DOMINIE'S NEWSLETTER
AUGUST 2005

DISCLAIMER: I am not a medical doctor. I am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this newsletter is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this newsletter.

Scroll down to read all 70 articles...short but interesting!
1.  LETTERS FROM READERS
2. LIST OF FMS SUPPORT GROUPS
3. DENTAL ANESTHETICS & FIBRO
4. REMEDIES FOR INSOMNIA RATED
5. PROVIGIL & BIRTH CONTROL PILLS
6. MAIL ORDER PHARMACIES
7. EXERCISE & FIBRO
8. NASTY PHARMACIST (revisited)
9. MORE ON PROVIGIL
10. BRAS (revisited)
11. IS SPLENDA SAFE?
12.  FMS/CFIDS & SMOKE SENSITIVITY
13. SIMPLE DEFINITION OF FIBROMYALGIA
14. FIBRO & ANA POSITIVE
15. GENETICS & FIBRO
16. MILLION LETTER CAMPAIGN UPDATE
17. CYMBALTA (revisited)
18. SENSITIVITY TO SOUNDS
19. READER DOING BETTER
20. THYROID UP AND DOWN
21. LYME, STRESS & FMS
22. GOOD DOCTORS / BAD DOCTORS
23. TRAUMA CAUSES FIBROMYALGIA
24. VIRUSES & CHRONIC FATIGUE SYNDROME
25. RIFE TECHNOLOGY
26. ELECTROTHERAPY
27. SUGAR, FLOUR & FMS
28. SUPPORTIVE SPOUSE
29. WEIRD FEELINGS
30. FROZEN SHOULDER
31. SKIN OFFERS CLUES TO CFS
32. SUPPLEMENTS WILL BE BANNED OR LIMITED
33. MYCOPLASMAS & ANTIBIOTICS
34. CFS PATIENTS HAVE BRAIN DEFECT LIKE AIDS DEMENTIA
35. VIOXX ALTERNATIVE FROM A DOCTOR
36. FIBROMYALGIA BUMPER STICKER?
37. HEART PROBLEM LINKED TO CFS
38. HUNTINGTON'S DISEASE & CFS - GENETIC PROFILING
39. HOT FLASHES
40. ADVICE ON APPLYING FOR DISABILITY
41. HEALING CHRONIC ILLNESS AT HOME
42. INSOMNIA NEWSLETTER
43. LUNESTA (revisited)
44. MYALGIC ENCEPHALOMYELITIS (M.E.)
45. SEX & FIBROMYALGIA (revisited)
46. XYREM (revisited)
47. LEVAQUIN DESTROYED SLEEP FUNCTION
48. LOW DOSE NALTREXONE
49. SEVERE STRESS CAN CAUSE FIBRO
50. OVERDOSED AMERICA
51. DRUG SAFETY
52. PROTECT YOUR RIGHT TO USE SUPPLEMENTS
53. FLU SHOT & FIBROMYALGIA?
54. WOMEN FEEL MORE PAIN THAN MEN?
55. SAFE BEEF
56. KAY WALKER'S STORY
57. LAURICIDIN (revisited)
58. CO-Q-10 FOR CFIDS
59. SYNTHOVIAL 7
60.  ELECTROMAGNETIC FIELDS INTERFERE WITH SLEEP
61. HILLIE'S CFS STORY
62. VISUAL CONTRAST SENSITIVITY TEST
63. DR. TEITELBAUM'S PROTOCOL
64. ADRENAL GLANDS (revisited)
65. FIBROMYALGIA FREEDOM HOUSE HELPING UNIV. OF WASHINGTON
66. PAXIL DANGERS
67. READER WITH POST POLIO SYNDROME
68. DANGEROUS DRUGS
69. SPIRITUAL UPLIFT CORNER
70. DOMINIE'S PERSONAL UPDATE
 

 
1. LETTERS FROM READERS
 
"I found your site www.fms-help.com the other day and was very impressed by the thorough research you have done and the wealth of information you provide!  Thank you!"
 
"Your web page is a HUGE inspiration to me."
 
"Another fabulous issue www.fms-help.com/July2005.htm   I truly do not know how you do it.  But for all of us please keep it up if you can."
 
"I love your website!!!!!"
 
"I have been searching the internet for hours for help with my FM/CFS.  I am so glad I found your website www.fms-help.com!!  It has helped me tremendously.  I am 3 years into this and just now getting a diagnosis of FM/CFS.  Tried Neurontin for one week until I realized being a zombie for the rest of my life was not the answer."
 
"THANK YOU FOR YOUR WEBSITE AND ALL THE MOST VALUABLE AND IMPORTANT INFORMATION I'VE EVER READ.  YOU ARE TRULY PRICELESS AND AM SO GLAD TO HAVE FOUND YOUR WEBSITE!!!  YOU HAVE SAVED MY LIFE LITERALLY WITH HOPE AND INSPIRATION AND ALL OF YOUR HARD WORK.  I REALLY MEAN.......I HAD PURCHASED GARAGE ENCLOSURE STUFF TO FIT ON THE PIPE OF MY CAR AND I WON'T GO ON, BUT I'M SURE YOU UNDERSTAND THE REST.  YOUR HARD WORK CHANGED MY FEELINGS TO THE POINT THAT I WOULD NEVER ATTEMPT THAT AGAIN!  I WILL ALWAYS BE GRATEFUL TO YOU FOR OPENING MY EYES TO 'HOPE' AND NOT DESPAIR!" [NOTE FROM DOMINIE:  See www.fms-help.com/suicide.htm.]
 
"Your site is really really great!"
 
"I'm 45 and finally diagnosed with fibromyalgia.  I refused to believe that I had it for years, even when my chiropractor told me I had all the signs.  It was 'just stress,'  'my mattress,' etc.  The doctor gave me a prescription for Trazadone, which I DON'T want to start taking.  I am now going to attack this problem.  After reading up on it for a day and feeling overwhelmed and depressed about it, I came across your site www.fms-help.com. I love it!  After reading some of your story and tips, I feel somewhat positive for the first time in a long time.  I think you ought to write a book.  With all the info and research you have, plus your positive outlook, it would be a great help to a lot of people!"
 
"You're the only thing that has stayed the same.  My medication and my doctors have changed in the past two years.  But when I want to find out about fibro, I email you.  Soon to find my answer is on it way, either from you or one of your readers. Thank you again."
 
"I must compliment you on your wonderful website about FMS and CFS.  I have struggled with the overwhelming majority of the symptoms that you describe in your articles."
 
"I'm impressed with your site www.fms-help.com - it is an excellent resource."
 
"If nothing else, having fibromyalgia has taught me a few lessons, mostly out of necessity.  I can no longer multi-task, and so end up going through the day at a pace I can handle with the fibro...the slower I go, the better I deal !!!  The Rat Race is no place for fibros!!!!"
 

 
2. LIST OF FMS SUPPORT GROUPS
 
From a reader--
 
Here is a list of FMS support groups for the U.S., Canada and the U.K.  If your group is not listed, you can add your information--
 
http://www.fmscommunity.org/sptgrp.htm#us
 

 
3. DENTAL ANESTHETICS & FIBRO
 
From a reader--
 
"I am in the process oft having all my amalgam fillings removed and I have suddenly become allergic to the only local anesthetic (citanest) that originally was tested okay for me, I became terribly ill.  I think persons with fibro and weakened immune systems should be very careful which anesthetic is given to them during dental treatments. 
Here is a website of a Dutch genius about dental anesthetics--http://www.bosscherstichting.org/Files/am_index2.htm"
 

 
4. REMEDIES FOR INSOMNIA RATED
 
This is a HUGE list of sleep remedies and you can add your own ratings to these meds and supplements--
 
http://remedyfind.com/all_remedies.asp?id=19
 

 
5. PROVIGIL & BIRTH CONTROL PILLS
 
From a reader--
 
"I was reading about Provigil for fatigue in the June newsletter www.fms-help.com/June2005.htm. I have tried this from a Dr. at a pain clinic--he stated some women were in fact feeling much better taking it and gave me some samples. Once I got home I read the pamplet inside the boxes, and it plainly states that it can interfere with birth control pills if you are on them so use a backup method. This made me nervous given the fact we have 2 wonderful young daughters, but I am clearly at my limit esp. with my fibro.  I just wanted other young women to have this info. I didn't notice it mentioned. I haven't taken it much, given my fear of yet another little minx running around. It did seem to pep up my energy for a few hours though."
 

 
6.  MAIL ORDER PHARMACIES
 
Pharmacy by Mail 
http://www.jiejo.aleaspeopl.com/aspx/index.asp?sid=e45498880b2131f67e617cd8c9003165
 
and also this one from a reader--
 
"One good prescription assistance program is RxOutreach http://www.rxoutreach.com/en/ They have a list of drugs that you can get 3 months for $18, or 6 months for $30. The 6 months is the best savings. Have MD right out prescription for 6 months, explaining the savings involved in doing so. Anyways, it is super easy and super quick to sign up and get the meds you can get. It is all generics and the list is not extremely long or varied, many are drugs that are low cost drugs to start with, but the list seems to be growing each month, and any money saved is worth it, me I will save about $100 by doing it this way, and it was very simple...Almost every assistance program has denied me cause while I have been out of work 9 months and still no disability money, many of them say I am not poor enough,lol,they are only given to people who are down and out times 1,000,lol. Many you cannot have any insurance or any drug coverage whatsoever, and other strict rules. RxOutreach is different. This one is entirely based on income and no other factors. They have income guidelines for family of 1, 2, 3, and so on. They are reasonable guidelines too, not crazy ones. Anyways, it's legit, and I got 4 meds from them."
 

