DOM'S
NEWSLETTER
"Bear ye
one another's burdens and so fulfill the law of Christ." Galatians
6:2
October 11,
2007
A compassionate
informative newsletter for people with fibromyalgia (FMS), chronic fatigue
immune dysfunction syndrome (CFIDS), myalgic encephalomyelitis (M.E.) and other
neuro-endocrine-immune disorders.
TOPICS ARE IN PURPLE. MY COMMENTS ARE IN
TEAL.
Don't
miss--
#7 WATER
AEROBICS BACKFIRED - I can
relate
#9 LYME
TREATMENT CAUSED BIG TROUBLE -
reader needs advice
#10 SPOONS STORY
- why we need the newsletter
#24 CHRISTIAN PAIN MANAGEMENT GROUP
- new support
group
#25 INHERITED PROTEIN DEFICIENCY CAUSING FMS?
- free
test
#26 DOM'S UPDATE
- no fatigue or fog since June
5
1. READERS
WRITE
"I have just found your
fantastic website www.fms-help.com. Thank you, thank you
for all the info and for sharing your experiences."
"I always appreciate your newsletter, and it has been a necessary part of
the search for answers."
"Thanks for all of your good info in your newsletters.
Big hugs for all your work for us!"
"Your website is so
helpful...so God given!"
"Thanks for a great
newsletter and all the work you do."
"Your website is
excellent."
"Thank you for your life-saving (mine) work. I read your
website to remind myself that I am not in this
alone."
"You do so much for us with your great
newsletter; I always learn something new with each
issue!"
2.
QUESTION ABOUT DR. DRYLAND AND MIRAPEX
"My rheumatologist has not heard of
Mirapex used for Fibro, only RLS (which I am already taking it
for). Just started reading a book called The Fibromyalgia Solution
by Dr. David Dryland [see
www.fms-help.com/073007.htm (#11) and www.fms-help.com/080407.htm (#19)] and it really seems to make
sense. Have you or your readers had any success with
it? I am already using Mirapex for RLS at .25 mg. I would
like to find out if anyone has experienced relief from fibro using the higher
dosage he refers to - none of my doctors have ever heard of it. So far,
this year alone, I have had reactions and/or severe side effects to 11 different
meds, ranging from cough medicine to anti-depressants. I think my body has
become ultra-sensitive and at least the Mirapex is a drug I am already
using. My depression has
deepened as I have fought both my Disability Insurance Company and Social
Security, as I have not been able work in 3 years and have used up most of my
retirement funds. - Jeannie"
3. EFFEXOR
EXPERIENCE
From a
reader--
"I was put onto Effexor last October by my
doctor for Fibro. It took away
the back pain I have suffered for for 21
years, to a large extent, but
gave me so many other side effects: weight
gain of 10 pounds, despite
being on diet constantly; hot-cold flushes and
sweats, all day; very bad
constipation. I do not remember the mood I
was in but the first 21 days
I wanted to jump off the nearest bridge.
My doctor kept telling me to
"hang in there"... The weight gain was so
frightening I swelled up to
10 lb more than what I had been at full term in
pregnancy... I
eventually decided to come off it - and got a huge
shock - the
side-effects of coming off it were frightening - major
dizzziness and
electric shocks in the head every time I just moved my
eyeballs to the
left or right... It took me 4 months to come off the drug,
mg by mg. I
have been scared off antidepressants for life...
Since April I have been off it
completely (it took a further 2 months for
the electric shocks to end).
The back pain came back in full force but I am
glad not to be on
chemicals. I warned my doctor to tell people how
hard it was to come
off those pills. I was on 150mg a day at the height of
it.
I'm now trying homeopathic medicine; no changes after 2 months but
apparently it takes a while. Unfortunately my insomnia is still very bad
and I am forced to take sleeping pills every night in order to get
enough sleep to carry out my very stressful and pressurised
job."
4. FIBRO
CONTAGIOUS?
From a
reader--
"I
am reading your newsletter for this month www.fms-help.com/100207.htm and have come to
#6-“Fibro Hereditary?”
