"I have mostly been a silent member of the Fibro newsletter group, but want you to know I have always appreciated all you do, the time you sacrifice, and the thoughts you share from your heart."

"Thank you so much for all the work you have done compiling so much helpful information! Your site www.fms-help.com has been so helpful and I love the newsletters www.fms-help.com/newsletters.htm."

"I appreciate your willingness to give, not only through your incredible newsletter, but the spirit in which you do it. I can't remember how I found you. I've kept all of your newsletters in my 'DOM' file."

"The writer of Topic #13 (Personality Change) at www.fms-help.com/071310.htm is right on the spot. The good news is the personality change is not permanent. It actually is natural reaction to what we are going through and if by chance things improve the old personality is still there and will come back. Pain and discomfort demand your attention constantly. They are like chains that have shackled you beyond discomfort and movement. If in fact if you were shackled with real chains , would you be having fun , laughing and enjoying things. No. your attention would be forced into the discomfort you are in, whether you want it or not. The problem is our “chains” are not visible. We feel them. We feel how they limit our life and demand our attention, but others can’t see them. So, instead of them concerning themselves with the miserable chains you are wrapped in, they only see the symptoms you are going through and can’t figure out why? They can’t figure out why you are not as “bubbly” as used to be. So, it is our job to explain to them best possible in word pictures what we are going through. The best way I have found explaining the pain and discomfort of CFS/FM is to explain that the symptoms demand your undivided attention, whether you want it or not. This leaves little energy and happy neurotransmitters to enjoy things, since they are used up fighting these ugly symptoms. Again, the good news is that her personality is not changing, but for now is distracted by the illness. Ones personality is pretty much set by early teens and under right circumstances it will always blossom forth."

"I am going to the Fibro center in Dallas and
the jury is still out. Every time I go back they find something else
wrong that needs to be treated (EBV, lead poisoning, hormone imbalance,
etc.). I also have mold in my house which I think could be keeping me
from getting better. I really related to the section in the newsletter
about personality changes. I have been really hating myself because I
just don't seem to care about anything and I want to. I read my Bible
and pray that the Lord will help me to care again. I feel like an empty
shell of a person and I have a 7 year old who needs me to be more than
that. My husband has been so wonderful through all this, he is the
reason I am still going at all."

"When I took my Psychology class in college I learned that our
personalities were actually fully developed at the young age of 5. In my
mind I thought it took years with life experiences to develop a
personality but my professor said no."

"In regards to the personality changes www.fms-help.com/071310.htm that can take place with our illnesses, I tend to disagree; A personality change would imply a different PERSONA...I, too, have noticed that I am not the same bubbly person I used to be; there use to be a LOT of laughter in our home ...and it is a bit quieter now. It is quite a coincidence that this dawned on me just a week or so ago, before receiving the newsletter. I use to get a kick out of all the small things; I STILL enjoy the one-liners my youngest grand daughter comes up with....I still laugh at the way the dog can "smile" and the cat thinks he is human, BUT the "KICK" is gone. These changes, in my opinion, do not come from a different personality. They come from dealing with so much pain...it is my opinion that when living with pain 24/7 (and in my case since 1995), we LOSE the laughter. Is it not most of our "complaints" in this are about having lost laughter? I don't think that constitutes a changed personality. I would like to know more what these experts describe as personality changes. PAIN takes away the lighter side of life; PAIN changes our focus.....I would imagine HUNGER would do the same....I did not go from one "type" personality to another....I simply LOST a part of myself....the lighter side. the rest of me ...whatever is left...is the same me."

"Re: www.fms-help.com/071310.htm, Topic #14 - Pain will wear a person out. Unknown to oneself, the person is actually fighting around the clock , fighting the pain. This is wearisome. Additionally, toxicity, excess bacteria load and parasites will exhaust a person. Shortage of Oxygen is another culprit. If I could recommend this person to take 2-4 teaspoonfuls of Monolaurin( to reduce parasite and bad bacteria load) , a spoonful of Ribosome, and your Oxygen drops it would help a lot. Additionally, thyroid and adrenal problems can cause exhaustion. About 4-5 drops of Nascent Iodine in the morning and adrenal glandular will help a lot. However, care must be practiced with these and be sure she is not actually suffering from shortage of these hormones. DHEA also is another substitute for adrenal hormone."