 
7. EXERCISE & FIBRO
 
From a reader--
 
"WebMD with AOL Health - Being Active Won't Worsen Fibromyalgia  Dominie - What they don't explain here is how if we do some kind of activity, we have to go to bed afterwards.... Today my mother was here to visit me, and after she left I couldn't get out of bed for hours, and it may affect me for days to come. Articles like this make me so angry--they give the public a wrong impression of what it's like to have this disease!  Maybe we have to start writing our own articles for publication in major magazines and newspapers?" 
 
[NOTE FROM DOMINIE:  I agree 100%.  Back in the 1980's when my FMS was at its worst www.fms-help.com/fibro.htm, even any small physical activity, such as playing the piano, putting dishes away or writing a letter---would cause days or even weeks of excruciating pain.  Now that I am doing better, this is no longer the case, but at that time doctors were telling me that I was de-conditioned and needed to exercise more....like....right!  The only people who understand this illness are those who have it....]
 

 
8. NASTY PHARMACIST (revisited)
 
From a reader--
 
"In your June newsletter www.fms-help.com/June2005.htm is a thing on a Nasty Pharmacist story...and the writer mentioned how you are only suppose to fill your prescriptions at one pharmacy...I never signed any such medicine agreement...Is this implied? Is this typical? Again I never signed one...and I take control substances...And I do multiple pharmacies, usually mail order (which even will do a 3 months Vicodin supply), and retail pharmacy pick up at grocery store for Oxycontin and Adderral and anything new and/or short term...but sometimes I do another grocery store, and I have done the $25 gift card thing at other drug stores several times to get the free $...but no one ever said to me I can only do one pharmacy??"
 

 
9. MORE ON PROVIGIL
 
See the June www.fms-help.com/June2005.htm and July www.fms-help.com/July2005.htm issues of my newsletter to read more comments on Provigil. 
 
Another comment from a reader--
 
"My doctor took my of Provigil cause he felt it was not working well enough and doing the trick he hoped it would do for me. He started me on Adderal instead to try to help with fatigue/energy."
 

 
10. BRAS (revisited)
 
From a reader about the article in the June 2005 newsletter at www.fms-help.com/June2005.htm--
 
"Your stuff on bras was hilarous. And goodness, I will be honest, I am so darn sick, fatigued, and in pain, I wear no bra practically half of the time, not just no bra while at home, but no bra to the store, to the doctor's, wherever.  No shame and I never even second guess it.  Often I even forget I am braless, it is the last thing on my mind.  All that matters is comfort and pain management, if that means no bra, then I don't hesistate for a sec."
 

 
11. IS SPLENDA SAFE?
 
http://www.womentowomen.com/LIBsplenda.asp?id=&campaignno=&AdGroup=&Keywords=&EmailID=30001
 

 
12. FMS/CFIDS & SMOKE SENSITIVITY
 
From a newsletter reader--
 
"I sublet an apartment....little did I expect that the apartment below me would have a smoker. This was extremely aggrevating. Most people with chronic fatigue and fibromyalgia are sensitive to smoke. Ballparks do not allow smoking anymore in the seats.  Hotels have special smoking rooms. Yet all apartment complexes around the country allow it. Think how much havoc this is for people. Especially us who are sensitive....I feel there is a need to have at least a certain percentage of apartment complexes to be smoke free. This would improve the quality of life for the people who are sensitive incredibly.  Perhaps we can do something to raise our voice and have some smoke free apartments. This would benefit those who need it greatly and this would not in any way inhibit smokers rights. There would be plenty of complexes that would have smoking as perfectly fine. Why not raise our voices to be heard about this most important matter? I wonder if we could somehow take it even further and encourage a '2x2 for a healthier me and you' where each person could be encouraged to write two letters and tell two people. Perhaps to a news publication or a representative or both.  Imagine if 1,000 people participated the impact this could have and how much happier and healthier apartment complexes could be."
 
[NOTE FROM DOMINIE:  Not to mention that smokers can cause fires by falling asleep in bed with lighted cigarettes.  Also, when they move out, their apartments are smelly and yellowed, which requires more cleaning and preparation for a new tenant.  Seems landlords could give discounts to non-smokers!]
 
Comments from another reader--
 
"It is a real good thing to be concerned about. We tried renting to non smokers with our units. The problem is some tenants lie and they smoke anyway. Then if you leave an apartment empty because you can not find a non smoker you end up paying the mortgage on that unit. It seems easier than it is. A landlord does not want to lose a good paying tenant because they smoke. It may even fall under discrimination, but I am not sure. We usually advertise no pets and no smoking. It is easier to get those without pets.  A voice from experience!"
 

 
13. SIMPLE DEFINITION OF FIBROMYALGIA
 
From a reader--
 
"I read this definition of FMS today (from a nurse who has it) and thought it was a great, simple explanation--
'Fibromyalgia is a chronic cellular disorder that causes pain and prevents energy production in the cells.'
So much easier than trying to explain symptoms (most people don't care anyway - we all have our aches and pains to deal with), or telling people you are tired and in pain and then they often say, 'I'm tired and have pain a lot too so maybe I have FMS.' Plus saying it's a 'cellular disorder' explains that it's something that happens inside the body so maybe will avert some of the 'but you look OK!' comments."
 

 
14. FIBRO & ANA POSITIVE
 
From a reader--
 
Here are a couple of articles about fibro and positive ANA.  I've often wondered if the two go hand in hand as I've had both since the mid 1980's.
 
Original article
Entrez PubMed
 
Same article published at www.immunesupport.com
Abstract: Autoimmune fatigue syndrome and fibromyalgia syndrome
 
Interview transcript at www.fibromyalgiasupport.com that references the same study noted above.
Fibromyalgia Information, Treating Chronic Fatigue Syndrome and Fibromyalgia: Interview with David Moskowitz, M.D.
 
Please note that the ANA Titer they refer is reported differently now than in prior studies. Here are the basics on the ANA Titer:
 
Antinuclear Antibodies (ANA)
 

 
15. GENETICS & FIBRO
 
From a reader--
 
"I'm 51 and can trace symptoms back to birth and have had a lifetime of
virtually every fibro-related symptom. In reviewing the health of family -
fibro symptoms appear to be a theme - receiving 'band aid' treatments.  My
personal experience is that this is a genetic disorder and for me, at least,
present at birth."


 
16. MILLION LETTER CAMPAIGN UPDATE
 
On May 1, 2005 thousands of FMS/CFIDS sufferers and their families wrote to media outlets about our illness in an effort to raise awareness.  I continue to post responses to this effort at www.fms-help.com/letter.htm  Thanks to all who wrote letters to help our voices be heard!
 

 
17. CYMBALTA (revisited)
 
More comments from readers--
 
 1.  "I've been on Cymbalta for four months.  I don't know what I feel anymore.  Loss of memory for one thing, disoriented, light headed.   It isn't helping my Fibro."    
 
2. "I no longer take cod liver oil gel tablets. They weren't working well with the Mobic I take for pain and causing problems.  I joined Curves for Women instead and got put on Cymbalta and things are so much better now."
 
3.  "I took Cymbalta for only one day and I almost lost my mind.  I couldn't control anything mind wise, movement wise, etc.  I was one of the worst days I have ever gone thru.  I definitely will not ever take another Cymbalta."
 
4.  "I've been taking it for about four months and its not doing anything.  So far I don't have any of those other horrible side effects I read about from your other readers."
 
5.  "I take Cymbalta which is supposed to help with the pain, but no results for me."
 
[NOTE FROM DOMINIE:  For more comments on Cymbalta in previous newsletters, click www.fms-help.com/newsletters.htm - click on SEARCH - type in Cymbalta.]
 

 
18. SENSITIVITY TO SOUNDS
 
From a reader who found this on the net--
 
"Fibro causes changes in your sensory system. People With Fibro (PWF) are often sensitive to light, smells, sounds, odors, pressure on the body, and even some forms of simple vibration. Changes in their environment is quickly noticed by people with these sensitivities. I've had many PWF, tell me the noise emitted by fluorescent lights just drive then crazy.  Sleep (or the lack of...) plays a crucial role in PWF. PWF often sleep, but due to the pain, wake up exhausted. PWF often have the alpha-delta sleep anomaly. As soon as we reach that deep delta level sleep, alpha waves (awake) intrude and either jolt us to an awakening or to a lighter stage of sleep. Our body heals and many neurotransmitters are restored during delta sleep, so we soon suffer from the effects of sleep deprivation."
 


19. READER DOING BETTER
 
"With so many suffering so much, I hesitate to tell that
I am doing so very well, compared to the past.  I  now
never have bad pain, just mild pain that goes away.  I
seldom have IBS; my insomnia nights are only two or
three a month. 
 
What am I doing?  I am not sure what is helping. I take
10 mg. of amitriptyline each night, with another 10 mg.
and a cup of Sleepy Time tea if I am awake after half
an hour.  I use 1/4 tsp. of  natural progesterone
cream, divided into two times, each day. And I am
taking magnesium with my calcium for osteoporosis.  I
understand that magnesium is a relaxant.
 
 I must add that I am even growing fingernails, again,
after several years of nails that shredded and broke
before they reached the end of my fingers!  I hope that
this can help somone."