I don’t know whether it is hereditary or not, but has
anyone done any study or considered it contagious? The reason I am asking is
because mine progressed from a case of mono. Being that it is related to mono, which
is a virus, maybe the fibro is also stemmed from a virus, meaning it might also
be contagious. I never
knew of anyone who had it, nor does anyone in my family have it now, but I had
been dating a man whose mother had it.
I never met her, but I spent significant time with my boyfriend, and he
was actually living with his mother to take care of her as she was unable to
work. I just thought it was strange
that I didn’t have it, nor did I know of anyone else who had it until I started
dating him. So ever since then I’ve
wondered and had the suspicion that it was contagious. This would explain why different members
of families all have fibro, without being scientifically proven that it is
hereditary. I can also rule out the
question, “then wouldn’t your family members have it too?” Not necessarily, because I rarely see my
family. I think in order for it to
be contagious, there would have to be close and/or intimate contact—not
necessarily sexual—similar to mono. Just a thought….and I would be interested to read about studies or your
readers thoughts relating to this."
5. DOM'S PUBLISHED
INSOMNIA STORY
From a
reader--
"Allow me to congratulate you on being
published...both for your individual accomplishment, which is very impressive
but, also, for the help and understanding that "fibromites" might gain by your
having been published by a magazine who's readership may also lend their support
and understanding to us. Bravo! Thank you so much for
being such an inspiration and warrior for our collective
cause."
If you would like a
copy of this inspirational magazine with my story, "I Couldn't Sleep," please
write me dombush@bellsouth.net. The publisher will send this issue free of charge
anywhere in the world.
6. THE NEW
CFL BULBS & FIBRO
From a
reader--
"Would like information from
you and your readers as to the tolerance of CFL bulbs. I was going to do my part
to help the environment and change all my lightbulbs over to CFL's. Then I read
an article that they and any type of flourescent lighting cause problems for
people with fibromyalgia. It has been awhile since I have worked in an office so
I do not know if this would make things worse for me. Have you gotten any
feedback on this issue?"
7. WATER
AEROBICS BACKFIRED
"I HAD SIGNED UP FOR WATER AEROBICS WHICH MY
DOCTOR [ACTUALLY ALL MY DOCTORS HAVE] KEPT PUSHING ME TO EXERCISE. I HAVE BEEN
TOLD THAT IF I WILL ONLY GO ON A DIET AND EERCISE AND LOSE WEIGHT ALL MY PAIN
WILL GO AWAY. I AM IN MY 4TH WEEK AND I HAVE HAD SEVERE PAIN
INCREASE AFTER EACH SESSION EVEN THOUGH I DO LESS REPS THAN EVERYONE
ELSE AND DO NOT USE THE "WEIGHTS" THEY USE. ALSO I SPEND THE REST OF MY
TIME IN BED DUE TO FATIGUE FOR TRYING TO DO THIS TWICE A WEEK.
NOW I AM HAVING AN ALLERGIC REACTION TO THE CHEMICALS IN THE
POOL. SO THAT IS THE STRAW THAT HAS BROKE MY BACK IN THIS. I GAVE IT MY
BEST SHOT AND MY DOCTOR CAN GO TAKE A LONG WALK OFF A SHORT PIER SOMEWHERE THAT
IS SHARK INFESTED!!!!!!"
I'm not
surprised. This is what happens to a lot of fibromites who try this upon
the recommendations of their doctors and friends. Although it sounds like
a good idea, graded exercise does not help many (most) people with
FMS/CFIDS--often makes it worse. (Christina's story reminds me of when I
tried joining gyms to workout - even mildly - and ended up in much worse shape
than before I started!)
8.
PREDNISONE SIDE EFFECTS
From a
reader--
"This is a response to # 19 in the most recent newsletter
www.fms-help.com/100207.htm. True,
Prednisone is used for inflammation. Wonder if the writer is aware of the
nasty side effects (esp. on the dose she takes)?? Is she aware that
Prednisone masks other illnesses? Not saying she or anyone else should not take the drug, but caveats
are certainly in order. Since I have Addison's Disease, I must take Cortef
(much milder than Prednisone) to stay alive. Within two years of steroid
taking, I developed cataracts & osteoporosis, which are known side effects
of these medications. In addition, blood pressure increased
considerably. Worse, once low blood glucose numbers soared. Yes,
Diabetes Mellitus/Sugar Diabetes is another horrid side effect to
consider. If Dr. "N" is in his 80s, he must be
aware of the dangers of Prednisone. A high sed rate could indicate MANY,
MANY illnesses. Masking the pain with Prednisone is not only dangerous but
could be considered neglect on the part of a physician. Weight gain is
likely the least of a plethora of side effects. The writer may want to ask questions of Dr. "N" &/or read the
insert which comes with her medications. A google search of "Prednisone
side effects" may cause her to rethink this treatment."
