DOMS' NEWSLETTER
Friday -
September 25, 2009
A
Christian-based newsletter for people with Fibromyalgia (FMS), Chronic Fatigue
& Immune Dysfunction Syndrome (CFIDS), or Myalgic Encephalomyelitis (M.E.)
and their families.
18 TOPICS. READERS' COMMENTS IN BLACK. MY
COMMENTS IN TEAL.
1. MUSCLE PAIN FROM
STATINS
From a reader--
"The most common side effect of statins is muscle pain.
The aches usually go away if people stop taking the drugs, but there's
growing evidence that pain—and worse—can continue for years afterward.
Georgirene D. Vladutiu, a professor at the State University of New York at
Buffalo, for instance, describes patients who are wheelchair-bound from
muscle weakness and
pain five years after they've stopped taking statins.
'It's a myth that patients always get better if they stop the drug,' she
observes."
2. YOU PUSH - YOU
PAY
From a reader--
"Someone told me they know a lady with FMS and they
told her you MUST just keep going and don't lay down. I said,
'No. You have to rest, take it easy, etc.' This person said he
read all about it and I am wrong. You just keep up and going. Boy,
this shows that even if other people study FMS, they don't understand
it. I pushed today and I'll pay for it."
3. NASAL
SPRAY
From a reader--
"I have tried a number of your recommendations with fairly
good success. One of the best things that I've tried is the Seagate Olive Leaf
nasal spray.As soon as I start to sneeze I grab it and no cold or flu
develops."
4. CDC STUMBLES
ON VITAMIN D DEFICIENCY LINK TO H1N1 DEATHS
5. STABILIZED LIQUID
OXYGEN
From a reader--
FROM DOM: I really think
we're on to something major here! I am still feeling wonderful since using
oxygen drops in
water. I began 5 weeks ago. Noticed a difference around day 2 or
3. Most people don't notice a difference this fast. If you try
this, DO NOT DRINK SODAS, as they make you really acidic. I was never a
big soda drinker, but once in awhile I did. I think because I am taking
other things for
my health that the drops were so fast acting for me. I have not had any
brain fog, debilitating fatigue, heart crushing or dying feelings since I
began the drops. It's now been 5 weeks. What a pleasure it
is to be able to work without such extreme suffering every day - that no one can
see, but you can feel - it's slow torture! (See #17 below for how lack of
oxygen affects the immune system!)
6. ASHOK GUPTA'S
AMYGDALA RETRAINING
From a reader--
"I had been doing Ashok Gupta's Amygdala retraining
program for the past year and half . I did not follow it
religiously and got lazy, never actually finished the program dvd's or did
the amount of exercises and meditation he recommended. Even with my
half hearted approach, I do feel like it has been the one thing that made
the most difference for me since my symptoms got dramatically worse 3 years ago
with the onset of optic neuritis and weird neurological symptoms in
addition to the FMS that was diagnosed 10 years ago. I've tried
everything.. herbs, supplements, all kinds of bodywork, extreme candida
diets, blood type diet ,silver/mercury filling removal, lyme herbal
protocols etc etc etc. I believe that the meditation and his mini
meditative/retraining exercises has somehow helped my brain chemistry rebalance
and get me sleeping again. I'm convinced that the improvement in sleep led
to my brain fog reversal and neuro and physical symptoms are much better
and I hardly notice them. If I feel them coming back I go back to the
meditation and his techniques and I seem to improve. I'm not 100% better
-but mostly better and I'm functioniing and feeling like a normal person
again . Two years ago I was so sick I was convinced I had MS. I wanted to
pass that onto you. His techniques or maybe even starting just mediation
may improve your sleep and in turn the brain fog etc. I notice that when I
travel sometimes and stay over in a hotell/don't get good sleep or poor sleep
that is stress related - the brain fog somewhat returns. Good sleep
for me is definitely key as it is for all of us with FMS, CFS, Lyme what ever
the heck we all have!"
7. OXYGEN
SPRAY
8. DOUG
KAUFMANN'S "KNOW THE CAUSE" PROGRAM
From a reader--
"i, too, am just starting out with oxygen
drops. i watch doug kauffman's show "know the cause", which is also the
name of his web site. i have been following him for years. he had a
gentleman on, richard allison, from a company that offers oxygen therapy.
here is their web site: http://restandrepair.com/
they have a product called 'ph cleanse' and also drops for oxygen therapy, and i
purchased the latter. their protocol is different than the one you are
using. there are 2 bottles, and activator and something else. you
start out putting one drop from each bottle into a shot glass with about 5 drops
of distilled water. swirl it around, let sit 3 minutes, add more distilled
water and then put in mouth, holding it under your tongue about 30 seconds, then
swallow. if you are chronically ill, they suggest you do it twice a
day. day 1 you do 1 drop of each twice. day 2 you do 2 drops of each
twice. and so on. you work up to 14 drops of each a day and stay at that
amount until you feel good or see results or whatever, then drop back to a
maintenance dose of 4 to 6 drops of each a day. you get all the directions
for use with the products, but i just wanted to give you an idea.