 
 
20. THYROID UP AND DOWN
 
From a reader--
 
"I'm having a terrible time right now.  I went to a physiatrist/rehab doctor who doubled my Synthroid (I have Hashimoto's) to help with my fibro symptoms.  Well, he overshot how much I should have been getting, as I was also coming off of Cymbalta.  Initially I felt great, but now I am now hyperthyroid, with much anxiety and depression at the same time.  I went back to my internist, who is having me stop my Synthroid for a week.  I feel horrible.  I think I may need to go back on antidepressants, and am having to wait for a month to see a new psychiatrist, who is very good..... If you know of any others who have experienced this issue with the thyroid being up and down, would you let me know?"
 

 
21. LYME, STRESS & FMS
 
From a reader--
 
"Was bit by a tick...ended up 10 days in the hospital diagnosed with meningitis--lyme as we know now.  Never was well again.  My ex did leave to cheat when I got sick.  After we divorced, he stalked me for years.  Sure that didn't help.  I was in constant terror.  Most everyone I did a work up on in three years at the clinic had some long term stress in their lives, but also felt as child  they had signs such as growing pains(?), many sore throats (more than norm).  I saw hundreds of patients.  All the test studies I offered to put my body through--including an herbal study that almost did me in or put me in the funny farm--it is way too sad....I'm in a huge flare now for pushing too hard.  No sleep, UGH. Most lymies think FMS is lyme or a co-infection thereof, including the Bowen labs in Florida."
 

 
22.  GOOD DOCTORS / BAD DOCTORS
 
From a reader--
 
"I went to your website and checked out the doctors section you now have www.fms-help.com/doctors.htm - I was sitting here crying reading them because they hit so close to home. Five years ago I started having difficulty sleeping, I was always dreaming that I was running from someone or something who was chasing me but I couldn't see them. I would wake up so groggy.  About the same time, I had to quit going to my much loved Karate classes because I would get so fatigued and out of breath, and that was just 15 minutes into the class. My joints and muscles started getting so painful that I just couldn't do it any more.
 
So, I went to my doctor of about 15 years and started to tell him what was happening. He did all sorts of tests they all came back negative. Except for my Epstein Barr. It was abnormal. I had to go back into him several times before he finally placed me on disability because I was no longer able to get to work and function in the way they needed me to....This went on for about three months and finally my doctor said I think you can back to work now. Without caring if I was up to it or not. I was lucky, I started out the first month slowly, just 4 hours a day, and then built up from there.
 
I was doing great until September of 2003 when at the same time extreme stress from a manager at my work place and a death of a nephew threw me into a spiral I could not come out of. I continued to work until March of 2004, the stress unbearable at this time. But in January I had already started seeing the signs of the terrible illness from 5 years ago resurfacing. I had a breakdown at work, and had to leave. I went to the same doctor now for 20 years and I was placed on disabilty for chronic fatigue, fibromyalgia and major depression.
 
My world has been a nightmare ever since, I am still on disability and my doctor has done every test he can think of with no real results. He has been very rude to me since, even stating in a subtle manner that I may be faking this. I have gone out of his office so many times crying. He says he thinks I can work after I have just sat there and told him how badly I still feel. He keeps saying "exercise, exercise, exercise" but how do you do this when you can't function. I have tried vitamins, doing more things around the house (which sets me out for a few days afterward). One of the office visits, he made a point to take me out of the exam room and scold me in front of the receptionist and other workers. I was so embarrassed. He is a great doctor, has won many awards but is frustrated at trying to find an answer.
 
Finally, I referred myself to a clinic for a complete physical.  All findings were negative. I was referred to a neurologist that had me do a sleep study.  I told him I had had one done before when I was ill and everything came back okay. I even tried a c-pap machine at home but that only made me sleep worse. He told me there is a test now that can be done the same time as the study to see if someone has fibromyalgia. The test showed that I had 71 unexplained arousals which somehow detect that alpha intrusions are affecting my deep sleep and causing me to have no rested sleep.
 
I took these findings to my doctor at home. He didn't even look at them and didn't really care to listen to me explain. All he wants is to get me out of his office telling me, 'I don't know how you feel because I don't have your illness.' Like I really want to be there!!!
 
I really feel for all who have to put up with Doctors like this. Maybe the Million Letter campaign in May www.fms-help.com/letter.htm will help this nightmare come to an end for all of us."
 

 
23. TRAUMA CAUSES FIBROMYALGIA
 
From a reader--
 
"We saw on your site that many sufferers write that there
is no clinical proof that trauma causes fibromyalgia.  Mark J.
Pellegrino, MD, is board certified in physical medicine and
rehabilitation and electrodiagnostic medicine and is one of the nation's
leading experts in fibromyalgia.  He is the author of numerous books and
articles on fibromyalgia and suffers from fibromyalgia himself and
maintains an active medical practice with over 15,000 patients cared
for.  He is located in Ohio.  In his latest book,
'Fibromyalgia:  Up
Close And Personal
,' he devotes chapter 30 entirely to
post-traumatic
fibromyalgia
which is caused by trauma.  There he states the various
traumas that he believes cause fibromyalgia.  We are using his book for
ammunition in our disability fight and hope to get to an
appointment with him. The book is what fibros are, all the way to
what makes things happen to us as fibros.  The book is published by
Anadem and should be available at your local Barnes and Noble bookstore."
 

 
24. VIRUSES & CHRONIC FATIGUE SYNDROME
 
From a reader--
 
http://www.cdc.gov/ncidod/diseases/cfs/causes.htm 
 
"Due in part to its similarity to chronic mononucleosis, CFS was initially thought to be caused by a virus infection, most probably Epstein-Barr virus (EBV) . It now seems clear that CFS cannot be caused exclusively by EBV or by any single recognized infectious disease agent. No firm association between infection with any known human pathogen and CFS has been established. CDC's four-city surveillance study found no association between CFS and infection by a wide variety of human pathogens, including EBV, human retroviruses, human herpesvirus 6, enteroviruses, rubella, Candida albicans, and more recently bornaviruses and Mycoplasma. Taken together, these studies suggest that among identified human pathogens, there appears to be no causal relationship for CFS. However, the possibility remains that CFS may have multiple causes leading to a common endpoint, in which case some viruses or other infectious agents might have a contributory role for a subset of CFS cases."


 
25. RIFE TECHNOLOGY
 
From a reader--
 
http://www.rifeenergymedicine.com/index.html
 
"It has been rediscovered that most every microbe (one
cell organism, bacteria, fungus, and virus) has at least one
ultrasound frequency which can destroy the microbe easily."
 

 
26. ELECTROTHERAPY
 
From a reader--
 
http://my.webmd.com/content/Article/32/1728_78761.htm
 
These Brain Waves May Tame Fibromyalgia
 
This technique is gaining wide acceptance at chronic pain treatment centers," says Lichtbroun, assistant professor at Robert Wood Johnson Medical School, in East Brunswick, N.J. "At first I looked at this device very skeptically -- and even now I am beginning to see some patients who had a marked response at the beginning are gradually beginning to deteriorate -- so again I wondered if the machine had lost its power. But what I've found is that patients eventually lose their incentive to use the machine, and less frequent use appears to mean a return of symptoms."

The machine Lichtbroun refers to is the Alpha-Stim CES device made by Electromedical Products International Inc., of Mineral Wells, Texas. Patients using the device clip electrodes to their earlobes, which transmit low levels of electricity back and forth, through the head.

Both groups were told to use the devices for an hour a day for three weeks.

For therapeutic use, patients are taught how to use the devices so that "they can undergo the treatment in their own homes, at a time that is convenient for them," says Lichtbroun. That's a big advantage over some other approaches, such as massage, because it doesn't require "special appointments or a trip outside the home," he points out.

The results of the electrotherapy treatment were "very surprising," says Lichtbroun.

Physicians determine how severe a case of fibromyalgia is by testing "tender points" -- areas of highly localized pain. The study participants who had real electrotherapy treatment had a 28% improvement in tender-point scores and a 27% improvement in the amount of general pain they felt.

But most surprising, says Lichtbroun, was that only 5% of the treated patients reported having sleep disturbances after treatment, compared with 60% who had sleep problems before beginning electrotherapy treatments.

And 90% of the treated patients reported that their quality of life had improved as a result of treatment, while 20% of the patients who were in the fake treatment group said their quality of life had declined.

These results are almost too good, says Robert S. Katz, MD.


 
27. SUGAR, FLOUR & FMS
 
From a reader--
 
"I do good as long as I lay off the flour and sugars (sweets, cold drinks, etc.); the bacteria, fungus, and yeast does not build up as bad; I also use some Seagate products; more as money permits (pro biotics, olive leaf extract, etc.)"
 


28. SUPPORTIVE SPOUSE   
 
From a reader--
 
"I've been reading your newsletter for more than a year now. I was very sick with fms last year and had a flare that lasted nearly a year.  I've had fms for about 10 years but was diagnosed only 3 years ago. nothing seemed to work..I tried so many different drugs and supplements that the list drags on and on. I finally found a combination of remedies that has worked wonders. I feel like my symptoms have improved by 80%.  Acupuncture, immune shake, malic acid, co-q10, massage therapy, psychotherapy, a whole foods diet (fresh, organic meats and lots of veggies and whole grains), wellbutrin 300mgs, hot water bottle, and getting out of an unhealthy relationship is what works for me. You are so correct when you say we need supportive men. My ex used to blame me for my illness and thought I was exaggerating it to avoid meeting up with friends. He didn't understand how tired I was. He showed no empathy when I had trouble carrying groceries up the stairs to our apt. I did not feel good enough about myself to stand up to him.  I also believed him because he had been so caring in other ways!  Now that I have my depression and symptoms under control, I have so much more self-confidence. I can finally stand up for myself and tell him to shove it.  Having a supportive partner is absolutely vital.  Despite all my stress from teaching school, having financial trouble, etc., my symptoms have not returned to the severity they were last year.  And I believe a lot of that has to do with being out of that relationship. Please tell your readers...don't ever let anyone bring you down and blame you for having a chronic illness. Don't ever give up..we can all find the right combination of therapies to help us live a more normal life.  Thank you for maintaining such a great resource of information for an illness that is so mysterious and misunderstood."
 