As my doc told me years ago when I
begged for refills of Prednisone to relieve fibro pain: "Prednisone is short
term magic, long term tragic."
9. LYME TREATMENT CAUSED BIG TROUBLE
"I'm 45 years old and started suffering from
FMS
9 years ago about 6 months after a whiplash accident. I discovered alot
of
what's on your website www.fms-help.com through trial and
error. It took me 2 years to get
to a point where I felt mostly well
again using the blood type organic
whole foods diet, exercise, and moducare
sterinol. I decided to take a
break after many years on the moducare
since I suffered from anxiety and
heart
palpitations and was concerned that might be the cause ... then
a
year ago all hell broke loose with new symptoms... optic
neuritis/neuropathy
with vision loss in right eye, extreme light-headedness,
insomnia, eye
pain in both eyes. IGENX lyme test was positive (but not according to
CDC
criteria).
I went down the lyme path using Dr. Zhang out
of NYC chinese
herbs. After 8 months on zhang combined with 2 months on
buhner herbal
lyme protocol all hell broke loose this past
summer. Major nervous system
issues: balance, muscles jerking /
twitching, jerky movements ( i almost
couldn't type), extrememe brain fog to
the point of nausea, electrical
sensations, insominia....numbness in arms at
night. I thought I it was MS
since my gait is also
affected. Thank god I tested negative for that. I'm
still
hesitant to go down the lyme abx route until I talk to someone who
was
successfully treated with long term abx. I'm worried about
wrecking my
system since I've been so careful for so many years and
worried about long
term effects of strong abx and antiviral
drugs. I've always been a
sensitive person. I can't find many
succss stories out there for chronic
late lyme with long term abx. I wish
there was a definite test for lyme,
but there isn't.
Do you
know anyone with a history of FMS, that then developed eye issues or
other
neuro symptoms and went on to get successful lyme treatment
with
remission? I've read that even some with FMS/CFS respond
to antibiotics,
so I really wonder if this is chronic lyme.... or just a
different course of
FMS. I'm also considering hyperbaric oxygen since that
seems to help
many with Lyme or FMS.
Sorry to unload.. the worsening of symptoms so late and loss of my
vision
has me scared after I thought I was building health for the past 8
years."
10.
SPOONS STORY
This is great!
From a reader--
"A holy man was having a conversation with
the Lord one day and said,
"Lord, I would like to know what Heaven and
Hell are like."
The Lord led the holy man to two
doors.
He opened one of the doors and the holy man looked in. In
the
middle of the room was a large round table. In the middle of
the
table was a large pot of stew, which smelled delicious and
made
the holy man's mouth water.
The people sitting around
the table were thin and sickly. They
appeared to be famished. They were
holding spoons with very long
handles that were strapped to their arms
and each found it
possible to reach into the pot of stew and take a
spoonful.
But because the handle was longer than their arms, they could
not
get the spoons back into their mouths.
The holy man
shuddered at the sight of their misery and
suffering.
The Lord said, "You have seen
Hell."
They went to the next room and opened the door. It was
exactly
the same as the first one. There was the large round table
with
the large pot of stew which made the holy man's mouth water.
The
people were equipped with the same long-handled spoons, but
here
the people were well nourished and plump, laughing and
talking.
The holy man said, "I don't understand."
"It
is simple," said the Lord.
"It requires but one skill. You see
they have learned to feed
each other, while the greedy think only of
themselves."
When Jesus died on the cross, he was thinking
of you.
Remember that I will always share my spoon with
you."
11. HELEN FOUNDATION
- MESA, AZ
"Do you know of anyone who has experienced relief from
fibromyalgia, etc. that received treatment from the Helen Foundation in Mesa,
AZ? I attended their seminar here in Knoxville last night: I was
quite impressed and am hopeful it could work for me. Thought you'd have
heard from someone that has or is being currently treated by them. -
Brenda"
12. DOES
TOOTH LOSS LEAD TO MENTAL DECLINE OR VICE VERSA?
