, blood pressure, blood sugar and
metabolism are restored to normal. Consequently, besides losing
weight, migraine headaches, fibromyalgia, chronic fatigue syndrome,
arthritis, immunological and endocrinological conditions have reduced in
intensity or disappeared.
Method:
You take a daily administration of HCG which burns 2,000 calories, 1500 calories
from the abnormal reserves and 500 from the diet. You will lose on average
one pound a day, while modifying your body contour, and feel in excellent mood
and energy throughout the program. You will be doing all of this without
excessive exercise, surgery or hunger.
You must take a
minimum of 23 doses of HCG to a maximum of 40 to achieve a correction of the
hypothalamic dysfunction. Since HCG burns 2000 calories, you will only be
allowed to eat 500 calories, but your appetite will be well controlled by the
HCG. At the end of the treatment you will go into Stage 2. During
Stage 2 you will reset the hypothalamus based on a pre-industrial revolution
diet. Before the Industrial Revolution people did not have easy access to
starch and sugar. Today, starch and sugar are so easily available, they
are hard to resist. By avoiding starch and sugar for 21 days, the
hypothalamus will thereafter allow you to have a cookie with lunch or a piece of
chocolate with dinner without a gain in weight.
Cravings and Keeping the weight off
Double Blind
studies have demonstrated that patients in the control group had cravings during
the program while those receiving the HCG did not have cravings, lost more
weight and kept it off. A 20 year study showed that 60-70% of
patients kept the weight off permanently. This program is the ONLY
solution I know for “The Overweight Syndrome” here in America. My patients
tell me it is the easiest weight they have ever lost. They lose their
cravings within 72 hours and go through the treatment losing about one pound a
day, effortlessly, without anymore exercise than walking 15-30 minutes 3 times a
week or just staying active in their work or play. No exercise program,
diet drinks, will power or protein powders are required. You will eat ordinary
healthy foods; you can drink coffee, tea, herb tea and enjoy social events with
ease, regardless of what other foods are being served. I did this program
myself, lost 26 pounds in 26 days and never felt better in my life. All
these years it may have seemed like regaining your health was an endless series
of diets, pills and powders. I hope this challenges you to take
responsibility for what might truly transform your appearance, health and energy
once and for all.
To schedule an appointment, call The Natural Healing
Clinic
360-457-1515
11. CAN'T CLOSE
HANDS IN THE MORNING
Reader 1--
"I had forgotten all about that [unable to close
hands in the morning www.fms-help.com/021510.htm] but as soon as I read it I remembered as a child and even into
young adulthood having a hard time putting on socks and stockings in the morning
because it took a long time for my hands to 'wake up,' as I thought of it
then."
Reader 2--
"Closing hands syndrome?? (LOL) yep!! i I have
a difficult time describing it because I have trigger finger and thumb
from the scleroderma and I have carpul tunnel (from fibro? I am told)...and I
have so many pains in the pads of my hands and the nerves in the wrist...and my
fingers are painful and have Raynaud's....but in the monring, one of two things
happens: ONE is I cannot close my hand to save my life. it is
painful, yes. but more than that. it seems that my hand cannot hear
the brain instructing it. SECOND is that I awaken witha TIGHT FIST and I
cnnot OPEN my hand....and when I DO get it open, it is always with deep painful
ridges that I find My nails have dug into my skin. the ridges stay for a
long time ...I am actuallu digging my nails into my skin....why? who
knows. but if they have anything to do with my horrible, vivid nightmares....I
just know I never had it before I got ill."
12. FREE
PRESCRIPTION DRUG DISCOUNT CARD
From a reader--
"There is a FREE prescription drug DISCOUNT card
that is available to everyone (at least for now) and one card can be used for
the whole family. It is accepted at most pharmacies and you just show them
your card and they give you the discount. It is funded by pharmaceutical
companies and other companies who advertise on their website. I have a contact
that can send church groups as many cards as they want and even print the name
of the church on the card if they want it, but anyone can go on the website (and
weed through the advertising--hence the FREE drug discount card) and print one
out. They also have a discount card for pet medications. I have used
the prescription card and have many friends at church who have used it as
well. I know it works. It gives a hefty discount on some medications and a
moderate discount on most. The last medication I got was $26.92 because
they forgot to run the card for me. I gave it back and asked them to use
the discount card and it was only $6.00. Quite a savings when we are
all counting pennies, and this is just one example. Just wanted to pass this
along. The website is www.freeusadrugplan.com/u331.