 
29. WEIRD FEELINGS
 
A reader found this on the net--
 
"Mold alters brain function. When someone wants to enter an altered state, they try to alter brain function. Drugs or alcohol will do this, or certain practices (e.g. hyperventilation). I refer to molds as psychoactive. If I get real bad, I call the local mental health hot line the next day to see if they had a lot of calls. Many times their phone rang off the wall while I was feeling weird.  You can stop an allergic reaction by alkalinizing the bloodstream. When you are feeling weird, or have a sudden attack of weakness or achiness or your brain shuts down, take 1/2 teaspoon baking soda in water. Works in 5 minutes. Better yet, take 2 drops citricidal or citrus seed extract in water (tastes awful) . Works in 90 seconds. Or chew citrus peel."

 

 
30. FROZEN SHOULDER
 
A reader needs advice--
 
"I am still having problems with frozen shoulder.  My range of motion is only about 45% in my left arm, it's been 9 months. We don't realize how lucky we are to have be able to reach above our head or wash our hair, I just consider myself lucky to have two arms." 
 
[NOTE FROM DOMINIE:  If you have been suggestions, please reply directly to Mary at DMH22@webtv.net.]

 

 
31. SKIN OFFERS CLUES TO CFS
 
From a reader--
 
http://my.webmd.com/content/article/93/102249.htm

"Researchers say the results suggest that despite sharing similar symptoms with depression, people with CFS can be identified by physiological measures: skin temperature and electrical activity within the skin.  They also say the study adds to the growing body of evidence that demonstrates that CFS and depression are distinct disorders with different disease profiles."


 
32. SUPPLEMENTS WILL BE BANNED OR LIMITED
 
From a reader--
http://www.newswithviews.com/guest_opinion/guest60.htm
 
"For those not familiar with the Dietary Supplement Health and Education Act of 1994, it was passed because 2.5 million ordinary citizens wanted to make sure dietary supplements such as herbs, vitamins, minerals and other food-based supplements could stay on the over-the-counter market. Movement to create this law, known as DSHEA, started when a 1992 FDA task force published a report announcing the FDA’s desire to remove these products from the shelves as they represented a 'disincentive for patented drug research'.  Immediately following this announcement, millions of Americans learned about how famed vitamin doctor, Jonathan Wright’s patient-filled medical office was raided the same month by nearly two-dozen gun-toting, flak-jacketed FDA agents in the name of regulating supplements. Battering down an unlocked office door, these agents, backed by burly sheriff’s department deputies, lined up staff and patients against the wall, pulled IVs from patients arms in middle of treatments, confiscated patient records, took the hard drive from the office computer all because Dr. Jonathan Wright was using nutritional supplements to heal very sick people who could not get help from standard allopathic medical care. As the story developed, it turned out that this Gestapo-style raid was standard operating procedure for the FDA and as the general public became aware of just how many doctors’ offices, manufacturing companies, distributors and health food stores had been assaulted by similar raids, the horror of all this forged a mighty health freedom army that resulted in unanimous passage of DSHEA."
 
[NOTE FROM DOMINIE: A similar raid was conducted at the Seasilver manufacturing facility in California about 2 years ago, where 750 employees were forced out and the company was taken over for several months.]
 
This link also came from a reader--
 
http://www.newswithviews.com/Howenstine/james24.htm

The features of Codex Alimentaris are:

And here's another website sent in by a reader--
 
http://www.lewrockwell.com/paul/paul261.html
 

 
33.  MYCOPLASMAS & ANTIBIOTICS
 
From a reader--
 
"In the past month I have hit rock bottom with my chronic fatigue.  I have decided to forget about school for another semester.  I expressed my desperation to my mother who has been helping me with health research.  She decided to talk to a very knowledgeable pharmacist in town.  It turns out that he's had fibromyalgia for 30 years and is now healthy and well.  He said that he took Tetracycline, an antibiotic, for his mycoplasma infection.  He absolutely believes that mycoplasmas are a factor in chronic fatigue, rheumatism, fibromyalgia etc.  He also asserts that the reason that the doctors don't acknowledge this is because it is against their whole belief system and there is no money in it so the pharmaceutical company's don't want them to know about it...that it's so easy to treat! Money and power corrupts!!!  He has referred us to a very good web site:  http://www.roadback.org/index.cfm/fuseaction/home.main.html  This web site talks about treating rheumatic diseases with antibiotics including fibromyalgia. Check it out!  He said that he suggests a low dosage of tetracycline for about a years time.  There's more good news.  I have more energy and I think it is due to the coconut oil.  I'm taking 3 tablespoons per day.  Also I've recently had an infection in my mouth.  An infection of a gland, I believe.  Very painful!  I started taking Clindamycin for the infection and am feeling better.  There's more!!  My stomach is feeling amazing!!  The Clindamycin is taking care of my candida problem and the only thing that could explain that is that it's taking care of the mycoplasmas.  I also read about a man who took Azithromycin for a sinus infection and he had either chronic fatigue or fibro....can't remember.  He said that it didn't take care of his sinus infection but he said that his bowel problems improved greatly.  How exciting I could be onto something here!!"
 

 
34. CFS PATIENTS HAVE BRAIN DEFECT LIKE AIDS DEMENTIA
 
From a reader--
 
http://www.chronicillnet.org/CFS/Ostrom/chp20.html
 
"Over several years' investigation, Dr. Mena has consistently reported that 71 percent of CFS patients have a diminished flow of blood in their brains."
 

 
35. VIOXX ALTERNATIVE FROM A DOCTOR
 
From a reader who got this letter from a doctor--
 
"As you have probably already heard, the prescription arthritis medication Vioxx was recalled last week after new data showed that patients who took it continually for 18 months or longer had a significantly higher risk of developing deadly cardiovascular problems, including heart attack and stroke.
I have to admit, I'm not entirely surprised by this news. I've long known that these types of COX-2 inhibitors cause side effects worse than the pain you are trying to relieve! In fact, I've found that most conventional medications -- both prescription and over-the-counter -- don't address the underlying causes of arthritis. And, they have been shown to damage the digestive tract, kidneys, liver, and may actually hasten the destruction of cartilage by suppressing the creation of new cells.
Of course, with the newest information that's emerged about Vioxx, there's no better time than NOW to abandon dangerous conventional treatment and examine how natural remedies can treat arthritis safely and effectively.

Naturally Heal Aching Joints

To keep your joints healthy, fight inflammation, and rebuild cartilage, I suggest supplementing with the following nutrients daily:

* 1 teaspoon of MSM (methylsulfonylmethane) granules once or twice a day with meals. MSM is a potent antacid, analgesic, and anti-inflammatory derived from foods. It actually increases blood flow and delivers nutrients to injured cartilage tissues and is helpful in improving your range of motion.
* 600-1,000 mg buffered vitamin C helps form collagen in your connective tissue. Take this together with 400-800 IU vitamin E, as d-alpha tocopherol, and 5,000 IU vitamin A, as beta carotene. This antioxidant trio will help to slow down the erosion of cartilage and stimulate the formation of new cartilage.
* 400 IU of vitamin D slows down the progression of osteoarthritis.
* 1,000-1,500 mg daily of glucosamine sulfate stimulates the manufacture of the chains of sugars, amino acids, and sulfur that are critical to joint movement, and help to restore the gel-like nature of cartilage.
* 1-2 tablespoons of flaxseed oil or 4-6 tablespoons ground flaxseed, can provide you with important omega-3 fatty acids, which are converted in the body to beneficial anti-inflammatory prostaglandins (chemicals produced by your body that either cause or block inflammation).
* 600 mg of White Willow Bark extract helps relieve the aches and pains of arthritis.
* 4 mg of polygonum cuspidatum extract helps promote normal inflammatory response, and may help ease the wear and tear of cartilage.
Please feel free to pass this important information on to friends and loved ones who live with arthritis or have been using Vioxx to relieve their symptoms."


 
36. FIBROMYALGIA BUMPER STICKER
 
A reader would like to know if there is a well-designed fibromyalgia bumper sticker available.  If you have the web address for one, please write me at dombush@bellsouth.net and I will share the info in the next newsletter.
 

 
37. HEART PROBLEM LINKED TO CFS
 
A reader found this article at www.immunesupport.com--
 
"Many people with Chronic Fatigue Syndrome may have a serious heart
problem. A new finding hints that blood circulation problems may be an
underlying cause of the mysterious illness.

Nobody is sure what causes Chronic Fatigue Syndrome. As more becomes
known, it's likely that some chronic fatigue patients will turn out to
have different underlying problems than others. One major symptom,
however, is feeling bad after exercise for more than 24 hours.

To Arnold Peckerman, M.D., that sounds a lot like a blood circulation
problem seen in some heart patients. These patients have something
called left ventricular dysfunction, in which the main pumping chamber
of the heart is weak. When you exercise, your heart pumps out more
blood. But these patients' hearts actually pump less blood."
 