13.
CHRISTIAN MEDITATION CD'S
From a
reader--
"I wondered if you have ever tried Rhonda
Jones Christian Meditation CDs? I love the one on stress and toxic
emotions. Her website is www.thechristianmeditator.com. I
also recently purchased a book on breath prayers by Kathleen Lewis which has
helped me tremendously. She is a devotional writer for Rest Ministries www.restministries.org and suffers
from a potentially fatal form of Lupus."
14. BED
DREAD
Reader
1--
"Researchers realized that the sleep
disorder seems to be the key issue for fibro. Unfortunately, they also
realized that treatment has to be very individualized, no two
patients can follow the same regimen of treatment."
Reader
2--
"I suffer with fibromyalgia. I am
managing the condition up to a point but feel my immune system is totally out of
balance. I also have dreadful trouble sleeping and see bedtime as the
enemy."
15.
PSORIASIS & FIBRO GENETIC LINK?
From a
reader--
"When I first developed fibro, and finally
found out what I had, I did some research on it, in 1995. Some of the doctors
like Dr. Starlanyl and associates, had researched family histories of
sufferers. They believe it is linked to psoriasis genetically, and that
the predisposition to either or both disorders is inherited. I found out by
asking others who were diagnosed with fibro, that they too had family members
with psoriasis and/ or fibro. It's easier to find out about the psoriasis in
past generations, as fibro was not diagnosed very often if at all in previous
generations."
16.
AMBASSADOR'S WIFE BECOMES FIBROMYALGIA SPOKESPERSON
17.
FUNGUS, GOOD BACTERIA & BIRTHING PROCESS
From a
reader--
"I want to share a couple things I learned
from watching programs about fungus problems, candida, etc. Doug Kaufmann, host
of Know The Cause, says your body can't make uric acid. Fungus makes uric
acid. What does that say about gout? Also, the article about Fibro
and could it be hereditary. I have heard more than once that babies being born to mother's with no good bacteria in their
intestines, of course, can't pass any good bacteria along to the baby. The
baby picks up almost all it's good bacteria when it comes through the birth
canal. On the skin, through the nose and mouth, etc. (Where
does this leave the millions of babies being born C-section?) This good
bacteria protects the baby from all kinds of problems from birth on up.
Think of all the problems babies and toddlers have nowadays, compared to
40 or 50 yrs ago. With no good bacteria being passed along through the
generations, maybe that explains why it may seem hereditary. My
grandmother, my mother, my brothers and sisters, my children, my
grandchilden all have simular problems that are related to Fibro, CFS, MS, etc.
Could it be that grandma didn't pass any good bacteria along and so through the
generations all of my family is sick? Is this a coincidence or is fungus the
culprit? I think the latter. Starve the fungus with diet, kill the fungus
with anti-fungals and replace the good bacteria and maybe the next generation
will have healthy babies. If I would have had this info that I am
passing along to you, when my children were born, maybe they would be well
now instead of so sick. This is definitely food for thought."
18.
FIBRO SYMPTOMS GONE WITH GUAI PROTOCOL
From a
reader--
"I was diagnosed with Fibro three years ago. I was
put on the guaifenesin protocol by Dr. St. Amand and I have
seen an almost 100% reversal. I had chronic bladder infections
and incontinence. My urologist had put me on permanent
prophylactic antibiotics they were so bad. After a few months on the
protocol my infections were gone. I haven't had another
infection in three years. I know longer have to wear a Depends
pad.
I have seen dramatic results in other areas as
well. I used to be so sensitive to light that if I so
much as looked out the window without sunglasses I would get a blinding
headache. Now I can actually manage to drive without
sunglasses.
I also use to toss and turn all night long, now
I sleep soundly.
I used to be so irritable, feeling like I wanted to
crawl out of my skin. I was constantly yelling and my family. Now,
I am like a new person.
According to the doctor, Fibro is a metabolic
disorder. People with Fibro are unable to metabolize
phosphates. The protocol binds to these phosphates in our body
and helps them to be excreted. With being on the Protocol you can
reverse all of the damage from the Fibromyalgia.