FROM DOM: I tried Monolaurin for awhile during my worst CFIDS years, but I think I kept getting sick when I took it, if I recall correctly. I also used to take DHEA, but not sure it helped. Everyone is different. We all have to experiment. The oxygen drops have done the most for me (been using them since Aug. 2009). A list of things I take currently to stay functional is at www.fms-help.com/what.htm.

Editor-in-chief of Fibromyalgia AWARE Author of the book The Complete Idiot's Guide: Fibromyalgia.

Columnist for O, the Oprah Magazine Official spokesperson of Know Fibro Life Coach

FRONTENAC HILTON HOTEL
1335 South Lindbergh Blvd., Saint Louis, Missouri 63131

"I happen to call Dr. Klimas whose clinic just opened in Miami and the charge is $900.00 for an hour and you never see the doctor just a practitioner....I'm finding more and more CFS doctors are charging so much."

"I totally understand how this person feels (www.fms-help.com/071310.htm, Topic #38). I became chronically ill when I was 22 and my life has never been the same. I was once very athletic, outgoing, and quite pretty. The diseases I suffer from have totally changed my looks and my personality. I have Fibromyalgia & Chronic Fatigue (diagnosed at 22), Polycystic Ovarian Syndrome (took almost 18 years to get properly diagnosed), which also caused me to have Diabetes, High Blood Pressure, High Cholesterol, and Thyroid Disease. When I was in high school and college, I had a very active social life. Guess I should have married the men that asked when I had the chance, but I was waiting for my “Mr. Right”! Unfortunately because of my health, I don’t think I’ll ever find him. I’ve lost most of hair from the PCOS and all the medications I have to take, can’t seem to take off the extra weight I keep putting on (even with exercise & diet) and, to be honest, I really just don’t have the energy to go out and meet new people. I’ve had a lot of people make fun of me because I'm "so quiet" or "don't ever go out with the gang after work" or "still single after all these years", but I've decided it doesn't matter what everyone else thinks of me...just what God thinks of me. I'm okay with not being in relationship, and I have family & friends that I spend time with. Life's not so bad, but I often think about how much different my life could have been if I were still healthy."

Sally - "Sure could use prayers. This cancer is a mystery. I'm having another brain MRI and PET scan Monday and will start chemo Wednesday. Very anxious about all of this and the effects on my family. God is a great God and I believe He is walking with me even at this time, and will not leave me, but a few extra prayers surely couldn't hurt!"

Susan - update on her fibro friend's daughter, Meg, a young mom who gave birth last week and had to undergo chemotherapy for leukemia immediately following delivery. Meg's husband Ryan has set up a website at www.prayersformegan.com. They determined that the type of cancer Meg has is AML/Acute Myeloid Leukemia. Her lungs seem to be responding well to the chemo.

Dom - Joni Eareckson Tada, who has been quadriplegic since age 17, is undergoing chemo for breast cancer. I just read an uplifting update from Joni at http://www.joniandfriends.org/jonis-corner. She mentioned one of my favorite hymns, "Be Still My Soul," and also an idea about "on-line missionaries" - an exciting idea, even for us fibromites!

"Yes i have tried Restful Night Essentials (www.fms-help.com/071310.htm, Topic 29) and it did not work at all for me. It actually worked as a stimulant. It gave me heart palpitations. I sent it back for a refund. Everyone is different. Here is what works for me for sleep, earthing pad on my bed, earthing pad at my computer station. I got rid of my wireless and went to cable internet access. Got rid of cordless phones and minimize time on the cell phones.Minimize EMF exposure. At night 45 min before bed 300mg 5 HTP. (Swansons brand 100mg extra strength 5htp) 1/2 hour before bed a cup of passionflower tea. Seriphos (lowers cortisol) one at 6:00pm one at 8:00pm and two just before i lay down to sleep 10:30 ish. I eat a snack at 9:00 5-6 almonds or a tsp of almond butter. IMPORTANT have a cup of milk 15 minutes before bedtime this enhances the uptake of the 5 HTP. Also, be sure to add a tablespoon of organic salt for every 8-10 glasses of water you drink. TAke additional iodine in the form of Kelp iodine daily. For more information go to www.watercure.com The 5htp will not work well if you are not hydrated properly. I am able to sleep deeply now after a very frustrating bout with insomnia. Don't give up - you will be able to sleep again!"

