DOM'S FMS/CFIDS/ME NEWSLETTER
www.fms-help.com
September 1, 2009
 
A Christian-based newsletter for people with Fibromyalgia (FMS), Chronic Fatigue & Immune Dysfunction Syndrome (CFIDS), or Myalgic Encephalomyelitis (M.E.) and their families.  
 
45 topics below.  Don't miss the RED ones.  Readers' comments in black.  My comments in teal.
 
 

 
1.  READERS WRITE
 
"Thanks for the time and effort you put in to get these newsletters out there to all us fellow sufferers."
 
"Your information is so useful.  Many thanks for caring."
 
"I have suffered from fibromyalgia symptoms for over a year now. I have been reading on your website www.fms-help.com.  So much interesting information!"
 
"Thanks, as always, for your kind and helpful support."
 
"I look forward to receiving your newsletter.  I've cancelled all the rest that I used to receive.  I don't have time for them, but I find the time to read yours.  I'm a Christian and a conservative and love the tidbits you throw in.  Without God I don't know how I'd have made it this far and can't understand how anyone can make it without him."
 
"Thank you for all the continuous and precious info."
 
"I really enjoy all your information its helpful and spiritually uplifting, we sure need that."
 

 
2.  C-PAP MACHINE
 
Reader 1--
 
"I have a c-pap machine. I really felt that it was helping me, but the mask they have is very uncomfortable.  So I have started using o2 but I am going back on it."
 
Reader 2--
 
"I've been using a CPAP for about 3 years after a sleep study determined that I had sleep apnea.  (I was waking up more than 30 times an hour to breathe!)  I hate it but I use it because I know that sleep apnea can have severe negative effects on one's health in the long run.  I'm 55 now, so perhaps all those years of undiagnosed sleep apnea and poor sleep contributed to my many years of FMS.   Yes, I think it helps.  Is it the "cure" for my fatigue?  Sadly not, but I definitely feel worse the next day if I fall asleep without it."
 
Reader 3--
 
"I have been using C-Pap for about a dozen years I think.  My test showed I woke up something like 50X an hour.  You can't get any good sleep that way.  But after using the mask for about four months, I realized that I felt better and had more energy.  Also, I no longer fell asleep everytime I sat down and could actually sit through a movie without falling asleep.  I could go stand in the back of Bible Study and fall asleep.  I would wake up when my Bible hit the floor! If you have that diagnosis, I think it really does work.  It is difficult to get used to sleeping with something on your face.  Especially people like me who sleep on the stomach-side, kind of with my face down.  But I am very much used to it and if I am really tired I even use it for napping as I know the quality of the sleep is so much better.  There are a lot of different styles of masks and some are just little "pillows" that fit in your nose.  You have a small nose and I would think would be easier to fit than me with my big honker!  They tell you to wash it every day - I confess that I never do.  I use a new one about every four months.  They might last longer if I cleaned it but I am just not a detail type person and I don't worry about it.  [and this additional info...] My ENT sent me in for a sleep test.  You spend the night in a special hospital hooked up to all sorts of monitors.  The results of that confirm whether you have it or not.   If you do, they wake you up in the night and put a machine on you.  They adjust and calibrate the amount of air you need to keep the airway open.  The results go to your doctor.  The doctor writes a prescription for the machine which you fill at a place that handles that sort of machine.  Without insurance I am sure it is very expensive.  They make machines that have added moisture on them.  I have that part but have never used it.  I don't seem to have a problem with dryness, and I think if I added the moisture I would have to be careful about keeping it clean for fear of infections that grow in a moist environment.  I have seen machines listed on Craigs list for sale - I think they are about $1500 or so new but I really don't remember." 
 
Reader 4--
 
"Before I had the CPAP mask I was waking up through the night with pain and also i snored as my wife said  ' industrial strength'. If she didn't get to sleep before me I would keep her awake. I was also extremely restless tossing and turning through out the night. Also I used to stop breathing and wake myself up. In the morning I would wake up absolutely exhausted. You can imagine how I felt with the FM then.  I had various tests at Respiratory Clinic and was diagnosed with Obstructive Sleep Apnea I have been wearing the CPAP Mask for two years. The snoring has stopped. I now don't stop brething. I am not as restless and a little less tired than I was, but I still have to pace myself  when carrying out tasks. For instance  I cleaned the inside of the car about two weeks ago. I began about  10.30 a.m. had regular breaks for lunch and rest. I finished at 5. p.m and was absolutely tired out. I have had Fibromyalgia for ten years."
 

 
3.  RUDE DOCTOR
 
Reader response to Topic #11at www.fms-help.com/080309.htm--
 
"What a jerk!! However, to have to be on all those very strong pain meds means something is really wrong!! She really needs to start taking things that will help her get better rather than just covering up her pain. She needs to follow the things you have detailed on your site. I have had great pain improvement with Alpha Lipoic acid (I had the most horrible burning nerve pain), and with Thorne AR Encap (takes time to work). I found for my mom, homeopathic Hylands arthritis pain product works better than advil OR percocet. My mom is on fentanyl patch, but she is so small and elderly, she cannot go over the lowest dose. This Hyland's homeopathic works better than other oral meds for breakthrough pain for her.  There are so many things naturally that work, and that make you better so you can do things.  IF you stay away from chemicals in your food and your environment. If you don't, you will only continue to get worse!!!"
 
FROM DOM:  See my good docs/bad docs page at www.fms-help.com/doctors.htm.
 

 
4.  DR. ED CONLEY
 
Please reply to Kim kimszymanski@everus.ca--
 
"Has been to see Dr. Edward Conley - CFIDS doctor - and their experience with him.  I can’t seem to find much information on him." - Kim
 

 
5.  GOT STRESS?
 
From a friend--
 
"A lecturer, when explaining stress management to an audience, raised a glass of water and asked, .How heavy is this glass of water?  Answers called out ranged from 2 oz. to 10 oz.  The lecturer replied. The absolute weight doesn't matter. It depends on how long you try to hold it. If I hold it for a minute, that's not a problem. If I hold it for an hour, I'll have an ache in my right arm. If I hold it for a day, you'll have to call an ambulance. In each case, it's the same weight, but the longer I hold it, th e heavier it becomes. He continued. And that's the way it is with stress management. If we carry our burdens all the time, sooner or later, as the burden becomes increasingly heavy, we won't be able to carry on. As with the glass of water, you have to put it down for a while and rest before holding it again. When we're refreshed, we can carry on with the burden. So, before you return home tonight, put the burden of work down. Don't carry it home. You can pick it up tomorrow.  Whatever burdens you're carrying now, let them down for a moment if you can. So, my friend put down anything that may be a burden to you right now. Don't pick it up again until after you've rested a while."
 
FROM DOM:  Good advice for us fibromites! 
 