38. HUNTINGTON'S DISEASE & CFS - GENETIC PROFILING
 
From a reader--
 
www.ncf-net.org/forum/GeneProfiling.htm
 

 
39. HOT FLASHES
 
From a reader--
 
"I used to own a vitamin and herb shop. Some things that may help with hot flashes are Vitamin E...at least 800 iu's per day. Also, I'm in the medical field and Effexor 75 mg. works GREAT for hot flashes, plus helps you sleep. It is used in conjunction with Vit. E for breast cancer patients."
 

 
40. ADVICE ON APPLYING FOR DISABILITY
 
From a reader--
 
Lengthy article about advice on applying for disability
http://www.cfs-news.org/socsec1.txt
 
Your Right To Disability: Persistence Pays Off
by Mac Sasser, Charlotte, NC 
From Nov/Dec CFIDS Chronicle
 


41.  HEALING CHRONIC ILLNESS AT HOME
 
A most fascinating article from a reader!--
 
http://www.immunesupport.com/library/showarticle.cfm/id/6515/searchtext/Healing%20Chronic%20Illness%20at%20Home/
 

 
42. INSOMNIA NEWSLETTER
 
http://www.remedyfind.com/newsletter_archives/Jun_05_Insomnia.html
 
Topic 2 - Lady needs Trazadone plus Klonopin for sleep. 
Topic 3 - Rate sleep meds to help others with insomnia.
 

 
43. LUNESTA (revisited)
 
From readers--
 
"I took the plunge and started the new LUNESTA sleep pill for my insomnia.
For anyone interested in this pill DO NOT BREAK IT IN HALF. The taste is unbearable
and lasts forever. Take it whole and wait until you are in bed. It works fairly quickly.
I am just starting my third night. It seems to work better than most other pills.
So far no side effects for me, but that does not mean it is safe."
 
"I just wanted you and your readers to know that Lunesta seems to work for me. It's a new sleep aid drug and I took one tablet and slept for a good 7 hours and felt fine the next morning. i haven't used it every day, in fact I just use it once or twice a week to keep me on a good sleep pattern since I tend to stay up late and sleep late on my days off (I take it the night before I go back to work the next day)."
[NOTE FROM DOMINIE:  Other readers have reported their experiences with Lunesta in my recent newsletters. Go to www.fms-help.com/newsletters.htm - click on SEARCH - type in Lunesta.]
 

 
44. MYALGIC ENCEPHALOMYELITIS (M.E.)
 
From a reader--
 
"I think that two of the major things to accomplish to move the ball forward in the political and medical arena is to return to the original name, Myalgic Encephalomyelitis and the correct neurological ICD code, G93.3 and also the adoption of the Canadian Consensus Criteria for M.E./CFS."
 

 
45.  SEX & FIBROMYALGIA (revisited)
 
Below are some responses I received from readers in answer to the question in the July 2005 newsletter (Topic #2) at www.fms-help.com/July2005.htm--
 
1.  "Ummmm....let me think a while.  Oh, yes, sex.....I think I remember that.....  Are you kidding?  Too much pain!"
 
2.  "Sex whats that? I remember it well.......used to be a sex monger but not anymore and it's not due to pain -- it seems that I am so overwhelmingly busy doing this and that and research and trying not to over do the day that I just plain don't even think about having sex with my man of six years. I guess I should start paying attention to him before it gets too late. I enjoy sex with him greatly too but lately it seems like its just too much effort to work on making anyone else feel good."
 
3.  "I also do not have a desire for intimacy.  I am in so much pain do not want to be touched.  I can't stand my body much less anyone else."
 
4. "Yeah, I can comment on #2 Sex & Fibro www.fms-help.com/July2005.htm  I can comment on that a lot.  I’ve been married to the same wonderful man for 20 years, I married him in 1985 and had my accident in 1994.  I wasn’t diagnosed until a few years ago, but I & my husband know darned well that FM does indeed attack sex drive & sexual relations.  After I was diagnosed with FM and started on medication, I noticed that along with the pain going away the sexual desire and ability to achieve orgasm was gone too.  It seems that the ability to feel pain and the ability to feel sexually all stem from the same thing.  For a long time I found that I could go through the motions and force myself to go through the sexual act for my husband’s sake and for his fulfillment.  I know without a shadow of a doubt that that was a major reason why our marriage survived.  The thing is that after awhile my husband started noticing and wanting more than just his needs fulfilled.”
 
5. "I just wanted to respond to your newletter in regards to sex and FMS.  I am 42 years old and feel like a 90 year old right now.  I have been diagnosed with fms for over a year now, but have been suffering for years.  I have been married for 9 years to a wonderful man and am so grateful to God that he is patient and loving.   Ever since I had my first daughter 8 years ago, I have NO desire whatsoever.  We did manage to have a second girl 4 years ago but that is it.  Since the onset of the severe symptoms, I think we have made love 3 times.  I feel like I am cheating my husband out of a healthy life, but the desire isn't there, the pain I suffer when we do make love makes me cry.  I know I need to lose weight but I cannot seem to get it to budge.  I am so depressed now because I cannot afford my meds.  I cannot find work (couldn't do it anyway) and cannot seem to get the work done for my bookkeeping clients that I have.  I have no drive! In any way!  This fibro is killing me!  I want my old life back!"
 
6.  "Since my onset of symptoms in 2001, I have found that sex and desire have both been very difficult.   Intercourse was painful.  I should mention that on 11/3/03 I had my ovaries removed--or in other words, surgical menopause.  I have recently learned a lot about my particular causes and possible cures to both the desire for sex and the 'painful intercourse'.  I had to find out if my hormones were in balance or if my HRT was enough to help on the estrogen side of the ability to want sex.  I have worked with my doctor to obtain an optimal estrogen level and now have a better understanding of what causes a woman to desire sex.  Sorry 'guys' I don't know how fibro affects your sexual life.  It is not only estrogen but testosterone also plays a major part in the physical desire for intimacy.  Raising to the right estrogen level allowed my adrenal glands to produce the right amount of testosterone so desire returned (Yeah!)  In some women a combination drug called Estratest helps when testosterone is not being sufficiently produced, but it can have the side effect of causing or adding to a 'female' mustache and some hair loss.  As far as the painful side of intercourse, again for me, it was achieving the right hormone levels.  I am now using a combination of HRT from my doctor and a post menopausal natural supplement to help me in this area of concern.  The supplement I take contains natural estrogens called phytoestrogens (mostly derived from soy beans), as well as black cohosh, dong quai, wild yam and other natural ingredients.  The supplement is for the menopausal symptoms of hot sweats, lack of lubrication, etc.  Hormone imbalance is one of the least, as far as I've seen, talked about side effects of FMS/CFS.  It is an area that I think should be addressed more thoroughly."
 
7.  I wanted to respond to the query in your recent newsletter about sex and pain and sexual desire.  I would bet that this is a problem for many of us. I felt compelled to respond because it is a "sore spot" for me lately.  As with any physical activity, there is muscle pain and fatigue afterward.  As gentle as my husband and I try to be together, you can't deny the physics.  I am a small to average size woman and he is 6'4", large framed and 245 lbs.   The bottom line is that I love my husband, but I have been avoiding sex with him because of the subsequent pain afterwards.  I know he understands.  But combine that with all the other stresses in life and it doesn't make for a solid marriage.  The longer I have this illness and the older I get (41), the less desire I have.  I feel so bad about it lately, because I know it's hurting our marriage. I know that antidepressants typically decrease desire.  I am not on a pharmaceutical antidepressant, but I do take a natural blend.  I suppose that could have the same effect.  Perhaps another reader will respond with some ideas to help.  I just wanted to offer my two cents and let others know they are not alone with this added problem."
 
8.  "I wanted to comment about this as my husband and I had a wonderful sex life before my car accident and I was diagnosed with the fibro. Our sex life was an every day thing, like taking a vitimin so to speak and it was intense and  very passionate. I have found since the accident and since getting diagnosed with fibro, my system is dryer then it used to be, now this could be from the medication that I am taking contributing to this. I sat and talked with my hubby about things he felt had changed and he said the biggest thing was his mental attitude about me, and his fear I would hurt really bad for days after. He also said that since I have had fibro, he has had to be aggressive with me, as in he gives me massages and helps me relax before sex, he takes his time making me feel comfortable and he makes sure he is very gentle with his touch. (also adding a bit of lube can help alot too) He has said that other men who have a wife with fibro should try to understand there is foreplay, so to speak before the actual foreplay and the men have to take more responsibility and time to please their wife. He  makes me feel as relaxed as possible with the massaging then after  when he thinks I am totally cvomfortable then he will get more sexual with me. I myself find his technique works wonders. My husband also commented on the fact that there are some nights when I do not seem like I want sex and to be close because I have had a painful day and those are the nights where I could use the massage and the extra attention. So communication is also most important......letting the other one know how we are feeling, it is a bit more time consuming but it can work. I do find and this is going to sound od but please bare with me as this is very personal but when he takes all the time with me and there is lots of foreplay that it takes my focus off my pain and believe it or not when I am in the middle of all the passion......I do not feel alot of pain.......but as soon as I come down off that high, I do feel the pain and it is about the same as before we started...maybe a bit better because I have made that connection with my husband again, something I had thought I had lost because of my health.I also find that some nights it is about him touching me and me touching him and satisfying each other that way , not the actual act of intercourse as those nights I cannot handle it. I guess with having fibro and a partner, you have to have a much more opened mind about sex and start experimenting with each other so you do not lose that closness sexaully. Now we have not gotten into doing it every night again but the passion is back. It takes time and patience and a gentle touch....think of it as getting to know each other again like you were dating......make it fun and different. It does help me deal with having fibro better when I don't feel like I am failing as a wife. Hope this helps someone."
 