"Dom, If you ever come across anyone that needs support dealing with breast cancer, please know I am here if you need me to contact someone. I will be happy to help. I still have a long way to go myself, but I made a promise to help anyone along the way. - Charmaine charku47@aol.com"

FROM DOM: Charmaine is a newsletter reader who has just undergone breast cancer surgery and is starting chemotherapy and reconstructive surgery. We had a prayer request from Charmaine prior to her surgery in the newsletter at www.fms-help.com061210.htm (Topic 8): "Charmaine - "I have invasive breast cancer and am having a mastectomy on the left side a lumpectomy on the right on June 16. I am terrified due to my chronic pain of FMS, osteoarthritis and 2 bulging disks in my neck (with arthritis between them). Needless to say I take narcotics daily to control the pain so I can function. I hope they can get my pain under control after surgery. I am so afraid, I know I am in God's hands but I have never had major surgery before, the thought of possibly needing chemo also, just having the flu last year with the FMS, I thought I was dying then, the pain was so awful. I just would appreciate any prayers."

"As a three-four year sufferer and patient at Vanderbilt Medical in TN I felt that I was not making progress. Two weeks ago, I was experiencing severe abdominal pain, which I figured appendix....went to ER at another area hospital and they scanned me and decided that I would be with them for a time. First, a mass believed to start in ovaries, still awaiting one more biopsy. Many other things that would take days to tell you. One of the most unusual things tht happened however, was that I was so anemic, I took several units of blood (and will need more as chemo begins). The results of that were---my extreme spider veins are near non-existent, dr could not explain and have never seen that. Also the exploding feeling in knees and shins has diminished greatly in pain factor. Ever hear of anything like this? If any reader ever heard of blood transfusions with these changes, I would love to hear about it."

"For those who suffer with MCS, it can be quite fustrating. People do not understand us because they can not even imagine not just being unable to use chemical products such as fragrances, shampoos, skin care products, etc. Remember that our society conditions us to smell like something else. Little girls are conditioned from early child hood to be just like mommy and want to put on lotions, powders and smelly good stuff. Generations have been conditioned that these products are safe and they have no idea that the manufacturers of these products can be harmful even to those who do not suffer from MCS. They are unaware because our society and government do not tell the truth about such products, and that the use of harmful chemicals are not governed by our government. Chemicals in our care products, cleaning products, and food are laiden with harmful chemicals, but because we are a society that just doesn't know what the real deal is.

"Book: "Coping with Chronic Illness" (Neck and back pain, Migraines, Arthritis, Fibromyalgia, Chronic Fatigue, and other invisible illnesses) by H. Norman Wright and Lynn Ellis http://www.christianbook.com/coping-with-chronic-illness/h-wright/9780736927062/pd/927062."

FROM DOM: Wow! Whatta book! You can read a lot of it at the link above. These authors definitely "get it!" Would love to get this book!!!

20. TEEN WITH FMS/CFIDS

From a reader--

"I am 17 years old and have been suffering with my fibromyalgia since i was very young. The symptoms started around the time I was 12. Ever since then it's been a constant uphill battle against the pain, depression and insomnia. At times it feels like my body will just collapse at any moment and in some cases has. I have been struggling in school because of this disorder as well. I've had to miss so many school days because I was either too exhausted to wake up or I was in too much pain to move. I have been given a plethora of medication to help but as I was reading in your article they too have left me feeling hung over and sluggish....I have been told I was lazy and that I just use the so-called pain as an excuse. I just want a pain free future."

FROM DOM: I really feel for those young people who have a complicated, invisible illness. I have a page about kids and teens with fibromyalgia and chronic fatigue syndrome at www.fms-help.com/teens.htm.