6.  STATES WITH HIGHEST MOLD DECAY
 
From a reader--
 
"The south eastern section of Louisiana, along with Mississippi, Alabama,
South Georgia, Florida, and the eastern seaboard have the highest
probability of mold decay with structures and in the construction of
residential and commercial projects.
Mold remediation; its understandable that the growth of mold after the
release of water in a structure presents grave problems for insurers and
owners. High humidity increasers the risk of mold growth. If decay of wood
product is suspected, and inspection should be made by a trained
professional, especially if the decay involves structural elements. If decay of
wood products has occurred, it is imperative to identify and correct the
source of moisture."

http://www.ucs.louisiana.edu/~hah5863/onlinecourses/itec350/project2.pdf 
 
FROM DOM:  My mold story is at www.fms-help.com/mold.htm.
 

 
7.  SWINE FLU
 
Reader 1 - a response to Topic 37 at www.fms-help.com/080309.htm--
 
"I REMEMBER I WAS WORKING AT AN INSURANCE OFFICE AT THE TIME  PRESIDENT GERALD FORD INSISTED THAT ALL THE POPULATION GET A SWINE FLU VACCINE.  MY HUSBAND REFUSED TO GO  BUT I TOOK MY TWO DAUGHTERS AND GOT THE THREE OF US THAT VACCINE.   IF THERE IS A LINK WITH SICKNESS,  SOME DEATH, AND GUILLIAN BAR SYNDRONE TO THIS SHOT THEM MAYBE THIS IS A CLUE.     I REMEMBER A HORRIBLE STOMACH/BOWEL FLU LIKE SICKNESS  THAT SEEMS LIKE IT LASTED OFF AND ON FOR WEEKS - LOTS OF CRAMPING, SWEATING AND PAIN.  LIVING ON THE TOILET LATE EVERY EVENING WITH SO MUCH PAIN.     DID YOU HAVE THAT SHOT WHEN PRESIDENT GERALD FORD WAS IN OFFICE?    IT SEEMS I DID NOT HAVE ANY LASTING PROBLEMS UNTIL THAT TIME.   I REMEMBER GOING TO MY DR. AND TELLING HIM -----  I GOT A FLU THAT HAS SETTLED IN MY SPINE, I STILL ACHE ALL OVER- LIKE IT DID NOT GO AWAY ALL THE WAY.     I NEVER THOUGHT ABOUT THE POSSIBLE LINK TO THAT FLU SHOT- SWINE FLU -  BACK THEN I WAS YOUNG AND TRUSTED ANYTHING THE GOVERNMENT SAID-  JOKE ON ME!   WONDERING IF YOU AND OTHERS GOT THAT VACCINE - AND WHAT POSSIBLE LINK??  http://www.cayennepepper.info/cayenne-pepper-and-swine-flu.html.   THERE WAS SOMETHING ON THE NATIONAL NEWS TONIGHT ABOUT THAT SHOT AT THAT TIME.  THEY SAID MORE PEOPLE DIED FROM THAT VACCINE THAN WHO GOT THE FLU AT THAT TIME."
 
Reader 2 sent this image--
 
 
FROM DOM:  If you are interested in this topic, I have 3 more pages of this article that the reader sent me, but too long to put in this newsletter.  Write dombush@bellsouth.net.
 
Reader 3 sent this info--
 Million TIMES More Squalene In H1N1 Vax Than Caused Gulf War Illness!
Is Your Family Protected From Swine Flu? - http://tinyurl.com/l26csk
Want to die a slow painful death then get vaccinated. Educate before you vaccinate......for your children's sake if not for your own.

8.  KIDNEY DISEASE, ACIDOSIS & ALKALIZATION
 
Reader response to Topic #23 at www.fms-help.com/080309.htm--
 
"I have chronic kidney disease stage three. My kidney’s were damaged by taking NSAID (Non steroidal anti-inflammatory drugs)over many years. I function@ 47%.  In kidney disease we have what’s called “acidosis”. It can cause protein wasting and fatigue. In fibromyalgia our bodies are also in an acidic state. Instead of taking baking soda my Renal specialist tells me to take Oral sodium bicarbonate tablets. I only take 1 or 2 per day.These are sold, without a prescription, as 10 grain tablets (1 grain=65mg). You can get a huge bottle at your pharmacy and it is inexpensive. Save the Arm and Hammer powder for your household cleaning! It will also relieve the acidic state caused by the FMS. See “Coping With Kidney Disease” by Mackenzie Walser, MD."
 
FROM DOM:  I use an alkalizing product whenever I feel too acidic.  Acid causes disease and pain.  Write dombush@bellsouth.net for details.
 

 
9.  SQUALENE, VACCINATIONS & CYTOKINE STORM
 
From a reader (see last 2 paragraphs about Fibromyalgia)--
 
Three-Stage Vaccinations May Create Perfect Cytokine Storm

Squalene produces auto-immunity and eventually death in everyone who
takes it”

vaccine4 The vaccine is to be given by a series of three injections.
Speaking on the Republic Broadcasting Network with Dr. Rebecca Carley as
host on July 11th, meta-analyst and vaccine researcher Patrick Jordan
reported belief that the first injection will be for the purpose of
turning off the victim’s immune system. The second injection will be for
the purpose of loading people with deadly organisms. And the third
injection will be to turn the immune system back on for the purpose of
creating a cytokine storm that will deal a lethal blow to the body.

In his chronicle of the connection between vaccines and death, Jordan
pointed out that in 1915 the pertussis vaccine became available and was
widely given. This bacterial poison from whopping cough, called
pertussis coxon, so depresses the immune system that it is used in
laboratories today to turn off nutrafils and reduce white blood cell
counts. Then, in 1918, soldiers who had received the pertussis vaccine
were deployed to Europe, where they were given another unknown vaccine.
They were then exposed to a Lucite gas, which is an arsenic compound,
and phosgenegas, a chlorine compound. As a result, their immune systems
kicked in with a cytokine storm that killed many of the otherwise
healthy young men. This is the 1,2,3 punch Jordan is warning will come
again with the “swine flu” vaccinations.

We have been conditioned to think of external microbes as our enemy
during a time of influenza. But our own immune systems are potentially
more lethal. When the body detects foreign microorganisms indicating an
infection, it can respond by overprotecting the site of that infection.
In its hurry to get antibodies to the infection site, the body may
dispatch so many that the level of cytokines becomes highly elevated,
creating a cytokine storm that can be fatal. For example, during a lung
infection, a cytokine storm can potentially block airways and result in
suffocation. (What is a Cytokine Storm,
www.wisegeek.com)

Jordan continued by painting a picture outlined in the WHO Memorandum
Number 1 with a study that found virus infections make antibody and
antigen complexes. These complexes can clog blood vessels or implant
tissue, making the body eventually attack itself. The main focus of this
study was kidney disease. Animals with induced immune system deficiency
were infected with lethal virus until every single cell in their bodies
reflected the disease. But for a time these animals ran around like
there was nothing wrong with them because their immune system was so
depressed that it was making no effort to fight the disease, and there
was no immune response. The WHO experimenters then took their lab
animals and stimulated the cell-mediated immune response, and the
animals died immediately from their bodies attacking themselves in the
kind of cytokine storm associated with the 1918 Spanish flu.