I urge you and all of your readers to visit
the Fibromyalgia website http://www.fibromyalgiatreatment.com. There is ALOT of useful info on that site. Dr.
St. Amand has been at the forefront of discovering a blood test. His
research in cooperation with the city of hope is being submitted to medical
journals now. My family and I all participated in the gene
study."
This is indeed good news! I
have heard from many people over the years who tried Dr. St. Amand's guai
protocol with varying success - either it helped a lot or did not help.
Seems to be the case with most things we try for fibro relief. I was
especially impressed that this reader can now sleep soundly! I have
addressed Dr. St. Amand and the guai protocol in numerous places on my
site. You can use the Google search box at the end of this newsletter to
find these discussions. The guai protocol is difficult to follow - here's a
list of salicylates to avoid while on guai: http://www.fibromyalgiatreatment.com/GuaiProtocol.htm.
Personally, without going through all this trouble, I am doing great - no
pain, fatigue or fog since June 5, 2007 thanks to 3 new things my husband
encouraged me to try. Much of my problem for the last few years was
related to mold exposure at my workplace in 2005. However, now I have no
more sunlight sensitivity, travel fatigue, etc. I feel normal now,
for which I am very thankful! See #2, 3 and 21 at www.fms-help.com/what.htm about
the 3 things that have helped me so much. My only remaining
difficulty is the sleep disorder (40 years duration). However,
if I manage my sleep meds properly, I can sleep at night, but sure wish it
were natural sleep. My insomnia story is at www.fms-help.com/insomnia.htm.
19.
INSPIRATION
When I say, "I am a
Christian," I'm not shouting, "I've been saved!"
I'm whispering, "I
get lost! That's why I chose this way"
When I say, "I am a
Christian," I don't speak with human pride
I'm confessing that I
stumble--needing God to be my guide
When I say, "I am a
Christian," I'm not trying to be strong
I'm professing that I'm weak
and pray for strength to carry on
When I say, "I am a Christian," I'm
not bragging of success
I'm admitting that I've failed and cannot ever pay
the debt
When I say, "I am a Christian," I don't think I know it
all
I submit to my confusion asking humbly to be taught
When I say,
"I am a Christian," I'm not claiming to be perfect
My flaws are far too
visible but God believes I'm worth it
When I say, "I am a
Christian," I still feel the sting of pain
I have my share of
heartache which is why I seek His name
When I say, "I am a
Christian," I do not wish to judge
I have no authority--I only know
I'm loved.
20. STRESS
HORMONES
"I am
extremely stressed all the time, not just regular stress, but extreme stress
that feels like constant anxiety, almost torturous. My life has been
very, very stressful and traumatic, I am almost 49, and although I've done so
much healing in so many ways -- detoxing, eating super healthy, cured
lyme disease, chronic fatigue and mercury poisoning, and also use two
forms of energy healing which have helped, I am still in constant pain
and rarely feel any level of comfort and have major difficulty sleeping.
I've been taking anxiety meds to sleep for over a year e.g. klonopin or
atavan. I also had a sleep study done several years ago and have sleep
apnea. I am aware of the relationship between toxins and good health,
and pain for us with fibromyalgia. I do everything I can to
eliminate toxins, but this is the first I heard of wheatgrass "pills" possibly
helping sleep. I drink wheatgrass when I can get it fresh and take tons
of greens. However my hormones were completely thrown off by the lyme
disease and still have not recovered. It takes the pituitary a long time
to function properly again. DOES ANYONE KNOW ANY
OTHER TIPS OF REDUCING STRESS HORMONES? HOW CAN WE
REGULATE ADENISONE TO BE AT THE PROPER LEVELS DURING THE DAY AND AT NIGHT TO
ASSIST IN SLEEP?
- Lori"
My
doc had me on a low dose of atenolol - not for blood pressure, but to reduce
adrenaline in my body. I was able to stop taking it since finding a
stress formula on June 5 that helps me so much.