21. DELAY IN RELEASE OF CFS STUDY

From a reader--

http://www.nytimes.com/2010/07/14/health/14fatigue.html?_r=1&emc=eta1

22. "UNHEARD VOICES" - TELL YOUR STORY

Forwarded from Lydia ag922@ncf.ca--

"Are you living or have you recovered from ME/CFS or FMS? How many times have you become overwhelmed with emotions you keep up inside that come from not being believed or were not being believed? You are burdened with wanting to talk and yet not wishing to sound that you are complaining or feeling sorry for yourself. There is healing in talking and you have a right to be heard. I would like to give you that opportunity.

This project has been on my mind for some time but the right opportunity never seems to present itself. However, I think that moment has now arrived. I have tentatively titled it Unheard Voices – My Story.

I would like to tell your story along with others, not only to help you but also to help those who are in a similar situation so that they would know that they too can survive and go on.   They can learn from your experiences and solutions as you can learn from theirs.

You can choose to identify yourself, stay anonymous or take on an alias in the story. I would like to disclose at least the country where you’re from as I am making this a world-wide project. We are united in coping with an illness as illness has no conscious or bias   By sharing your story, someone who has become discouraged may find the courage to go on.

If you would like to participate, please contact me and put my story in the heading. Your contact will be treated as confidential and will not be disclosed.   Please use just plain word format in your story and keep in mind that it needs to be relevant to the topic. There is no age limit.

There is no timeline on this project as of yet but if done in time I am hoping that it can be used for a fundraiser towards the cost of the 2011 IACFS/ME research and clinical conference we are hosting in September 2011 here in Ottawa."

===============

And this update a few days later--

"First of all, thank you so much for your immediate response. The outpouring has been tremendous and it will take me awhile to respond to you all. I have some suggestions to make when you are telling your story. I know you're worried about the length of your story so I suggest the following:

1. First write your story exactly as it enters your head and what you are feeling without worrying about length;
2. Once you have it all written down, give it a rest and then return to it and look it over;
3. Now, keeping in mind that it is going to be read by others, start editing it as if you are writing an article for a newspaper; and
4.. Finally submit it to me.

For parents who have children or youth who are ill or have been ill, please let your children write their story from their perspective and feelings while parents can relate their experiences and how they dealt with their children being ill.

From my own experiences in the past, I one day sat down and wrote my story. The first thing I noticed when I started is that I had a very hard time doing it. It brought back all kinds of hurts and emotions and what I thought would be a simple process of putting down my feelings turned into an emotional battleground. Once I completed my story and dealt with the feelings and losses while writing, I was later able to look at it more clearly and write a summary which I still have but haven't looked at anymore. This turned to be a healing process. I hope it will be so for you."

Lydia E. Neilson, M.S.M., Founder
Chief Executive Officer
National ME/FM Action Network
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. (613) 829-6667 Fax (613) 829-8518
E-mail: ag922@ncf.ca
Web: http://www.mefmaction.net

23. THE RECOVERY PHASE OF CFS

From a reader--

http://www.healthy.net/scr/article.aspx?Id=504

24. DERMA-MAG FOR FIBRO PAIN

Link from a reader--

http://www.magnesiumdirect.com/fibromyalgia.aspx?gclid=COPL2OSE_qICFYxU2godiXeBeA

25. OXALATES

Reader 1--

"Oxalates are presently a hot topic on the autism lists. (Certain yeast /
fungus can create oxalates.) Susan Owens is the researcher who
discovered that a low oxalate diet helped many of these children.
Fortunately, there are certain bacteria that can break down the
oxalates. Susan Owens says that VSL#3 probiotics contain a bacteria that
breaks down oxalates. However, she says that there are other bacteria
that are more efficient at this, but they aren't commercially available
at this time."

Reader 2--

"I am responding to the posts about metal tests and oxylates. I did
have what they call a provocation test or a challenge test. I went to
an environmental practitioner who gave me an IV of DMPS and EDTA. Then
for the following 8 hours I collected all of my urine in a little tub.
At the end of the eight hours I mixed the tub around and filled one
vile full. I then sent that off to Doctor's Data Lab. After finding
high amounts of mercury and cadnium I went through about twenty or so
chelation treatments going back and forth between EDTA and DMPS. This
can be very hard on the body. I am now doing oral capsules instead of
the IVs. It's less harsh and moves at a slower pace. Upon later
testing I started dumping lead.