Even if this described scenario does not develop, Jordan points out that
the current “swine flu” vaccine is made with an adjuvant that may
contain a material poison, salmonella, or typhoid fever toxin, along
with squalene. Although not known with certainty, the second round of
injections given to the soldiers in 1918 is believed to have contained
typhus. Squalene produces auto-immunity and eventually death in everyone
who takes it.

Squalene contributed to the cascade reactions known as Gulf War Syndrome
that left GIs with arthritis, fibromyalgia, lymphadenopathy,
photosensitive rashes, chronic fatigue, chronic headaches, ulcers,
dizziness, weakness, memory loss, seizures, mood changes,
neuro-psychiatric problems, multiple sclerosis, lupus, and other diseases.

For more information:

http://www.who.int/csr/disease/swin
http://www.naturalnews.com/026613_s
http://birdflu666.wordpress.com
 

 
10.  DR. PAUL WHITCOMB
 
From a reader--
 
"Paul Whitcomb and the Fibromyalgia Relief Center are gone for good.  Get the scoop here, and thanks again to everyone who helped make this happen!"
 
FROM DOM:  Paul Whitcomb is a chiropractor from Lake Tahoe who said he had the "cure" for fibromyalgia.  Many people were taken in by him, spending many thousands to travel to his clinic and be treated.  I had been reporting on Dr. Whitcomb for several years in my newsletters.  A few years ago, I was contacted by his son who said if I did not remove negative information about his father from my site (this was negative info sent in by my readers who had been there!), that they would sue me for $250,000.  Being broke, I had no option but to remove topics about Paul Whitcomb from my newsletters www.fms-help.com/newsletters.htm.  Now that he has lost his license, I feel that I can tell you about this.  In fact, I was even contacted by phone a few years ago by a reader who was taking her son with CFIDS cross country to this clinic.  They were there for months, and sadly, the young man is worse now than ever.  There is NO CURE, at least not the Paul Whitcomb cure. But it's not over yet....see this, surprisingly:
 
More from a reader--
 
"I know for a fact that "The Miracle of Joan" is straight from Whitcomb's old www.stopfibro.com site.  Looks like he just moved the testimonials over to www.stopfibro.net, and instead of performing the technique himself, he's training others to do it."
 
And another from a reader - Dr. Whitcomb is still doing workshops:
 
http://fibrohaven.wordpress.com/2009/08/03/follow-up-on-dr-whitcomb-nrct/
 

 
11.  TITANIUM DENTAL IMPLANTS
 
From a reader--
 
Be VERY Careful When Replacing Missing Teeth
 
http://articles.mercola.com/sites/articles/archive/2009/08/08/Be-VERY-Careful-When-Replacing-Missing-Teeth.aspx
 

 
12.  WORK FROM HOME SCAM
 
From a reader--
 
http://www.powerhomebiz.com/blog/2009/04/beware-of-google-scams.html
 
FROM DOM:  Most people with debilitating illness are looking for a way to make money from home, but be careful of online scams.
 

 
13. DO WE WANT THIS?
 
Reader 1--
 
I saw an interview of a father of a grown son with Cerebral Palsy who attended a Town Hall Meeting.  He referred to this article so I looked it up.  He is worried that his son will not get the care he requires to live.  The father is elderly, and very concerned about what will happen to his son when he is gone.  This article appeared on July 24th. http://www.nypost.com/seven/07242009/postopinion/opedcolumnists/deadly_doctors_180941.htm
  
DEADLY DOCTORS
By Betsy McCaughey

The health bills coming out of Congress would put the decisions about your care in the hands of presidential appointees. They'd decide what plans cover, how much leeway your doctor will have and what seniors get under Medicare. Yet at least two of President Obama's top health advisers should never be trusted with that power. Start with Dr. Ezekiel Emanuel, the brother of White House Chief of Staff Rahm Emanuel. He has already been appointed to two key positions: health-policy adviser at the Office of Management and Budget and a member of Federal Council on Comparative Effectiveness Research. Emanuel bluntly admits that the cuts will not be pain-free. "Vague promises of savings from cutting waste, enhancing prevention and wellness, installing electronic medical records and improving quality are merely 'lipstick' cost control, more for show and public relations than for true change," he wrote last year (Health Affairs Feb. 27, 2008). Savings, he writes, will require changing how doctors think about their patients: Doctors take the Hippocratic Oath too seriously, "as an imperative to do everything for the patient regardless of the cost or effects on others" (Journal of the American Medical Association, June 18, 2008). Yes, that's what patients want their doctors to do. But Emanuel wants doctors to look beyond the needs of their patients and consider social justice, such as whether the money could be better spent on somebody else. Many doctors are horrified by this notion; they'll tell you that a doctor's job is to achieve social justice one patient at a time. Emanuel, however, believes that "communitarianism" should guide decisions on who gets care. He says medical care should be reserved for the non-disabled, not given to those "who are irreversibly prevented from being or becoming participating citizens . . . An obvious example is not guaranteeing health services to patients with dementia" (Hastings Center Report, Nov.-Dec. '96). Translation: Don't give much care to a grandmother with Parkinson's or a child with cerebral palsy. He explicitly defends discrimination against older patients: "Unlike allocation by sex or race, allocation by age is not invidious discrimination; every person lives through different life stages rather than being a single age. Even if 25-year-olds receive priority over 65-year-olds, everyone who is 65 years now was previously 25 years" (Lancet, Jan. 31). The bills being rushed through Congress will be paid for largely by a $500 billion-plus cut in Medicare over 10 years. Knowing how unpopular the cuts will be, the president's budget director, Peter Orszag, urged Congress this week to delegate its own authority over Medicare to a new, presidentially-appointed bureaucracy that wouldn't be accountable to the public. Since Medicare was founded in 1965, seniors' lives have been transformed by new medical treatments such as angioplasty, bypass surgery and hip and knee replacements. These innovations allow the elderly to lead active lives. But Emanuel criticizes Americans for being too "enamored with technology" and is determined to reduce access to it. Dr. David Blumenthal, another key Obama adviser, agrees. He recommends slowing medical innovation to control health spending. Blumenthal has long advocated government health-spending controls, though he concedes they're "associated with longer waits" and "reduced availability of new and expensive treatments and devices" (New England Journal of Medicine, March 8, 2001). But he calls it "debatable" whether the timely care Americans get is worth the cost. (Ask a cancer patient, and you'll get a different answer. Delay lowers your chances of survival.) Obama appointed Blumenthal as national coordinator of health-information technology, a job that involves making sure doctors obey electronically deivered guidelines about what care the government deems appropriate and cost effective. In the April 9 New England Journal of Medicine, Blumenthal predicted that many doctors would resist "embedded clinical decision support" -- a euphemism for computers telling doctors what to do. Americans need to know what the president's health advisers have in mind for them. Emanuel sees even basic amenities as luxuries and says Americans expect too much: "Hospital rooms in the United States offer more privacy . . . physicians' offices are typically more conveniently located and have parking nearby and more attractive waiting rooms" (JAMA, June 18, 2008). No one has leveled with the public about these dangerous views. Nor have most people heard about the arm-twisting, Chicago-style tactics being used to force support. In a Nov. 16, 2008, Health Care Watch column, Emanuel explained how business should be done: "Every favor to a constituency should be linked to support for the health-care reform agenda. If the automakers want a bailout, then they and their suppliers have to agree to support and lobby for the administration's health-reform effort." Do we want a "reform" that empowers people like this to decide for us?