Hope this helps someone."
13. ADVICE FROM VA
& SOCIAL SECURITY ADVOCATE
From a reader to the couple whose husband
desperately needs work--
"Sounds like you are brothers and sisters in the
Lord and are using His wisdom. Not sure of your ages, but because you do not
mention children have to assume you are 40+. I am a VA and Soc. Sec. advocate that has
often done what it takes for people to retire and still pursue church
activities, hobbies and life activity in moderation.
If he has an injury, could get unemployment
or disability benefits, even if temporary, and could return to school
and get money and grants. Vocational schools or local colleges,
may offer work in his present field or fields and even a new
and unrelated challenge that is less strenous may be of interest.
Could be a new season in his life. Sounds difficult for
you right now, and quite a few other folks, but things can change. Use
wisdom God gives.
I already can tell that the wife has the problems
in Dominie's site [ www.fms-help.com ] and
husband obviously has an injury to his lower back. Neither one of
you are likely candidates for regular insurance, unless you retire with a
disability from former work, medicaid, or disability insurance.
If you apply and do not delay. If
this is an option, and it sounds to me like it should, start..!
You need each other for support and someone that
can help to organize to focus the case.
Otherwise I would recommend that he go to
Lowe's (or somewhere like this), if he does not mind this kind of
environment. He may however be required to lift. My son in law who
suffered from an emotional disability from childhood, miraculously and with my
daughter's help and patience, has been a success story! He has been
working for Lowe's for 3 yrs. though his son, my granchild, can read better
than him. "With God all things are possible"! Don't
give up and keep going...!
If you want to stay put rather than moving
around to save your sanity/ stress, I suggest you keep working with
your landlord,(I am one and also had to lower my rent). Get on Section 8
and all helps till you, and/or your wife get
disability. There should be a helps pamphlet in your area:
Organizations and churches will help you as long as you are working towards the
goal. Go to the nearest type shelter or help center in your community and there
may be one rather than having to find information, one piece at a time
(see my P.S at bottom).
I am presently working a case, as an
advocate, from two opposite sides of the country. The gentleman got
awarded past unemployment thru a hearing I attended after two previous attempts
he did on his own. The importance of doing correct preliminary work in a
disability, unemployment, VA for example, is to cover all corners
(imperative). I am not keen on attorneys, because it is not their
responsibility to set your case up to win. They are guaranteed to get paid,
usually 25-35% of retro pay as long as the case takes, and usually only
accept you after you have been declined.
Look up great answers by Googling Binder
and Binder online. The type of pamphlet I speak of is at
the following: http://lightupfellowship.com."
14.
NATURAL "CRYSTAL" DEODORANTS DANGEROUS
http://articles.mercola.com/sites/articles/archive/2010/02/16/aluminum-lurks-in-crystal-deodorants.aspx
15. CONTINUOUS CHEST
COMPRESSION CPR
16. VIDEO REMOVED
ABOUT ME/CFS PATIENT DYING
From a reader--
"There is a cultural bias about CFS in the
UK. No wonder they came out with that study [saying CFS patients do not
have XMRV]. They have the belief that CFS is really depression and
not a true biological illness. Many who are diagnosed end
up in mental hospitals like the woman whose email I sent.
Many go underground when they realize what they have for fear of being
treated the same."
FROM DOM: This
reader also alerted me that the video on my site, "Doctors'
Disbelief Kills Young Woman with CFS/ME" at www.fms-help.com/disbelief.htm has been removed! This was a sad story from the UK, I
believe. I went to several other sites that used to have this video, and
it is no longer available anywhere! However, I did find a link to a page
that has a number of videos about CFS/ME and what it's like for
patients: http://www.wamcare.org/videos.html. Also, see my page about the MISERY INDEX
of CFS/ME, which rivals terminal cancer www.fms-help.com/misery.htm, except that CFS/ME sufferers get no understanding or sympathy and
are expected to keep up their normal responsibilities!