One thing that is very important is to get your methylation cycle
function tested. To do this look at Genova Diagnostics or tests
through Dr. Amy Yasko or Dr. James Roberts. This mechanism needs to be
functioning before doing heavy metal detox. In order to get this
functioning you will need to take certain supplements like folate
(folapro), B-12, Vit C and others that will get your glutathione
levels up and aid in detox. Find a doc that knows what they are doing.
A good place to start is acam.org or aaemonline.org.

Do some research on what they are doing with autistic kids. It's the
same thing that needs to be done with FMS patients. Detox the body and
treat all infections. Infections to look for are CPN (chlamydia pneumoniae), Mycoplasmas, HHV
6, CMV, EBV, Candida, Fungi, and XMRV. There may be others as well.
Also we need to repair the GI tact.

Also important are (biofilm) treatment protocals. Once you start
treating the biofilm that surrounds infections not only will you start
dumping more metals you will also be able to effectively treat
infections. Research it.

Look at Dr Dietrich Klinghart's Protocals for metal detox. Also Dr.
Garth Nicholson, good info on infections in regards to FMS, CFS, and
GWS. Other good doctors to look into are Dr Jacob Teitelbaum, Dr Paul
Cheney, and Dr Michael Powell.

Now in response to the oxylates inquiry. I may be wrong on this one
but I suspect that Dr. Paul St. Amand's Guaifenesin Protocal may be
removing oxalic acid and/or tartaric acid from the body and/or
treating Infections. If you do your research on Guaicum you will find
that it has been used as an anti-fungal and antibiotic for hundreds of
years. Guaifenesin, in the past was used as a Gout medication as well.
I have read research that states that uric acid in Gout can be caused
by fungi. Also, I believe that Guai may help with blood and lymph
coagulation.

The Great Plains Lab has found high levels of these acids in FMS and
autism patients. These acids can derive from Candida / fungi. They can
build up in the body causing pain and all sorts of problems.

Also, what I think is interesting is that the first thing Dr. St. Amand
tells you to do is cut out all sugar and carbs. This is exactly what
you need to do with a Candida infection.

Is Dr. St Amand actually treating Candida and he doesn't know it? His
protocol is based on pure theory and if you ask him he will tell you
that Guai could be doing something else. What we do know is that where
you find mercury toxicity you will find Candida and other infections.
What I think is interesting is if you look at the symptoms of mercury
toxicity, Candida infection, and FMS they are all so similar.

What I have found in my own test results is my FMS is caused by a
genetically weak methylation cycle, toxicity, a wrecked immune system,
gastroinstestinal dysbiosis, infections- CPN and Candida,
hypothyroidism, HPA Axis and hormonal problems, and coagulation. I am
seeing great improvement once getting these issues dealt with.

Check out these links regarding CPN (chlamydia pneumoniae)--

http://www.cpnhelp.org and http://neurotalk.psychcentral.com/thread42420.html."

FROM DOM: I've mentioned Garth Nicolson, Dr. Cheney, Dr. St. Amand, guai, mercury, mycoplasmas, HHV, candida, XMRV, infections, hypothyroidism, HPA axis, etc., etc. in my newsletters and on my site www.fms-help.com in many places - try a search for these topics using the Google box at the end of this newsletter. About repairing the GI tract, the immune balancing powder helped me greatly with that for a number of years. It works in the "gut" where 80% of the immune system is located.

26. DROXIDOPA

From a reader--

http://chronicfatigue.about.com/b/2010/07/15/positive-results-reported-in-fibromyalgia-drug-trial.htm?nl=1 - new fibro drug in trial

27. BIO-CELLULAR ANALYSIS TEST

From a reader--

"Have you ever heard or reported on Bio-Cellular Analysis? I am interesting in learning if any of your readers have ever done this. This link will take you to the article and then at the bottom of the article there is a "click here" link to go to OceanLabs website where you can read more about the analysis info and cost. It's about half the cost right now on the test kit there. http://healthfreedoms.org/2010/06/23/bio-cellular-analysis-what-this-important-test-can-do-for-you."