Betsy McCaughey is founder of the Committee to Reduce Infection Deaths and a former New York lieutenant governor.

  If you agree with the President's Heath Reform Act, then just hit delete.  But if you disagree, please email or call your Senators or Congressman.  Here are their email addresees and the Senator's phone numbers.  It only takes a few minutes to voice your opinion.

http://www.senate.gov/general/contact_information/senators_cfm.cfm

http://www.senate.gov/general/resources/pdf/senators_phone_list.pdf

http://www.house.gov/house/MemberWWW_by_State.shtml

Reader 2--

"Many FMS patients might initially be supporters of this bill now if they are having trouble getting coverage.  The dark side would come later once the government has everyone on their program and forces people to get vaccinations, take only approved medications, eat only approved foods, etc. just to reduce costs.  Eventually, the possible harm will outweigh the initial good."


  14.  LYRICA UPDATE

From a reader--

"You asked me to keep you in touch with how i get n with Lyrica. Ive now been taking it just over 4 weeks. I was supposed to step up the dose from 75mg once a day for the first week, 75mg twice a day for next week then double up to 150mg twice a day. Well the first time i took it, its very hard to describe, but my brain went aah and just seemed to calm down. I slept really well for the first time in absolutely ages.

However! I got thru the second week on 75mg at morning and night but when i got to doubling that i just couldnt tolerate it. In fact i didnt get past 150mg at night. I did that for over a week then just decided i was feeling tired in a drugged sort of way and had troubling really staying focused in my work (i am a counsellor). So  cut it down to 75 at night again and occasionally i take 75mg in the morning but if i do i again feel a bit drugged in the day, not in a totally non functioning way but almost like i had to really blink hard to try and clear something.
 
I also know i have put on weight which is VERY distressing and on the 150mg dose i had constipation. Am now taking something to correct that and hope that by just staying on 75mg at night my weight will not get any worse. My abdomen does seem bloated all the time. i dont know if this is a known side effect.
 
Im going to stick at it for at least a few months but am already realising that if i need to be on the 150mg twice a day to get rid of the pain, it isnt going to happen!!! On 75mg i manage to sleep - not all thru the night like at first - bbut if i wake a couple of times i get back to sleep ok. What i have lost is the terrible tossing and turning which went on for hours whilst i tried to get comfy.  Hope that is useful information."
 

 
15.  EMPLOYMENT AGENCIES FOR THE DISABLED
 
http://www.al-apse.org/links/Employment.htm
 

 
16.  CVID
 
A mom struggles with Common Variable Immune Deficiency
 
http://www.ocregister.com/articles/a-mom-struggles-1114998-to-conquer-a-debilitating-disease
 

 
17.  GNC ZINC LOZENGES FOR CHRONIC ILLNESS
 
From a reader--
 
"i have thoroughly researched cfs and/or fibromyalgia over the last few decades, the same as others who share these illnesses and through the many articles and statements from professional people, it appears that these illnesses have an immune deficiency which is similar (and often compared) to aids.  i was diagnosed with cfs/fibromyalgia in 1998, but i believe i had it for 10-15 years before that.  i eventually had to quit teaching because of the pain and also because i could no longer walk very well.  instead i could only shuffle forward about an inch at a time.  i resigned from teaching and went into the field of teleservicing which i did for 5 yearss.  Then my health got even worse.  i had to first gopart-time, then i had to quit work completely.  i was fortunate to find several legitimate at-home teleservicing companies, so i could work at home in a less stressful atmosphere and without all the germs of a public place.  after a few years, my health declined even more and i had to give that up as well.  one of the most irritable traits of my illness WAS (notice the past tense) that i got sick all the time.  if i went grocery shopping, i would get sick.  sore throat, fever, chills, aches and pains.  you name it.  i got it and it took me about 3 times as long to get over it than the average person.  each and every time i left my home, i got sick.  my immune system was zilch, nada, completely zapped.  i have always thought that by changing my lifestyle, i would get better and someday have a more normal life.  i researched every program, vitamin, nutrient, etc...anything that dealt with staying well.  i probably spent hundreds and hundreds (and thousands?) of dollars on each new product that stated it would keep a person stay well.  FOR ME, i found what worked.  it's a long, boring story as to how i came across the end result, so i'll leave out all the research and personal testimonies and skip to the end.  i used zinc lozenges.  i only used the gnc brand, because i have not found any other lozenges that work so well.  at first i used them as soon as i felt anything strange in my body, such as a tickle in my throat, a sneeze, etc.  gnc lozenges were even okay for diabetics, according to the info on the box.  i could take up to 6 a day and i would just tuck them into my cheek and let them dissolve.  if i were sick, i would take one every two hours, but never more than 6 per day.  i kept getting sick, but i would either kick it right away (if i started taking the zinc in time) or the illness would be a much shorter duration.  THEN...this is my huge discovery that was so great to discover...i started just taking one zinc every day and letting it dissolve slowly in my cheek.  i probably did this for about 6 - 7 months, perhaps even longer.  now i rarely get sick.  when i do, i pop a zinc, although i don't believe i've had to resort to that, except about 2 times a year.  i still have most of the symptoms of cfs/fibromyalgia, but i don't get ill like that any more.  i hope perhaps you or some of your readers can benefit from this info.  i would also like to say that some brands of lozenges are not prepared with the same process as gnc and some brands do not have the same quality of ingredients, so that is why i recommend gnc.  i have found two other companies that i think have even better quality vitamins and supplements, but i have not used their zinc lozenges, so i am hesitant to mention them by name.    i ordered my gnc zinc lozenges online from their web site (www.gnc.com), but i always checked out www.drugstore.com as well, because sometime the lozenges would be cheaper there."
 
18.  DR. SHERRI TENPENNY & THE RIGHT TO REFUSE VACCINES
 
From a reader--
 
"Please, please, please do not take any more vaccines.  The amount of neurotoxins in those things could literally push your health over the edge in the wrong direction.