17. CAN FMS CAUSE
HEART ATTACK SENSATIONS?
From a reader--
"Over the last year or so I've had episodes with my
heart that "act" as if I'm having a heart attack. Not all episodes are the
same, but the results are similar in that I am left disoriented, I pass
out or collapse, literally gasping for air. A few days ago I went
through a series of heart tests after another collapse. All were negative,
but they did find an "abrasion on my esophagus". A friend of mine has
been having similar episodes, and also they find nothing wrong with her heart.
She also has fibromyalgia, as do I. I am not convinced my esophagus
is the culprit, so am still researching that... My question is ... can
fibromyalgia make you think you are having a heart attack? Can it cut off
your air supply, causing disorientation and fainting?"
FROM DOM: I say
yes. Please write dombush@bellsouth.net if you have feedback. This reader's
symptoms could be from costochondritis (inflammation of the sternum, common
in FMS) or the hypothalamus (regulatory) gland in the brain malfunctioning
(again). I've had the same symptoms as this reader at times, minus
the fainting. For years I attributed it to a lack of oxygen getting to my
brain, which is why I think the stabilized
liquid oxygen drops have helped me so much since August 2009. But I'm
not a doc.
18. FISH OIL HELPED
INSOMNIA
From a reader--
"I added a tablespoon of high
quality fish oil and a tablespoon of essential fatty acids to my diet now everyday. I also take 4 of Dr. Yasko's neuro
formula multi. Guess what i no longer feel wired
and alert at bedtime. I have finally been able to sleep after many months of insomnia."
19. ADRENAL
FATIGUE
From a reader--
"There are lots of supplements that really help with
adrenal function. Siberian Ginseng, Astragalus Root, Licorice Root,
Ashwaghandha (spelling?), as well as B6 or B100 complex can impart natural
energy without caffeine-like reactions. The supplements do not
provide an artificial “high” but can instead assist in longterm healing of the
adrenals. Dosage and tolerance of the supplements, ofcourse, differs
from person to person. I’ve had very good results from Siberian
Ginseng and Astragalus. I am a Chronic Fatigue Patient and wish so much
that I had taken some of these 3 years ago when CFS began gaining control over
my life."
FROM DOM: I also think Adrenal
Cortex from Dr. Rodger Murphree's site is pretty good. Used it many years
ago after the death of my father www.fms-help.com/eulogy.htm, when I was very emotionally and physically depleted.
20. INSPIRATIONAL
FROM DOM: A blind
newsletter subscriber called my attention to a lady named Laura
Bridgman, who was one of the first deaf/blind people to learn to
communicate with the rest of the world. Her story is at http://perkins.pvt.k12.ma.us/museum/section.php?id=213. We hear most often of Helen Keller in regard to the
deaf/blind, but Laura Bridgman was first. This reader also pointed out
that the famous hymnwriter Fanny Crosby was blind. When I consider my
health struggles, I have such awe for the blind who are able to function in this
world, but how incredibly difficult to be both deaf & blind! I
thank God for the ability to see and to hear (even with ringing in my
ears!) May I never take these blessings for granted!
21.
AMINOSWEET
From a reader--
"Aspartame has been renamed to AminoSweet
http://blogs.healthfreedomalliance.org/blog/2010/02/15/aspartame-has-been-renamed-and-is-now-being-marketed-as-a-natural-sweetener/."
FROM DOM: Aspartame is a
neurotoxin. It is also called Equal. I don't know if it is bad for
everyone, but those of us with FMS/CFIDS/ME and other neurological illnesses
would do well to avoid it. However, I know LOTS of "normal" people who are
extremely healthy who are consuming diet sodas and other products with aspartame
every day with no ill efffect at all. I think some people's systems are
more sensitive, especially we fibromites. I heard a health guru on TV
yesterday talking about the benefits of phenylalynine (the amino acid in
asparatame) saying it helped everything from giving you a more loving outlook,
eradicating candida, etc. So much confusing info out there.