21. SOAP FOR
LEG CRAMPS
From a
reader--
"Here’s a little inexpensive
help for your readers with leg cramps. My grandmother told me about this
and it works for her, as well as many others in my family. She told me
that if you put a bar of soap under your bottom sheet of your bed, near where
you have cramping in your legs, it is supposed to relieve the pain associated
with the cramping. She said that any bar soap other than Dove or Dial
would work. I normally sleep with an exercise belt around my waist to
help with back support while I sleep. Last night I placed a bar of Irish
Spring between the belt and my sleep shirt, and it did relieve a lot of the
back pain that I normally have during the night, and today I have no back
pain. It sounds too weird and funny not to be true, and it doesn’t hurt
to at least try it. She read three magazine articles to me, where people
have given their testimony of it working for them. It is inexpensive,
and if it doesn’t work for your readers, they can always use the soap in the
shower. Update: I’ve been using the “soap under the sheets” for a
week now, and I have to say that there is improvement in my leg pain during
the night, and also during the day. The people who I’ve heard who have
done this have done it for years, with decreased leg cramping and
pain."
Now I've heard it
all, but if could help, why not try it?
22. HAIR LOSS &
FIBRO
Reader 1--
"Just when you think that there isn't anyplace on your
body that fibro has not hit....think again. I went to the dermotologist
today because I have a small bald spot on my head. I
have alopecia oreata. This is an infection(?) that hits
people with autoimmune diseases like fibro. It can spread...stress makes
it spread more; or stay the same or go away. I had 4 shots of cortisone
in my head today and then a cortisone cream and go back in one month.
When I told the doctor that I had fibro she said that was the most likely
cause."
Reader 2--
"I had alopecia oreata and lost almost all my hair when
I was 26.
It never really came back. I did not lose it in spots, I lost it
all over,
legs arms etc. I had months of cortisone
injections in my head and my
face. I was a mess and the scaring
on my face is unreal from it.
Now they claim the injections may affect your
eyesight later on in
years. My eyes are now getting
bad."
23. PAIN MED
PROHIBITION
From a reader--
24. CHRISTIAN
PAIN MANAGEMENT GROUP
"My name is Teresa Dearinger. I am
sending an invitation and welcoming all of you who suffer
with FM and CFS to a brand new Christian Faith Based site on Revolution Health
- http://www.revolutionhealth.com/groups/christian-pain-managment-group.
We will have great topics with a twist in comparison to other
sights as we are called “Christian Pain Management.” God has made
us triune beings as we are spirit, soul and live in a body. This site is
to help the total person spiritually, mentally and emotionally not just the
physical alone! Christian Pain
Management is for those who serve the Lord and desire the freedom to share the
scriptures that have pulled you through, praise reports, special prayer
requests, along with encouragement in the faith. Share
your experiences of FM and know that as a Christian you will find hope for the
whole man at Christian Pain Management! When drowning in guilt,
loneliness, fear or depression, we need a word in due
season."
25. INHERITED PROTEIN DEFICIENCY
CAUSING FMS? - FREE TEST
From a
reader--
"I have some great info related to health test that
can be done for a genetic defieciency that prohealth had on their web page
they sent out today. It was in the research
window and was headed up with the title .....Proposal that FM patients be
tested for protein deficiency.
I have a number where they
are doing research on this and you can get the test kit and they will do
the test FREE confidentially so that if per se it did
come back positive it would not haunt you on insurance and your ability to get
a job down the line.
The number to order the test is toll free
1-877-886-2383. It's a valid way to test for this and again it is free and all
confidential.
This problem (do a search) is alot more common than alot
of genetic issues, at least common that you could be a carrier, and this is
important if you have children and if not you rule it out for yourself.
I was interested in it because last time I have a liver check done my liver
enzymes were high.
26. DOM'S UPDATE
I
continue to feel well since June 5 - no fatigue or fog. I'm still
pinching myself to see if it's true! Is this really
me??
A
list of things I'm using is at www.fms-help.com/what.htm.
It's been over 4 months now since I began using 3 supplements that my
husband encouraged me to try. One takes oxygen to my brain and cells, the other I call my "rocket fuel" because it gives me sustained energy and stamina, as well as detoxifies. The third one is for stress, which helps my nervous system calm down. My life is so much easier
now! See my newsletter archives www.fms-help.com/newsletters.htm to
read "Dom's Updates" from past issues. It's hard to believe I was so
debilitated! Things have sure changed.