 A list of the toxic ingredients in the vaccines is here: http://www.cdc.gov/vaccines/pubs/pinkbook/downloads/appendices/B/excipient-table-2.pdf

 When you have the strength, please try and read up a little on Dr Sherri Tenpenny http://drtenpenny.com/ who is a practicing osteopathic doctor (with advanced studies in acupuncture and other alternative medicine therapies), and respected as one of the country’s most knowledgeable and outspoken physicians regarding the impact of vaccines on health. Dr. Sherri is an internationally known speaker, highly sought after for her ability to present scientifically sound information regarding vaccination hazard and warnings that are rarely portrayed by conventional medicine.  She also offers unique treatments at her OsteoMed II clinic for those who have been vaccine-injured. http://drtenpenny.com/about_drTenpenny.aspx   OsteoMed II is a clinic for complementary, traditional and preventive medicine specializing in treating asthma, allergies, ADD/ADHD/Autism, pain, fibromyalgia, headaches and women's issues.  http://www.healthywealthyandwiseshow.com/Tenpenny%20Sherii.htm

 Dr. Sherri introduces herself here: http://www.newswithviews.com/Tenpenny/sherri1.htm

 Dr Sherri writes:  “I sincerely believe that vaccines cause more harm to the health of the individual than the “protection” and “benefit” they are proclaimed to provide.  I am passionate about sharing the information I have unearthed because I have seen first-hand the havoc wreaked by vaccines on the immune systems of the many children treated over the years at our clinic, OsteoMed II.”  http://osteomed2.com/vaccines.aspx

 You might also want to listen to Dr. Sherri’s webinar about the Swine Flu broadcast on July 27th and archived as part of the Medical Doctors’ Vaccine Webinar Series (hosted by Dr. Meyer Eisenstein and Dr. Sherri Tenpenny).  You can get access to the live (and archived) webinar events when you click “Sign Up Now” and enter your email address at: http://www.medicalvoices.org/en/events.html."


19.  PK PROTOCOL FOR NEUROTOXIC ILLNESSES
 
From a reader--
 
"My husband took one gamma globulin treatment in 2005, it cost $4000.00.  Have you ever heard of the PK protocol?  The gamma globulin treatment did nothing for him, the PK protocol worked wonders."
 
http://www.healthegoods.com/product/detoxification-book-for-doctors-detoxx-book/educational-health-books-dvd-cd
 

 
20.  SWINE FLU GUINEA PIGS
 
Reader 1--
 
"Just in case you're contemplating playing guinea pig for swine flu vaccine, please consider the following: http://www.wrightnewsletter.com/etips/ht200908/ht20090810a.html."
 
Reader 2--
 
"I am a Fibromite as well as a nurse and I've just been informed that the Federal Government has ordered us to start giving the LIVE H1N1 vaccine starting in October. We are supposed to give it to the Children, Elderly, and Immuno-compromised first!  Hmm......if  the virus is affecting the middle-aged people more, then why are we giving it to the young and elderly first? I think this vaccine is going to KILL more people than the actual virus, and I do not want to be forced to take this vaccine or give it to my family members!"
 
Reader 3--
 
"I heard that the swine flu vaccine has mercury in it!!  Kathleen Sebelius of Health and Human Services was forced to admit this. Yet they want to push it on us—even on pregnant women. Makes me wonder what else is in this agenda.  I heard a doctor suggest these websites, which tell the truth about this vaccine:    http://www.homefirst.com  and http://www.medicalvoices.org."
 

 
21.  GUILLAIN BARRE SYNDROME LINKED TO SWINE FLU JAB
 
From a reader--
 
UK Newspaper reports a link between the swine flu vaccine and the deadly nerve disease, Guillain Barre Syndrome--

http://www.dailymail.co.uk/news/article-1206807/Swine-flu-jab-link-killer-nerve-disease-Leaked-letter-reveals-concern-neurologists-25-deaths-America.html


22.  SANG-HWANG MUSHROOM HELPS IMMUNE SYSTEM
 
From a reader--
 
"Given that the [swine flu] vaccine appears to be live virus, there are a number of herbs that help shift Th balance to Th1.  That's the balance so many of us with CFS/Fibro don't have and need and the Th side that fights off viruses.  There are a number of herbs that help to shift the balance to Th1.  I should have given you this when you first sent out the message you had a resurgence of shingles.  Get yourself Sang Hwang. Taking it could help you fight off the herpes zoster virus causing your shingles and strengthen your immune system if these shots become mandatory. Whatever you do, maintain a positive mindset.  That's more important in the long run to good immune health than a lot of the rest of this is.  Suggestion to anyone interested - there are several powdered mushrooms listed that are good for boosting the immune system's ability to fight viruses (including these delightful things called vaccinations with live viruses).  Shiitake, Maitake and Sang Hwang in particular are the best (the latter better than all the others combined).  See http://www.mushroomharvest.com/catalog/product_info.php?cPath=36_39&products_id=250&osCsid=c1629ab5de6e8deb44f5441627f34839."
 

 
23.  MEDICAL ABUSE OF CFIDS/M.E. PATIENTS   
 
Here are 2 links from a patient in Canada--
 
http://www.cherylbenson.ca/
http://cherylspeaksout.blogspot.com
 

 
24.  FIBRO AWARENESS ACHIEVED!
 
From a reader--

"Thank you so much for 'fixing' this newsletter www.fms-help.com/051507.htm (May 15, 2007). I wasn't able to access it first time around, and to be quite honest I think it's one of the best newsletters yet!  It has taken me all day to read it - a bit at a time.  But it has been well worth it. It had so much helpful information!  BTW, my mother-in-law at long last understands what i am trying to live with after i printed up 'What is fibromyalgia', 'Living with a fibromyalgia sufferer' and 'A letter from fibromyalgia' and posted them to her. She phoned me in tears, at last realizing what my hubby and i have been trying to tell her for over 14 years is very, very real."
 
FROM DOM:  I spoke with Pattie Caprio, founder of the Million Letter Campaign in 2005 www.fms-help.com/letter.htm, this week and she told me in detail about what the producer of the Montel Williams show told her when we sent the avalanche of fibromyalgia awareness letters back in 2005 to various media personalities.  The lady was upset and said we did not realize what a problem we caused for them, because there were shopping carts full of letters, and they had to open each one because they were not labeled "fibromyalgia" on the outside.  However, Pattie noted that ever since then, there seems to have been much more public awareness of fibromyalgia, at least in TV ads for drugs.  In great news, see Topic 43 below:  Oprah magazine has finally run an article about fibromyalgia!  Oprah was one of the people we contacted 4 years ago.
 