9.  "I always had a problem with medications for the FMS (especially antidepressants, klonopin, neurontin, even some pain meds) they made me unable to climax. Wellbutrin is very helpful.  It not only increases desire but it makes it easier to climax.  I looked it up and that is a normal response with Wellbutrin."
 
10.  "I am 49 years of age.  I have spent endless amounts of money trying to relieve neck pain, mostly.  Most doctors said you do have a small problem with your neck, but it should not be causing you so much pain.  The pain perception was uncharacteristically over sensitive.  I finally found a doctor that sounded wacky but described my symptoms to a tee.  So I went to see him.  Many $$$$ later, he tells me I have an over production of adrenaline that suppresses the production of all the other hormones: estrogen, testosterone, serotonin, endorphins, thyroid and however many other hormones exist in the universe.  He told me not to get my heart rate over 130, because then I start producing more adrenaline.  He told me to have regular sex because that releases adrenaline at just the right rate.  I told the doctor that I don't feel like sex and it's painful.  He said even if I don't feel like it, it has to be done, and of course to use whatever is necessary to make it more comfortable.  But I think what has really helped the most is keeping the heart rate below 130.  Within a couple of weeks, my neck pain was gone and some of my dehydration (I am always thirsty).  I have a lot more energy, as long as I keep having sex. Anyway, I wanted to share what I found with you to see what you thought and maybe it can help others.  My family members and friends swear this doctor is a quack, but none of the other doctors, chiropractors, acupuncturists, surgeons, etc., have had no success."
 

 
46. XYREM (revisited)
 
From a reader--
 
"I started to take Xyrem [for sleep] about 1 year ago.  Within two weeks I thought that I had found a miracle.  Began to feel human again, it is amazing how a little thing called sleep can change your world.  Just BEWARE   No one told me that there are a few people who get another possibly chronic condition called oral lichen planus.  After about the 2 week I began getting these cold sores in my mouth, I never had been victim to them before.  First I asked my pharmacist and he said that he did not think that they were cold sores as we know them.  He suggested that I go to my dr.  To make a long story short.  I spoke to my   Dr, and to the orphan medical team and sure enough this condition they do believe was brought on due to the xyrem.  The orphan team suggested that I stop taking the drug. I was truly depressed.  It was the first thing that I believed had helped me in the past 4 years.  Not that this happens often,  I just am one of the lucky ones,HA-HA  but if you see unexplained sores in your mouth stop and talk to your Dr. and the team."
 
[NOTE FROM DOMINIE:  You can read more about Xyrem in previous newsletters.  Go to www.fms-help.com/newsletters.htm - Click on Search - Type in Xyrem.]
 

 
47. LEVAQUIN DESTROYED SLEEP FUNCTION
 
From a reader--
 
"I'm a 44 yr old man who has had sleep portion of my brain ruined by an antibiotic called Levaquin, kin to Cipro.  I took this drug two months ago and have been unable to sleep without aids that work at first and then stop.  I've tried Ambien, Lunesta, Limbitrol which is Amytriptyline & Benzo of some kind.  Tonight I'm trying Ativan.  I've tried all of the natural aids too and didn't do anything but kind of numb me."
 
 

 
48. LOW DOSE NALTREXONE
 
From a reader--
 
"I'm still struggling with my CFIDS. My doctor has recently prescribed for me LDN -- Low Dose Naltrexone and I just started taking that medication. She really believes that it will help and has done numerous studies for this 'off Label' medication.  I actually have been feeling weaker since I've been taking it for 3 days now and been having trouble sleeping again which is so bad for my CFS. I feel very sick this morning and I think my body is telling me to stop this med. I also have mycoplasma -- tried the antibiotic route for 8 weeks and it never helped!!  I still test positive. I think I'm stopping the Naltrexone!!!  You can look it up on line at www.lowdosenaltrexone.org." 
 
[NOTE FROM DOMINIE:  LDN is being prescribed for people with autoimmune illnesses, such as fibromyalgia and chronic fatigue syndrome, to boost their immune systems.  There are some positive comments at http://lowdosenaltrexone.org/others.htm from people with fibromyalgia who are using low dose naltrexone and improving.  I don't doubt that our immune systems are somehow involved.  I personally have had good results with an immune balancing (not boosting) powder for the past 4 years.  Without it, I barely  function.]
 

 
49. SEVERE STRESS CAN CAUSE FIBRO
 
I personally believe that fibromyalgia may be caused by mycoplasmas (mutated viruses). When a genetically predisposed person goes through severe stress or trauma--either physical (car accident or surgery), mental (job problems) or emotional (loss of family member or divorce)--that this alters the immune response and allows mycoplasmas to do their dirty work in many parts of the body, including vital areas of the brain, such as the hypothalamus, the gland that controls various body functions such as sleep, temperature regulation, endocrine (hormonal) system, etc. Dysautonomia (autonomic nervous system dysfunction) develops.
 


 
50. OVERDOSED AMERICA
 
From a reader--
 
The Broken Promise of American Medicine
 
http://www.overdosedamerica.com/
 

 
51. DRUG SAFETY
 
Check your meds--
 
http://www.fda.gov/medwatch/SAFETY/2005/apr05_quickview.htm
 

 
52. PROTECT YOUR RIGHT TO USE SUPPLEMENTS
 
From a reader--
 
www.mercola.com/2005/jul/2/codex_alert.htm (on Dr. Mercola's site)
 

 
53. FLU SHOT & FIBROMYALGIA?
 
From a reader--
 
"I too believe that viral Pneumonia reactivated my FM in 1998. After much thought, I truly believe I've had FM all my life, but not as debilitating as it is now. I functioned at a very high pace.  Before my FM showed up in full force, I had taken a flu shot a week before.  Not feeling good anyway, I had some kind of a cold, I still took the flu shot.  After that my body caught the flu or FM and Pneumonia a few days later, I was hospitalized for a week.  My doctor diagnosed me with FM and said goodbye, there's nothing I can do for you.  This past year we were hit directly with two hurricanes in Florida, and I was hospitalized again with this mysterious viral infection that attacks my respiratory system.  I thought for sure that I was going to die that time, but after 8 months, I finally recovered, only to realize that I can not stand longer than a few minutes, or go grocery shopping.  I'm bedridden.  I have FM/RA.  Last week after more testing and more doctors, I was diagnosed with Diabetes Type II (Insulin Resistant) and Neuropathy.  So now with 4 chronic diseases, I could use all the help I can get.  I just love your site www.fms-help.com and all the hard work you put into it  to help all of us who suffer with these horrific diseases.  I was denied for SSD & SSI last year and reapplied again.  I haven't heard from them yet, but I feel that gut instinct that I will be denied again.  The realization that the SSS believes that I could still do some type of work just amazed me beyond belief."
 

 
54. WOMEN FEEL MORE PAIN THAN MEN?
 
From immunesupport.com--
 
"Research Suggests Women Feel Pain More Than Men"
 
http://www.immunesupport.com/library/bulletinarticle.cfm?ID=6540
 

 
55. SAFE BEEF
 
Received this information from a friend...here's a snippet from the longer article--
 
What is Mad Cow Disease?

Dr. Petersen explained that mad cow disease is one of several prion diseases. Prions are normal proteins, which, the current thinking goes, can become misshapen and infect other prions, resulting in a disease of the nervous system that causes dementia and ultimately death. Humans who eat the nervous tissue of an animal with mad cow can develop what is called variant Cruetzfeldt-Jakob disease (vCJD).

Dr. Petersen's first suggestion is one that the French government instituted -- eliminate bone-in cuts, or meats still on the bone. The reason for this is that the cow's nervous system -- including its bone marrow -- harbors mad cow disease. When you cook meat that is on the bone, there is the possibility that marrow from the adjacent bone could contaminate the meat. For complete safety, buy the steak or the roast, but remove the meat from the bone before you cook it. 
 
As for hamburgers, there is no need to go without, says Dr. Petersen. Chopped meat is dangerous only because you rarely have a way of knowing what parts of the cow it comes from. Have a butcher grind it for you from a cut of meat, such as sirloin, that has nothing to do with the cow's nervous system.
 

 
56. KAY WALKER'S STORY
 
Kay Walker, Co-Founder of International Coalition for Wellness (ICW), is much more than just an interested party.  In September, of 1998, Kay Walker was out for a walk when her life changed in an instant.  Kay was struck by a drunk driver and suffered severe life threatening injuries. With God’s hand, Kay was able to recover from her injuries, but was left with severe Fibromyalgia. She was also left with little hope of a pain-free life. Kay and her husband John set out to prove the experts wrong, and with the help of the other coalition members, developed this amazing system. She now lives pain free and travels the US helping others with Fibromyalgia.  For further information you may visit Kay's website at or www.fibromyalgiahelp.org (this site in under construction) or email Kay at icwellness@aol.com.