I
am really enjoying my music teaching www.fms-help.com/students.htm now
and my life in general. However, my dear husband
is afraid to breathe a sigh of relief -- he doesn't want my life to come
crashing down again.
The only thing still bugging me is my sleep
disorder, but after 40 years of battling insomnia www.fms-help.com/insomnia.htm,
I think I have to live with it. I'm very thankful for sleep meds
that work okay for me www.fms-help.com/sleep.htm,
although I still long for REAL natural sleep! I am very fortunate to
have a job where I teach afternoons and evenings only. I simply cannot
do mornings because of my undependable sleep
patterns.
As
far as my travel issues go, I haven't traveled anywhere since my "recovery" on
June 5, except to go 51 miles to see my mother, but I think I am good now for
a short trip somewhere. The main problem would be attempting to sleep in
a strange bed like in a motel or at a friend or relative's house. (I
have a hard enough time trying to sleep in my own bed at home!) But all
the other travel problems I was having are gone now, such as collapsing
from the motion of the car, the light sensitivity, etc. I can
travel around town with no problems at all. I even go to places like the
mall (with its distracting sights and sounds), crowded Wal-Mart and noisy Best
Buy (my husband's favorite place to "window
shop.")
Cooking and household tasks are a breeze now
too! I'm just buzzing around the house taking care of things like a
normal person. How easy it is to make dinner when you have energy
and mental clarity and aren't stumbling around the kitchen on the verge of
mental and physical collapse! See the interesting article from
Australia on my site called "Drained by the Brain" www.fms-help.com/yuppie.htm -
did that ever describe me! I'm so glad to have my
energy, stamina and mental alertness back and to be
a functioning human being
again!
Til next time,
Dominie
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DISCLAIMER: I am not a medical doctor. I
am a fibromyalgia/chronic fatigue syndrome survivor. The purpose of this website
is not to diagnose or cure any disease or malady, but is presented as food for
thought. This information cannot take the place of professional medical
advice. Any attempt to diagnose and treat an illness should come under the
direction of a physician. No guarantees are made regarding any of the
information in this website.
I continue to feel well since June 5 - no fatigue or fog. I'm still pinching myself to see if it's true! Is this really me??A list of things I'm using is at www.fms-help.com/what.htm. It's been over 4 months now since I began using 3 supplements that my husband encouraged me to try. One takes oxygen to my brain and cells, the other I call my "rocket fuel" because it gives me sustained energy and stamina, as well as detoxifies. The third one is for stress, which helps my nervous system calm down. My life is so much easier now! See my newsletter archives www.fms-help.com/newsletters.htm to read "Dom's Updates" from past issues. It's hard to believe I was so debilitated! Things have sure changed.I am really enjoying my music teaching www.fms-help.com/students.htm now and my life in general. However, my dear husband is afraid to breathe a sigh of relief -- he doesn't want my life to come crashing down again.The only thing still bugging me is my sleep disorder, but after 40 years of battling insomnia www.fms-help.com/insomnia.htm, I think I have to live with it. I'm very thankful for sleep meds that work okay for me www.fms-help.com/sleep.htm, although I still long for REAL natural sleep! I am very fortunate to have a job where I teach afternoons and evenings only. I simply cannot do mornings because of my undependable sleep patterns.As far as my travel issues go, I haven't traveled anywhere since my "recovery" on June 5, except to go 51 miles to see my mother, but I think I am good now for a short trip somewhere. The main problem would be attempting to sleep in a strange bed like in a motel or at a friend or relative's house. (I have a hard enough time trying to sleep in my own bed at home!) But all the other travel problems I was having are gone now, such as collapsing from the motion of the car, the light sensitivity, etc. I can travel around town with no problems at all. I even go to places like the mall (with its distracting sights and sounds), crowded Wal-Mart and noisy Best Buy (my husband's favorite place to "window shop.")Cooking and household tasks are a breeze now too! I'm just buzzing around the house taking care of things like a normal person. How easy it is to make dinner when you have energy and mental clarity and aren't stumbling around the kitchen on the verge of mental and physical collapse! See the interesting article from Australia on my site called "Drained by the Brain" www.fms-help.com/yuppie.htm - did that ever describe me! I'm so glad to have my energy, stamina and mental alertness back and to be a functioning human being again!
Dominie