28. DOM'S MAGAZINE ARTICLES

http://ccmusa.org/Read/Read.aspx?id=CHG20070204 - "I Couldn't Sleep"

http://www.ccmusa.org/Read/Read.aspx?id=CHG20060204 - "Religious But Lost'

29. IMPROVED STAMINA & LESS BRAIN FOG

FROM DOM: I have had a tremendous improvement in my stamina and fibro fog since
I began putting oxygen drops in my water in August 2009. (I use filtered water from my
refrigerator.) The drops raise pH to a more healthily alkaline level. You
start with just 1-2 drops in 8 oz. of water 3 times a day. Only add a drop
every several days. I use 10 drops in 16 oz. of water 3 times a day. I
began using the oxygen drops to prevent cold sores, but what
a surprise to find out that it helped me with fibro fog and exhaustion too. The oxygen drops are one
of the most important things I do for my health now. My complete list of things that help me is at
www.fms-help.com/what.htm. The drops are called Oxygen Force at
http://neveranoutbreak.com/oxygen.php?partner=FM5H1PDB. Acid causes disease
and pain. Raising the pH keeps the viruses from doing their dirty work. This site has a

book that explains it all. A little pricey, but was worth it to learn how alkalizing and oxygenating

can help you feel so much better. My husband used to say that it was like I wasn't

getting enough oxygen to my brain. I was on the verge of collapse every day.

My doc wouldn't prescribe (or even let me try) a little oxygen to see if it would

help, because he said my blood oxygen level was okay (but that didn't measure

how much oxygen my brain was receiving).

30. HAHA!

From a reader--

"I wanted to let you know that its been a rough 3 months. My computer is down. It caught a virus and, well it's acting like me when I get sick. I think it has FMS like I do.....poor thing! LOL!"

31. EXERCISE LIMITATIONS & FIBROMYALGIA

From a reader--

"I just found this site, http://arthritis-research.com/. Looks like it has about 40 fibro-related articles/studies, and it lets you access the entire article for free. Here's a link to a study that was published March 30, 2010: http://arthritis-research.com/content/12/2/R55. I was very physically active before I had fibro, and ten years later am still interested in reading about fibro and exercise. This excerpt caught my eye:

“It is important to note that even though the [exercise] group increased their mean daily steps by 54%, it only moved them… from the sedentary (<5,000 steps/day) to the low active (5,000 to 7,499 steps/day) category. Indeed, the mean steps per day at post-testing among the [exercise] participants were comparable to the mean daily steps observed in patients with progressive neuromuscular disease, and are significantly lower than other special populations such as diabetics, patients undergoing breast cancer treatment, and those with joint replacements. This suggests that, even with the initiation of [exercise], people with FM progress only to a relatively low level of physical activity. It is important to note, however, that the trajectory of the mean step count continued to rise over the 12 weeks suggesting that, had the trial continued, their physical activity may have continued to increase. It may be that people with FM require more time to eventually reach physical activity recommendations compared to persons with other chronic conditions.”

How do you like that!? AFTER increasing their activity level from sedentary to low active, these participants’ amount of exercise is STILL significantly lower than folks with diabetes, joint replacements and breast cancer treatment! If that doesn’t persuade doubters as to how disabling fibro and its accompanying limitations can be, nothing will."

32. AIR HUNGRY

From a reader--

"One of the FMS symptoms you mentioned is short-breath, air hungry. For about 6 weeks now I have a severe short breath. It gets worse when I go upstairs and when I close the windows at night, I feel that I have to stay outdoors all the time to get a decent breathing to get abundant air. I end up walking for an hour to get my cells oxygenated. But when I get inside, the same short breathing recur. I panic when I can't get enough air in my system because all our cells need oxygenated. What I first noticed in the early stages of this FMS is my finger tips and toes (my extremeties) get cold all the time. They also hurt, tingle, & numb. Even when it's warm outside, I feel cold. And now I have a hard time breathing. I appreciate any suggestions."