i
am on day 3, and have had one set of drops so far. i am seeing results
already. last night i slept at least twice as much as i usually can.
i have a skin disease, lichen planus, that looks red and purple and flakey and
bumby, and that is at least 40% better. my fatigue is lifting, my fog is
lifting, and my vision is clearer. i know that sounds too good to be true,
but it is. they have testamonials there where people used the ph cleanse
product and had shingles clear up in 5 days !! could this be what we have
needed all along? at noon today, i was getting a little crabby and i
figured it was from the herxheimer effect that happens when toxins exit the body
too fast. i may even experience diahreah (sp?) and vomiting, but who
cares. they say if you do experience those things, you can cut back a few
drops for a bit. if you like, i'll keep ya posted on the results, and i
promise not to be so long winded-ha ha.
just a note to say i feel like we are old friends.
we're the same age, both Christians, and on and on. i hope you are having
a wonderful day. if anyone orders anything from them, tell them kathy
from texarkana sent ya-i don't get any thing for it, but i just want to do
something nice for that company-the man on the phone was so sweet to
me. it is so wonderful not to feel like i am about to 'fall out'
any second from exhaustion."
9. HERPES ZOSTER VIRUS
& FMS
From a reader--
"Has any doctor ever told you that the herpes zoster virus
could be responsible for the same kind of pain as fibromyalgia? I had an ent
doctor tell me that the zoster virus remains dormant in the nerves along the
bones throughout your body. The virus can attack as the shingles virus on the
outside but there is also been cases that show the virus can attack the nerves
from the inside only producing lesions along the nerves. Do you ever wonder how
many people with fibromyalgia are positive for the herpes zoster virus? My fibro
pain greatly diminished when I was on high doses of acyclovir. This may not be a
coincidence."
FROM DOM: No. Any doctor
I've ever consulted has been clueless about FMS/CFIDS, much less whether or
not it is linked to the herpes zoster virus. Anyone have
info?
10. NEURONTIN
LAWSUITS
From a reader--
"I don't know if you've heard the
news about Neurontin being illegally and deceptively promoted for
off-label use, but apparently, people are suing for harm. It is
commonly prescribed for FM, but was never intended for it, nor tested,
which is most critical. There are many articles on the net about
it. I just thought I would pass this along. There is risk of
suicide, apparently. Neurontin witness talks off-label http://www.fiercepharma.com/story/neurontin-witness-talks-label/2009-07-29 |
11. KNEE PAIN CAN
SIGNAL LYME DISEASE
From a reader--
12. SWINE FLU, MARTIAL
LAW & RFID BRACELETS
FORCED VACCINATIONS planned very
soon against every man, woman, and child in U.S.
13. DMSO FOR COLD
SORES
From a reader--
"I was dx'd with Lupus in 1987 and Fibro shortly
thereafter. I am also a Certified Vet Tech. For years in veterinary
medicine DMSO has been used for pain relief, inflammation and numerous other
treatment plans. I also use it myself for pain and inflammation. I have learned
through the years that the medical community, outside of veterinary
physicians, do not approve the use of DMSO in humans. Not even as a topical
treatment. My son is a professional Bull Rider and has been severely injured
numerous times. He keeps a bottle of DMSO in his riggin bag and another in his
truck at all times! My husband is also a former Bullrider, who never complains!
The only way I know when he is hurting is when I smell the DMSO. So, I know
1st hand that it works! I have to admit I have never heard of or even
thought of using it for fever blisters/cold sores that I have way too
often. You can bet, I will be trying it!"
FROM DOM: I love the DMSO I'm
using - you just need a teeny tiny bit. It has a pleasant, lightly floral
smell. It works to push back the virus. After 10 years of battling
ever-increasing cold sore outbreaks (both size and frequency of
occurrence), it sure is great to not have to deal with this curse! The
oxygenating and alkalizing drops (stablized liquid oxygen) are also doing their
part to make me feel better. I have felt NORMAL for 5 weeks now.
WHAT A BLESSING!!!!! I didn't know life could be so
easy!!!!
14. TRAVELING WITH
MEDICATIONS
"The reader who was t-boned in a car accident while having
brain fog (“Brain Fog is Dangerous “#5 of newsletter 092409) prompted me to give
fibro/ME/ chronic pain sufferers some information while traveling.