 
25.  SMART CAR CRASH
 
http://www.youtube.com/watch?v=ju6t-yyoU8s - no thanks
 

 
26.  HEALTH CARE PROGRAM SUGGESTION
 
From a reader--
 
"I heard this on the radio today.  The specifications and requirements for who can enroll in Medicaid are determined by the fed govtSo rather than put in place a completely new health care plan for the un-insured, why not just change the qualifications for enrollment in Medicaid.   If there are Americans out there who can’t afford medical care, then why not just make this change to include them? It would be a cheaper and faster to implement, as the program already exists, and it would not affect all the rest of us (other than it would cost more to support a larger Medicaid enrollment, but that is still bound to be cheaper than installing all the new proposed oversight commissions, etc.).  The rest of us could stay on the insurance we have, which would be less intrusive, less disruptive.  This seems like a practical approach and would probably be much easier to implement.  It just sounds like a win-win."
 
And this response--
 
"I don't think this would work. Medicare is great and I wish I could sign up for it.  But it is going bankrupt fast. To put another 50 million in would force rationing, if just because of volume and wait time."
 
FROM DOM:  We are in horribly debt to China and other countries.  The U.S. is broke!  Take a look at the U.S. Debt Clock at http://www.usdebtclock.org.  How will the government provide more services for citizens without raising taxes tremendously??
 

27.  WASH YOUR HAIR!

Reader 1--
 
"Thanks for the tip about washing your hair www.fms-help.com/080309.htm.  My friends laugh at me, but I work at a hospital, and every night before I get in bed, I feel like I HAVE to take a shower and wash my hair - get all the pollen and germs off!"
 
Reader 2--
 
"Interesting about the hair washing!"
 
FROM DOM:  Years ago at a real estate office where I worked, an envelope arrived in the mail addressed to "Mominie" instead of "Dominie."  That typo became a joke around the office, because as office secretary, I was always looking after everyone's needs and problems, hence the name Mominie!  Even now I can't stop "Mom-ing" people, like telling my readers to wash their hair to get rid of viruses (actually good advice from a medical professional!)  I used to have almost waist length hair, all one length.  As I got older and had hot flashes, I had to cut my hair into the style you see in the picture at the top of this newsletter.  I would love to have longer hair, but I just can't manage it, especially living in humid, hot, Florida and dealing with hot flashes.  So I am happy with the style I have now.  It is functional.
 

 
28.  HERPES VIRUS & ARTIFICIAL SWEETENER
 
 http://www.earthclinic.com/CURES/herpes.html
 
THE ARTIFICIAL SWEETENER LINK TO HERPES OUTBREAKS
"Based on reader feedback we have received over the past few years, our most important recommendation for those with the herpes virus (whether oral or genital) is to completely avoid diet products containing artificial sweeteners. These sweeteners appear to trigger a herpes outbreak (both oral and genital) within 10 minutes in some people! YIKES!!! Click here to read the feedback from our readers about artificial sweeteners causing herpes outbreaks. Click here to read the other side effects from artificial sweeteners like aspartame and sucralose."
 
FROM DOM:  Check this out about cold sores (herpes 1)--
 
 
 

 
29.  LIMIT OR AVOID COMPLETELY
 
In our quest for better health, I have compiled a list of things to avoid or stop consuming, based on health books I am reading.  The reason is that these things make you acidic, and acid causes - or sets you up for - disease and pain.  It's better to keep your pH more alkaline.  No sense taking all kinds of supplements when a simple change in diet might help.  Years ago I corresponded with a lady who had FMS and many other ailments, but still smoked.   She is now dead.  Here's my short list of things to avoid, based on things I have been reading lately:
 
SOFT DRINKS - regular and diet - due to orthophosphoric acid leaching calcium from your bones
ARTIFICIAL SWEETENERS - nutrasweet, aspartame, etc.
SUGAR - in all its forms
WHITE FLOUR - baked goods, cereals
SMOKING - free radical damage & cancer-causing chemicals
ALCOHOL - acidic
VEGETABLE OILS - rancid and the smell is covered up by chemicals -  the only non-harmful oils are coconut oil, extra virgin olive oil, and palm oil
MARGARINE - because of trans fats
COFFEE - acidic
 
I know what you're thinking....."Well, there goes life as we know it."  Seriously, we could try to eliminate some of these and see if it helps.  However, a lot of things in life are just genetic no matter what you eat or drink!  For instance, George Burns smoked cigars and lived to be 99.  Christopher Reeve's wife, Dana, a non-smoker, died of lung cancer at a young age.  My mother (88) eats what she wants to (a balanced diet), has tons of energy and a totally clear mind - runs circles around me at 57!  Want more tips for coping with FMS?  See my list of 100 at www.fms-help.com/tips.htm.
 

 
30.  FORCED VACCINES?
 
From a reader--
 
"Forced vaccines: Ready for yours?"

http://www.wnd.com/index.php?fa=PAGE.view&pageId=107228 
 

 
31.  READER TOOK SWINE FLU VACCINE
 
From a reader--
 
"You asked if anybody has had the [swine flu] vaccination. I did, along with hubby, my daughter & my mum-in-law (88) We didn't have any major reaction to it - thank God. All we got was what i would liken to a very mild case of the flu. Slight fever, bit of a scratchy throat, and of course the injection site was quite painful for a few days.  Even though i would much prefer not to have annual flu vaccines & pneumo-vax every 5 years, i basically have no choice as my immune system is so weak. If i get even the slightest cold, i will end up with pnuemonia, so i choose to vaccinate.  But, of course that is my choice & everybody has their own reasons whether to vaccinate or not, and then there is the group of people who just cant vaccinate - their bodies just cant 'handle it'  I do get awfully mad though when i do manage to get out to a shopping centre or such. The heating is always way too hot. Even mid-winter we need to put on very light clothing to 'survive' the heat of the centre. That surely must be a haven for germs to breed and spread.  And people (especially adults) who walk around the centre coughing - without putting a tissue or even their hand over their mouth. Ooooh, that makes me really mad. Mad enough in fact that i actually took a chance and confonted a woman who was coughing the most awful cough with no respect for anyone else. I really went through her - telling her how inconsiderate she was, and doesnt she realise what she is doing could actually kill somebody with a compromised immune system. She took absolutely no notice whatsoever, as we came across her again about 10 minutes later - still sharing her germs with the rest of the community."
 

 
32.  ANXIETY VS. FATIGUE
 
Please respond directly to Christiana fletchc827@gmail.com--
 
"I saw on your web-site www.fms-help.com/fibro.htm that you described working yourself up into a nervous energy in order to go to work. I think I am doing the same thing. I found that by being anxious I had more energy. Now I feel like I am in the flight-or-fight mode constantly. Even though I'm severely fatigued I cannot nap and Im hardly sleeping. My psychologist said I've used this as a means of survival against the fatigue. When I relax, which I can sometimes, the fatigue gets worse and worse, I don't even want to relax because the fatigue is so overwhelming and my head starts feeling like stakes are being driven into it, but when I get anxious again the fatigue lessons and the headache goes away. I don't know how to break this cycle and it's greatly effecting my resting and sleep. Did you have this same problem? How did you get to a point where you weren't constantly running on adrenaline? I just need to know there is a way out of this, I feel as though I won't ever recover. - Christiana fletchc827@gmail.com"
 
FROM DOM:  I had forgotten how I used to feel in my early years with fibro - see www.fms-help.com/fibro.htm and www.fms-help.com/interview.htm, but this reader has reminded me!  I don't sleep in the day at all, and must take meds to sleep at night.  There is something wrong with our central nervous system - how we are wired - and also with our biochemistry.  I have to modulate stress in my life or I can get into a real mess like this reader described.  See my 100 tips for coping at www.fms-help.com/tips.htm.  When it comes to our employment, there is debate as to whether to tell your boss and co-workers or not.  If you do, you may get sympathy or.......fired. Take a look at the stuff I use (meds, supplements, lifestyle helps at www.fms-help.com/what.htm. I have found that if I get more restorative sleep (with meds) that my nervous system calms down and I am not as anxious and/or fatigued.
 