57. LAURICIDIN (revisited)
 
Update from Dr. Jon Kabara since the November 2004 newsletter www.fms-help.com/November2004Page2.htm--
 
"You may be interested in www.lauricidin.com   As the discoverer of the pharmacological role of monolaurin, I may have more information than found at other sites.  While I have received testimonials from several users of Lauricidin, I need more to help convince my colleagues that it is of great benefit.
Your aid in this matter will be greatly appreciated if you can ask your readers to send me letters." - 
Prof. Dr. Jon J. Kabara JonKab@aol.com
 

 
58. CO-Q-10 FOR CFIDS
 
From Bob Ong okybob@paradise.net.nz--
 
 "I recovered completely from 18 months of debilitating CFS in March 2000. I suffered all the symptoms as clinically defined. Also during my ordeal, my brain malfunctioned with symptoms like high anxiety, suicidal depression, insomnia and negative thoughts running through my mind over and over like a 'spoilt record.' My endocrine glands were down too and my emotions went flat. Scary I tell you. It was like in limbo neither alive nor dead.  Since my full recovery, I have done much research on CFS to find out its cause and why I was cured. Now I have isolated 3 key dietary supplements that can rejuvenate our body cells for self healing. A CFS sufferer using this formula can see results within days! Yes my Q10 Formula has helped friends suffering CFS, rheumatoid arthritis and even erectile dysfunction to recover completely.  Read about it in my website www.q10formula.com.  Trust me. I've been there, that dreadful CFS dungeon if I may call it, and now I've found the key to release others and also the quickest way out."
 

 
59. SYNTHOVIAL 7
 
From a reader--
 
Interesting testimonials about hyaluronic acid helping FMS.  To read more about this subject in my previous newsletters, go to www.fms-help.com, click on SEARCH THIS SITE, then type in hyaluronic acid)--
 
http://www.hyalogic.com/testimonials.htm#joyce
 

 
60.  ELECTROMAGNETIC FIELDS INTERFERE WITH SLEEP
 
From the Fibromyalgia Coalition International (FCI) newsletter--
 
 "I had Oram Miller come to my house and evaluate the electrical fields and the magnetic fields of each room in my house. He made a lot of recommendations of which I have followed up on. It has made a lot of difference in my sleep! I am now getting 7-8 hours instead of 3 or 4 hours each night and I feel so much better. - Evelyn E., Lone Jack, MO"
 
[NOTE FROM DOMINIE:  On this same subject, see my tip #64 at www.fms-help.com/tips6.htm.]

 
61. HILLIE'S CFS STORY
 
Australian newsletter reader tells how her CFS began--
 
http://www.angelfire.com/art2/hillie/cfs/cfstory.html
 

 
62. VISUAL CONTRAST SENSITIVITY TEST
 
This website provides information on chronic human illness caused by exposure to toxins produced by living organisms (biotoxins). Many biotoxins are neurotoxins in that they adversely affect neurologic function. Registered users will be able to complete questionnaires on exposure history, medical history and current symptoms. Users can also take a vision screening test that helps determine whether or not their health problems are likely to be caused by biotoxins. Deficits on the vision test, visual contrast sensitivity, have been associated with chronic illness caused by biotoxin exposure (1-8). If the data suggest biotoxin-induced illness, users can obtain a treatment protocol that has been used to successfully treat many people. This paradigm for diagnosing and treating chronic, biotoxin-mediated illness is based on research by Ritchie C. Shoemaker, MD, and H. Kenneth Hudnell, PhD, and on the clinical experiences of Dr. Shoemaker (1-8).
 
www.chronicneurotoxins.com/
 

 
63.  DR. TEITELBAUM'S PROTOCOL
 
Recommendations for FMS/CFIDS pain, sleep problems, anxiety, etc. from the author of "From Fatigued to Fantastic"--
 
https://www.endfatigue.com/home.nsf/Basic?OpenFrameset&Frame=main_frame&SRC=Editable+Documents/About+Dr.+Teitelbaum?OpenDocument
 

 
64. ADRENAL GLANDS
 
Below are comments from two newsletter readers in response to a question about the adrenals in the July 2005 newsletter www.fms-help.com/July2005.htm--
 
Reader #1: "I've never taken adrenal supplements, however, years ago I made a study on adrenaline, anorexia, and some other drugs. I discovered that adrenaline is composed of Carbon, Hydrogen, Oxygen, and Nitrogen. These are the same components in such drugs as Caffeine, Codeine, Cocaine, Morphine, Heroin, and other opium derivatives, only the components are in different strengths in the various drugs. My conclusion was that whenever one takes one of these drugs the body reads that drug as excess adrenaline and ceases to produce adrenaline so as to adjust the amount of adrenaline in the body. Then as the drug starts to wear off and a withdrawal ensues a person goes through the discomforts of headaches and lack of energy and other symptoms because the body is still expecting that extra boost from the drug and has not yet begun to produce adequate adrenaline to fill the gap. I used to have very severe withdrawals just from missing a cup of coffee because my system is very sensitive. Everyone, healthy or otherwise, has varying sensitivities to these various drugs and any other, and great caution should be used in regard to anything that includes the use of a drug that mimics adrenaline or affects its production.  I am NOT a doctor, but these are my personal findings based on a personal study both from books and experience, as well as observations of other people who were malnourished and appeared to be on a self-induced adrenaline high."
 
Reader #2:  "ANY DRUG THAT MIMICS ADRENALINE CAN BE DANGEROUS ONCE YOU STOP THE DRUG. JUST LIKE NOSE DROPS PLACED IN YOUR NOSE FOR TOO LONG A PERIOD OF TIME CAN CAUSE THE TISSUE INSIDE TO DRY UP. ONCE YOU STOP THE NOSE DROPS THE MECHANICS INSIDE THE NOSE FORGETS HOW TO WORK SINCE YOU ARE LUBRICATING THE VALVE ARTIFICIALLY. THE BODY FORGETS HOW TO WORK BY ITSELF AND YOU CAN NOT BREATHE THROUGH YOUR NOSE. PREDNISONE IS CORTISONE. CORTISONE IS WHAT THE ADRENAL GLANDS MANUFACTURE. THE GLANDS WILL STOP PRODUCING THE CORTISONE IF YOU ARTIFICIALLY SUPPLY IT.  THERE ARE MANY DRUGS ON THE MARKET THAT YOU NEED TO BE WEANED OFF OF. WITHOUT ADRENALINE YOU CAN NOT LIVE."
 

65. FIBROMYALGIA FREEDOM HOUSE HELPING UNIVERSITY OF WASHINGTON
 
From Patricia Hendricksen patriciahendricksen@earthlink.net--
 
"Just wanted to update you on what we have been doing. Fibromyalgia Freedom House, nonprofit and public charity, has been appointed by the University of Washington Medical School to be their advisory group for the Department of Rehabilitation and the Pain Center's Fibromyalgia Research Center's newly awarded 5-year grant. Our kick-off event announcing all our plans in improving our methods of treatment...the safest way possible. Our kick-off date is October 6, 2005, 3 p.m. to however long it takes to get the ball rolling swiftly. We only have room for 35 at the Department of Rehab's conference room...so need to get reservations in while there is the chance. Call 206-362-2395 for more info.  This is a free event with the following presenters: Dr. James Robinson, MD, PhD, U of WA. Associate Professor; Joy Selak and Dr. Steven Overman, Authors of the newly published, "You Don't Look Sick," and the research team members. Audience is 1/2 filled already, consisting of 60% healthcare providers, 10% government agencies, 30% patients. Refreshments will be served. We have been waiting for years for this opportunity.....now the door is opened....The pain scale article on your site www.fms-help.com/pain.htm is going with me to the research team at our next meeting.  I will be advising the University of Washington medical team of all the great help out there...like you!"
 

 
66. PAXIL DANGERS
 
From a letter written to Ken Eutenier at www.Fibrohugs.com--
 
"I would like to let you know about a drug called PAXIL.  I just went off of it and many others at Fibrohugs have had bad results with it as well.  Violence is one such effect of withdrawal. The withdrawal symptoms, Ken, are like that of Heroin, but no Physician will tell you that. I had all the symptoms listed there but I also felt like my body was on fire, like little bugs were crawling all over me, like rats were inside my privates (I guess that was the zaps they mentioned). It was just horrific!! It takes weeks to come down from the withdrawal. I am using Benydryl to help me go off of it. Although I am rid of the drug, I am still very very sick.  I am writing to you, Ken, to ask you to let our members know the danger of this drug.  No human being should go through that. A doctor should make us aware of what a drug can do to us. But they do not do that. The pain involved in this can last for years. Just ask xxx, xxx, and xxx from Fibrohugs to name a few. I guess because I was only on it for a little under two years, my withdrawal was not as bad as theirs but it was still horrific and I can only imagine what theirs was like.  I felt I should pass this along to you so you can be aware of this drug and its dangers. One lady on the site lost her son to the drug--he committed suicide. That is what it can do. I never knew that."

To search more on Paxil, click this link:
http://www.google.ca/search?hl=en&q=paxil+warning&btnG=Search&meta
 

67. READER WITH POST POLIO SYNDROME

"I have Post Polio (PPS) which from reading your Newsletters, is very closely related to FMS. We are blessed because Dr. Richard Bruno has done extensive research into autopsie reports of polio victims since the early 1900's. In his book Understanding and treating "Post-Polio Syndrome" and Chronic Fatigue The Polio Paradox  , he reveals that the spots on the brain cannot be seen by machines until they are large enough and by then we have severe fatigue syndrome.