Recently, while in a coffee shop, I had the opportunity to talk to a few very
friendly police officers . I told them point blank that I have fibromyalgia and
that since I was cautious about carrying many of my original prescriptive pain
medications with me, I prefer to carry a plastic M-T-W-Th-Fr-Sat-Sun flip top
carry case in my purse. When I am out and about and can’t get home to get my
meds this seems to be a reasonable way to take my meds on time. I label the top
of the plastic with the name of the med. They said if I speeding , or they
stopped me for any reason or if I was in an accident and they searched my car
/purse and found these meds there might be a problem. They said technically it
is a felony to carry opiates, anticonvulsants, morphine tabs, etc
unlabeled and they might have to site me or “take me in” to be further
questioned. They actually called those prescriptive medications illegal
drugs. However, they said, if you choose to do it this way ,carry your medical
history in the car with a list of your medications and a picture printout of the
meds. Most pharmacies can give this info and a picture of the medication to you
or you can download it from the internet. Also carry your Dr.’s names so that if
the police need to call Dr’s number(s) they are available .I told them that is
exactly what I do and went to my car to show them a copy of my medical/surgical
history along with my current meds. I take the medical history with me when I
travel in someone else’s car or by air. The officers said a “nice” police
officer would be ok with that scenario, but apparently there are others
not so “nice”. They said if you were driving in an unsafe manner you would be
arrested for “being under the influence”. In that case it doesn’t matter what
documentation you have with you about your medications or condition … you should
have NOT been on the road. There is zero tolerance for unsafe driving.
Since this friendly and informative conversation I personally would still feel
better if I can still keep my original prescriptive bottles at home in my
medicine chest. But, I should consider doing it another way. I admit I am a
creature of habit and a bit hard headed. Does anyone know a better way to
travel with meds? Can we ask our pharmacist for extra labeled bottles in
addition to the ones we have at home? Are there any other “travel” ideas
with our conditions? - Shelley shelleymoyer@cox.net"
15. LOW PRESSURE, HUMIDITY &
FIBRO PAIN
From a reader--
"I read with pleasure the confirmation that low pressure and humidity
result in more fibro pain. The link
http://www.ncbi.nlm.nih.gov/pubmed/3715814
mentions menthol. I have low pain problems and when the pain is
unbearable, I use Absorbine Jr. back pads. They are wonderful--kind of
like a poultice. They have a menthol gel on the back, and you just stick
them to your painful area. They are wonderful when I have to be on my feet
a lot or travel. I also like the roll-on menthol Biofreeze, but the pads
last longer and are more effective."
16. NO TASTE
"This is so odd. I started with hip pain about a week ago in my left hip.
When I first diagnosed with Fiobromyalgia that is where the worst pain was.
Until last week it only hurt when touched now it is hard to walk especially up
stairs. I also can relate to heylindafays mother. I have not been unable to
taste anything for about a year. I have lost 32 lbs because nothing tastes
good anymore everything smellls delish but taste like cardboard. (blah) It is
very disheartening to smell things that you know what they should taste like
then don't taste like anything. If anyone has had this problem and have found
the reason or the cure I would love to hear from them. - JoAnn
joannp2002@hotmail.com"
17. LACK OF
OXYGEN AFFECTS FUNCTIONING OF THE IMMUNE
SYSTEM
From a reader--
Oxygen is one of the five elements required to sustain life. It is also
one of the most important. For decades it has been successfully used to treat
the sick. Oxygen deficiency, or oxygen starvation, is arguably the greatest
cause of disease.
Oxygen provides life and energy to every cell. If the
body is abused by poor eating and drinking habits, air pollution, drugs or lack
of exercise, cells are deprived of oxygen and the immune system
weakened.
When there is insufficient oxygen to support a healthy cell,
the cell turns to another source of energy, usually sugar
fermentation.
This is undesirable because it upsets the metabolism
of the cell and causes it to manufacture improper chemicals. Soon there is a
whole group of unhealthy and weak cells which have lost their natural immune
system. They are open to invasion by viruses which can result in health problems
such as cancers, Candida, seizures, nerve deterioration and many
more.
But oxygen is not only a life-giver, it is also a killer... a
killer of harmful anaerobic infectious bacteria. These bacteria cannot grow or
survive where there are high levels of oxygen. Oxygen is also naturally
selective in what it kills. Unlike drugs and antibiotics, it does not harm the
aerobic, or beneficial bacteria, which are essential for good health. Only
oxygen can selectively kill the bad without killing the good.
Our modern
sedentary life-styles prevent most of us from processing enough oxygen to resist
disease and stay healthy. Stabilized Oxygen can help reverse this trend.
Stabilized Oxygen is non-toxic, stabilized electrolytes of oxygen in molecular
form. Research has not yet found an anaerobic infectious or disease
bacteria that Aerobic Oxygen does not kill. !t is effective against
Salmonella, Cholera, E. coli, Streptococcus. Pseudamonas and Staphylococcus —
even against Giardia lambilia (Beaver Fever). Stabilized Oxygen is virtually the
only almost-tasteless product known that wilt kill these harmful bacteria
without killing the body's beneficial bacteria. Stabilized Oxygen is NOT
hydrogen peroxide.
FROM DOM: All I know is that I am feeling
great! It's been 5 weeks since I began using oxygen drops in my
water. I thought this article was very interesting about oxygen and
the immune system!
18. iPHONE
DANGERS
DOMINIE'S FIBROMYALGIA & CHRONIC
FATIGUE SYNDROME HOMEPAGE
DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.
II Corinthians
1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort
them which are in any trouble, by the comfort wherewith we ourselves are
comforted of God." Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome
sufferers and their families.