 
33.  RAPTURE SIGNS   
 
From a reader--
 
1. False Bible teachers will be money hungry and clever. They will be smooth talkers who have many followers, and slur the Christian faith. (2 Peter 2:1-3) See some at: Fakemessiah.com

2. Homosexuality will be increasingly evident at the end of the age. (2 Timothy 3:3)

3. Earthquakes will be in diverse places. (Matthew 24:7)

4. Stress will become part of living. (2 Timothy 3:1)

5. Many wars will erupt. (Matthew 24:6)

6. People will increase in forsaking the Ten Commandments as a moral code, committing adultery, stealing, lying, and killing. (Matthew 24:12)

7. There will be a cold religious system, in denying God's power. (2 Timothy 3:5)

8. Men will substitute fantasy in place of Christian truth. (2 Timothy 4:4). 
 
9. Deadly diseases will be prevalent. (Matthew 24:7). The worldwide increase in deaths is inestimable. Over 160,000 Americans die of cancer each year.

10. The fact that God once flooded the earth (the Noahic flood) will be denied. (2 Peter 3:5-6). There is a mass of fossil evidence to prove this fact, yet it is flatly ignored by the scientific world because of its uncanny implication.

11. The institution of marriage will be forsaken by many. (1 Timothy 4:3)

12. There will be an increase in famines. (Matthew 24:7)

13. An increase in vegetarianism will increase. (1 Timothy 4:3-4)

14. There will be outcries for peace. (1 Thessalonians 5:3)

15. The possession of Jerusalem will be at the center of international turmoil.(Zechariah 12:3)

16. Knowledge will greatly increase. (Daniel 12:4)

17. There will be hypocrites within the Church. (Matthew 13:25-30)

18. There will be an increase of religious cults/false teachers. (Matthew 24:11 & 24)

19. The future will seem fearful to many. (Luke 21:26)

20. Humanity will becoming more materialistic. (2 Timothy 3:4)

21. There will be an increase involving in travel. (Daniel 12:4)

22 The Christian Gospel will be preached as a warning to all nations. (Matthew 24:14)

23. Christians will be hated "for His name's sake." (Matthew 24:9)

24: T
here will be signs in the sun, moon, and stars. On the earth will be distress of nations, with great perplexity. The sea and the waves will roar. Men's hearts will fail them for fear, and seeing those things coming on the earth. For the powers of heaven shall be shaken.
 (Luke 21:25-26).

25: The youth will become rebellious.  Men shall be lovers of their own selves. Covetous, boasters, proud, blasphemers, disobedient to parents, unthankful and unholy. (2 Timothy 3:2)

26: People will mock and scoff the warning signs and the belief of the end time saying; "Since my ancestors passed, all things continue as they were from the beginning of the creation!" (2 Peter 3:4). They fail to understand that a day to the Lord is as a thousand years to us. God is not subject to the time that He created. The reason He seems silent, is because He is patiently waiting, not willing that any perish, but that all come to repentance before the day the trumpet sounds.
 
27. The term New World Order is taken from the Latin Novus Ordo Seclorum which means "A New Order of the Ages."  On the reverse of every $1.00 Federal Reserve Note, one will find it's symbol or what is known as the Great Seal.  This is a Luciferian (evil) society that has conquest of global domination to subject every living person on the face of the earth under its control.  International bankers are at the top of this underworld as they attempt to control the global economy.  It is written in Revelation that a time will come when no man will be able to buy or sell without the mark (e.g. a computer chip implanted in the body).

 
FROM DOM:  Living in the "end times" now, we may not have to worry about our temporal health issues much longer!
 

 
34.  ACIDOSIS & PAIN
 
From a reader--
 
"This is about food combining to avoid fibromyalgia pain - http://www.greattastenopain.com/great.asp."  - Acid overload (acidosis) inhibits nutrient absorption, weakens immunity, decreases your body’s ability to repair damaged cells, allows bacterial and viral infections to thrive, and can promote the growth of cancerous tumors. When necessary, your body will even drain alkalizing minerals like calcium from your bones and organs to neutralize excess acid in your bloodstream.  Acidosis has been linked to arthritis ... bladder problems ... cancer ... cardiovascular disease ... chronic fatigue ... constipation ... depression ... diabetes ... eye inflammations ... GERD ... hypertension ... hormonal problems ... joint pain ... kidney stones ... lupus ... migraines ... muscle aches ... nasal congestion ... obesity ... osteoporosis ... premature aging ... stomach ulcers ... stress ... and other serious health conditions."

FROM DOM:  An acidic pH causes disease and pain.  Stay more healthily alkaline through things you eat and drink.  Also, see my 100 Tips for Coping with Fibromyalgia and Insomnia at www.fms-help.com/tips.htm.


 
35.  FLU VACCINES
 
Reader 1--
 
"I just wanted to share my experience with the flu vaccine, which has been very positive so far.  I have had fibro for 21 years, and am now 51 years old.  About 12 years ago my daughter became extremely sick with the flu (she also had asthma).  She was advised to start getting the flu shot, so we decided that the whole family would get it the following year.  I had no bad reaction, and in fact, had one of my healthiest winters ever.  I have continued to get the shot every year, and I have only had the flu twice and some mild colds since then.  I know everyone is different, and there are others who have had bad reactions, but I don't necessarily think that it is because of the fibro.  Since I've come down with fibro I have also had a tetanus booster, and did not have a bad reaction to that either (other than a very sore arm for a few days).  However, I have to say that the H1N1 vaccine does worry me (as I think it is a live vaccine), so I would definitely want more information before getting one."
 
Reader 2--
 
"Remember that you definitely should not take any flu vaccine if you are allergic to eggs."
 

 
36.  EXPERIMENTING WITH VITAMIN D3
 
From a reader with FMS & multiple sclerosis--
 
"Re: D3, there's a group of MSers who "meet" online at www.PatientsLikeMe.com involved in an experiment of high to mega-doses of D3. We find that our energy is increase, i.e. less fatigue. Some people have found a decrease in pain and a decline in other MS sx even as far as being able to walk further and for longer periods of time. It's worth checking this out on the D3 forum on PLM."
 