We have developing brain fog also. Due to an extensive injection of anesthesia over the last year, my concentration was fading fast. I changed from an optimistic attitude to a pessimistic attitude. Great concern drove me to the internet. The permanent workable positive results:

1. Protein / Carbohydrate Ratio diet of 3:4 (lost 10 lbs and blood pressure returned to normal)

2. Flaxseeds (Optimistic attitude & concentration returned to what it was before the anesthesia damage to the brain and nervous system). Flaxseeds are one of the highest foods in lignans and Omega 3 oils.

3. Fresh raw coconut (Stablized my weight on a regular diet with very little exercise due to my severe neuron damage which causes severe fatigue after short periods of walking or standing) Also, balanced my thyroid hormones to function more normally. Normal appetite returned.

4. Cilantro Chelation - a handful of cilantro leaves per day for 2 to 3 weeks (Rid my body of mercury and heavy metal poisoning. Viruses and bacteria in the body are freed by the loss of the mercury so 2 1/2 tablespoons of brown flaxseeds per day is needed to delete these viruses and bacteria.) Grind the flaxseeds with a coffee grinder or blender using an ice blade. Mix with 5 tablespoons of water or sprinkle on cold cereal, not hot) Excessive heat, oxygen, and light damage flaxseeds. Eat within 15 minutes after grinding to receive the full benefit. Keep flaxseeds in the refrigerator or freezer.

4. B.E.S.T (BioEnergetic Synchronization Technique) to keep the best possible electrical flow throughout my body.  This also corrected my shoulders and neck slump after 2 weeks of 3 times a week treatments. As my nerve flow weakens, my muscles shorten and become weaker and painful with the shortening pull on them. This treatement begins to reverse that action. Then I return every 3 to 4 weeks for a tuneup because my nerve flow gradually drops with muscle use over a period of a month.  I prefer going to a 'Master" B.E.S.T level of Doctor of Chiropractic who is in good health because if the doctor's nervous system is strong then my nervous system is helped more. http://www.morter.com/practitioner.php "


 
68. DANGEROUS DRUGS
 
DRUG RECALL - This information was sent out by Ken Eutenier from www.fibrohugs.com and called to my attention by Pattie Caprio, founder of the Million Letter Campaign www.fms-help.com/letter.htm  Please read below, because many with FMS/CFIDS are taking these!
 
1. Major Drug Recall!
2. Duragesic and the generic product WARNING.
3. Pregabalin, Report Describes Potential Problem.
4. Antidepressant Medications and the risk of suicidality.
5. Suicidality in Pediatric and Adult Patients on/off Paxil

==================================================

1. Major Drug Recall. N.J. drug maker, Able Laboratories, suspends manufacturing
operations and recalls all drugs.

New Jersey company Able Laboratories suspended manufacturing
operations and voluntary recalled all of their drug products because of the
FDA's serious concerns that they were not produced according to quality
assurance standards. It is important to note that
this recall only
applies to the drugs produced by Able Laboratories - and not to the same
drugs produced by other manufacturers. For more information, please see FDA
press release. Recalled drugs include:
Acetaminophen & codeine,
Hydrocodone bitartrate apap, Indomethacin, Naproxen Sodium,
Propoxyphene naps/apap (generic name and under the Ivax label), and Tramadol HCL
(under the Ivax label).

Download a sample patient notice at
http://www.spine.org/Forms/Able_laboratories_sample.pdf

2.  Duragesic and the generic product WARNING

FDA issued a public health advisory to alert health care
professionals,
patients and their caregivers of reports of death and other serious
side effects from overdoses of fentanyl in patients using fentanyl
transdermal (skin) patches for pain control. Deaths and overdoses
have occurred in patients using both the brand name product Duragesic and
the generic product. Some patients and health care providers may not be
fully aware of the dangers of this very strong narcotic painkiller. The
directions for using the fentanyl skin patch must be followed exactly
to prevent death or other serious side effects from overdosing with
fentanyl.

Read the MedWatch safety summary, including links to the Public
Health Advisory, Healthcare Professional and Patient Information Sheets, and
the Drug Information Page at:
http://www.fda.gov/medwatch/SAFETY/2005/safety05.htm#Fentanyl

3. Pregabalin, Report Describes Potential Problem

A report in the July Annals of Neurology describes a serious adverse
event experienced by a participant in a clinical trial that may raise
a new caution about the use of antiepileptic drugs for conditions other
than epilepsy. An elderly women enrolled in a clinical trial of
pregabalin, a new drug for the treatment of pain and seizures,
abruptly discontinued the medication and then developed neurological symptoms
including headache, confusion and hallucinations. The study's authors from
Massachusetts General Hospital (MGH) suggest that all patients
stopping antiepileptic drugs (AEDs) should do so gradually to avoid
complications of withdrawal.

Full Story: http://www.sciencedaily.com/releases/2005/07/050711015101.htm#

4. Antidepressant Medications and the risk of suicidality

FDA notified healthcare professionals about the availability of
updated Healthcare Professional and Patient Information Sheets for
antidepressant medications that were the subject of a June 30, 2005
Public Health Advisory issued about the risk of suicidality (suicidal thinking or
behaviour) in adults being treated with antidepressant medications.

Read the complete MedWatch 2005 Safety summary, including links to
the original June 30 PHA and the updated information sheets, at:
http://www.fda.gov/medwatch/SAFETY/2005/safety05.htm#antidepressant

5. Suicidality in Pediatric and Adult Patients on/off Paxil

FDA has concluded that suicidal thinking or behaviour may increase in
pediatric patients treated with any type of antidepressant,
especially early in treatment. Increases in suicidal thinking or behaviour due
to drug can be expected in about 1 out of 50 treated pediatric patients.
Note that, although paroxetine is prescribed for pediatric patients,
it is not approved by FDA for use in pediatric patients.

Full Story: http://www.fda.gov/cder/drug/InfoSheets/HCP/paroxetineHCP.htm


 
69.  SPIRITUAL UPLIFT CORNER
 
"Stepping Heavenward - One Woman's Journey Toward Godliness"
by Elizabeth Prentiss
 
This is one of my favorite books--delightful and insightful!  If you like reading diaries, you will love this amazingly candid book.  It begins when Katy is 16 and ends when she is around 80.  Cost is only $3.90 (paperback) at http://hadassahministries.spreadtheword.com/store/STWViewItem/asp/ISBN/1577483421/I/I  You can occasionally find it at your local Christian bookstore, and I was surprised that it is also available at www.walmart.com!  Then a newsletter reader wrote and she has on online Christian bookstore at http://claireconley.spreadtheword.com/store/comersus_index/asp/ReferralCode/ - she has Stepping Heavenward also.  This book must be getting popular....I also heard it read on Christian radio this month.  An elderly gentleman (83) from my church loved this book so much that he bought copies for his daughters plus two more to put in the church library!
 
Below is a description of the book:
 
"How dreadfully old I am getting! Sixteen!" So begins Stepping Heavenward by Elizabeth Prentiss, the journal-like account of a nineteenth century girl who learns, on the path to womanhood, that true happiness can be found in giving oneself for others. "This book is a treasure of both Godly and womanly wisdom told with disarming candor and humility, yet revealing a deep heart's desire to know God," says noted Christian speaker Elisabeth Elliot. "I do not hesitate to recommend it to men, who need to understand the wives they live with, and to any woman who wants to walk with God.
 

 
70. DOMINIE'S PERSONAL UPDATE
 
I have been doing SO much better this month!  As most of you know who read the newsletter, I became physically and emotionally depleted after my father's illness and death earlier this year www.fms-help.com/eulogy.htm  A doctor put me on 1/2 tablet of Lexapro which helped greatly with the crying.  I also had to take atenolol for blood pressure for awhile because there was too much adrenaline in my system from the stress.  I have been taking 1 scoop of the plain immune powder (sprinkled on cold cereal) plus Dr. Murphree's adrenal cortex (1 capsule per day) and CFS/Fibro formula (1 packet per day). This past month I have come alive again!  Thank God!  For a list of what I use and do that helps me, see www.fms-help.com/what.htm  
 
I had a friend years ago who developed a biochemical depression so bad that she couldn't barely get out of bed to take care of her 4 young children.  I understand now what a severe depression can do to your energy levels!  Zilch!  On top of the grieving for my dad, I had to move my piano business to a new location, which was nerve-racking, since I had to be out of the other place in 2 weeks.  Thankfully the Lord opened a door for me at Oak Forest Baptist Church.  They are really happy that I am there, and in addition to the 20 students I brought over, many from the church and day care are taking lessons, including the pastor and his wife!  I play the piano at Oak Forest now, since they needed a church pianist.  How God works is amazing at times!   We have a recital coming up in August that everyone is preparing for.  My students range in age from 5 to 65.
 
I want to also mention how valuable my dear husband is to me!  Without Donnie, I couldn't do what I do.  On top of his job, he does all of the housework, yardwork and grocery shopping (sorry girls, he's taken!)  I have piano teaching business, the cooking, dishes and laundry.  My dear husband helps me with all of my endeavors--he takes the pictures at piano recitals, sets up sound equipment at the Chinese Club meetings, etc.  We are there for eachother for whatever comes up in life.  What a joy!  We will soon be married 6 years.  I have had two previous marriages that failed.  Long story.  I am just glad for God's mercy and goodness.
 
Well, that's all for this month's newsletter.  May God meet all of your needs as you serve Him!
 
Yours faithfully,
 
Dominie Soo Bush

II Corinthians 1: 4 - "[God] Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God."  Visit Dominie's FMS/CFIDS Homepage at www.fms-help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought.  This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.