FROM DOM: Have you tried this Proanthenols? It helps red blood cells unclump so they can get oxygen to the brain and body tissue better. Another idea is oxygen drops, which alkalize and oxygenate the body. Check out Oxygen Force (drops you put in drinking water) at http://neveranoutbreak.com/oxygen.php?partner=FM5H1PDB. Only use one or the other, but not both! From what I understand, they may counteract eachother (one being an anti-oxidant and the other an oxygenating substance - I'm not a doc or scientist, so can't explain this further, except that I read about this somewhere). But both of these have helped me through the years with my FMS issues. The air problem could also be caused by our tendency as fibromites to feeling anxiety. I use 1/2 mg. of Lorazepam (generic ativan) once in the afternoon and once in the middle of the night. One other thing that helped me with breathing was a lung formula after my horrible bout with toxic mold where I worked in 2004-2005 www.fms-help.com/mold.htm. About feeling cold even when it's warm, that is another strange symptom I've also experienced with FMS/CFIDS. I mean, teeth chattering and under 5 blankets when the inside thermometer read 75. It felt like 35 to me. Our hypothalamus gland in the brain is messed up, even being attacked by a virus or otherwise malfunctioning. I haven't had this horrible feeling for a long time, but remember several mega-incidences in years past.

33. INSUFFICIENT OXYGEN IN MUSCLES

From a reader--

"This pdf is interesting. If I’m reading it correctly, it’s all about people with fibro not having enough oxygen in their muscle tissue. I can’t figure out who wrote this piece or what year it was written, or even if it’s been published - http://www.bioenergy.com/pdf/mf/sl/Fibromyalgia%20%28FMS%29%20&%20Chronic%20Fatigue%20Syndrome%20%28CFS%29/Ribose%20in%20Fibromyalgia%200505%20Revised.pdf."

34. DOM'S UPDATE

I'm doing fairly well. I'm not cured, just managed. To me, "cured" means you don't need meds or supplements to help you live a fairly normal life. A list of things that are keeping me functional is at www.fms-help.com/what.htm. After 28 years with FMS/CFIDS, I am glad to have an improved quality of life and less suffering. I teach piano at a school of music www.fms-help.com/students.htm and play the piano/organ at my church. I am grateful to God for these blessings. Some days I feel and function better than others. On difficult days, God has to really take over, because I have no strength in myself. As the apostle Paul said, "When I am weak, then am I strong." (II Corinthians 12:10) Seems like a paradox. I am thankful for the level of wellness I have now, compared to the horrible suffering and debilitation of years past. I found something that got me pain free in 1996, after 14 years of severe fibro pain, but still have other challenges associated with FMS/CFIDS. My fibromyalgia story is at www.fms-help.com/fibro.htm. My CFIDS story is at www.fms-help.com/fatigue.htm. My insomnia story is at www.fms-help.com/insomnia.htm. I have 100 Tips for Coping at www.fms-help.com/tips.htm. Also - check out the many supportive and fascinating articles about FMS/CFIDS on my homepage www.fms-help.com, especially if you have a skeptic in your life.

Dominie Bush

dombush@bellsouth.net

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II Corinthians 1: 4 - "Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God." Visit Dominie's FMS/CFIDS Homepage at www.fms- help.com for Fibromyalgia and Chronic Fatigue Syndrome sufferers and their families.

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Dominie's Favorites: Alkalizing Drops Antioxidants Colloidal Silver DMSO DNA Protector & Immune Booster Essential Oils (Sponsor #905788) Immune Balancing Shake Nutritional Powder Omega 3's Oxygen Drops Protein Powder Stress Tablets Supplements (cold-processed, highly bio-available) Questions? Write dombush@bellsouth.net

DOMINIE'S FIBROMYALGIA & CHRONIC FATIGUE SYNDROME HOMEPAGE

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DISCLAIMER: I am not a medical doctor. I am a fibromyalgia / chronic fatigue syndrome survivor. The purpose of this website is not to diagnose or cure any disease or malady, but is presented as food for thought. This information cannot take the place of professional medical advice. Any attempt to diagnose and treat an illness should come under the direction of a physician. No guarantees are made regarding any of the information in this website.