 
37.  FIBRO SUPPORT AT "PATIENTS LIKE ME"
 
http://www.patientslikeme.com/fibromyalgia/community
 

 
38.  CELEBREX & LYRICA
 
From a reader--
 
"I TRIED CELEBREX - LOOSE BOWELS TO  THE POINT I COULD NOT LEAVE THE HOUSE.   THEN I TRIED LYRICA -  75 MG. PER DAY -   MADE ME FEEL LIKE I WAS  - NOT WITH IT MENTALLY - AND LIKE SLIGHTLY A DRUNK FEELING -  NO GOOD FOR ME.  BUT IT DID HELP A LOT WITH THE PAIN. "
 

 
39.  ORTHOTICS
 
Dr. Scholl's foot orthotics are highly recommended by a reader with foot pain.  Here's a picture of the machine that "read" your feet at Walmart and other stores, plus a $5 coupon http://www.footmapping.com.
 

 
40.  BRAIN SURGERY MAKES FMS & INSOMNIA WORSE
 
From a reader--
 
"I have had FMS for over 50 years.  I was once told by a doctor that it would lessen with age, I don't know where he got this information but it my case it has definitely not lessened.  I am finding that in the past two years it worsens daily.  One year ago I had a craneotomy surgery to remove two brain tumors. After that surgery I have never seemed to recover.  I go for nights where I only sleep for one to three hours, then on about the fourth or fifth night I "crash" and want to sleep all day.  I have always been a nite owl, have always had a terrible time getting to sleep and then staying asleep.  But about 4:00am is when I am ready to go to sleep. My doctor put me on Ambien and they did not help either. They helped me fall asleep, but after about two hours I would be awake again.  Is there anything specifically that I can find or print out that explains that these are  not uncommon for people with FMS.  Also, I'm positive the brain surgery helped to increase my problems."
 
FROM DOM:  Surgery of any kind is an assault on the nervous system and can make FMS worse.  The brain and spinal cord are the body's nervous system.  A list of everything I've tried for sleep is at www.fms-help.com/sleep.htm.  My insomnia story is at www.fms-help.com/insomnia.htm. I too have always been a night owl.   A list of things I use now is at www.fms-help.com/what.htm.  If anyone has comments for this reader or has been through brain surgery, please write dombush@bellsouth.net.
 

41.   3 SIMPLE & CHEAP THINGS THAT MAY HELP WITH PAIN

From a reader--

http://www.naturalnews.com/026801_magnesium_Vitamin_D_chronic_pain.html
 

 
42.  VIDACELL

This has helped a reader's FMS and other health issues--

http://www.greatlifeintl.com/jshumaker

For info and free samples, contact Jody jmshumaker@neo.rr.com


43.  OPRAH MAGAZINE COVERS FIBROMYALGIA

AT LAST! Oprah Magazine covers fibromyalgia — Mehmet Oz praises Dr. T’s approach

We appreciate that Dr. Oz and Oprah are now starting to address the hidden epidemics of CFS and fibromyalgia, bringing hope to the approximately 12 million suffering and often disabled Americans (mostly women), who till now have been rendered invisible by our healthcare industry.

Dr. Mehmet Oz, who is wonderful, begins his column by addressing this issue head on in his brand new O, the Oprah Magazine column. It says volumes that this is the first topic he chose to cover, and that he began by interviewing 4 key researchers in the field who have very different perspectives, to give readers an overview. We are also very honored that of the 4, he noted: "I'm more impressed by Teitelbaum's supplement regimen, and not only because he has tested his theories: I've put patients on this program with very good results."

Read Dr. Oz's article "4 Treatments for Fibromyalgia" at O, the Oprah Magazine online.

Let's encourage Dr. Oz and Oprah to continue covering CFS/FMS. You can help by reading the article at the link above, then leaving a note thanking them covering this topic. Ask friends who have or care about CFS/FMS to do the same. Oprah's website measures responses to articles, and an outpouring of positive response will encourage Oprah's team to increase coverage of CFS/FMS. Let's see if we can move this to their "Top Read" articles section!


44.  LOW BLOOD VOLUME & CFS

From a reader--

http://www.endfatigue.com/health_articles_c/Cfs_fm-treating_low_blood_volume_and_heart.html - From Dr. Teitelbaum's site

A recent study shows that patients with CFS have:

1.
A lower blood volume (basically are dehydrated),
2.
Fewer red blood cells to carry oxygen and nutrients (basically anemia, despite normal blood tests).
The study also discusses that although the heart may be smaller in CFS and beats less efficiently, this is likely caused by the dehydration and low blood volume, as opposed to primarily being a heart problem.


45. DOM'S UPDATE

I am doing well again.  Had a close call with shingles a few weeks ago, but got on some big dose anti-virals right away and was back to work in 4 days.  My mistake with shingles back in February was not knowing what it was (never had chicken pox).  I waited 3 days before going to the doc back in February and suffered for 2-4 weeks with nearly unbearable pain, sores, etc.  Well, live and learn!  I am presently researching natural things that will knock out cold sores (herpes 1 virus) and the shingles virus.
 
There has been a tragedy in our family this past month that we are still reeling from.  My cousin and his wife were motorcycling in North Carolina and were involved in an accident where my cousin's wife was critically injured.  Last night, the decision was made to remove life support, and she died at 9:57 p.m.  My cousin just retired from 30 years with the State of Michigan.  Our family is in shock.  It just doesn't seem real that this thing has happened.  One of my cousins said, "We always think tragedy happens to 'other people,' but to other people, we are the 'other people'!"  The only mercy was that my cousin's wife never regained consciousness after the accident to suffer from her severe injuries.  When I ponder this horrific turn of events, my problems are put into perspective and pale in comparison.  
 
In happier news, my piano teaching is back in full swing at the LABC School of Music, with a recital planned for October.  I really enjoy teaching piano and guitar.  My students range in age from 6 to retired www.fms-help.com/students.htm.  Also, Donnie and I have been enjoying visits from various grandchildren (ages 6 mos. to 10 years).  Grandkids sure are wonderful!  Donnie says when he holds his baby granddaughters, the cares of the world just disappear!  Great therapy!!
 
 I love playing the piano (or organ, depending on which position I am filling) at church.  We have great expositional Bible preaching by our two pastors and great music.  We sing a lot of hymns - there's nothing like the old hymns for spiritual strength and sound doctrine!  We also sing a lot of exciting new music in a variety of styles. Our choir is fantastic!  They really put their hearts into praising God.  Our senior pastor's wife plays the piano and gives spiritual and musical direction to the choir.
 
Well, thanks for reading this issue of my newsletter.  I know it was a long one, but I had soooo much important info to share with you.  Hope it was interesting and insightful. Check out my list of helpful things that keep me going, which I found by trial and error from having FMS/CFIDS since 1982.
 
Dominie
dombush@bellsouth.net
 


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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.