22. BIG PHARMA ADMITS
TO FAKED RESEARCH STUDIES
From a reader--
|
FROM DOM: Some drugs
mentioned in these articles are Celebrex, Bextra, Vioxx and
Lyrica.
23. YEAST
INFECTION CURE
From a reader--
"My solution
for a 5 year yeast infection; to help the woman sho wrote in your
last newsletter. I tried everything the Drs. gave me but nothing
worked; so I suffered so much for all those years till I read in a
magazine about Tea Tree Oil. It worked the
first time I used it! I am from Canada so I don't know whether
you have Massengill Disposable Douche in USA. Anyways there must be
something similar! You can use the douche or just squeeze it
out. All you want is the nozzle and bottle.
Cut the hole larger in the plastic bottle so you can run
warm water into it and then drop a few drops of Tea Tree oil into
it. Screw on nozzle and shake a bit gently so the mixture does
not come out. Douche after going to the bathroom (on toilet or
standing in shower). You can feel it working and it is VERY
effective. Hope this helps her (and probably many
others). May have to repeat a few times so rinse bottle and
save. Use whenever you think it may be coming back. I had
Interstitial Cystitus and CF when I had this so it was a blessing to find
the answer to something. It does help with IC somewhat
too."
FROM DOM: I so agree with
this reader! I have tea tree oil, but I used an essential oil blend
www.fms-help.com/oilsstore.htm
in the same manner for the same purpose with excellent results too, after
nothing from the doc helped. It ended months of misery! Thank
God for natural things that help us!
24. LOW DOSE NALTREXONE
(LDN)
From a
reader--
"I have found
some relief since taking Low Dose Naltrexone. I am on month
three and apparently it takes approx. six months to notice a
difference. I will keep you posted."
FROM DOM: Search my past newsletters www.fms-help.com/newsletters.htm if you want more info on LDN.
25.
CELERY JUICE RELIEVES NERVE PAIN
From a reader--
http://www.chikung-unlimited.com/Neuralgia.html - What is this miraculous
almost too-good-to-be-true treatment? It's your humble celery!
Something easy to procure from the supermarket or vegetable garden. It
doesn't even have to be organic, any kind will do. Take two or three stalks and
juice them. You can add a carrot to sweeten or drink the celery juice
without anything else added, but it must be made fresh, which means you
can't store in the refrigerator because the enzymes responsible for
removing the nerve pain will die within minutes of the celery being
juiced. What's more, I've been told celery juice should also work on
fibromyalgia.
FROM
DOM: After reading about all the horrible drugs and their side
effects, scams, etc., why not try celery juice?!
|
26. READER IN
KINGSTON, ONTARIO, CANADA
Please reply directly to newsletter reader
Marilyn bobmar3@sympatico.ca--
"Our support group here in Ontario,
Canada has died. No energy to make money to pay rent for our
meeting room. I was wondering if there are other sufferers near me.
I live near Kingston, Ontario and we could compare notes,
etc. I just spent almost $2,500 at Kingston naturopath and no help.
I cannot travel long distances for medical help. Sure would be nice
to find a doctor in Ontario who cared and could help us." -
Marilyn bobmar3@sympatico.ca
II Corinthians
1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort
them which are in any trouble, by the comfort wherewith we ourselves are
comforted of God." Visit Dominie's FMS/CFIDS Homepage at
www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their
families.
Dominie's Favorites:
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Drops Antioxidants Cold Sore
Treatment Colloidal Silver DMSO
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bioavailable) Questions? Write dombush@bellsouth.net
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DISCLAIMER: I am not
a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The
purpose of this website is not to diagnose or cure any disease or malady, but is
presented as food for thought. This information cannot take the place of
professional medical advice. Any attempt to diagnose and treat an illness should
come under the direction of a physician. No guarantees are made regarding any of
the information in this
website.